TRILEPTAL Reviews (OXCARBAZEPINE)

Average Rating: 3.1 (368 Ratings)

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 Type: Rx Drug

  

TRILEPTAL  (OXCARBAZEPINE):  Oxcarbazepine is used alone or with other medications to treat seizure disorders (epilepsy).   FDA Approval Date: 2000-01-14 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on TRILEPTAL: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR TRILEPTALCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  bipolar weight gain, loss of concentration, unmotivated (very hard to get going), constipation, fatigue This medication did help with my anger outbursts but the crappy feeling i had in general (side effects) wasnt worth it. I would have to watch everything i put in my mouth to reprevent weight gain. If i had more then 800 calories a day i would start to put on weight, it was awful. The unmotivated "blah" type feeling and fatigue was horrible too. Too bad because it did really help with my temper. M 34 8 months
6/19/2008
 3  Post Traumatic Stress Disorder Enormous weight gain: 30lbs in just one year. Constant fatigue, all day. Inability to concentrate. The drug really did help with my PTSD symptoms. It stabilized my mood and reduced my nightmares. But now the side effects have gotten to be too much. It's not worth it now. I've taken it for a year and a half, so perhaps, I can get off it now without relapsing. F 30 1.5 years
6/18/2008
 3  Bipolar 1 Really bad cystic acne, numb tongue, horrible cravings, weight gain Trileptal made me feel normal again. I feel happy, focused and energetic. Unfortunately the cystic acne has gotten so bad, I always feel like someone took a hammer to my face because I'm in so much pain. It looks terrible and everyone notices. I also can't stop eating! I never drank soda but suddenly I need it. I didn't touch meat for 10 years, but suddenly the cravings were so horrible, I had to eat meat. I ate 2 cupcakes and 7 cookies in one day. Considering I was a health nut before, this behavior is extremely unusual. I am gaining weight very quickly. Though I do like my mood and my ability to process emotions properly, I'm in too much physical pain due to the cystic acne. It's unfortunate. F 26 4 weeks
5/5/2008
 2  post herpetic neuralgia dizziness, weight gain, double vision, blurred vision, puffiness in cheeks and face, tiredness, side effects out weigh the benefits F 13 4.5 months
4/19/2008
 3  Bipolar II Dizziness, memory problems, weight gain, fatigue,confusion, slow thinking, have been diagnosed with pre-osteo which is a side effect of med, was tested before meds and no pre-osteo. I have great concerns about the Osteo side effect as it is not known whether even if you go off the meds, the damage is done. Meds have helped BP, but I feel that I pay a great cost in my health and quality of life. F 50 6 days
4/18/2008
 5  Bi-Polar II None Awesome; I was easily and irrationally irritated all through childhood, with cyclical, explosive outbursts that I barely remembered afterwards. I got a "rush" off of negative behavior and was in and out of adolescent institutions. I had periods of "racing thoughts", where everything seemed to move too fast and too loud. My teachers kept telling I was ADHD, yet three rounds of physician ordered testing (at 3 years, 12 years, and 15 years of age)showed that I was not. Finally, my fourth or fifth couselor noted the "cycles" of my rage behavior. I was now 15-years old and no-one else had ever noted this before. He recommended a doctor who specialized in the treatment of bi-polar teens and adults. I took Zoloft for approximately one month, until it stopped working. I then tried Depakote, but had "break-through" behavior on and off the two years I was on it. Then my doc tried me on Trileptal when I was about 17. It took a while to find the appropriate M 23 6 years
4/9/2008
 4  Epilepsy, Bipolar, RLS Weight Gain, facial puffiness,abdominal weight gain, acne, bad drunken feeling after taking, lip numbness, fatique, voracious appetite about an hour after taking This has been a great drug for my epilepsy & restless leg syndrome, cannot sleep without it! I still wake during the night though. My psychiatrist says it doesnt make me gain weight, my family Dr says its a main culprit. Good med for mood stabilization. I get plenty of exercise, still the weight gain & swelling. F 44 2 years
4/9/2008
 5  Bipolar II Blurred vision, insomnia, acid reflux, slight brain fog Awesome drug for me! I've tried nearly every med out there for bipolar and either they don't work or have unbearable side-effects. I'm a rapid cycler and for the past few months I have been on a rage, irritable, and angry, not to mention negative, emotional, and over-reacting to mundane things. The Trileptal helped immediately. I'm on a very low dose, 150 mg. as I'm very sensitive to meds, and it has been a true godsend. I'm not gaining weight, and although I've stated a few annoying side-effects it's nothing compared to the way I was. I wasn't living, I was existing. It's saved my life. F 50 2 weeks
3/27/2008
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 4  Seizure. None. But the doctor did notify me that being a woman, I need to take a Folic Acid tablet to make sure that in the future, I will be able to reproduce. Trileptal has been a very helpful drug for me. Seizure free for 4 years, and counting. F 15 4 days
3/23/2008
 4  Bi-Polar 2 (cyclothalmic) Severe & terrible smelling gas, diarrhea, exzema-like skin rash on legs, inconsistent but extreme high-drunk symptoms, motor-balance problems, manic spikes, carb cravings, markedly decreased memory & mental fuzziness, increase of ADD symtoms, sexual mania. Currently taking 1575 mg PD, 975@PM before bed and 600@AM. After untreated BP2 w/borderline traits for over 40 years I started taking Trileptal about 2.5 years ago. Positive results immediately but pattern developed: After several months I would crash into a depression & have to up the dose. Now on 1575 mg PD. At about 1200 I was good as far as having relatively no side effects, but still had cyclical bi-polar swings. At that level stools were regular each morn, though quite loose (but no diarrhea). W/ increased dosages I would follow same pattern: Somewhat manic w/lots of energy & clarity at first, then a slide downward into depression. All along I have many nights of waking up at about 4am w/racing thoughts. MD says this indicates dose is not high enough. Trileptal has changed my life for the better in so many ways, but side effects w/ increased doses are bad, esp. the gas & skin rash. Have to take higher dose at PM because it helps w/ sleep some nights, but mainly becaus M 51 2 days
3/17/2008
 4  bipolar word-finding problems,coordination, muscle twitching, RLS, swelling underarms, memory loss i'm on extremely low dosage but it still helps. i hate taking meds and had reaction to Lamictal, the best thing i've ever taken! this is ok, but the weight gain is depressing me. why do they give you something to stabilize depression when it makes you gain weight? F 53 1 years
3/6/2008
 1  bipolar II disorder HIVES and PETECHAIE (red, pinpoint dots all over) 48 hrs after starting very low dose. I've stopped it and am on a wk of prednisone. This is the 3rd time I've tried this med during the past 8 yrs. Good ex of how you can become sensitived to a drug once, stop it, and have an allergic reaction on a 2nd or 3rd trial much later. F 58 2 days
3/4/2008
 5  bipolar/adhd/ptsd none noted;I sleep alot but i can't say it is the trileptal I think it is the abilify I take. has helped alot with mania and confusion also anxiety F 52 1.5 years
2/14/2008
 3  mood stabilizer, anxiety fatigue (no matter how much i sleep i'm still tired), brain fog, grasping for words, memory loss, chapped lips? it helped stabilize my mood to some extent, though not completely. i'm still in college though so the potential cognitive side effects don't seem worth it. M 23 30 days
1/26/2008
 5  Bipolar Absolutely no weight gain at all, in fact Ive lost weight. Insomnia some nights, memory loss, and no sex drive. F 31 1 years
1/23/2008
 5  Bipolar mania hair falling out a little but nothing serious, memory problems Trileptal was given to me because I was on Geodon and Lamictal and still having trouble with mania. He decided on Trileptal because it has the least side effects. It started working in only 5 days. Im now on 600 mg in the morning and 600 mg at night and it is a great drug for me. I no longer take the Lamictal since it gave me a rash. I havent had any weight gain either, and have actually lost weight while on it. A great drug for mania. F 29 5 months
1/18/2008
 5  Grand mal seizures Weight gain and fatigue My son had a grad mal seizure in the middle of the night while sleeping. He was put on trileptal and gained a large amount of weight and a bloated stomach. He becomes VERY tired after taking it. So he takes it right before bed. M 6 1 years
1/18/2008
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 5  Bipolar I & Poly Substance Abuse I take 2100 mg which is a high dose. If I take it too close together I get dizzy and double vision. But, I have learned when to take it. It makes me calm 1 hr. after taking which I welcome. I had fifteen years of deabilitating drug use. The last eight were shooting heroin. Two weeks after reaching 1800mg I simply quit heroin (yes I had to detox) and two months later all drugs except alcohol which I most never drink anyway. It has been 5 years and I have not gone back. TRILEPTAL filled the hole I was trying to fill with HEROIN M 37 6 times
1/12/2008
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 4  mood stabilizer forgetfulness, ...sleepyness at first but that went away ..... At too high a dosage: brain chattering and won't be quiet. This is the greatest mood stabilizer for me. I was on Neurontin for a few years and blew up like a balloon and couldn't leave the house without my name tag on (sarcasim).

Tried Topomax and didn't agree with me.

Trileptal just plain works. I take 1/2 tablet am and 1/2 tablet afternoon. Otherwise I get too sleepy if I don't break it up. I also take Effexor XR.

F 41 2 years
1/2/2008
 2  Bipolar II, Panic Disorder Develped drug-induced Hepatatis. F 50 6 weeks
1/2/2008

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