TRILEPTAL Reviews (OXCARBAZEPINE)Average Rating: 3.1 (368 Ratings)Filter ResultsCompare TRILEPTAL with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on TRILEPTAL: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TRILEPTAL | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | Epileptic seizures | :2 daily doses 900mg &1200mg Fatigue, sleepiness, lethargy-all severe. IBS, Low sodium levels, causing craving for salt. Very poor concentration and short/long-term memory. Skin sensitivity, especially to sunlight. Also have problems reacting to high and low temperatures, cannot control body heat and don't sweat as much as used to. My hair has lost it's curl, apparently to do with hair follicles changing shape, happens with lot of medication. | Major symptom is the tiredness, no matter which word I use it can be described as debilitating. I am currently in a wheelchair if I leave the house and cannot push it myself-I'm too scared about having a seizure to use a mobility scooter. I ahve managed to control my sleep so that I have 8-9hours at night and 2-3hours in the afternoon, only if absolutely necessary.I have a strict sugar free/yeast free diet to control the IBS and it works to a certain point. The low sodium means that I drink less water/tea than I would like, it's either that or have a seizure due to excessively low sodium. I have never been able to go out to work or even study or work from home, initially from the seizures, but now from the tiredness. Doing very little and spending most of my day in bed or on the sofa is the norm and I will get dressed at weekends and go out with my husband for a couple of hours. I have given Oxcarbazepine 5 stars because it has very nearly totally controlled my severe convulsive seizures | F | 36 | 10 years 2100mg 1X day | 2/14/2012 Patient History | 1 | Bipolar | My son was on 600 mg in the evening and 150 in the morning when the Dr increased it to 600 in the morning and 600 at night he became very aggressive felt like he was going crazy and extremely hyper | M | 15 | 4 months 600 2X day | 1/15/2012 | 1 | bipolar 1 | Awful side effects hallucinations, lethargy, confusion, slurred speech | M | 45 | 2 weeks 300mg | 12/16/2011 | 1 | Bipolar II | Drowsiness, tiredness, depression, severe lack of motivation, lethargy | I did not like this medication at all. I hade been taking Lamictal before this, however I had to stop due to the severe side effects I experienced (unfortunate! Lamictal worked so well). While I was not completely stable when I first went on Trileptal, my instability became increasingly worse over the month that I was on this medicine. By the end of the month I was so depressed and lethargic I could barely make it to school. On the other hand, Trileptal did not cause any other side effects besides the severe drowsiness. I am also on 2mg Abilify, 100mg Wellbutrin, and 30mg Adderall XR. I was also taking 25mg Lamictal while I was on the Trileptal, however I've since had to stop taking the Lamictal, again, due to side effects. | F | 18 | 25 days 150 mg 1X day | 12/5/2011 | 1 | Tonic-Clonic Seizures | Twitching right eye, trouble focusing, memory loss, loss of appetite, tingling sensation in face, stability problems, vertigo, trouble remembering what I was doing 2 seconds ago, lack of social interest and sex drive, trouble sleeping, anxiety and/or impatience, nervousness, trouble accomplishing any task, new-found ability to move one eye indepently of the other, occassional "zoning" out for the first 6 or so hours after taking a dose, when I'm zoning out one eye tends to cross while the other stays normal | Generic Oxcarbazepine is the only anti-epileptic medicine I've taken except for dilantin (which was a temporary fix from ER doctor). So, I don't have a lot of experience in the matter. Also, I don't really remember but I think the side effects got MUCH worse when my dosage was raised from 450mg to 600mg | M | 30 | 7 months 600mg 2X day | 11/6/2011 | 2 | meningioma causing partial seizures | Cannot concentrate, blurred vision and twitching eye. Vertigo and brain is misty. Can not remember peoples names or what they said 3 seconds ago. Lack of libido and get very anxious. oh and have trouble with itchy rashes. | I hate to think of the long term side effects of this drug | M | 42 | 90 days 150mg 1X day | 10/8/2011 | 2 | Complex Partial Seizures | Anxiety, OCD, Sleepy, Blurry, Post Nasal Drip, and Bi Polar | I've been taking Trileptal since I was 15. I have horrible OCD. Ever since I raised it to 1200mg twice a day I've had this horrible post nasal drip. I've never had post nasal drip before after I raised it to 1200mg. I can't wait to see an ENT. I'm mad all the time. I can sleep for hours all day and it makes me stay up all night long. Everytime I take it I'm blurry and dizzy. I feel like even though I'll eventually get off this medicine these side effects may be permanent and my doctor won't even care. I've even lowered the trileptal to 900mg in the morning and the post nasal drip didn't even go away. I'm just so sick of it all. | F | 27 | 12 years 1200mg 2X day | 8/30/2011 | 4 | Seizure | Constipation, post nasal drip due to inflammed nasal passages (not related to allergies-I never had any before), urinary retention, I feel intoxicated if I take it on an empty stomach, inability to find the right word, slight tremors, barely noticable facial ticks, off balance when I first wake up, sometimes it's difficult to concentrate, occasional insomnia. | The constipation has been the worst! I'm taking a prescription laxative b/c nothing else is working at this point. The post nasal drip gives me a terrible cough. An ear/nose/throat Dr. said that my nasal tissue is very swollen & that it could be due to either the seizure or the medication, I have to take another medication to deal with that. Recently I have been experiencing what has been diagnosed as urinary retention. I'm not able to completely empty my bladder. The other side effects are merely annoying. When I first started the drug I felt stoned each time I took it, now I only feel that way when I take it on an empty stomach. On the occasions I do feel intoxicated I also experience dry mouth & lips. | F | 39 | 1 years 600 mg 2X day | 7/28/2011 | 2 | Mood disorder | Vertigo, dizziness... probably should not have been driving, due to poor judgement. Itchy skin, face breakouts, lazy, tired. | Started at 300 mg. gradually increased to 1200. Not happy at all with how I felt. I just knew it was not a good drug to have in my system, and we know our bodies better than anyone else knows them. I am down to one 300 mg tab at bedtime with a 50 mg Trazodone for sleep. I am content with how I feel, and could probably drop this dose eventually. I started taking a wonderful multi-vitamin for my moods and am sold. No more mood medications for me. | F | 44 | 2 months 300 4X day | 7/18/2011 | 1 | Bipolar II | Loss of libido, terrible upset stomach, nausea, diarrhea, start of an ulcer, ringing in my ears interfered with audio, numerous vision problems including feeling cross eyed, blurry vision and seeing spots in front of my eyes, deep pitted acne. Worst side effect: I became so suicidal I went shopping for a gun. | I got worse rather than better on Trileptal. I would not recommend it to anyone. I was in a car accident while on Triptal. I wrecked my car and totaled it. I was too loopy on Trileptal to be driving. I was taking 200 mg 3x a day when I wrecked my car. Previously, I have been hospitalized for suicidal ideation, but that experience was not as bad as being on Trileptal. Trileptal made me obsess over how to kill myself and not get caught or stopped. I became suicidal very, very quickly on this drug. If you want to kill someone secretly give them this med in their juice or smoothie and before you know it....they will attempt to kill themselves. | F | 47 | 5 months 200-600mg 1X day | 7/8/2011 | 1 | Bipolar II | Loss of libido, terrible upset stomach, nausea, diarrhea, start of an ulcer, ringing in my ears interfered with audio, numerous vision problems including feeling cross eyed, blurry vision and seeing spots in front of my eyes, deep pitted acne. Worst side effect: I became so suicidal I went shopping for a gun. | I got worse rather than better on Trileptal. I would not recommend it to anyone. I was in a car accident while on Triptal. I wrecked my car and totaled it. I was too loopy on Trileptal to be driving. I was taking 200 mg 3x a day when I wrecked my car. Previously, I have been hospitalized for suicidal ideation, but that experience was not as bad as being on Trileptal. Trileptal made me obsess over how to kill myself and not get caught or stopped. I became suicidal very, very quickly on this drug. If you want to kill someone secretly give them this med in their juice or smoothie and before you know it....they will attempt to kill themselves. | F | 47 | 5 months 200-600mg 1X day | 7/7/2011 | 1 | Bipolar I | Thought it was withdrawal from Effexor. Nausea, Blurred vision, sexual impotence, heightened anxiety, exhaustion. These side effects are still present 4 months later. Now I know it's the trileptal. | Almost went to Pysch Hospital about 5 times now due to extreme anxiety. Never had this anxiety on anything else. Quit taking it today. Started smoking again after quitting for 9 months. My doctor told me to keep taking it but I am going to stay on Wellbutrin and Ripserdone only. I'm using some amino acids-just basics like shakes. Can't wait to feel better soon. | 40 | 4 months 600mg 2X day | 7/4/2011 | 3 | temporal lobe epilepsy | Nausea, indigestion, sleepy, darkened urine and decreased frequency, water retention/swelling, skin burning, (felt like had a sunburn) and reddened. | Started at 150 mg, but didn't develop urinary and skin problems until increased to 300 mg. The medication pamphlet I received said the urinary problems were very serious. Would have loved to stay on this but couldn't with side effects. On the plus side it leveled out my moods. | F | 28 | 2 weeks 300 2X day | 6/29/2011 | 5 | my son has seizures. he takes it | my son is 3 and has been on it since oct. 2010 and he is very tired after taking it, and now he is having a side effect from it, its causing him to have hand tremors. | he actually takes 5ml in the morning and 6ml at bed time. and he takes this medicine at the same time every day! that is very important!! this medicine has worked so well for him! his seizure decreased tremendously once they got the dosage right! | M | 3 | 5mL 2X day | 5/29/2011 | 4 | Complex partial/generalized seizure | Tiredness, weight gain, depression, blurred vision, sensitivity to sunlight,stomach sensitivity.Side effects have been worsening since switching to generic. | Helpful in controlling seizures(nocturnal).Was on name brand initially, but cannot afford them now and have been on generic for 6 months.Put on weight, depressed and lack of motivation.Want to lay around.Never feel like I've had enough sleep.Pretty bleak when you are the sole support of your family.Have to live on pots of coffee throughout the day.But I do not have seizures which is a fair trade off I suppose.Thank you Folgers. | F | 42 | 5 years 600 MG 2X day | 5/19/2011 | 2 | depression | weird dreams,extreme mental slowness, hard to carry out conversation, still depressed | 900mg at night, 150 in am. when first started experienced bad nausea(has resolved) and concentration problems (which has only gotten worse). | F | 33 | 9 months 1050mg 1X day | 5/18/2011 | 1 | partial Complex epilepsy | blurred/double vision, weakness, fatigue, startled, sleepy, cramps, tingling in mouth/ numb lips, dry eyes | Great to control my seizures at first but will be switching off next week. | F | 22 | 6 months 375mg 2X day | 5/9/2011 | 1 | Bi-Polar | I have all of a sudden developed serious nausea with unbelievable headaches | F | 46 | 2 days 40mg 1X day | 5/7/2011 | 4 | Simple Partial Seizures | None at all. | Since I started taking this drug I am seizure free. It’s only been a month, but I would usually have had at least 1 or 2 seizures in that amount of time. I hope it stays that way. One down side to this drug is the price if you do not have insurance. I only pay $5 for a month’s worth right now, but when I lose my health insurance in a few months it will be $175 dollars a month. | M | 25 | 4 weeks 300mg 2X day | 4/26/2011 | 4 | seizures | major fatigue | I have been taking trileptal for about six months now, and i have been seizure free but after being on a dose of 300mg twice a day my neurologist had me double it. After about three to four weeks of taking 600mg twice a day I couldn't even function for a whole week....I wasn't able to work or do anything productive. Just the simple task of straightening my hair in the morning made me have to sit down and rest. So I ended up just going back to taking 300mg twice a day and I have been back to normal. Other than that week of major fatigue trileptal has been great to me. | F | 24 | 6 months 300 2X day | 4/6/2011 |