TRILEPTAL Reviews (OXCARBAZEPINE)Average Rating: 3.1 (368 Ratings)Filter ResultsCompare TRILEPTAL with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on TRILEPTAL: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TRILEPTAL | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | Bipolar | headache, bloody nose, pimples, tremors, slow thoughts, no concentration, blurry eyes | started at 150 mg for 2 weeks at bedtime & had blurred vision for about an hour after waking and had headaches for about the same upon waking for the first 4 days. Transitioned to 300 mg after 2 weeks with no differences occuring. after 1 month, tried to increase to 300mg at bedtime & 150mg upon waking. That is when I got the tremors, slow thought process & inability to concentrate. | M | 40 | 1 months 300 MG 1X day | 4/3/2011 | 1 | Bipolar I | nausea, dizziness, light-headed, my skin itched but there was no visible rash; body aches starting on the 4th day, throbbing headaches, sleeplessness | The side effects came on slowly and compounded until it got to be too much to handle. By the 6th day I was lying in bed with a bucket wishing to vomit so that maybe I would feel better. I felt so terrible that I took a pregnancy test. It was negative, but I have NEVER been that nauseated, not even when pregnant. Everything felt like it was spinning. I was dizzy even with my eyes closed. I will never swallow one of these pills again. | F | 32 | 6 days 300mg 2X day | 3/12/2011 | 1 | Bipolar 2 | constant headache, constant and woresening dizziness, cross-eyed, vertigo, etc. etc. etc. etc. | This is BY FAR the WORST MEDICATION I have ever been on for bipolar and I have gone through most of them. It should be BANNED by the FDA. DO NOT TAKE THIS!!! I think I am permanetly brain damaged thanks to this drug... | F | 54 | 3 weeks 600 1X day | 3/8/2011 | 3 | complex partial seizures | TIRED! I could sleep 10 - 14hrs a day, dizzy, feeling off-balance like I'm falling, feeling drugged,high, or drunk. Inability to find the "right" word, memory loss, dry itchy skin, blurred vision, constipation, emotionless (don't get angry or happy), acne. Sex drive has not been affected. Also, I don't care for alcohol anymore..weird, but I've noticed one drink feels like 2, 2 drinks feel like 4, etc. | Started low at 150mg 2x's per day. Side effects lasted 3 months, then finally leveled out and gone by 6 months. Doc just increased me to 300mg 2x's per day. Back to the old side effects again. I have always been active, gym 5 days a week, extreme sports. 4.0 graduate in comp science, technology field. Now I am a total drag, cant spell C-A-T, too tired to get dressed and leave my house, and did i take my meds this morning..? memory is terrible. Trileptal has controlled my seizures 100%, so I'm hoping side effects level out soon. BTW, I see comments about weight gain. Trileptal can drop sodium levels, and your body could be craving salt, which may be translated into those wild urges for Pepperoni Pizza or Super Nachos Supreme:-) I have been adding salt to my meals, and it's kept down my cravings to "munch out" a lot more...not sure if it's all 'in my head', but I've not put on any weight...Lost weight actually (without the gym). Drink LOTS of water on this medication, include lots of fiber in your diet, and ladies take folic acid supplements. I'll see how things look 6 months from now. | F | 36 | 8 months 300 mg 2X day | 2/22/2011 | 5 | Brain Bleeds which lead to surgery | When I first started on Trileptal it was really hard. The tiredness, lack of sex drive, dry skin, mouth, and eyes as well as weight gain (I've worked out for over 26 years). | I was first put on Lamictal but had an allergic reaction, so they put me on Trileptal. My initial dosage was 1200 mg a day but as the years went by I've been able to slowly scale back and have not had a seizure since before my surgery (2006). I just finished an ambulatory eeg and I'm waiting to see if I can come off the drugs all together. If not, my dosage is pretty low now and that is something I can continue to live with since all of my side effects have gone. | F | 51 | 4 years 150mg 2X day | 1/26/2011 | 4 | Some fatigue,libido lower | This med has not pooped out on me as so many others have. It is, along with lamictal, the best med for me! Grateful to have found this med. I notice also that I have no desire to drink alcohol. I wish that I found this med 20 years ago. | M | 47 | 4 months 900 2X day | 1/25/2011 | 3 | seizures | In the afternoon i take me dosage right after dinner and it immediatly kicks in and makes me feel drunk and my mouth go numb, probably does not help that i chew tobacco right after a meal either. double vision also kicks in about the same time. | so far i am seizure free and i hope it stays this way. | M | 19 | 1 months 900 2X day | 1/19/2011 | 1 | severe depression | horrible drug. side effects immediately were dry mouth, fatigue, twitching of my eye, lips, tongue, arms and legs. The tip of my tongue and my lips were constantly tingling to the point they got numb. the last night I took it, it gave me an asthma attack, then after tending to that I felt like I was having a heart attack. it felt like my blood was hurting as it ran thru my veins. Then I threw up for 6 hours straight. the next day I couldn't move at all my muscles hurt so much. horrible drug don't take it. there are better options out there. that episode was scary as I've had a heart attack before and it was very similar feeling. | my quack doctor started me off on this drug at 1800mgs. you are supposed to start at 150-300mg tops. he also started me at double the dose of wellbutrin after he took one day to wean me off Lexapro. not sure if this added to the episode I had from Trileptal. | F | 28 | 5 days 1800mg 1X day | 12/30/2010 | 4 | bipolar ptsd | forgot to mention the unfortunate sexual side-effects decreased libido. also i tried to go to 1200 but seems that 900mgs is better for me. i take 300 in am and 600 pm. also the price of this med is almost 200 bucks a month. i have no insurance. still it is worth it! | M | 47 | 900 1X day | 12/28/2010 Patient History | 5 | bipolar II | first few days, was almost knocked out by sedative effect, but cleared up within 3 days - made me drowsy, dizzy when standing up, sometimes I lose my balance, and have trouble finding the right words. | drowsy cleared up completely when I started taking 1,000 mg of Vitamin D daily. All the other effects got significantly better at 6 months -- now on it for 11 months and it's like a miracle -- I feel like myself again -- no more raging anger or spending sprees. Thank god for Trileptal. | F | 42 | 1 years 300 mg 2X day | 11/14/2010 | 3 | Seizures | Severe depression, joint pain, weight gain, memory loss, confusion, serious loss of D vitamins, fluxuating blood pressure. | Be sure to have your doctor check your vitamin D levels. Normal is 30-100, mine was 7 after taking Trileptal. Now on prescription-strength vitamin D supplements. Was extremely confused, had difficult time understanding instructions or doing simple tasks. Gained 30 lbs in 4 months. Depression was severe. Joint pain remained after being removed from Trileptal (didn't have any before trileptal). Beginning to think the arthritis-like joint pain is permanent. | 50 | 4 months 750mg 2X day | 10/16/2010 | 5 | Bipolar II | Drowsiness, cross-eyed feeling, slight weight gain | I've been on several anti-anxiety, anti-depressant, anti-seizure medications and this is BY FAR the BEST!! I had to adjust the amount of mg taken at each dose, but finally found that if i take 300 mg 4x a day, its just the right amount to work and yet not too far between doses to have side effects of my bipolar to come back. Since the medication comes out of your system pretty fast, i can feel a difference after only 5 hours and I know i need another dose. But Trileptal works wonderfully for me. It takes away the moodiness, the angry feelings and all other lows. I dont feel like a zombie and I feel happy when i take it properly!! I know I will probably be on it the rest of my life, but i'm ok with that. :) | F | 36 | 11 months 300 4X day | 8/24/2010 | 5 | bipolar | numbness of lips and fingertips. While I do have constipation and dizziness and weight gain, I am on quite a few other medications for other conditions and some of those other side effects also apply to these other meds I am on. (some are for heart stuff and for my chronic cluster headaches. | Without it I am a raving angry paranoid lunatic. This medication helped me more than I can say. I am SO happy to be on it and I thank God that they make something that helps me so much. | F | 43 | 2.5 years 1200 2X day | 7/29/2010 | 4 | Rapid Cycling Bipolar Disorder | I have some side effects just started takeing it loss of memory cant spell nothing anymore stomach problems | I have been on just about every Bipolar Med I am very sensitive to medication took Risperdal dont remember two months of my life.Lithum stopped working and I tried to kill my self when takeing Depakote. Trileptal has some annoying side effects but I laugh more now. Anger has decreased I no longer hit the walls I am not up to dose but this drug is seeming so far to give me my life back.......... | F | 29 | 2 weeks 300mg 2X day | 7/20/2010 | 5 | Anxiety and Panic Disorders | Chronic headaches | I was taking Topamax at a very low dose and was confused a lot and my feet were falling asleep so my doctor put me on Trileptal. It seems to be working well. One of my anxiety/panic points has been driving in the car. Since I started this med, I have been driving a lot more and on the highway. Additionally, I can go out and do things with my family without being afraid of freaking out. Since I can't take anti-depressants (I am allergic) mood stabilizers are about the only thing I can take. I am happy with this - I haven't taken Xanax for 6 weeks and that in itself makes me very happy. I have had a chronic headache for the last few weeks, but I also have migraines so I figure change in meds is a good reason for it. | F | 39 | 2 months 150 MG 2X day | 7/18/2010 | 5 | complex partial seizures | weight gain, acne, reduced vitamin D, progesterone and sodium levels in my system, although these conditions were easily treatable with supplements and salty foods. also, some dizziness at first, but that went away. | this drug has kept me seizure free for 10 years with only subtle long term side effects. it's worth it. all the side effects can be counteracted with minimal effort. I recommend you supplement with vitamin D if on this drug and if female have hormone levels checked regularly. if you gain weight like I did, I have found I can keep my weight down by significantly increasing the amount of vegetables in my meals. not sure if it's the fiber or nutrients. I gained 35 pounds ( I was skinny though) over 3 years but lost 20 of those when I began eating better. The weight gain didn't return. | M | 44 | 10 years 600 mg 2X day | 7/12/2010 | 4 | Borderline personality dis. | back then when i first started..i had tremors..memory loss..trouble speaking..dehydration in eyes..slow reaction to things..confusion..laziness..mild lethargy..but im very laid back due to this. Its not that i have no emotion..its that i have little reaction to conversations and events. | Just remember..this IS an epileptic medication..im getting into the END field and i know that if u are on a high dose and ur in a hurry to get off..u WILL have seizures..be sure to have ur prescriptions filled ON TIME. I had incidents where i ran out of trileptal and i took 1,200 mg per day and i blacked out 3 times in 15 minutes before school and rushed to hospital. I shook and shook then fell then got up and couldnt talk for a minute cuz i was in some state of shock. It was very scary. Do not start on a high dose either. Dont let TREMORS scare u..its usually normal with meds. This is a med u need to be patient with but it has helped me alot considering ive been on it so long. Its good to combine with an antidepressant as well like wellbutrin. I am NOT epileptic and i still had seizures during withdrawls. This medication acts/was meant for seizures but has its other purposes. Just remember to be careful. This doesnt have serious long term effects like an antipsychotic would. Thanks :] | F | 20 | 7 years 600 mg 2X day | 7/11/2010 | 3 | atypical trigeminal neuralgia | Controlled pain well but have a pretty bad rash on left forearm, not as bad on right. Ithes like crazy and looks terrible. Have had some lightheadiness or feeling like I'm falling. Often can't seem to find the words I want to say. Some memory problems. Have a lot of twitching in my fingers and hands, makes tasks like typing difficult. | I was diagnosed with atypical trigeminal neuralgia on Mar. of this year after about a month of severe pain in the left side of my face, my temple, forehead, cheek, upper teeth, roof of mouth and eye. No matter what I tried I could get no relief. I went to my doctor who refered me to a ENT who refered me to a Neurologist who prescribed oxcarbazepine. I started out on 150 mg twice a day for a week, then increased to 300 mg for the second week and finally 300 mg twice a day. Controlled pain very well but after about a month developed a rash, mostly on left arm. Looks and feels like lizard skin and itches a lot. Doctor took me off trileptal June 10 (gradually) and started me on Lyrica. Some side effects gone or reduced but rash still bad. Can't wait to see what surprizes new med has. Overall if it were not for the rash I would still take trileptal. Does anyone know if exposure to the sun causes a rash to develop while taking trileptal or any other drug, like Lyrica? | M | 57 | 70 days 300 2X day | 6/17/2010 | 3 | BiPolar | Zombie feeling (if I have feelings) Horrible thought possessing (great for college students), Tiredness but yet insomnia, and now a general grumpy mood VS. the happy or sad me. Its a toss up lol. | I stated it at a psych hosp after a history several single and combo med attempts to manage my BP. Trileptal and ECT where last on the list. To me, by now I would have gone with the ECT. So for mood-stab. Its seems just like Lamictal, which I am back on in combination with this. | M | 19 | 4 weeks 600 MG 2X day | 5/30/2010 | 5 | epileptic | Drugged up feeling, tired | Im 25 & was diagnosed with epilepsy when i was 17. i get grand-mal siezures so i have 2 take meds for the rest of my life. Yes this medication does make u doped up @ 1st & very drained but it is worth it if u stick with it & 600mg is the lowest doseging 2 take it will get easier! Im glad i was put on it cuz i am pregnant & its a C rated drug which makes it the best kind 2 be on when pregnant! I feel for ppl who r just put on epileptic drugs outta the blue cuz i was too. They dnt kno why i go epilepsy but so far this is better than keppra & carbatrol! Best of luck 2 all who r put on it! It does get easier! ive used it for 7yrs & ive been siezure free for 7yrs! ive had siezures for 8yrs! | F | 25 | 7 years 600 2X day | 4/25/2010 |