AROMASIN Reviews (EXEMESTANE)Average Rating: 1.9 (145 Ratings)Filter ResultsCompare AROMASIN with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on AROMASIN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR AROMASIN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | Four occurrences of Breast Cancer | Started off with Arrimidex and after three weeks had to discontinue because of severe fatigue, bone and joint pain. Oncologist said discontinue and prescribed Aromasin. After 7 weeks I had to discontinue becsuse of severe headaches, joint and bone pain,10 pound weight gain,dehydration, fatigue, hot flashes and spotting blood.I was referred to a Gynecologist. And to begin taking aromasin again after I start feeling better. It has been one week. I am just beginning to feel some relief. | F | 57 | 7 weeks 25mg | 12/1/2015 | 1 | Breast Cancer DCIS Stage 0 | Hair loss, rash on forehead, behind ears, decreased presence of mind, severe fatigue. Leg/foot/ankle edema. Knee joint pain severe - could no longer walk, rise from sitting, negotiate stairs. Foot neuropathy and blistering. Sudden severe fatigue. High blood pressure. | A year after removing myself from the drug, hair has not grown back. Foot pain still present. Knee pain returns frequently. Shooting foot and toe pain - especially if exposed to temperature change. Foot numbness, lack of temperature control. Frequent leg cramps. Continued high blood pressure. Doctors dismiss pain, fatigue, swelling with "it's better than cancer" type comments flavored with "we all get such aches as we age." All this in less than a year. Given some of the severest SEs are irreversible, I strongly urge you to avoid this drug if quality of life is important to you. | F | 64 | 11 weeks 25 1X day | 11/5/2015 | 2 | 2 year breast cancer survivor | I am experiencing synovitis of the hip and wondered if there was a connection to the Aromasin? Also, I was on Anastrazole and switched 10 months ago to Aromasin d/t the severe hip and knee pain and my inability to sleep. I do sleep better now but the pain in the hips and knees can still get pretty bad. Also, two months after starting Aromasin, I developed carpal tunnel syndrome (never had it before). One month later I had the surgery to release it and there was still mild nerve damage that has not reversed. | I noticed that some people are taking a "vacation" from taking Aromasin. I was wondering if they would weigh in...on the results while on "vacation" and when theystarted taking it again. Thanks | F | 64 | 10 months 25 mg 1X day | 11/4/2015 | 1 | Stage 1, grade 3b infiltrated ducta | Excruciating bone pain, blurry eyes, foggy memory & thoughts, small sores all over scalp | Worst drug ever | F | 59 | 3 months 10mg | 11/1/2015 | 2 | Stage 2 Breast Cancer | Hot flashes (not too bad though), bad bone/joint pain, forgetfulness, weight gain, sugar craving, acne and rash, some insomnia. | I was on Arimidex for 5 months and had to stop because of extreme bone pain. Exemestane SE are very bad. When I first get up in the morning I am literally hobbling around! I can barely walk, my ankles are so weak and painful. I have to hold the handrail carefully when going down stairs as one of my ankles has given out on me several times. Back pain so bad that just shifting in a chair can elicit gasps from the pain. Turning over in bed very painful. Ankles, knees and hips make popping/cracking noises. As many others have said, I'm 57 but feel 97. One of the worst is weight gain. After my surgery & chemo, I watched what I ate and lost 15 pounds - docs told me weight was super important - but since being on the AIs I have gained 20+ pounds with no change in eating habits. Losing any weight takes going to 600 calories a day (pretty hard to maintain). Exercise is difficult with the bone pain. Am now taking a mini vacation from it, after just 7 days off of it, pain is 2/3 gone, brain fog is lifting, I have energy again. I wanted to see how much of what I was experiencing was from the drug. Turns out, all of it. The doctors just don't seem to understand how this drug can wreck your quality of life. I don't want cancer again, but have to decide if all this is worth it. As another user suggested, I will be reporting all of my side effects to the FDA. | F | 57 | 15 months 25 1X day | 9/21/2015 | 3 | Stage 2a Invasive Ductal Carcinoma | Extreme muscle and bone pain that could not be controlled at all with over the counter meds such as Tylenol, Ibuprofen, ASA. Prescribed Meds like Tylenol #3, then Buscopan patch then trimodal provided some relief but not enough. I had all the other side effects listed, it was a total nightmare for me. I have just quit 10 months short of five years. I just can not deal with it any longer. | I know it is important to complete your full treatment course on Aromasin but when it becomes so unbearable, you really need to weigh the risks and side effects you have with the drug vs the expected percentage rates for survival by taking the drug. With a mastectomy and chem alone I was told 93% with the five years on Tamoxifen the first year and a half, then Aromasin for the same I was told an additional 3% putting me up to 96%. I feel my survival rate should still be fairly high quoting it 10 months early. | F | 61 | 2 years 30 mg 1X day | 8/24/2015 | 2 | Stage 1b breast cancer | 4 months on drug joint pain abdominal pain wrists ankles hurt so bad calves ache some insomnia fatigue bad!! Sometimes have trouble with fine motor skills and words headache | I am also on faslodex maybe combo just rough on me hope to get off one was on tamoxifen 5 years Cancer came back in armpit had 27 radiation after nodes removed had chemo when first diagnosed | F | 65 | 1 days 25mg | 7/12/2015 | 1 | Breast Cancer | Painful reflux , long-lasting burning in my esophagus, stomach aches, joint pain, numbness in my hands, BAD insomnia, swelling so bad at night I cannot bend my fingers. Pain in ankles, feet and back spasms. More frequent headaches, fatigue, and depression, extreme fatigue, no motivation, foggy brain, vision change, loss of motivation, stiffness, and just generally not feeling like doing anything. | I did two years of Tamoxifen with no problems. My oncologist decided to change me to Arimidex. THAT WAS A MISTAKE! After 2 months on it and weak as can be he changed it to Aromasin. ANOTHER MISTAKE! I felt worse. These medications change your life around completely. Don't take them. | F | 57 | 3 weeks 25mg 1X day | 6/30/2015 | 1 | Stage 1 Breast Cancer | I had taken Arimidex for 9 months and had increasing joint and muscle pain. I went off for a month and most side effects resolved. My oncologist switched me to Aromasin. In about 2 weeks the joint pain started coming back and then the swelling of hands, feet plus tiredness. I am a nurse besides a patient and this is so uncomfortable. I am going to go off of this and won't even try Femora. I will give Tamoxifen a try in hopes the joint issues are not a problem. I am very active for my age, have no other health issues and this drug has really affected the quality of my life. I have 4 more years of this type of treatment. My oncologist thinks this is better than Arimidex....Wrong! Hope other patients don't have this experience plus this drug costs more too! I do my research and read. I appreciate these sites with others experiences as it is so supportive. | F | 69 | 2 months 25mg 1X day | 6/21/2015 | 2 | DCIS, non-invasive breast cancer | Extreme fatigue, no motivation, foggy brain. I've never felt so exhausted in my entire life. I can't get off the couch and all I want to do is sleep. | I feel like I'm a walking zombie. I've never been so tired in my whole life. I am extremely active, exercise daily, and have no energy now to do anything. I can't concentrate and I can't put simple sentences together. I'm not sure if the benefit of this drug outweighs the side effects. I don't know what to do. I don't want the cancer to come back but I feel like my quality of life has gone to nothing. | F | 43 | 6 days 25 mg | 6/20/2015 | 1 | Breast Cancer | First few weeks were ok, then started having mild hot flashes, really BAD insomnia, and joint pain. Swelling so bad at night I cannot bend my fingers. Pain in ankles, feet and back spasms. More frequent headaches, fatigue, and depression.Stopped menstruating 3 years ago after first round of chemo, but this month had period with cramping. | Stopped taking drug, and will be consulting with Oncologist and Gynocologist, as they are concerned about menstrual cramps. I do not want to continue on this drug. Tamoxifen was bad, too. These AI drugs are harder on quality of life than chemo was. | F | 47 | 6 months 25 mg 1X day | 6/13/2015 | 4 | Breast cancer stage 3B ILC | Achy joints, stomach issues, some insomnia | Not sure how much this has helped. Was very ill with Arimidex, couldn't eat without diarrhea so doctor switched me to Aromasin. Most days I ache in my joints. Wonder if other issues I have, i.e. Stomach problems, insomnia, are related to it as well. Three more years on it seems like forever but am afraid not to take it. | F | 60 | 2 years 25 mg 1X day | 6/3/2015 | 4 | Breast cancer with bone mets | I already have serious osteoarthritis, but I'm not feeling worse on the Aromasin. The only side effect I seem to have is extreme insomnia, which is a real problem. | Right now this drug is saving my life! After 9 cancer-free years following diagnosis and treatment of Stage IIb ILC in both breasts, I have a recurrence with bone metastases and am now Stage IV with no cure. I took Tamoxifen for 3 years the first time around and had no problems. Then switched to Femara for the worst 6 months of my life. I lasted a week on Arimidex before finally returning to Tamoxifen for the rest of my 5 years. So I started Aromasin 5 months ago with trepidation because of my past history with AI's. My only problem is bad insomnia that I keep trying to deal with. I also receive an injection once a month of Xgeva to strengthen bones and alleviate bone pain. That's probably shielding me from the bone pain others are experiencing. I am so grateful that this drug has decreased my tumor markers 75% in 5 months and gotten them well within normal range. Because of the Xgeva I actually have less arthritis pain, too. Now if I could just sleep better... | F | 67 | 5 months 25mg | 6/2/2015 | 2 | Breast Cancer | bone pain, joint pain, knees so stiff i feel like i am 80, shooting or throbbing pain in arms, hands, feet and legs, cannot sleep, craving sweets and coffee even though i NEVER did before, anxious (that could be just the nature of cancer though, maybe not isolated to the medication) headaches, shoulder and neck pain (possible MRI next week hoping it is just side effects of this medication) | F | 27 | 70 days 1X day | 5/31/2015 | 1 | ILC stage 2a | Carpal tunnel, severe upper right quadrant pain, elevated liver enzymes, elevated Ferritin levels, severe joint paint, hair loss, facial hair, sweats, insomnia, difficult walking up a step of stairs without extreme heart rate, elevated cholesterol, bone density loss | Had to go off of it. After a number of tests for my up right quadrant pain, the oncologist confirmed that this drug has been reported to cause liver toxicity rather quickly. Also caused my carpal tunnel. Went off of it and in 3 weeks I felt like a NEW person. Fatigue was gone, pain was gone, I could finally sleep and I felt ALIVE again. They have now switched me to arimidix. Was was Femara for 4 months and it almost gave me a heart attack. So we will see how Arimidix works. I think these AI drugs will soon tell the tale of how horrible they are. Wouldn't be surprised if in a few yrs you see commercials about them in law suits. | F | 48 | 11 months 1X day | 5/31/2015 | 2 | Stage 2 breast cancer. | Joint and muscle pain. Can barely stand on my feet in the morning. My ankles feel like they are going to break when I walk. Hands are painful, have a hard time picking up things. Legs throb all the time. Wrists are weak, can hardly pick up a cup of coffee have to use 2 hands.Trouble pronouncing words.No desire to do anything, depression. Hair thinning at the crown of my head. Weight gain.I have 3 more years on this drug, talking to my oncologist on May 1, hoping she can help. | I would like to know if anyone out there who took this drug for 5 years, was left with any permanent joint or bone damage? | F | 62 | 1 days 25mg | 4/29/2015 | 5 | stage 4 Breast Cancer | Depression, liver pain, stomach pain, facial hair growing not sleeping well | Aromat 8 is a very effective herbal Alternative to ER/PR positive breast cancer. The Greek test can help all cancer patients test your blood for the proper vitamins, herbs, and chemotherapy effectiveness! There are Naturopath doctor. Western and Alternative meets! | F | 55 | 3 months 25mg | 4/7/2015 | 2 | Stage 1 Breast Cancer | High Blood Pressure, dizziness, depression, sleeplessness, heart beating fast, knee pain, | I have read about this drug and I'm very dissatisfied with it.I have decided to stop using it. | F | 55 | 5 months 25 | 3/11/2015 | 1 | breast cancer | I was taking femara for 8 months couldnt take the joint pain started taking this and im starting the same pain again in my legs and neck is there any body else experience the same thing and will it go away its so hard to work like this | F | 50 | 2 weeks 1×aday | 2/25/2015 | 1 | ILC breast cancer stage 1b | Started with arm pain ..numbing, swelling then progressed to hand. Abdominal pain followed by elevated liver enzymes. Joint paint, depression, extreme fatigue, vision change, now excruciating lower right quadrant pain had to go to ER. | After experiencing so many terrible debilitating pain in various areas..did extensive research and this drug can actually cause perforated appendix. Also known to cause carpal tunnel, stomach pain, heart injury. Why is this still on the market? Apparently you must notify the FDA of your side effects and if enough serious ones are reported they reevaluate it to determine its effectiveness and safety. So report your side effects. I was on femera and after 4 months I started experiencing heart palpating so severe. Onco said it was re but to go off for .3 weeks I did and it went away. Then she switched me to aramosin, I have told her I am going off this and she said to give it a few more months. After my ER visit I am not going back on this killer drug | F | 47 | 7 months 25mg 1X day | 1/19/2015 |