BONIVA Reviews (IBANDRONATE SODIUM)

Average Rating: 1.3 (1605 Ratings)

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 BISPHOSPHONATES

 Type: Discontinued Drug

  

BONIVA  (IBANDRONATE SODIUM):  Ibandronate is used to prevent and treat certain types of bone loss (osteoporosis). Osteoporosis causes bones to become thinner and break more easily. Your chance of developing osteoporosis increases after menopause, as you age, or if you take corticosteroid medications (such as prednisone) for long periods. This medication works by slowing bone loss to help maintain strong bones and reduce the risk of broken bones (fractures). Ibandronate belongs to a class of medications called bisphosphonates.   (Sources: U.S. Centers for Medicare Services, FDA) FDA Approval Date: 2005-03-24

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR BONIVACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Dr. Recommendation Fractured Right Femur This is a follow-up to a post I left on 10/2/13. I am still having pain in my right leg (I had a femur fracture which required surgical repair) but also have the same pain in my left leg. I am hoping I don't have another fracture. I have read the Material Safety Data Sheets (MSDS) for Ibandronate (the active ingredient in Boniva). It is amazing to me that this drug is still on the market. The MSDS indicate "Most important hazards - causes burns, harmful danger of serious damage to health by prolonged exposure through inhalation and if swallowed." Additionally"...corrosive solid...use - pharmaceutical active substance." And they are still allowing people to take this poison!! F 67 5 years
150 MG 1X M
5/5/2014
 1  I broke a rib The first time I took this once a month pill it nearly killed me. I began throwing up liters of blood and passing it through my rectum for hours before a friend found me. I was in ICU for 14 days total. The massive bleeding continued for ten days durning which I received 17 transfusion's of my rare blood type to keep me alive. Throughout those ten days I was not allowed to eat any food what so ever while they made several attempts to locate and cauterize the many deep holes this drug had eaten into the lining of my duodenal area within only seven days following my taking it. On the 10th day in ICU they made a last ditch effort to save my life by operating on me. They opened me up to sew close the deep holes Boniva created. After 14 days in ICU, and another five elsewhere, I was placed in a nursing home for 28 days to recover. Within the first five days of being there I suffered a stroke for which Dr. Athos refused to listen to my daughter's pleas to come and see me immediately This drug has a black box warning which says do not give to patients with GERD. My doctor gave me a free trial dosage which was one pill per month even though he had been treating my GERD for four years prior. The only bone related issues I had were Arthritis in one knee and in the knuckles of both hands. For that pain I had received two localized Cortisone Injections twice a year for two years before I fell out of my bed and broke a rib at age 78. F 78 1 months
unknown 1X M
4/17/2014
 1  to prevent bone loss horrible side effects, I will NOT take the second dose , never been in so much pain in my entire life, this drug is POISON, it should be removed off the market , body aches all over, sour taste in mouth, headache, etc F 84 1 days
150 1X M
3/23/2014
Email
 5  Broke hip in 2008 none - maybe some dyspepsia I am lucky- I have Epilepsy which I was told by my Ortho surgeon that "this med for seizure control- did take away your bone density." Great! What do you want - good bones or be able to function & live seizure free? So I take Boniva. Have a dexa scan every 2 years & I have gone up but not far enough so am taking this a few more yrs. Also calcium/ Vit D. So far, so good. I love this med!!!! F 61 5 years
150 mg 1X M
3/18/2014
Email
 1  Osteoporotic i took one pill at 7:45am following instructions. That evening at 5:30p I felt extremely tired. I woke up at 3:45a with severe stomach pains, severe headache, fever 101.8 that went up to 102.7, every joint in my body hurt, chest pains, the bottom of my feet hurt when walking, legs cramping, throat sore, nausea, hurts to lay on hips, dizziness, & heartburn. All of this after one dose. I will not take Boniva ever again! F 60 1 days
150mg 1X M
3/3/2014
Email
 1  osteoporosis/osteopenia F 56
150 1X day
2/28/2014
Email

Patient History
 2  Osteoporosis 25% bone loss Flu-like symptoms beginning the first evening. Chills, muscle aches, headache, nausea, bitter taste, diarrhea, sleepiness, weakness. Chills, aches, nausea were severe for the first two days, but subsided after about 4 days. I was unable to work or do normal activities for 5 full days the first and second month I took Boniva. I skipped a month, (just too busy to be sick for 5 days) and took my third dose the following month. By my third dose the symptoms had stopped except for mild weakness, sleepiness and diarrhea lasting about 2 days. I think I can live with that. I gave Boniva a 2 (Not Satisfied) because of the severity of the side effects for the first two doses, I won't know if it was effective until my next bone scan. As long as the side-effects remain mild, I plan to stay on the drug until my next DEXA scan. F 56 3 months
150 1X M
2/10/2014
Email
 1  Osteoporosis Other biphosonates haven't suited me. I took my first tablet yesterday, was ok in the morning but by the afternoon I felt awful ,flu like symptoms, bloated and severes stomach pains. I'm not taking them any more, still feel ill today F 65 1 days
150mg 1X M
1/31/2014
 5  Osteoporosis Abnormal severe muscles aches in arms when using my arms for building a storage shed and roofing my house. When I stopped any activity using my arms my muscles were fine but any use of them causes abnormal soreness that pain medications will not take away and it makes it hard to sleep Working very well for me otherwise in restoring my bone density and no other significant side effects. M 67 12 months
150 mg 1X M
1/20/2014
 1  osteopenia I have terrible muscle pain and flu symptoms for 3 days and I have insomnia since I am taking it. I would like to mention that if in order not to break my hip when I will be 80 (If I live that long) I will loose my job for not being able to perform (I am a teacher who deals with 150 kids daily) I better will wait several years until they find something better that this terrible drug. I am sure scientists are working already on finding a remedy but the pharmaceutic industry is a villain, the doctors are paid for giving us these drugs and we are the Guinea pigs in this sad tale. Don't take this drug !!! F 51 5 days
150 1X M
1/9/2014
Email
 1  Osteopenia First felt a pain in my back tooth, went to dentist and he couldn't find anything wrong. I didn't connect my problem with Bonviva. 3/4 months after taking the drug I started to get pain in my feet, then my shoulders and neck, my muscles and now I have pain in all of my bones (feet, legs, knees, hands, neck, ribs, back. I have muscle soreness too. A month after taking Bonviva, I started to feel really ill but thought it was other causes. I had a skin burn 2 inches wide appear on my hand for no reason!!!!!!! I feel like I have been in a car crash and can hardly walk now because of arthritic feet, osteoporosis in feet and I suspect in whole body (last scan a year ago, I was osteopenic). I am now weak all over, lost weight, my muscle strength has diminished significantly through lack of mobility and exercise (I can't do weight bearing because of feet arthritis). I feel old and battered as though I have been in a car crash. My bones feel like they are made of concrete and to think that I used to walk miles and miles each week, play tennis and dance and do my household chores with ease. Now I struggle to cook, wash etc. and I literally hobble around the house and am unable to visit places of interest due to my mobility issues. This drug is evil and I've found out it should never have been prescribed anyway to someone with osteopenia. It's ruined my life. The world is corrupt in many ways and I was so naïve to fall into the trap. F 59 7 months
1X M
12/29/2013
Email
 1  preventive Took it at 6 AM and felt sick after a few hours. Around 8 PM musles started to feel sore and felt like having the flu. In the morning could barely walk and could only function by taking 1000 mg paracetamol a few times that first day. Second day felt again if I had a skeleton from an hunderd year old woman. had to take again 3 times 1000 mg of paracetamol The second day also my jaws started hurting. Before I took boniva I had no problems at all with my joints, my back, my shoulders or what else. The second day and third night I started to understand that I had been poisoned and tried to figure out an antidote. Decided to take an high dose of vitamin C. Took 2 times 2000 mg vit C within 4 hours and also took extra spirulina. Now the third day at noon I feel more or less the same as before I took the bonviva but took just another 2000 mg vit c to be sure. Maybe a coincidence but maybe more people can try this and post if this high dose vit. c helped to get rid off the side effects. I will never take boniva again. It is poison F 50 1 days
150 1X M
12/18/2013
Email
 1   F 86 1 days
11/29/2013
 1  osteoporos diagnosis Gerd that has now lessened. Terrible lower back pain. Very sore bones in neck and upper back. Felt like I was 105 years old. Could hardly rise out of my recliner or turn my head from side to side. Scheduled for acupuncture tx for tomorrow. Hope it helps. Will have to be talked inro anither infusion. I don't trust the drug companies to not want to make profits off of me. F 58 1 days
3 mo infus
10/27/2013
 1  osteopenia pain in sternum, rib cage, diaphragm, trouble breathing; dental work not completed due to problem with jaw bone patients are not warned about the side effects of this drug; i have been having symptoms and did not realize they were connected to boniva; i have been off boniva for four months, and breathing and chest pain are improving F 62
150 mg 1X M
10/18/2013
Email
 2  Osteoporosis Stomach ache and aching long bones initially. Over the last couple of months - tight chest and now my hair is starting to fall so I feel that if I don't stop taking it now I will end up bald! I haven't had a bone scan since the diagonistic DEXA scan after my fracture so have no idea if the medication has worked but I can't carry on with it. F 55 14 months
1X M
10/15/2013
 1  Osteopenia Weakened fibula bone on left leg. Broken in three different places within 18 months. Will have to wear leg brace for many years to come. Also my dentist is concerned about my bottom jaw shrinking. May have to have this addressed by a specialist. Boniva should pulled from the market. I suspect doctors are getting some kind of reward for prescribing this poison.. Two different doctors brushed me off when I voiced my concern. I took myself off the drug after the second break in my leg. The third break which happened today was the last straw. I have been off Boniva for eight months, but my bone strength will never return. I am damaged for life because of this drug. F 61 8 years
30mg 1X M
10/10/2013
Email
 1  Osteoporosis Debilitating pain in right hip; overall muscle pain; pain in sternum; no energy. Began approximately 36 to 40 hours after taking Boniva. SO frustrated! I waited 3 years after my MD first suggested taking meds for osteoporosis b/c of potential side effects. Was finally convinced that risks of osteoporosis out-weighed side effects of meds. How WRONG that information was! I just hope this pain stops soon and I can return to normal. F 59 1 months
150 mg 1X M
10/4/2013
 1  Dr. Recommendation Fractured right femur with IM rod insertion This drug should not be on the market. How many lives have to be ruined before something is done? Shame on the FDA and the drug companies. F 66 5 years
150 mg 1X M
10/2/2013
 1  To strengthen my bones I had this drug intravenous which will last a year. The next day I had nausea and joint pains in the elbows and wrist and severe lower back pain. It has been a week I am like a 100 year old woman. I am crippled!!! I was not informed of any side effects!! The drug company are evil. This drug is poison! God only knows how long and if I will ever come better F 69 1 weeks
9/24/2013

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