BONIVA Reviews (IBANDRONATE SODIUM)

Average Rating: 1.3 (1605 Ratings)

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 BISPHOSPHONATES

 Type: Discontinued Drug

  

BONIVA  (IBANDRONATE SODIUM):  Ibandronate is used to prevent and treat certain types of bone loss (osteoporosis). Osteoporosis causes bones to become thinner and break more easily. Your chance of developing osteoporosis increases after menopause, as you age, or if you take corticosteroid medications (such as prednisone) for long periods. This medication works by slowing bone loss to help maintain strong bones and reduce the risk of broken bones (fractures). Ibandronate belongs to a class of medications called bisphosphonates.   (Sources: U.S. Centers for Medicare Services, FDA) FDA Approval Date: 2005-03-24

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR BONIVACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Osteopenia I took 1 dose of the once a month Boniva on August 20, 2007. The first day, I did okay, but the second day I became very ill, with flu like symptoms including nausea, diarreah, severe joint, bone and muscle pain. Apparently, Boniva has "triggered" a reaction to all areas that I previously had arthritis and has caused my osteoarthritis to become very painful and active. I told my doctor that I felt that all of the pain and problems were caused by a single dose of Boniva, that I believe poisoned my system. My doctor was very skeptical. Well, now the FDA, yes, the FDA has posted a notice on their site on January 07, 2008, that states that there is a possiblity that Boniva causes "severe and sometimes incapacitating bone, joint, and or/muscle (musculoskeletal) pain in patients." Further, " the association between bisphosphonates and severe musculoskeletal pain may be overlooked by healthcare professions, delaying diagnosis." In summary, "some patients have reported complete relief of symptoms after discontinuing the bisphosphonates, whereas others have reported slow or incomplete resolution. The risk factors for and incidence of severe musculoskeletal pain a F 57 6 months
2/19/2008
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 1  osteoporosis 24 hours after taking my one and only dose of Boniva I had excruciating back, shoulder, neck and chest pain especially by my sternum. I am an RN and reread the drug info sheet and saw that side effects often occur about 24 hours after taking. My doctor thankfully, recognized this as a possible side effect. I began taking percocete for TWO weeks because of unbearable pain as soon as I tried to get out of bed in the am. Several days later while still having bone pain I got terrible flu symptoms, G.I. chills, weakness. I had to stay in bed that whole week and continued to have serious bone pain for FIVE weeks. I can honestly say that I felt like I had aged 30 years one day after taking the boniva. I used to go to the gym and work out with weights, pilates and yoga 5 days/week. That stopped after I took the boniva. It has now been almost 2 months since I took the one and only dose. I still feel like I aged 10 years and continue to have bone pain everyday in various parts of my body. I have not needed narcotics for about 5 weeks. However, I do wonder if I will ever get to what I was, or how I felt before taking boniva. WARNING! WARNING! Has anyone gotten any satisfaction from reporting this to either the drug company or the FDA? F 51 1 days
2/19/2008
 1  osteoponia fierce vomiting and diarhea, rib cage sore from vomiting, body aches, chills, sweats, can only keep 2-3 types of food down. all this after just one dose: sick 7 days, fine 5 days, then sick 7 days+. my doctor gave this to me after my bone density test coming back with osteoponia. she did not tell me not to take my meds prior. bad!!! i followed all instructions otherwise. almost like the time i had a tryglyseride test, not told to fast and score was 285, so had a 2nd, fasted and it was perfect. my scores have always been good, yet my doctor is not paying attention. she books 8 patients an hour. when were the days...............? so, i felt fine for two days after my first dose of boniva. on my 3rd day i woke in the middle of the night with fireworks going off in my stomach. i took a couple of tums, and it simmered down. then by morning, i was so violent ill orally, and the other. tmi, sorry. i already have a muscle severe pain issue, yet this thing gave me an experience for 7 days that i did not care to respeat. next five days fine. then it repeated itself all over again. is this due to timed release? doctor just said to stop taking it. duh!!! i am just about done being sick for t F 50 1 times
2/18/2008
 1  osteoporosis I think this drug should be banned. I was in great shape physically before taking Boniva. Now I can't even run (or walk) on the treadmill. I'm out of breath doing simple everyday things. I haven't been able to exercise for over a month. I'm winded climbing a flight of stairs. I didn't realize this drug has some of the same properties as Fosamax. I had trouble with that drug, too--shortness of breath. Thought I was having a heart attack. I also have diarrhea, loss of appetite but a bloated midsection. I will try an herbal drug (as soon as my body is purged of Boniva). Even if you follow all their directions, you can still have problems. I'd rate this drug 0 if there was a category. Hopefully more women will read about the dangers of this drug. F 62 5 months
2/18/2008
 1  osteoporosis Deep skull pain... Unable to walk,,, Sick to the stomach... Severe eye pain and swelling,,, can not chew or swallow... Depression....Jaw pain... weak teeth...shortness of breath... Makes my bones feel like they are growing together... unable to stretch... Also my kidneys do not function properly,,, the list goes on and on.... i hope this so called drug leaves my body soon... i am miserable.. i want my life back... Please someone if you have any ideas on how to get this poison out of my body... E-mail me at [email protected] F 43 5 months
2/16/2008
 2  Osteopenia I had swollen lips, fingers, toes, sore body, achy bones, bad taste in mouth, white tongue, flu like sx, and a sore jaw. I began taking Boniva 3 months ago, side effects began almost immediately. I had no clue that is what was causeing them until yesterday. My jaw has been hurting along with my ears, my Dr. checked my ears and they are fine, she checked for any type of lymph enlargement that may cause my jaw to be sore and nothing. I went home and re-read the side effects AND boom there it was, jaw infection, soreness and the like. I was instructed to not take my next months pill. Also my skin (legs) felt like they were on fire. As far as sleep, very restless or not at all. I am so sick of the side effects that these drugs come with. I have MS and take enough drugs for that disease I do not need a drug disease to go along with that. At this time I am on nothing and plan to stay that way. I an done. F 48 3 months
2/15/2008
 2  Osteopenia Bone pain in my back and hands. I've been taking boniva for 5 months, and no results showed on my bone density scan ... maybe it's too soon. My doctor told me I have to take it for the rest of my life ... Does anyone know if this is necessarily true? Or can i stop taking it after I get better? F 33 5 months
2/15/2008
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 3  Osteopenia I have been on Boniva for exactly 1 year now. I will have my next bone density test this summer, so I will have been on it 18 mos. by that point. I am hopeful for some slowdown in bone loss and will be thrilled to find some increased bone density. I am very sorry to hear of the problems women here have had. I honestly can say that I have not experienced any of the pain or GI issues noted here. I came to this site, however, to find out if weight gain has been a problem with Boniva users. I am post-menopausal and I did gain weight with menopause, but it seems I gained much more all of a sudden in the past year, and I cannot account for it any other way. This site required a 1-5 rating to post comments and I cannot honestly say the medicine helped or did not help. I did not have my scan yet. F 56 12 months
2/14/2008
 2   Severe pain in thigh and hip bone. Had severe pain in hip and thigh. My doctor had me get x-rays of this area but no problems found. FDA issued an alert about Boniva and other drugs for osteoporosis on Jan 2008, stating they have had reports of severe muscular and joint pain in people taking them..So severe that some had to have aides in just walking.You can go to the FDA homepage to check out this alert. F 60 6 months
2/13/2008
 3  Osteoporosis I had a lot of gas from day one on Boniva and it didn't go away. I also had a sore throat for a couple of days,but that went away. I was only on Boniva one month and I switched to once a week Actonel. I have been on it for two weeks. I have had a sore throat for a couple of days, but my gas has gone. Actonel is supposed to be a fast acting medication. F 64 1 months
2/12/2008
 1  Osteoporisis If I could give a negative rating I would! I have not taken much prescription medication, but when my bone denisity test showed osteoporosis, my Dr. recommended Boniva. I had the worse flu-like symptoms I have ever had. I literaly could not get out of bed for 2 days. Severe headache, pain everywhere in muscles and joints, nausea. I felt horrible x 2 weeks, then started Fosamax, which is a lower dose of medication in the same drug sategory as Boniva, and had the same symptoms. Would definitely recommend other treatment if possible. I felt fine before taking thie medicine, now I ache and have constant joint pains in my shoulders and legs especially. Difficuly sleeping due to pain. F 65 1 months
2/11/2008
 1  -3.5 OSTEOPOROSIS CONSTANT HEADACHE, WEIGHT GAIN WITH LOSS OF APPETITE, CONSTANT NAUSEA, WORSE BACK PAIN OF MY LIFE. I'M 49, IN FULL MENOPAUSE, HAVE CONSTANT LOW BACK PAIN DUE TO AN L5 SPINAL FRACTURE, GASTROINTESTINAL ISSUES, FIBROMYALGIA & CHRONIC FATIGUE. BONIVA HAS MADE ME FEEL WORSE THAN I HAVE IN THE PAST 3 YEARS IT HAS TAKEN ME TO LEARN TO DEAL WITH THESE CONDITIONS. WITHIN 3 DAYS AFTER MY FIRST BONIVA I BECAME ILL WITH SINUS INFECTION LIKE SYMPTOMS THAT WENT ON FOR 2 WEEKS, MY HEADACHE HAS NEVER GONE AWAY, AND ONE DAY I COULD NOT MOVE OR LIFT MY RIGHT LEG TO WALK, IT FELT LIKE A RUPTURED DISC. TO THIS DAY IT HURTS TO SIT DOWN, IT HURST TO STAND, IT HURTS TO WALK, IT HURTS TO ROLL OVER IN BED, MY THIGHS FEEL LIKE I'VE RUN A MARATHON, I GET STABS OF PAIN IN ALL MY JOINTS, I FEEL CONTANTLY NAUSEOUS, AND OFTEN NEARLY HYPERVENTILATE CUZ I THINK I'M GOING TO VOMIT. I AM CONSTIPATED, CONSTANLY FEEL BLOATED, MY BOWELS ARE NOT MOVING LIKE THEY DID PRIOR TO BONIVA. I HAVE GAINED 10 LBS IN 3 WEEKS AND HAVE NO APPETITE, CANNOT SLEEP TO THE POINT I AM NOW AN INSOMNIAC, HAVE SEVERE HOT FLASHES AND F 49 3 weeks
2/11/2008
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 5  osteopor usually feeling quite sick to my stomach the first day, so I plan on eating only very light food or just drinking. The following day the sicky feeling isn't as bad but waves will take over at times. Usually by the 3rd or 4th day I'm back to normal. I have read most of these reviews and it's a shame that some are so sick. I do have faith in the medicine, this is my 5th month and will have a bone scan in 5 months and that will tell the truth if the Boniva is working. F 70 5 months
2/7/2008
 1  Osteoporosis Diarrhea, chills, fever, aches, soreness all over my body, stiff neck, pain, pain and lastly pain! Please, if you have a weak area in your body, Boniva will attack it! I've had radiation on my neck and chest and that is where most of my pain is. I broke my leg eight years ago and where the bone came out and caused soft tissue damage, is sore to the bone! But the very worst place is my neck!!! it is so sore, I cannot move. I get almost an electrical shock like sensation when I move around at all... have had to wear neck brace to minimize movement but it doesn't help much. Sleeping positions are almost impossible. And from what I've read, it will take awhile to get better.... I feel like I'm going to die but at least the pain would go away. I've only taken one dose!!! F 61 1 weeks
2/7/2008
 1  Steroid Induced Osteoporosis I already have severe, crippling Arthritis (Rheumatoid, Psoriatic, Osteo, Anklyolsing Spondylitis (progressive spinal arthritis), Fibromyalgia, Sjogren's Disease and Osteoporosis (CAUSED BY PREDNISONE, another bad drug prescribed for Arthritis by the way) My point is I have so many illnesses I cannot definitely say which side effects are from which drug. Boniva is a drug that does upset my stomach for certain and gives me diarhea as well as possibly causing some of my joint pain. I have been in pain since I was 37, take a whole lot of medications but am never pain free so it is difficult to pin down exactly what Boniva causes. I have not been taking it for months though because frankly, I am in so much horrible pain in the morning I cannot wait an hour to take my pain meds, which you cannot take when you are taking Boniva. I was going to promise myself to take it some how if I found evidence that it is working for others but instead I find these terrible reviews. Thank you for giving me an excuse to push this one off my list! Has it worked for anyone to increase bone mass? I've taken it off and on for two years and Fosamax before that,by the way. F 60 2 years
2/7/2008
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 1  bone loss I took my first dose 36 hours ago, spent my first night with 101.3 fever,terriable headache, my bones hurt so bad I can hardly walk,get up from sitting position or roll over in bed. I then decided to look up on net if anyone else had these side effects. Well add my name to the LAW SUIT !!!!! Dont evan think about taking this stuff !!!!!! F 61
2/6/2008
 1  osteopenia flu-like symptoms and difficulty sleeping for nearly 1 month F 42 1 months
2/1/2008
 1  bone loss neck and shoulder pain, hip and back pain, chest pain, sore joints It's all making sense to me now! I thought I was having a heart attack a couple of times. I was having chest pressure and trouble breathing so much I couldn't get up. Had testing done, heart ok. Blood pressure went up (used to be low). Pain everywhere! Hip, thigh, lower back (had xrays done of lower back to see what the problem was, they were fine),neck, shoulder and shoulder blade and even fingers. I never take meds and I was always very active but when I had early menopause(age 40) and bone thinning, I thought I would be proactive. What a mistake! I will not take another pill. Now I know why I am always more tired than I ever was. I chalked all the symptoms up to aging and possible arthritis. I will not take another boniva! Thanks to all who shared their story. F 50 12 months
2/1/2008
 1  osteoporosis I have been taking Boniva for 1 year, but thought the side effects were due to my IBS. After reading the messages, I am convinced its the Boniva. Side effects include upper stomach pain, aching feet and ankles, shoulder blade pain and a general lack of energy. I work out and am in good shape for my age, but this medication is interfering with my life. I am going to stop taking it for a couple of months to see if my symptoms subside. My stomach pain has been the worst. I have had two gallbladder tests to see if it wasnt functioning properly. They were negative as was a colonoscopy. No more tests for me! I have a feeling just getting off Boniva will do the trick. F 57 1 days
1/30/2008
 1  Osteopnia 24 hours after 1st dose began experiencing excruciating stomach pain. The severe pain lasted 3 days. About the 3rd day, I began having joint pain-- usually in the middle of the night. Thankfully, it seems that the side effects are diminishing. Will never take this or any other biphosphonates again!! F 53 1 days
1/29/2008

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