RESTASIS Reviews (CYCLOSPORINE)

Average Rating: 1.8 (298 Ratings)

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 OPHTHALMICS, MISCELLANEOUS IMMUNOMODULATORS

 Type: Rx Drug

  

RESTASIS  (CYCLOSPORINE):  Cyclosporine eye drops are used to treat a certain type of dry eyes. They work by increasing the amount of tears you make.   FDA Approval Date: 2016-10-27 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on RESTASIS: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR RESTASISCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  chronic dry eye disease Sore/swollent throat and left side ear neck and jaw pain. My left gland just under my jaw is also enlarged. I will stop Restasis immediately after reading of others side effects I am now convinced the drops are the cause of my enlarged lymph node. Scary business. F 54 3 months
1 drop 2 x
2/14/2016
 1  Dry eye Eyes itching,burning,facial swelling, psoriasis of the face,acne, sores in mouth,didn't feel good all over! Optomologist said take two drops a day.Like others didn't think about Restasis but read this forum. It's been a week and my face is healed. Feel better. Thanks guys! M 67 3 years
1 drop/day
2/8/2016
 1  Dry EYE Headache, dizziness, sinus, phantom smell, swollen eyelids, insomnia, eye twitching, entire body muscle inflammation, short of breath, burning , itching. Took Restasis for 10 month as an dry eye treatment. First month or so the drug did miracle. My eyes felt much better. About three to four month into the treatment, I started experience extreme headaches, dizziness, short of breath, and later phantom smells. I thought I had a brain tumor or schizophrenia. I did MRI, EEG, CT SCAN, all blood tests possible, holter monitor- nothing wrong physically. Doctors suggested anxiety and depression.I was prescribed LEXAPRO. I could not take the drug but one pill due to severe side effects. My entire body felt different, like being suppressed. I did not know what to do. Then it occurred to me- the only difference in my regime was RESTASIS. I stopped taking the drug and immediately felt the relieve. I CANNOT BELIEVE IT! After so much money spent and doctors visits, the problem was RESTASIS. Someone need to file a class action lawsuit. I will sign up right away. F 45 10 months
drop 2X day
1/28/2016
 1  dry eye Unusually lengthy (2-3 weeks) intermittent fever with night sweats (fever as high as 101 F), malaise. Immediate improvement when I discontinued this drug. No noticeable improvement in extremely dry eyes. F 55 90 days
2X day
1/16/2016
 1  dry eye My Mom was prescribed restasis for dry eye. DO NOT TAKE THIS HORRID DRUG. It completely incapacitated her. Experienced nausea, diarrhea, arrhythmia, decreased renal function; dizziness, weakness, fatigue and loss of appetite. Lost 11 pounds in 19 days. Did absolutely NOTHING in terms of dry eye. This drug should be removed from the market! F 83 3 months
1 drop 2X day
1/2/2016
 2  Dry eye I used restasis for approximately 15 months and I thought I was one of the lucky ones because although my nose was stuffed and runny, I didn't experience the intense burning and itching some users experienced. However, over time, I began to experience a severe post nasal drip and cough which turned into shortness of breath. I thought it was allergies etc, however once I stopped the restasis my symptoms began to clear up. F 15 months
2X day
12/11/2015
 1  dry eyes Eyes. burn & hurt constantly. Runny nose, sore throat, mouth, tongue. Pain: sinus, head & abdominal. Took about three weeks to start working & initally felt great. Gradually dryness came back. Punctal plugs inserted. one cane out during night -severe corneal abrasion. Had the other one removed,as having cataract surgery & feared the other might come out causing some real damage. 5 wks post op eyes. very painful. & above symptoms. So glad I found this web site, am stopping immediately! F 65 3 months
2/day
12/7/2015
 3  dry eye Am worried about the connection to hair loss as a side effect, both to lashes (which i've noticed) and possibly to my hair in general if i keep taking it. Dry eye has improved slightly, but I'm going to try fish oil supplements instead. Other symptoms that appeared after starting Restasis were constant nasal drip and blisters appeared on my lips for the first time ever. 58 2 months
2X day
11/18/2015
 1  Dry eyes possibly due to sjogren's Initially had burning and stinging of eyes. Blurred vision, eyes tearing constantly, increased blood pressure - was on to beta blockers a day and now taking for a day, dizziness, palpitations, and after 2 weeks of use developed sores in mouth and throat. . F 61 1 months
11/17/2015
 2  Chronic dry eyes Cold like symptoms, sinus always seem to be full causing post nasal drip, tickle in throat, coughing, dizziness. It might be working a bit but are the side effects worth it? I'm trying as someone suggested - pinching the eye ducts longer after application to keep the drug in the eyes and not in the sinuses. Thought the dizziness was from poor vision bBSB510XL breville blenderut realize now that it was the restasis F 63 160 days
.05 2X day
10/8/2015
Email
 3  Dry eye Sore throat, very bad blisters in mouth. It helped with my dry eye and blurred vision. I was happy about that but the blisters in my mouth was worst. The fourth day my throat was sore then I noticed that my mouth felt like it was raw in spots that turned into very bad blisters. This med was the only thing new. I stopped using it and my throat is no longer sore and the blisters are starting to heal slowly......... F 44 2 weeks
2X day
9/20/2015
Email
 1  Extremely Dry Eyes Due To LASIK Burns on my face Horrible!! I use essential oils for my migraines & thought that was causing the burns Stopped using them but kept getting the burns So decided to investigate & Bingo the Restasis is the problem!! Already in my trash👍🏻 Now if face doesn't clear up guess I will have to see a dermatologist I would tell everyone not to use these drops!! My face hurts 😬 F 59 2 months
0.05
9/7/2015
 5  Dry eyes and allergies It has done wonders for me F 15 1 months
8/19/2015
 3  Inflammation DES Initial affect was a dull headache, went away after about 4 days. Seemed to help the inflammation issue. After about 3 months on this had severe insomnia, followed by ear pressure (aches) and sinus problems. Stopped Restasis for 3 weeks all problems resolved in about 2 days. Started up and again the problems started up within 2 days. Finally stopped this medication after 8 months due to side affects which included above and surprisingly severe skin eruptions around face which I hadn't attributed to restasis but all cleared up (again in about 2 days!) F 65 8 months
2X day
8/13/2015
 2  so-called dry eye Stuffy sinuses, stomach discomfort, tiredness, almost a wheezy feeling when breathing. If I don't take it for a few days, the symptoms go away. I was prescribed Restasis during peak allergy season, and think I have less of a dry eye problem than inflammation from pollen and mold. Restasis doesn't seem to do very much, and has more side effects than benefits. Not worth the money. And apparently, others have had similar side effects, negating any benefits. M 68 60 days
2X day
8/11/2015
 1  Dry Eyes My mom has Liver cancer, Lupus and on hospice. She wanted to check her eyes having trouble seeing. Checked all the necessary test in office and prescription for eyes have not changed. Ruled her eyes were dry. Gave her samples from office. The first day of drops helped her blurred vision she was so excited. The next day her legs were RED and a little swelling had began. I started her back on her diuretic, which I have taken her off and on the diuretic over the last 6 months. This was crazy...normally she had abdominal swelling and the diuretic would take care in the situation in a couple of days.He legs are still RED and swollen..no better no worse than day 3 and this is day 7.( Day 3 is when I discontinued the eye drops)...I also believe the solution used in dilation also had a contributing factors as well. Doctors need to pay attention to their patients and their history. This is so scary...need to be removed from circulation!!!!! FDA Red Flag here!!!!! F 77 3 days
3X day
8/3/2015
Email
 2  Dry eyes while sleeping. At first 3 weeks mild burning sensation only on application. After 3 weeks medication started working on my eyes but the side effects were catastrophic.. I am 31 y/o male. I'm in pretty good health and I'm a fireman and keep up with my health and exercise. I normally don't get sick that easy. I developed dry eyes only while sleeping after 3 years of my lasik surgery. My doctor tried plugging my tear ducts but didn't work. She recommended Restasis so she gave me some samples. She said it would take 2-4 weeks to start working. So I began taking it and within 3 weeks exactly my eyes started feeling better with minor burn on application on my eyes only. Exactly as soon as my eyes started feeling good my entire body did not. I began to feel nauseated, dizzy, lethargic and tired. At times I felt short short of breath and extreme sinus pressure to the point that I had to breathe through my mouth. I couldn't pinpoint why I was feeling this way I thought it was food poisoning but the symptoms would not go away. I started freaking out because in my line of work the cancer rate is off the roof. I kept getting worse to the point that my wife wanted to take me to the E.R.. AGAIN, I'm not the type of person that just gets sick for no reason. We both sat down and pin pointed what I was doing different from my daily routine. It came down to the Restasis that I was given. I decided to stop taking it and immediately after 24 hours I felt much better. The longer I went without it the better I felt. I did some research and this medication suppresses your immune system. I'm pretty sure that's what it did to the point to where it was making me anem M 31 1 months
.05
7/18/2015
 1   Dry eyes, extreme burning, swollen eye lids, pain in eyebrow, nausea, headache, floaters, blurry vision, insomnia, twitch, eyelid spasms at the point that could not open my eye. Twice I was diagnostics negative for Srojen syndrome, so I started the treatment suggested by 2 ophthalmologist and 1 optometrist, my insurance did not cover the 4 month treatment, so I have to pay a lot of money for. I started as recommended, keep it in refrigerator did not help, all of a sudden I started to have nausea, I thought was something wrong with my stomach I start prilozec, Then pain in the eye with floaters after 2 1/2 months I panic I thought I was having a retina detachment, I run to an specialist, who told me my retina was ok but he told me to stop the restasis, He told me to just use eye drops with out preservatives and refresh pm gel at night. After reading all this reviews I am going to STOP RESTASIS from tonight. F 49 3 months
2X day
7/17/2015
Email
 2  dry eyes dry and weird taste in my mouth that doesn't go away; dull ache inside my head and dull headaches; twitching in one eye; continuous mucous causing post-nasal drip In general I don't like taking medications unless I feel it's absolutely necessary. I was given this Rx and thought it was fairly innocuous, but now realize I should've researched this before using. I quit using it 3 days ago and hope the side effects disappear. F 71 3 months
0.5% 2X day
7/4/2015
 1  Diagnosed w/ Dry eyes Severe headache, nausea, severe vertigo, sinus, dental & ear pain. I have been diagnosed twice w/ dry eyes. First time my doctor suggested Restasis and an antibiotic. Said it was up to me at the time so I decline the Restasis. Second time it was strongly suggested that I use Restasis, so I filled the prescription. Within 10 days I noticed my vision in my right eye becoming blurry. Thought I had a bad contact but realized it was my eye. Follow-up w/ my doctor and when I asked her about my symptoms being caused from the medication and she said "No". She sited it would be highly unlikely to occur in one eye only. She proceeded to tell me that I might have an auto-immune disorder. Two weeks in and my symptoms progressed to severe vertigo, nausea, sinus, tooth & ear pain. This week I called my ENT out of concern for a sinus infection and when explaining my symptoms he order a brain MRI worried that I might have a BRAIN TUMOR!! Today I have confirmed I have no tumor, no sinus infection, was told to follow-up w/ my dentist and that I must have a virus. UGGGHHH! I am a very healthy person. I work out 4-5 times a week, swim, lift weights, etc. & each a gluten free, lactose free, mostly vegetable diet. Not until I started Restasis did I start feeling like garbage! I haven't been sick in YEARS, I have missed work and have some mystery illness and people think I'm nuts! Right now I hope and pray my vision returns. I beg of anyone thinking about taking Restasis to do their homework and challenge your doctor for alter F 41 3 weeks
drop 2X day
7/2/2015

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