RESTASIS Reviews (CYCLOSPORINE)

Average Rating: 1.8 (298 Ratings)

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 OPHTHALMICS, MISCELLANEOUS IMMUNOMODULATORS

 Type: Rx Drug

  

RESTASIS  (CYCLOSPORINE):  Cyclosporine eye drops are used to treat a certain type of dry eyes. They work by increasing the amount of tears you make.   FDA Approval Date: 2016-10-27 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on RESTASIS: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR RESTASISCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  double vision, low tear retention Swollen gums, tongue, mouth, face, intense headaches, more like face aches, increased bp, jaw pain, still hurts to eat anything chewy, like crusty bread, swollen throat, cough, runny nose, thought I had the flu. ONLY drug besides a Claritin once a day for pollen allergy. Sixth night I almost called 911, my jaw hurt so bad. Eye doctor could care less, won't even return phone calls, PCP won't talk about it, never heard of such a thing, wants me to take bp med, and get colonoscopy, mammogram, and bone density tests, ( so he can give me more drugs?) I'm NOT a hypochondriac, I don't take any meds, only go to the doctor if I'm really sick. Trying one more time with doctor, then I'll just stop going. F 72 6 days
1 drop 2X day
5/15/2017
 2  Chronic Dry Eyes/Sjogren's Syndrome Burning; blurred vision; headaches; swollen salivary glands and swelling/numbness on left side of face. More recently fatigue, , vertigo, ringing left ear and an awful post nasal drip clogging my throat. I did get some relief initially but now these very unpleasant side effects and the pain and discomfort in my eyes is worse. F 69 5 years
0.4ml/0.05 2X day
5/12/2017
Email
 2  Dry eyes Stiff neck , pain in left ear, horrible headaches, muscle fatigue and hard to swallow sometimes. After I told my eye doc about my symptoms , she told me , those are NOT side effects of Restasis. Really? I'm stopping this today. F 49 10 days
5/10/2017
 1  Dry eyes Chronic post nasal drip, stiff neck that wouldn't respond to stretches or treatment, finally lump in throat as if I can't breathe. This was not a good choice for me. F 49 3 months
1 drop 2x
5/2/2017
Email
 4  for dry eyes I was using restasis for dry eyes as a result of a cornea abrasion. I had no side effects but now I am off the drops I am experiencing a lot of sinusitis. I have a runny nose all the time. is this due to my going off the restasis? I need to see an ENT specialist to determine if my nasal track is inflamed. M 26 1 years
1 drop x 2
4/9/2017
Email
 1  Chronic Dry Eye Recently had dizziness, vomiting, headache in back of head and daily nosebleeds. Decided to discontinue Restasis and first day without nosebleed. I do feel as if my central nervous system off balance. It seems that the formula for this drug has changed. F 74 15 years
1X day
3/28/2017
 5  dry left eye Not sure why so many are having terrible side effects. From day 1, my eye felt better than it had in a month, redness almost gone. The drop did not hurt, very think consistency and soothing. I registered on the Restasis website and received a printable card. Walgreens honored the card and I paid $0 for a 90 day supply! I didn't even have to pay my insurance co-pay! I'm sold!! F 60 5 days
0.05 1X day
3/12/2017
Email
 1  Dry eye Took 1 drop in each eye every 12 hours. On the 10th day, suffered serious seizures and possible tongue swelling. I turned blue and am very lucky I didn't die when this happened on March 1, 2017. The hospital where I stayed for a week performed a spinal tap to "check for meningitis" although NO ONE thought I had meningitis (result was negative for meningitis). It is now March 12th and I still cannot work or even get out of bed without severe pain Allergan refuses to offer suggestions for folks who suffer from severe reactions and they refuse to warn prescribers. This behavior is driven by shareholder greed. Please contact me if you had a seizure while taking Restasis eye drops. M 40 10 days
.05%
3/12/2017
Email
 3  Dry eye and allergies Left an after taste in my mouth. Took me awhile to figure it out. Over rated F 55 9 months
3/3/2017
 1  dry eyes extreme nausea, ear pain, dizziness, chest pain, shakiness - I would NOT recommend this drug.. going to see the doctor today M 22 1 weeks
2X day
2/27/2017
 1  Dry eye Cough, joint pain, brain fog, throat discomfort, sleepless nights I started taking as directed 2 times a day. If it wasn't 12 hours between doses, I would get burning and a feeling of sand in the eye. Eyes were red all day long. Went to 1 time a day, but the joint pain was terrible. I could hardly get out of a chair and walk across a room. I stopped last week, I feel so much better. I use over the counter eye drops and I am doing great. I no longer have joint pain, and I am sleeping much better. No red eye. F 54 3 months
2X day
2/21/2017
 1  Severe inflammatory dry eye Made me lose a lot of hair. Every morning I could pull a handful out of my brush. Did nothing for my dry eye. Gave it a full year and was quite worried about going bald. Besides I was still experiencing dry eye, needing lotamax and lubricants daily and also punctual plugs. In fact since I stopped this drug my eyes feel a little better, still dry but less irritated. And a lot less hair loss after only 2 weeks. 45 1 years
2
2/6/2017
 5  Lasik A little burning; it subsides quickly. My prescription was for 60 vials and now I have 50 vials. I did not use all of them. What a waste of $. I don't understand why I could not have purchased smaller increments. F 44 10 days
1/16/2017
Email
 1  Dry eye syndrome My eyes feel like they are on fire with Restasis. I have dental pain, acid reflux, extreme fatigue, problems sleeping, post nasal drip, blurry vision, bloody nose issues. I could go on and on. My quality of life has NOT been improved by this medication. My doctor said that it could take up to a year to notice any benefits, but I can't keep living like this as my life has been severely compromised by the drug. I don't see my eye doctor until spring and she seems annoyed by my dissatisfaction. I wish she'd give it a try and perhaps gain some compassion. F 62 4 months
2X day
1/10/2017
Email
 1  Dry eyes Major migraines felt tired and just out of it I know I have dry eyes but restasis did more harm then good F 63 10 days
30mg
1/3/2017
Email
 1  Dry red eyes Heartburn, vertigo, chest pain, sinus issues such as pressure and draining like I was getting a cold. Never had anything prior to taking this.4 weeks out . I have stopped taking it......thought I was really ill. Will consult my eye doc about safer alternatives, also one that may be more affordable . F 60 4 weeks
.05 2X day
12/26/2016
Email
 1  Dry eyes Severe angioedema in both eyes Red, sore, painful burning skin around both eyes.. Saw 4 doctors, on steroids 3 times but as soon as I stopped steroids, symptoms came back. Then I read the side effects of the restasis and stopped! It was the cause of all my pain and misery. I would not recommend this toxic drug to anyone. F 64 90 days
not sue 1X day
12/22/2016
 3  Extreme dry eyes. Restasis works good in the morning but the evening dose makes my eyes feel worse, burn, itch and makes it feel like foreign objects in eyes. Did not have extreme dry eyes until a cataract surgery performed. Not sure whether or not to continue using Restasis, maybe just use in AM only. F 81 8 days
1 drop 2 X 2X day
12/20/2016
Email
 2  dry eyes Restasis caused my eyesight to be blurry and dim. Also I got headaches. Also with the headaches, my eyes burned all day long. I tried Restasis for six weeks thinking my eyes would adjust to this so-called medicine. Then I tired Xiidra .However my insurance won't pay for it.. Xiidra didn't make my eyes burn all day like Restasis does. The side effects from Restasis are too extreme for me to believe that it is doing my eyes any good and is more likely causing harm to them. F 6 weeks
1X day
12/12/2016
 1  Dry eyes I felt/feel like I am dying. Post nasal drip, acid reflux, headache, weak as all hell, shaky, sweaty, dizzy, dry mouth, sleeplessness... lump in throats feeling, coughing...raised my blood sugar, raised my blood pressure.... anxious....just realized it was the Restasis today... waiting for call from Dr. I'll let you know if I don't die first..... This drug should be banned... it is a toxin!!!! F 59 3 weeks
0.5 mg
12/2/2016
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