RESTASIS Reviews (CYCLOSPORINE)

Average Rating: 1.8 (298 Ratings)

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 OPHTHALMICS, MISCELLANEOUS IMMUNOMODULATORS

 Type: Rx Drug

  

RESTASIS  (CYCLOSPORINE):  Cyclosporine eye drops are used to treat a certain type of dry eyes. They work by increasing the amount of tears you make.   FDA Approval Date: 2016-10-27 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on RESTASIS: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR RESTASISCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Dry eyes Palpitations severe hair loss F 64 2 years
Bid
12/10/2018
 1  Sjogrens Headaches make sleep impossible 68 3 days
30 mg
12/7/2018
 2  Dry eye Insomnia, heart palpitations, vertigo I haven't had a vertigo attack in 10 years, and after being on restasis for only 3 weeks I had one this morning (after 3 days of a bad ear ache) and heart palpitations. I have not slept well since I started it. F 58 3 weeks
2x day
10/27/2018
 1  Dry eyes Sore throat+dizziness and hives and sinus.and imsomia for weeks and ear ache.depression and anxiety. I have not taken for 1 day feel a little better but still itching all over my body and still dizzy. 6 weeks of very sick.I think I would have died if I continued this med. Eye drop. F 80 6 weeks
.05. D a i
9/30/2018
 1  Deception Eyes are red as beets, itchy cough, slight head ache , anxious, and also have a cloudy ring around my iris Only was sent to this doc for a routine exam ordered from my pcp. The nurse said there going to list me as dry eye so that the insurance would pay. I wasn't having a single problem until now... I am very upset. Had no clue that eye drops can have such affects on my health. F 59 3 days
2X day
8/12/2018
Email
 5  Chronic Dry Eye None I use Restasis successfully due to severe dry eye, I still need to use over the counter eye drops at least once during the night and once during the day. It experienced terrible headaches without Restasis so I'm very thankful I can use it! F 63 10 years
2X day
8/2/2018
 1  Dry Eye Ocular Headache, Tooth and Jaw Pain, Heart Palpitations, Fatigue I have only just started using Restasis and have taken 3 doses From the very beginning I experienced tooth pain, heart palpitations and ocular headaches. I can rule out any dental issues as I was just at the dentist with no concerns of dental disease. In addition, I now have extreme dry mouth, neck pain. Since all of these symptoms seem to begin within 30 minutes of a dose, I have to say they are occurring due to the medication. M 45 2 days
2X day
7/17/2018
 4  Red and inflamed eyes and painful At times after putting the drops in my eyes would burn and get watery. Almost daily the inner corners of my eyes get very red on the skin however I’m fine with that considering I don’t have the pain I did have. F 39 2 months
7/11/2018
Email
 1  Dry eyes Rash and itching all over the body, hair fall, acid reflux, headaches, stiff neck I’m shocked how this drug has been allowed on the market, and even more as to how doctors not only prescribe it but also refuse to register the side effects. F 47 18 days
0.2 2X day
7/11/2018
 1  DRY EYE Rash, needle stabbing pain in eye, rash, still have (6 months after not taking) hair still falling out, how did FDA approve this junk? Kept telling eye doc and COMPANY about this, they all pretended it wasn't restasis, IT WAS. Vision much worse, cannot even wear contacts any more. What a joke. Does anyone know of class action lawsuit? F 59 6 months
2X day
6/11/2018
 2  Chronic Dry Eye Disease Burning, itching of eyes; blurred vision. Three years ago I began to experience eye problems and after having a dry eye test done found I was producing little to no tears. Went on Restasts; all was well up until several months ago when burning itching, etc began. Stopped taking the med and began doing extensive research about the disease. Have since stopped the Restasis and am using an OTC that was highly recommended and problems have pretty much ceased. Being on SS I also could no longer afford the co-pay (over $200 in my area).I seriously question my doctor putting me on Restasis now that I've found an OTC that is working. Many friends over the past year or so have received the same diagnosis; beginning to think this is the new "in disease" with Restasis the new go-to drug. Just my opinion but think it's a huge rip-off and cost is unacceptable. F 80
0.05 2X day
5/27/2018
 1  dry eyes nausea, ear pain, dizziness I took the drops twice a day for a week. Developed nausea, acid reflux and have been light headed. I have stopped it a week ago, but still not fully recovered. I didn't associate the drop with the symptoms at first, then I found out about this website. Anybody knows how long does it take to fully recover from the side effects? M 33 1 weeks
2X day
5/14/2018
Email
 1  Dry eyes Extremely swollen and tender lymph nodes on the back of my head-alternating sides each week, hives all over my body, continues hives and lymph nodes swelling even after discontinued use, tongue tingling, heavy eyelids, eye twitching I began this drug for dry eyes and was told it would take 4 months to work. I had swollen lymph nodes the next day after using it that night. I should have stopped right then but ignorantly thought my body just needed to get used to it. After 3 weeks of suffering I stopped the medication. After 4 months now I still have the hives and itching and feel like I have a brain fog. I may have permanently damaged something but it’s hard to tell how long this itching and brain fog will last. F 49 3 weeks
5/2/2018
 1  Dry eyes after cataract surgery I developed a cough and started losing my hair F 66 5 months
3/17/2018
Email
 2  For dry eyes Daily nose bleed. F 58 11 days
2/22/2018
 3  To prepare for cataract surgery Is it possible to have developed an extremely dry mouth after using Restasis for about 3 months? I can’t understand why my mouth is like a dry desert and nothing helps it. Can I stop Restasis immediately without weaning myself off to see if this is the cause? F 65 3 months
0.05%
11/5/2017
Email
 2  Dry Eye Increased sinus drainage to the point of waking me up as i could feel the flem in my throat followed bybsignificant coughing spells. I started eliminating any meds or foods that were recent additions. When i stopped the restasis, the issue went away. That is why i feel there is a connection. I went to the same opthmologist for 30+ years without a dry eye diagnosis. With provider changes by my medical insurance the new physician diagnosed dry eye. Odd enough, there is a sign in the waiting room promoting the dr's dry eye research. Was the dr trying to recruit patients? Hmmm. M 63 0 days
4x a day
9/30/2017
Email
 1  Dry Eye I have been in pain with my eyes since the doctor put me on restasis. I kept trying, and now it is so bad that I have a problem seeing in the morning for almost an hour. They burn, and the same at night. I had just told my eye doctor that my eyes were doing so much better and I was seeing better, but that they run sometimes. He said you have dry eyes and put me on this horrible drug. Like others, my hair is coming out in my hands and it is hard to even go outside now because of the pain. It wasn't like this before. I actually could read some without glasses and felt that my eyes were improving and I was taking an eye vitamin. Also went to the doctor about my sinus problems that started about the time I started taking this. She told me my blood pressure was high and it's never high!!! Now I know why when I told my friend I was on restasis my friends husband said, "You can have mine, I can't use the stuff".... he can keep his and mine too. So, glad I found this page, so I know it's not all in my mind. I am stopping this TODAY!!! F 65 3.5 months
1 drop 2X day
8/7/2017
Email
 3  Dry eyes/used off & on for 6 mos Burning...mire dryness Under eye Bags and dark circles Won't use again F 67 0 months
?
7/31/2017
 5  Osteoporosis No side effects After reading the horror stories I did not want to take Restasis, but I can't take any of the other drugs because I have Crohns disease. I decided to trust my Dr.'s advice, had an infusion in 2013, and had no reaction at all. Followed up with infusions in 2014 and 2015. scan in 2016 showed 17% increase in density from baseline. No infusion in 2016, no decision yet on 2017. F 72 4 years
1X O
7/9/2017
Email

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