ZONEGRAN Reviews (ZONISAMIDE)Average Rating: 2.9 (90 Ratings)Filter ResultsCompare ZONEGRAN with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on ZONEGRAN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR ZONEGRAN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 2 | Psuedo Tumor Headache | EXTREME fatigue, slowed motor and cognitive function - forgetting words and the like, feelings of extreme panic after I take it, sleep paralysis/ horrible dreams. | Haven't noticed any positives yet since it's only been 4 days, but at the rate the negative side effects are coming I don't think i'll make to a week. Worried the side effects will end up causing a schizo-effective episode. | F | 22 | 4 days 100mg 2X day | 8/18/2013 | 5 | migraines | Sleepiness, sometimes forget words, not sure if that is from medication. | F | 58 | 4 years 400 mg | 8/6/2013 | 1 | Weight loss, insomnia | Have all but lost my sense of smell and taste. At first things tasted or smelled funny. Then I couldn't smell or taste at all. I am tapering down now since I have lost the weight and do sleep at night, I hate to think the sense of smell is lost for good! | Prescribed Zonegran when I came off of Elavil. Needed to loose 20-30 lbs and sleep at night. I did loose the weight and have been able to sleep. But have a lot of anxiety and terrible problems with smell and taste. | F | 56 | 1 years 300 mg 1X day | 6/22/2013 | 2 | Headache prevention | Depression, mood swings, lost of concentration, crazy animAl nightmares, and still have headaches | F | 23 | 2 years 100mg | 4/26/2013 | 1 | rsd pain | they just took me up to 500 mg aday i dont like it but what to do for pain they will not give out pain medswe will see how this go | F | 18 | 9 months 500mg | 11/12/2012 | 2 | Trigeminal Neuralgia | see things not there. Depression. Sucidal thoughts.Cold spots on legs and feet.Memory problems.Thinning hair.Made kidney problems. | I was taking Zonisamide for Trigeeminal Neuralgia. At first i wasnt having any prolems with it at all. But then as we increased the dose it really knocked me for a loop. The neuroligist wanted to raise it to 400, and when i went to 300 it felt like my kidneys were processing glass. I could barely walk it hurt so much. Thats also when i started seeing stuff. Like i'd see spiders crawling across my pillow or bugs that werent there. just small stuff. i thought i was loosing my mind. Im still on a lower dose and the systems have abated but not completely gone away. i go soon for surgery then hopefully can stop taking the meds for this. must remain hopeful. | F | 50 | 9 months 100 Mg 1X day | 1/19/2012 | 3 | to prevent migraines | so tired i was falling asleep at my desk. this never improved in the month taking it. i couldn't drink enough caffeine to wake myself up, so much caffeine it was creating digestion problems. as time went on i became more and more anxious on top of the grogginess, and some past anxiety disorders came up like phobias. i got really jumpy and was concerned i would have a panic attack. i haven't had these issues for 18 years but it was starting to come back. i would so much rather have a constant migraine than have the mental health issues i used to have and panic attacks. my doctor agreed i should stop taking it immediately. i've been off for 3 days but i'm still feeling tired and jumpy. i hope the anxiety goes away so i'm not preoccupied with past phobias (spiders, bugs). this sucks. | unfortunately it is the only drug i've found so far that helps with my extreme light sensitivity, but i prefer light sensitivity, migraines, or any physical problem over anxiety disorders. | F | 35 | 30 days 25mg 1X day | 8/11/2011 | 1 | Migraine Prevention | Increased Anxiety, Agitation, Difficulty Falling Asleep, Just Felt WEIRD. | I was supposed to increase my dose by 25mg a week until I reached 100mg. At 50 mg, I began to feel agitated, edgy and snappy which is NOT like me at all. I already take Celexa for anxiety, and haven't had issues in some time. I had a mild panic attack today, and am stopping this medicine ASAP. Not much change with my migraines, and I hate the way I feel. | F | 31 | 2 weeks 50 mg 1X day | 7/31/2011 | 4 | Epilepsy | Hair loss every time my dosage was increased. I eventually had to wear a wig for a while. Once I was on the dosage for a while, my hair would start to grow back, but at the start I was getting my dosage increased regularly so it never had much chance. Now, my hair is thinner than it once was, but I at least don't have to wear a wig. Other than that, nothing I can for certain pin on the Zonegran...possibly it is the cause of increased insomnia, but possibly not. | It has certainly helped, and is one of the only seizure medications that doesn't seem to want to make me gain weight. | F | 38 | 1.5 years 300 mg 2X day | 11/28/2010 | 5 | epilepsy | First few weeks insomia, hair loss , weight loss butt after few weeks all came back to normal | I did not have any episode in 3 years. Love it. And now Im 6 month preggo. | F | 32 | 3 years 300mg 1X day | 3/11/2010 | 2 | epilepsy | Insomnia; Kidney stones | Zonegran is one of the two seizure meds. I take. The insomnia would be debilitating if I couldn't sleep during the day to make up for the sleep loss at night. I know Zonegran is the problem, because my other med causes no side effects, but within an hour of taking the Zonegran, I'm "wired", & toss and turn. Also, causes kidney stones: I never had a kidney stone in my life before I started this med. I've talked to the docs about changing meds or times that I take them, but no go. | F | 58 | 5 years 100 mg 4X day | 3/8/2010 | 3 | Partial Epliepsy | None really | Started to take in 2004 after control with Depakote and Tegretol XR peaked. Helped for a while but has not totally cured the seizures; still occur approximately twice a month. | M | 21 | 5.5 years 200 Mg 2X day | 2/28/2010 | 1 | bipolar 2 | Super anxious to the point of tears, hair falling out, very tired. | Took this to replace Topamax, which worked wonders for me, but made my hair fall out. This does the same, but without the mood stabilizing effects. | F | 33 | 5 days 25mg 1X day | 2/9/2010 | 4 | Bipolar,GAD,Social Anxiety,ADHD | Mild hallucinations, zombie like state that went away after the first 2 weeks, memory loss | I take Zonegran as a mood stabilizer to help control my Bipolar rapid cycle. I was taking Abilify also but had to quit due to extreme side effects. I take 150mg daily with my coffee along with 15mg Adderall. The first 2 weeks I was a zombie but once I adapted I noticed a positive change in my mood swings and my panic/anxiety attacks have stopped. I have days where I feel like I have alzheimer's but they're few and far between. I do experience mild hallucinations usually "snow" or the room will shift. To me these side effects are manageable compared to what I was going through before. | F | 31 | 1 years | 1/14/2010 | 3 | epilepsy | anxiety, increased heart rate, decreased appetite,anal leakage(eww), moodiness, extreme lethargy, depression, severe memory loss | i was diagnosed with epilespy in april of 09 and my original neuro (who was a quack) perscribed lamictal..but i had two other partial seizures and it caused me to hallucinate and have horrible nightmares.I consulted another neuro who suggested i try zonegran...His goal was to get me to 400 mgs over a 4 week (take at night my seizures happen in my sleep..or right before i wake up)period. Initially i noticed a loss of appetite and irritability/moodiness. As my dosage increased, I felt like a dope, i couldnt remember anything and it was extemely difficult to stay awake. If i needed to take any other medicine, forget about it. Often times i wouldnt take this med because the side effects for mixing both werent worth it until this past dec i had a seizure at work...if u dont have any life threatening side effects try to stick with it for about 3 mos before giving up, sometimes your body has to adjust..i know i have to be consistent and i'm not so thats my problem | F | 30 | 9 months | 1/12/2010 | 1 | Headache prevention | Severe anxiety which led to rapid heartrate and high blood pressure. Was taking 100 mg/night, and the two days I tried 200 mg/night led to obsessive anxiety bordering on paranoia. Even 100 mg proved to be too much and I had to stop taking it. It also caused some mental "dopiness", i.e. I couldn't think what I was doing or trying to say. (A lot of "um, um" moments.) | Unfortunately, it also did nothing for preventing my headaches. Even if it had, though, I could not have continued taking it. I was well on my way to a heart attack, stroke, or possibly even a nervous breakdown. | F | 38 | 2 weeks | 10/23/2009 | 2 | High CSF pressure | Left arm weakness and slight left leg weakness | M | 57 | 21 days | 9/24/2009 | 2 | migraines | weight loss, never hungry, hardly urinated at all, skin always smelled like urine | 100mg every night. It did absolutely nothing for the migraines and I didn't like the side effects I experienced. | F | 55 | 1 years | 6/12/2009 | 3 | seizures | Very dizzy, swollen gums, loss of appetite, sleepy, I had insomnia on my previous seizure med, this put me to sleep. All I wanted to do was sleep. I could not function. I was in a cloud. I was taking 200mg @ night. Lips and tongue were numb. Weight loss. Unclear thinking. I called my doctor and he cut the dosage to 100 mg. but then I had a seizure. The first one in 2 years. I felt better taking 100mg. wasn't as dizzy. I liked the idea of the weight loss, but since I had a seizure my med was changed. | I could not function on this medicine. I was taking 200mg. I couldn't even drive. Once my dosage was cut, I did feel a lot better, but it didn't work for me because I had a seizure. I only have seizures at night when I'm sleeping. | F | 39 | 1 months | 6/6/2009 | 1 | migraines | ~!~!~!~!~ANXIETY~!~!~!~!~!~irritability would be putting it mildly! I snapped at my daughter for calling my son a nickname I have called him in the past (so the name SHOULDN'T have bothered me, and in retrospect DIDN'T). I was so stressed about everything, and while I live a VERY stressful life as a single mom and fulltime student, things were exagerated, and I couldn't eat, or sleep and I was visibly shaking from the stress!!! AHHHH! | I understand my symptoms are rare, I decided to switch taking the pills from at night to the morning (because originally I had heard they would make me sleepy so I took them at night, when I couldn't sleep I wanted to try to take them in the morning, because it was out of routine I FORGOT to take them that morning... and by that afternoon ALL that stress started to MELT away and I could feel my body untense, and my whole body hurt... because for the past month and some my entire body had been TENSED UP, and then and there I decided I WOULD NOT take those pills EVER AGAIN!!! As far as the headaches/migraines go... it worked... but it was NOT WORTH IT to feel like THAT! If no migraines makes me a horribly irritable stressed out freak attack, then I'd rather have the migraines thank you (and anyone who's ever had migraines knows that's pretty durn bad to say that)! | F | 29 | 3 months | 3/3/2009 |