ZONEGRAN Reviews (ZONISAMIDE)Average Rating: 2.9 (90 Ratings)Filter ResultsCompare ZONEGRAN with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on ZONEGRAN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR ZONEGRAN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | Migraines | Tinglingly and numness in hands and face causes an itchy feeling, Periodic loss of appetite or weird cravings, hot flashes/fevers , insomnia/weird dream,and somedays my brain doesn't think quite as well as it did I feel like a dingbat | I was having 4-5 migraines a week I have had two since starting this med finally some relief the migraines I did Have were caused by very stressful days the day prior | F | 21 | 3 months | 1/21/2016 | 4 | Bipolar (mood swings) | Pros: I had a lot of weight loss (about 25 lbs) and it cleared up my skin beautifully. Cons: It absolutely slows down thought process and I've lost a degree of my wit, sadly. My mind is nowhere near as sharp as it was when I wasn't taking this medication and I've also noticed that it makes focusing quite difficult as well. | Aside from the side effects it has done it's job as a mood stabilizer for me. I've taken many different medications for the same reason but this is the only one that's seemed to work for me and have the least undesirable side effects. | F | 27 | 2 years 200mg | 12/16/2015 | 1 | Epilepsy | Slower mental processing; inability to find specific words in context, couldn't keep up in a long conversation with one person, forget my train of thought, reading became harder, an overall understanding what was going on or explain anything was hard. | It helped stop my partial complex seizures but at the cost of slower mental processing. I will be going back to Lamictal. the switch occurred because we did not know that the other medicine I was on was a seizure stimulant so now hopefully I will be right back to where I was before zonegran came into my life and disrupted things. VERY dissatisfied. | F | 21 | 1 years 200 2X day | 9/7/2015 | 4 | Chronic Migraines, Seizure | Dizziness, tiredness, My actual dosage is 100 MG 2 times a day, but I decreased it to just before night time unless my migraines are really bad due to the reaction with my Cymbalta. | I've had chronic migraines (when I say Chronic, I mean I had crippling mind blowing head aches every day of my life since I was 9 years old) finally in 2011 I had a grand mal seizure due to an addiction overdose. I was an addict as well since a teenager. Combination of many things I was taking in great quantities was to much. After that, I was put on Topamax for my seizure (and I told the neurologist about the migraines to) in part the Oding was me trying to take stuff to rid the headaches ruling my life - well how it started years ago. The Topamax was a godsend for a year and half. I mean it took away my headaches, but then they'd come back so they would increase it. Finally a year later it just stopped working, but I requested to change the medication. I hated Topamax - it made my arms, feet, hands numb, my taste changed, and I was so forgetful & had the worst memory. I lived in a brain fog. Zonegran was so much better. It did cause some dizziness, but nothing like Topamax. My memory and overall brain fog went away (tho the adderal come down often causes it now to :/) and everything improved. I do get more headaches than on the Topamax, but I believe it could be due to the Adderall as well. They usually come when I am coming off Adderall. I don't feel like this medication is as effective, but I feel like the side effects are much much less. | F | 27 | 3 years 100 MG 1X day | 8/8/2015 | 1 | Migraines | Weight loss, complete loss of appetite. Eating made me physically ill. Lack of food increased my migraines. Nightmares, anxiety, irritability, no energy, depression. | F | 35 | 2 months 300 mg | 7/15/2015 | 5 | Migraines | slight loss of appetite, improved mood, less tired, less irritable, less headaches, less neck pain | I feel like this drug has been a Godsend for me, my severe episodic migraines and chronic daily headaches were interfering with my life and work to the point that I was fearful I may have to go on disability. I was laying in the bed most all the time so tired and depressed fearful of another attack even when I didn't have a full blown headache. I took Topamax but had to unpleasant side effects. Zonegran and meloxicam have really made a difference for me. | F | 42 | 7 days 100MG 1X day | 5/11/2015 | 5 | Migraines | So far so good. I have a little eye pain which is manageable but none of the crazy side effects I had with Topamax. Topamax caused tingling in feet so bad I couldnt walk, terrible memory recall to the point that it was affecting my job and just plain fuzziness in the brain. I also did not lose weight like a lot of people do so that is not a side effect that everyone experiences. I havent lost any weight with zonegran either but it is a low dose. | I am also interested that a previous poster commented that it was helping her migraines on the right side. I also get all of my headaches on the right side and it appears to be helping so far. Just wondering if there is a coorelation. | F | 41 | 1 weeks 25 | 5/4/2015 | 4 | chroic migraine preventative | Just started this drug. Was taking Propranolol as a migraine preventative for about a year and a half which had stopped working for me and which I believe had caused a deep depression. Was reluctant to start zonisamide/zonegran because i thought it might work like Topamax which was a horrible experience - tingly hands, foggy thinking. So far Zonisamide is working well on keeping the chronic migraine pain on the right side of my head away and I my energy is beginning to come back. I am starting to feel normal again -- I also have a smaller appetite which I am going to take advantage of and really fix my eating habits. I hope this drug will continue to be effective for the chronic migraine pain. So far so good. | F | 46 | 2 weeks 100mg 1X day | 4/26/2015 | 5 | Seizures | I can function on this medication , my hair don't fall out, My speech is not bad , I am not confused.. I was even able to take it while pregnant and my babies are healthy | F | 38 | 5 years 200 mg | 4/24/2015 | 4 | Seizures | Difficulty sleeping, drowsiness during the day, forgetting words, | I like it! It saved me. It allows me to work and function as a normal human being. I was on Keppra and then Trileptal. Those caused more seizures. It was crazy!! | M | 52 | 6 months 400 | 3/24/2015 | 5 | Myoclonic Epilepsy | Extreme weight loss (20+lbs) in a short amount of time, loss of appetite, extreme nausea (particularly in am), irritability. These have gone away now that I have fully adjusted to the medicine. This took me approximately 1 year, but everyone is different. The nausea still shows up once in awhile but is bearable. Now all I notice is trouble recalling words (takes a little longer to find the right word). | THIS DRUG IS NOT FOR EVERYONE! I was diagnosed with epilepsy when I was 8 years old and was extremely lucky to have an excellent neurologist/pharmacist team to help me find the perfect drug for me, which even still took 10 years. I have tried Keppra, which did not control the seizures, I have also tried Depakote, which the side effects were outrageous. This drug takes time to adjust to and find the correct dosage as any other drug, the difference is for me was the nausea. I can only assume it was because of the rapid weight loss that was occurring. I should mention one of the side effects of Depakote for me (the previous drug before zonegran) was weight gain, so I was approximately 40lbs overweight so weight loss was not an issue. *If you do not have extra weight to lose, this is not a good drug for you* It was the rapid drop that made it so difficult. This only lasted for about 3 months for me (until we found the correct dosage). One thing I wish someone had told me is to make sure to eat a healthy snack about 1hr- 2hrs before bed such as fruit. Also carry snacks such as granola bars or nuts. I never wanted to eat, but new if I ate even a few almonds it would make my nausea 10x easier to deal with. My nausea only lasted until I became acclimated with the drug (approximately 6m), my weight loss plateaued shortly after that. I have been the same weight since. I am a little concerned about the delay to recall the correct words. But as this is my only real side effect, for | F | 28 | 10 years 300mg 2x D | 2/18/2015 | 4 | Migraine prevention | Occasional weird dreams, slight fatigue, some memory loss (difficulty recalling words). Overall it has improved the migraines I've had for 17+ years but I make sure I get plenty of rest each day, drink lots of water, eat well and exercise. I do have weird dreams that will bring on unprevented migraines but all in all it has helped. I'd like to eventually come off the drug though cause I'm skeptical of memory loss | F | 34 | 4 years 300mg | 9/27/2014 | 4 | Epilepsy | Anorexia weight loss of 20 pounds loss of energy . Depression when the dose was increased higher than 400 mg a day. This medication does control the seizures and the depression was directly related to the dose increase. I have intractable seizures so I put up with the side effects but not the depression. Seizures are controlled with this medication Keppra and Banzal | F | 52 | 8 weeks 300mg | 9/24/2014 | 1 | Epilepsy | Weight loss, irritability, expressive aphasia, inability to focus or comprehend what others are saying at times, Sleepiness, Loss of appetite, depression | I felt like I was going to just wither away and die if I continued taking this medicine. There was no hope if I continued it...it wasn't helping with my seizures regardless...I have absolutely nothing positive to say about this drug! It did nothing but make me look like a skeleton. | F | 29 | 7 weeks 400 mg 1X day | 8/30/2014 | 5 | Juvenile Myoclonic Epilepsy | Increase in thirst, minor slurring of speech at times, weight loss, decreased appetite, occasional hot flashes. | M | 11 | 1 months 125mg | 4/19/2014 | 5 | Epilepsy | I've been on this for 4 years now with minimal side effects and seizure free. I maintain a VERY healthy diet to keep the fatigue, headaches, and brain fog to a minimum but I also make sure I get plenty of rest as well. The odd thing is, I only just started loosing my appetite and lost 20 lbs. not sure if it's the RX. I also recently went off BC, so it could be a combo. But it's the weirdest thing! I've been on Keppra and Lamictal before and they both affected me poorly in the personality dept, so I'll take what Zonegran throws my way any day! | F | 29 | 4 years 300mg | 4/3/2014 | 4 | seizures | drowsiness, weight loss, odd headaches and feelings of confusion | It took at least six months to acclimate to this drug; I had a hard time with the side effects while getting to the dose I needed. But now my seizures are under control and side effects are minimal. I find it's important to get a good night's sleep and eat regular meals, to prevent problems with side effects such as headaches. | F | 52 | 18 months 400mg 1X day | 2/19/2014 | 3 | SEIZURES | MEMORY LOSS LOSS OF SMELL AND TASTE | F | 54 | 1 years 100mg | 11/25/2013 | 2 | Epilepsy | Extreme sleepiness ....very difficult to find words....slow thought processing.... has not yet helped with seizures | going to continue for a while longer to see if side effects go away and things get better | F | 5 | 3 weeks 60 2X day | 10/29/2013 | 1 | seizure | My 8-year-old son starting taking Zonegran at 11:00 P.M. last Saturday. At 11:30 P.M. the next day he started becoming dizzy and disoriented. A half hour later, he fell to the ground and had a grand mal seizure. This lasted about 6-8 minutes. In the hospital ER, he had a severe headache and abdominal pains. My neurologist was not convinced it was the drug, but we disagree. My son at age 8 has never had a seizure without a fever--which places him as atypical, and this one was in the absence of a fever; however, he did have a fever the following day. | M | 8 | 1 days 25 mg 1X day | 9/4/2013 |