ELMIRON Reviews (PENTOSAN POLYSULFATE SODIUM)Average Rating: 3.3 (238 Ratings)Filter ResultsCompare ELMIRON with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on ELMIRON: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR ELMIRON | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | IC | Hair loss, nausea, headache. | I would much rather have the side effects over the IC pain and urgency | F | 30 | 4 months 100mg×3 | 2/6/2017 | 1 | ic | Developed Idiopathic Aplastic Anemia. Had heart bypass surgery. On very expensive medication for Anemia. Cost three times a much as elmiron. Would not recommend this med. to anyone. | F | 66 | 2 years 100mg 3X day | 1/27/2017 | 4 | Ic | Hair loss. Spaced out and tired | F | 56 | 2 years 90 | 10/26/2016 | 4 | Ic | Hair loss. Spaced out and tired | F | 56 | 2 years 90 | 10/26/2016 | 4 | I've been bruising easily, but not badly. I would suggest keeping an eye to make sure they're not too large or painful. I sometimes just find bruises. | This prescription saved me, I was in excruciating pain all the time. | F | 21 | 3 months 200 2X day | 9/21/2016 | 4 | IC | Change in taste buds and weightloss. | F | 24 | 3 weeks 300 mg | 7/9/2016 | 5 | IC | I haven't really experienced any side effects. About four years ago I had a period of hair thinning, but I cannot say it was related to Elmiron as there was no change in my dosage or anything. | It was a lifesaver for me. I got my life and career back. Before the diagnosis I was made to feel like I was either imagining my symptoms or making them up. Early treatments were with over filling the bladder and later with DMSO. Both were horrible and not very effective. I do have to avoid soda as it irritates my bladder even with Elmiron. I only take Elmiron twice a day, rather than the 3 times it is prescribed, and that seems to be sufficient. I am wondering about long term effects and hope that I can continue taking it for the rest of my life as I cannot imagine going back to the pain and poor sleep I experienced before finding it. | F | 70 | 20 years 100 mg 3X day | 4/29/2016 | 2 | For severe intisistial cystitis | I was put on this without any omoprazole to protect my tum, had severe reflux heart burn and couldn't eat. Then took off, put on insulations then put bk on pentosan with omoprazole but the damage had been done I've ended up with a hiatus hernia which is up in my chest cavity, very painful and waiting surgery.Can't believe I was prescribed them knowing that the tum wasn't protected! | Good at the start after the side effects wore off but pls don't take without omoprazole etc | F | 2 years 100mg 3day | 4/23/2016 | 2 | For severe intisistial cystitis | I was put on this without any omoprazole to protect my tum, had severe reflux heart burn and couldn't eat. Then took off, put on insulations then put bk on pentosan with omoprazole but the damage had been done I've ended up with a hiatus hernia which is up in my chest cavity, very painful and waiting surgery.Can't believe I was prescribed them knowing that the tum wasn't protected! | Good at the start after the side effects wore off but pls don't take without omoprazole etc | F | 2 years 100mg 3day | 4/23/2016 | 1 | Doctor recomended for IC | Hair loss, bad hemorrhage in back of left eye. | Retina doctor advised me not to take elmiron due to hemorrhage in back of left eye. Caused severe floaters & blurred vision. Will take between 2 to 3 months to get my vision back. | F | 47 | 10 days 300mg | 4/13/2016 | 1 | I C | Shortly after taking Elmiron I started having major hair loss as well as joint pain. Liver test showed my liver enzymes were extremely high so my does was lowered & still high enzymes levels. That was 8 yrs ago & I am still having issues with my liver I have not had a normal liver test result since taking Elmiron. | I know of other people having the same exact issues as myself. I wouldnt recommend it to anyone. Its not worth it I dont care how bad it is its better to have a sick bladder then a sick bladder & liver! | F | 38 | 2 years 200mg. 2× | 3/26/2016 | 1 | I c | Extreme headache and anxiety | F | 40 | 1 weeks 300 | 3/5/2016 | 1 | IC | Hair loss, depression, anxiety, elevated tryglicerides, abdominal pain, and recently, fatty liver disease, diabetes, and sleep apnea | This drug worked well in the beginning but now I'm a 33-year old worried about liver failure! This drug should be taken off the market!! I can no longer take it, and I'm struggling with the pain everyday | F | 33 | 3 years 300mg | 2/25/2016 | 4 | intersistal cystitis | bloating, some hair loss | keeps my IC under control, so well that when I forget to take it because I have no symptoms, symptoms come right back. | F | 63 | 3 years 100 mg 3X day | 2/13/2016 | 5 | Ic | Bloating | Elm iron is very effective. It gave me great relief from the symptoms of IC. I know it is very expensive but what price should I put on the quality of my life? | F | 63 | 16 years 2X day | 2/12/2016 | 2 | IC | High blood pressure (138/95) and steadily increasing resting heart rate according to my fit bit. I would walk around the block and be doing cardio. Emergency stop on the Elmiron. Really helped my pain when I took it before. | Took elmiron for years before and it really helped. I could feel this was starting to help by my heart responded really poorly this time. I tend to get tachycardia off of tricyclics as well. I would recommend people give it a try, and see. | F | 33 | 7 days 100mg 3X day | 12/31/2015 | 3 | ic | Joint pain | I never needed injections or packs of steroids prior to taking elmiron. | F | 39 | 2 years 100 mg 3X day | 12/28/2015 | 1 | IC | Started taking this drug on Thursday morning. Took one tablet in the morning then at night then again Gtiday morning. Mid morning started passing blood. Stopped taking it. Don't trust it. | M | 49 | 3 days 200mg | 11/13/2015 | 1 | Interstitial cystitis | Severe abdominal pain, nausea, arthritis, my normal liver (as proven on CT scan at start of Elmiron treatment), became fatty liver diseased with my AST and ALT liver enzyme levels in the mid 400's. Within 10 days of stopping Elmiron, the liver damage stopped and my liver enzymes went back to normal. Within one month, the arthritis, stomach pain, and nausea went away. Hair loss stopped 2 months after stopping Elmiron. | It never helped my IC symptoms anyway. | F | 31 | 1 months 300mg | 9/24/2015 | 3 | IC burning, frequency | hair loss, IBS, gastritis, feeling low, bloat | I open capsules & pour contents on 1" square of buttered bread. per urologist. | F | 60 | 9 years 400 mg/day | 7/7/2015 |