ELMIRON Reviews (PENTOSAN POLYSULFATE SODIUM)Average Rating: 3.3 (238 Ratings)Filter ResultsCompare ELMIRON with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on ELMIRON: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR ELMIRON | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | IC | None | I noticed a reduction in the severity of my IC symptoms starting about 6 weeks after taking it. I've been able to stop taking pain medication and feel like I'm actually getting my life back. | F | 47 | 3 months | 10/14/2007 | 1 | IC | I was totally excited about starting elmiron. I was on it three times a day. On my third day of starting this drug, I went out to dinner and started bleeding when I went to the bathroom to urinate. I also had some small clots of blood in the toilet. It finally stopped after ten separate urinations. I was ready to go to the emergency room. Looks like I can't continue this drug. | F | 44 | 3 days | 10/1/2007 | 4 | ic | The only side effects I have experienced is blurred vision and dry mouth. Not a bad trade considering all the pain I was previously in. | I have been taking Elmiron for about 3 months now and I have found my symptoms to be less frequent. When I do feel like I am getting the symptoms of painful urination, I can settle them by drinking more water. I am hoping this is the cure, I have had IC for about 2 years and it has disrupted my life. I am happy to have found this website so I don't feel alone any more. It is good to hear about the success of others in fighting this disease. | F | 39 | 3 months | 9/25/2007 | 5 | IC | Well, my hair is very thin now, after taking it for five years. I don't know if it is the elmiron or not. I have no other side effects. | I was in horrible pain from IC in 2001. I started taking Elmiron in January 2002, and by fall 2002 I was much better. Now i have almost no IC symptoms, and I live like a normal person. | F | 34 | 5 years | 9/19/2007 | 3 | IC | I've been taking Elmiron for approximately a month and a half and I've experienced blurry vision, some hair loss but the HEADACHES are the worse ever, it feels like someone has taken a aluminimum baseball bat and beat my head in for 5 minutes. I've been taking half a bottle of aspirins (advil, tylenol, motrin & ibuprohen) everyday every 2 to 3 hrs for some kind of relief for the last 2 1/2 weeks and nothing works and when I went to the Elmiron site it says I'm not suppose to be taking it, ok I don't know about you all but I can't live with this constast pain in my head. My head hurts so bad that I can barely drive. I started out taking 3x/day and my doctor has put me on 2x/day starting with my next perscription, I sure hope it works. | F | 43 | 1 months | 8/30/2007 | 1 | IC | Severe abdominal pain, nausea, cositpation, gums/teeth are affected, bladder spasms, insomnia, and weakness. | I moved about half way through taking the medicine. I missed taking the meds for about a week and all the severe pains I was having went away, I had much more energy and my bladder spasms calmed down. I went back on it bcs I am trying to get rid of this horrible pain and it got worse again. So for me Elmiron was very un useful. I still have IC and working with Docs to get it resolved... | F | 26 | 8 months | 8/26/2007 | 4 | Interstitial Cystitis | blurred vision and upset stomach. It gets better throughout the day. | After having a baby I was having constant flare ups. I found out that I had ic, but there was something else going on. I went to my gynecologist and found out that I have genital herpes and that's what was causing most of my pain. I'm telling you this because if you have never been tested for this you might want to. It will mimic almost the exact symptoms of ic. I have a mild form of ic and can't drink soda or coffee, but the herpes is what was the biggest problem. 1 in 5 people have it, so I hope I can help someone who isn't getting relief and thinks there is something else going on. Good luck to you all. | F | 30 | 2 years | 8/17/2007 | 1 | IC | I was put on a 100 mg. dose three times a day by my doctor. Took it for a week and starting having abdominal pain, blurry vision and finally nosebleeds. | I'll never take it again!!!!! | F | 75 | 1 weeks | 8/9/2007 | 5 | IC | I had some difficulty with digestive issues early on, but after a lot of communication with other IC sufferers, found that it was the capsule that was causing the problems. Upon recommendation of another IC patient (not a physician, though she said her physician suggested it), I opened the capsule and swallowed the powder alone, with no problems at all. After doing this for a couple of years, I very gradually worked back into taking the capsules, and have had no difficulty for the last 3 years. | Elmiron doesn't work for many folks who try it, but I can't say how grateful I am that this product has virtually eliminated my IC symptoms. I was prescribed 100mg 3x/day, but have found that 2x/day yields the same results. | F | 57 | 7 years | 7/26/2007 | 4 | IC | I have taken Elmiron for nine months and have developed mouth ulcers in the last week. | It took about six months for most symptons to disappear. I have not had a flare up in six weeks but continue to take Elmiron three times a day. I also take Urelle as needed. | F | 63 | 9 months | 6/28/2007 | 2 | IC | Severe Diahrrea, nausea. | I am hypoglycemic and found it extremely difficult to take Elmiron on an empty stomach. I stopped after one month because the bladder instillation treatment combined with dietary changes had a positive effect, and the diarrhea made me very weak. | F | 21 | 30 days | 6/27/2007 | 4 | Interstitial Cystitis | Well it has actually been a godsend for me until I had an allergic reaction today and went into anphalactic (sp) shock. I have broken blood vessels all over my face (petechiae)and arms and am bruised black where I was stuck with IV due to the anti coagulant effect of the med. If I get a massage I bruise terribly. I cannot get off but reall y am concerned about long term usage as I definately am showing blood/liver issues with this med. | I take 200 mg in am and pm on empty stomach......... | F | 45 | 6 years | 5/17/2007 | 5 | IC | None | I can't believe I lived without it for 18 years!!! I have my life back. | F | 42 | 3 years | 5/9/2007 | 3 | IC | Here's the thing, I was diganosed June of 2006 after suffering through this for 11 Years. When I read the Adverse Effects of Elmiron, I freaked out. I haven't been taking it because I am terrified!!! They did not do any Drug-Drug interaction testing....not enought testing period. Can you Drink alcohol or Caffine with this? Is Advil okay to take with this? How about being in the Sun for an extended period of time? | F | 30 | 0 days | 5/4/2007 | 4 | Interstitial cystitis | Taken at 100mg twice a day. Hair loss directly related the dose taken (noticed more hair loss at 300mg/day). Easily bruise, easily bleed when cut/in surgery. Gum bleed more easily. May make one more susceptible to gingivitis due to the gums being more prone to bleeding/sensitivity. | Since 1993, I take PolyCitra-K packets twice/day which took care of 70% of my IC symptoms. It took 9 months to notice benefits from Elmiron, and a year for it to reach its full benefit. Elmiron eliminated almost all of my remaining IC pain, especially the minor flare-ups around my menses, and I have not had a major flare up in 9 years. | F | 37 | 10 years | 4/18/2007 | 2 | intersistial cystitis | no side effects im aware of | i have just stopped taking it after 5 months. it didnt do a thing and i found it very difficult to take b/c your stomach has to be empty and im a constant snacker. anyone out there that didnt feel any positive effects until after sticking it out for 6 months with elmiron?? im in such constant pain..... | F | 31 | 5 months | 4/13/2007 | 3 | IC | Blurred vision, seems like my eye has a gummy film that collects on my cornea and my contacts. I think that the membrane it is working on is not simply limited to the bladder. | Have been on it for 3 months and don't want to be on it forever. Is there anyone who has been cured and no longer needs this drug? If so, did you have to stop all alcohol and coffee for it to work? | M | 43 | 3 months | 3/5/2007 | 5 | Interstitial Cystitis | I have been taking the drug for six years and was just diagnosed with Acid Reflux and Tinnitus and am not sure if these are caused by long term use of the drug. | It is a miracle drug for me. I am almost totally pain free and don't go to the bathroom nearly as much. If the Tinnitus is a side effect, I would rather learn to live with that than live without the Elmiron! | F | 60 | 6 days | 2/27/2007 | 5 | Diagnosed with IC 10 years ago | Definitely hair loss. I too have experienced blurred vision, but it is not all the time. It is quite weird though. No catarac but it feels almost like there is a film over my eye(s). I have just been diagnosed with acid reflux and was wondering if there is a correlation between the Elmiron and the acid reflux as again tonight the chest pain was terrible about 15 minutes after taking my Elmiron. | It really is a wonder drug. I was in so much pain for about 2 years. The Elmiron and diet has controlled 95% of my IC pain. I am just wondering about long term useage as I pretty well started the drug just after it's release in Canada. | F | 55 | 10 years | 2/1/2007 | 5 | to line the bladder | no side effects | I had radiation and as a result suffered IC. After taking this drug I was free for one year from an IC attack. After another occurance, I began taking the drug again. It has helped a lot | F | 78 | 2 years | 1/19/2007 |