ELMIRON Reviews (PENTOSAN POLYSULFATE SODIUM)Average Rating: 3.3 (238 Ratings)Filter ResultsCompare ELMIRON with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on ELMIRON: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR ELMIRON | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | Interstital Cystitis | none | I have been on Elmiron for 3 months. I feel 99.99 % better. I only wish that I could sleep through the night, I still get up one time a night. | F | 35 | 3 months | 1/17/2007 | 5 | IC | My IC has completely settled down. No pain. Only getting up once at night for urination. But, after 1 month my throat became scratchy with stomach upset, really bad indigestion, and when swollowing It felt like there was an abstruction in my throat.Anyone else have these symtoms? I have suffered with this disease for 27 years. | F | 47 | 3 days | 12/4/2006 | 5 | IC | My IC has completely settled down. No pain. Only getting up once at night for urination. But, after 1 month my throat became scratchy with stomach upset, really bad indigestion, and when swollowing It felt like there was an abstruction in my throat.Anyone else have these symtoms? I have suffered with this disease for 27 years. | F | 47 | 3 months | 12/4/2006 | 5 | For IC | I have not experienced any side effects from this drug! | Elmiron has helped me alot. | F | 24 | 6 months | 11/29/2006 | 5 | IC SYMPTOMS NOT YET DIAGNOSED | I have not experienced any side effects and am tolerating the medication very well! | I am delighted with this medication and would recommend to all who have IC or symptoms thereof. Have tried detrol, detrol LA, Suldinac and xanax. The suldinac and xanax are just a bandaid with sumptoms always returning--until Elmiron | F | 57 | 90 days | 11/11/2006 | 3 | interstitial cystitis | I just started taking this less than a month ago so I haven't experienced it's full effects yet, but I have had some poor side effects so far. The headaches are tremendous and the nausea is awful too. there really is no other treatment so I am trying to stick it out, but I don't know how much longer I can handle the constant headaches. | F | 34 | 18 days | 11/10/2006 | 3 | interstitial cystitis | A little upset stomach when I've taken it too close to eating. | I'm not sure how long it will take to get really good results. So far it seems to be helping more than anything else I've tried. Why I wasn't told about this drug sooner by my doctor I'll never know. I've suffered from this disease for 15 years. I had to basically ask her to prescribe it to me after I had read something about it.Anyone know of a good urologist in Phoenix area? | F | 51 | 1 weeks | 11/7/2006 | 2 | Interstitial Cystitis | None that I noticed | I started taking this with Elavil. Once I dropped the elavil my bladder got worse. I think it was the Elavil that was helping all along. I don't think Elmiron does much. | F | 24 | 3 years | 11/2/2006 | 5 | Intersitial Cystitis | None | It appears not many men have Intersitial Cystitis. I was diagnosed in 2001. After some treatments that left me less than happy, I finally was put on Elmiron. Within two months, I was just about back to normal. I continue with elmiron today but have backed off to only two capsules per day. Another important thing that happened was the discovery of a device called the Alpha Dry system. www.alphadry.com This device obvously was designed for men but I wanted to put it in here in case other men happen to read this. The Alpha Dry system worked for me because it gave me more self confidence to venture from home. I was very close to being house bound before Elmiron and the Alpha Dry system. I now have my business back on track as well as my relationship. | M | 59 | 5 years | 9/24/2006 | 4 | Interstitial Cystitis | Heartburn. Very bad stomach pains, loose bowels and diarrhoea. The thing is that it really helps my IC symptoms but don't know how much longer I can take the side effects. | I'm also worried about the long term effects. | F | 38 | 1 years | 9/15/2006 | 5 | Intersitial Cystitis | None | Elmiron is great. After suffering from IC for years, with flare ups almost weekly, my doctor prescribed Elmiron, and 6 months later I am virtually sympton free! | F | 25 | 6 months | 3/16/2006 | 1 | interstitial cystitis | F | 28 | 1 years | 9/30/2005 | 5 | Interstitial Cystitis | I have some hair fall out. Not in clumps though. Just a little bit here and there. I also think I have an upset stomach from it occasionally. I take 200mg two times a day. | Since having a baby, I can not tolerate very many medications. Elmiron is the only one that I can still take with minimal effects. I'm thankful because at 200mg two times a day it really dose make a difference. | F | 28 | 2 years | 9/12/2005 | 4 | interstitial cystitis | diarrhea, constipation, acid reflux. However, the drug has helped my IC symptoms tremendously. | F | 50 | 7 months | 5/19/2005 | 2 | Tenho cistite intersticial | Dor de cabeça muito forte, queda de cabelo e sensibilidade a luz. Gostaria de saber se eu tomar o Elmiron apenas duas vezes por dia, se ele faz efeito, e diminue um pouco os efeitos colaterais. | F | 42 | 6 months | 5/10/2005 | 5 | interstitial cystitis | none | concerned about in the long run,if any damage will be done to my liver. | F | 35 | 3 years | 4/15/2005 | 4 | Interstitial Cystitis | Three weeks after beginnning Elmiron I noticed blurriness in my left eye in the center of my vision. It got worse so I went to a retinologist who mapped my retina and said I had an epiretinal membrane. Real (not laser) surgery is the only medical option other than just living with it. I decided to take a wait and see stance. The blurriness definitely developed quickly after starting the drug. Three weeks after stopping the drug, my vision improved - I returned to the retinologist who mapped me again and the epiretinal membrane was gone. Coincidence? That's what both the urologist and retinologist think, but my thinking is that if the drug supposedly thickens the bladder membrane, maybe it causes membranes to grow where you don't want them - like the eye. I wrote to Ortho-McNeil, but only got a standard response and so do not know if others have experienced this side effect that might possibly be correlated to the drug. | On the flip side, Elmiron is the only drug that I have found to work and produce long-term relief from the symptoms of IC, but I am reluctant to take it again, fearing the effects on my vision. | F | 55 | 80 days | 1/19/2005 | 5 | intersistial cystitis | none | worried about long term effects | M | 59 | 4 years | 9/27/2004 |