HYDREA Reviews (HYDROXYUREA)Average Rating: 3.6 (121 Ratings)Filter ResultsCompare HYDREA with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on HYDREA: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR HYDREA | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | Myeloproliferative disorder | None. Numbers stay under control now. Platelets were over a million without drug. I also worry about long-term effects of the drug | F | 56 | 10 years 500 mg | 11/28/2012 | 3 | Polycythemia Vera | Initially: night sweats, joint pain, stomach pain, diarrhea, stiffness, extreme fatigue. Now: Fatigue. Am completely exhausted by early afternoon. Used to cycle 30 miles/day and 50 on weekend trip; now I bonk at about 10 miles. Physical and mental exhaustion. | The drug is effective at controlling HCT and platelet count. | M | 62 | 1.5 years 500MG 1X day | 11/27/2012 | 5 | Essential Thrombocythaemia | Nothing I have really noticed | I also have M.S as well as Essential Thrombocythemia, wouldn't know I was on it, the alternative is much worse, love life make the most of every day. | F | 53 | 3 years 2X day | 10/28/2012 | 4 | Policythemia Vera | Maybe slight fatigue, itchy legs. | Now 7 years into this illness, I take a total of 5grams a week which keeps my levels within parameters, except Hematies which, at 6.380.000/ul, is slightly above max. Just had a phlebotomy, usually have one every 6 months. This year no itchy legs, Doc says it's because I've been sunbathing every day, something I never used to do. Never had the side effects other users have, maybe I'm just fortunate. | M | 66 | 7 years 500mg 1X day | 10/20/2012 | 4 | Sickle cell anemia (HbSS) | fatigue, deterioration of hip joints, extreme cycles of constipation and diarrhea, extreme weight gain (roughly 30kg or 66lbs), skin darkening, mouth ulcers, joint pain, increased risk of infection | this drug is supposed to substantially improve my longevity and overall quality of life. however, after having been on this medication for 11 years, i'm not sure how well I will be able to manage this for the rest of my life. I'm only 22. | M | 22 | 11 years 2000 MG 1X day | 6/10/2012 | 5 | essential thrombocytosis | Lots! But for the first time in 3 yrs I don't have a pounding headache 24/7.. severe heartburn. Upper GI pain & incredible fatigue.,...but I don't have a headache & to me that's all that matters! | F | 50 | 2 weeks 500 mg day | 5/1/2012 | 3 | JAK-2, Essential Thrombocythemia | At least once a month I experience such fatigue, dizzyness and nausea that my manager sends me home. I've been alternating the drug 1000mg and 1500mg but this doesn't seems to be helping although my platelet count is stabilised I really don't want to feel like this for the rest of my life :-( | F | 43 | 6 months 1500mg | 4/16/2012 | 2 | polythemia vera | after taking the drug, 5 hrs later intense itchy skin,urination alot, nasaua, taking it on and off hate the drug. hair thinning havent worked since taking the drug. had to cut down on smoking. doc says people live a normal life, my life hasnt been normal since taking this drug. | F | 56 | 2 years 500mg 1X day | 2/20/2012 | 4 | Essential Thrombocythemia | Mild pain near the rib cage, fatigue, weight loss. Currently skin discoloration on hands and feet. Skin atrophy. | Helped with the platelets. Was up and down, but in a "good" range. Wish there was another drug I can try. I am told this is the only drug left. | F | 31 | 4 years 500 2X day | 1/11/2012 | 3 | Essential Thhrombocytheamia | Stomach discomfort and fatigue for first month which subsided later. Just had dose increased from 500/day to 500 one day and 1000 the next as platelet count started to go up again 3 months ago and has continued upwards. Never been below 600 yet. | I Do worry about condition turning into Leukeamia especially as I've started at a younger age than appears typical (42). I also take cholestorol lowering meds, blood thinners and somrthing that makes the platelets slide over one another more easy (Lipitor). Heamo says the other drugs significantly lower my chances of another stroke. | M | 42 | 10 months 500/1000 1X day | 12/14/2011 | 2 | Essential Thrombocythemia | Very tired, feeling drugged, pain in ribcage, numbness of arms and legs, neurological symptoms (probably got worse because I was on alfa interferon before), very weak, anemia, dificult breathing, in the begining large black bruisings on legs but I was taking 6-8 pills a day! Weight loss (6 kg) and hairloss with bold spots. Back pain, strange spleen sensation and enlarged spleen. In the begining trombophlebitis, putting legs higher then rest of body helped. Muscle pain and very nervous, got better after a few months. | I was also on Anagrelide and Interferon, Interferon was terrible, I had alucinations and thought cars were chasing me...Pain in the bones and very depressed. | F | 21 | 1 years 500 3X day | 12/8/2011 | 4 | Essential Thrombocythemia | Fatigue, aching bones.....especially hips and femurs. Occasionally ankles. Has actually reduced my headaches, kept platelets under control. Diarrhoea .....at least 3 times daily. Weight gain....put on 30kgs quite quickly but have been able to maintain at that weight for last 8yrs.....Specialist said we'll worry when I "can't" put weight on! Gee I love that man! | It's saved my life!!! I tried Peg Interferon.... as part of a drug trial, and was having suicidal thoughts after 13 weeks! I was soooooo sick when diagnosed I tried anything! Hydrea might have it's risks but it has given me life for the last 9yrs and enabled me to watch my children grow up and make me a grandmother! | F | 50 | 9 years 1000mg 1X day | 10/13/2011 | 1 | essential thrombocytosis | The hydrea did lower my platelet counts but at about 2.5 years I developed very rare hydroxyurea dermothapy, causing skin problems and also developed periodic severe itching. Had to discontinue usage, take cortisone and topically apply clobetasol for skin problems, and after 5 years still have a few skin problems, spleenomegaly and itching is increasing. | This drug very rarely can have pretty severe side effects for your skin. See hydrea dermopathy. For some patients who develop dermopathy, the problem is cured by discontinuing use of hydrea. In my case, after 5 years I still have some symptoms, including skin abnormalities and my big toes are tender on the tips. | M | 60 | 3 years ? 1X day | 7/12/2011 | 4 | JAK-2, primary essential thrombocyt | Fatigue and loss of energy for the initial three weeks. That has improved. Weight gain. | I am very active, ran a half marathon several months ago, cycle approximately 150 miles a week. I find myself very tired some days with loss of energy. In spite of being so active, I have gained weight which I can only attribute to the Hydrea. It has helped finally bring my platelet count down to a normal level therefore I have no choice but to take it but I am concerned about long term effects. | F | 49 | 3 months 500 3X day | 5/26/2011 | 3 | Essential Thrombocythemia | Experiencing extreme fatigue, not sure if it is the ET or the Hydrea. Mouth ulcers that are very painful. | Having a big problem getting and keeping platelets within the normal range. My hem is constantly adjusting my dosage, I find this extremely frustrating. I've been going for blood tests once a month and to the doctor every 3 months for 2 1/2 years now. I can't imagine living the rest of my life like this. | F | 49 | 2.5 years 500 3X day | 4/17/2011 | 4 | Essential thrombocythemia | Intermittent but severe fatigue. Dry, itchy skin, rosacea. Constipation. Occasional nausea or lower leg pain. | Wish I didn't have to take it, but one of the only treatments for ET. Could be worse. Do worry about long term effects, though an oncologist said this drug has been around for a long time with no proven long term danger. | F | 31 | 6 months 500 4X day | 4/7/2011 | 2 | polycythemia | no side effects to begin with but extreme fatigue at day 12 and extreme claudication at day 12. | Fatigue seems to be common to a lot of modern medications. | M | 81 | 15 days 500 1X day | 2/14/2011 | 3 | essential thrombocytosis | At first, I went through a period of fatigue and loss of appetite. That lasted about 3 months but I don't have a problem with it anymore. I do, however, have very painful tongue ulcers about every 3 months. It goes away after I stop taking the medication for a few days but during that time I gargle with baking soda and eat a bunch of yogurt. | For some time, it helped lower my platlets to within reach of normal but I never got there. | M | 56 | 2 years 2500 1X day | 2/28/2010 | 4 | Essential Thrombocythemia | Chronic headaches, full of energy for a period, extreme fatigue the next, very fuzzy head, concentration difficulties, visual disturbances | I worry about the risk of acute leukemia | F | 49 | 16 years 90 3X day | 2/26/2010 | 4 | essential thrombocythemia | redness of the skin, nausea | I think it is a dangerous medicine that can cause leukemia. I don't like taking any medicine for my condition and wonder why a cause cannot be found for it. Hydrea only numbs the effects of what is wrong. | F | 49 | 3 years | 12/20/2009 |