HYDREA Reviews (HYDROXYUREA)

Average Rating: 3.6 (121 Ratings)

Filter Results

Compare HYDREA with similar:
 ANTINEOPLASTICS

 Type: Rx Drug

  

HYDREA  (HYDROXYUREA):  This medication is used by people with sickle cell anemia to reduce the number of painful crises caused by the disease and to reduce the need for blood transfusions. Some brands are also used to treat certain types of cancer (such as chronic myelogenous leukemia, squamous cell carcinomas).    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Date added.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

Page: 1 2 3 4 5 6 7


RATING  REASONSIDE EFFECTS FOR HYDREACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  Myleofibrosis CIPN Chemo Induced Periferel Nueropathy ...general feeling of being unwell ... Felling toxic... Headache/ Fatigue/ Hair loss/ Visual disturbance ..... It did the job it was meant to do .. But I find I can no longer take it due to the way it makes me feel & the side effects became to much after 14yrs @ 1500mg daily ... M 55 10 years
1500
3/23/2016
 3  Essential Thrombocythemia JAK2 neg I started at HDXY 500mgs for the first week but they did nothing to bring my plts down. In fact they went down by 200 and then shot back up! 2 Weeks ago my chemo dosage was upped to 1000mgs 1X daily. At first the side effects were awful (but I do tend to suffer with side effects on any medication). Headaches that would last for days, nausea which lasted for hours (despite the anti-sickness meds), knuckle joint pain to the point of them locking and not being able to make a fist, mouth ulcers and constipation. The side effects seem to have subsided a lot now and I'm just a little more tired than usual with the odd headache and nausea (new anti-sickness meds work a treat!) so any side effects dissipate very quickly. I was diagnosed with ET by a routine blood test and since that day I've had so many tests I've lost count including scans, ultra-sounds etc. I have my bloods done once or twice a week. I found out last Thursday that I do NOT have ET after all as my overactive bone marrow test came back negative. My consultant calls me a "medical mystery" as he was 90% sure I had ET. My JAK2 gene was also negative. I'm now being tested for Chronic Leukemia which is frustrating as I have been asking for weeks if I have blood cancer and each time I am told "no". The goods news is that since I've been on double dose chemo my plts are coming down, albeit gradually, but they are coming down so clearly its working and I'm going in the right direction. I was told I was 75% risk of a stroke so I suppose the very mild side effects I get now are tolerable in comparison to the alternative. I was/am concerned about being on chemo for life but even more concerned that I'm taking this drug and no-one seems to be able to diagnose me! Either way, the chemo is working and the plts are going in the right direction. It would be nice to find a patient "group" whereby you could talk to other people who are experiencing the same rather than just leaving a review. F 48 28 days
1000 1X day
3/3/2016
 5  Essential Thrombocytosis M 56 1 days
2/17/2016
Email
 3  polycythemia vera JAK mutation steadily have gained weight up to 12 pounds in 7 months. Mouth feels like i burned it, fatigued mostly in the afternoon, confusion and foggy like. My blood count and platelets have been pretty close to the 45% or right at the top of the "norm" . Have not had to have visit the lab to have blood taken since September 2015. This weight gain really bothers me and i cannot think of any other reason to be gaining weight. F 66 7 months
500MG 2X day
2/7/2016
Email
 3  thrombocythemia turning toward myel Very fatigue as said above.no energy.use to workout.can not do that.dry eyes..achy joints.the only thing that it has helped so far are the night sweats F 63 1 months
4x a day 5
2/4/2016
Email
 1  Thrombocythemia Extreme fatigue, pain behind knees, debilitating diarrhea, stomach upset, skin ulcers, skin discoloration on ankles , sore throats I never had any symptoms prior to this drug except for occasional headache. This drug does not even lower my count to the normal range. It continues to hover around 900. I take 500 one day 1000 the next . Could not tolerate anymore without staying in bed all day. Take 81 mg aspirin. I lived a very active life before this drug. F 43 3 years
500mg
1/28/2016
Email
 1  Polycythemia Vera High fever (103)for a week, extreme swelling all over my body, discoloration in fingernails and toenails, diarrea and constipation,nausea, lack of appetite,dizziness, drowsiness F 68 3 weeks
500 mg bid
1/23/2016
 1  Essential Thrombocytosis Jak 2 pos I took this medicine for 1 week. I had extreme fatigue, leg pain, and shortness of breath.. With my platelets being below 1 million, the risk vs reward is not worth it at this point. Do your research before getting on this drug. Long term use has consequences. F 32 7 days
500
1/13/2016
 4  Essential Thrombocythemia Very tired at times, nauseous, forgetful, depressed. I started eating marijuana for the nausea and depression, it works, and after a year my blood pressure and cholesterol are back to normal so I am off two other medications. M 63 7 years
500 MG 1X day
12/26/2015
 4  pv i think i've had every thing on the side effects list except hair thinning.I was diagnosed with thrombocythemia vera in 1991 when i was 23.they changed it to Pv a few years ago.I've had to leave jobs because i couldn't cope with side effects.Dizziness,fatigue etc. Twenty odd years later and i get swelling feet and ankles.Im suffering nausea at the moment Because i'm on 3 tablets 1 day then 2 the next.I eat very healthy,hardly drink and train at the gym,when i'm not feeling tired.People dont understand you feel horrible a lot,and you dont want to sound like a hypochondriac so you keep it to yourself most of the time. It sucks! but has also kept me alive,so how do you rate that. F 48 24 years
1500mg 1X day
11/12/2015
Email
 4  Essential Thrombocythemia Fatigue at times, hair thinned a little but could be just from age. Do exercise as much as I can to stay healthy. At 1000 mg daily, has kept my blood cancer managed within normal ranges/ F 71 8 years
1000 mg 1X day
10/4/2015
Email
 3  PV Drenching night sweats, acute dizziness (taking meclizine for that, seems to help but might be exacerbating next symptom) marked tiredness by afternoon (take my dose in the morning; maybe I should switch to evening), two infections in two months including pneumonia, ringing in the ears. Did I mention the fatigue? And confusion. But hey, my hemoglobin and hematocrit are normal for the first time in years, so it's all good, right? Worried like others about long term leukemia risk. M 58 2 months
500 mg day
9/30/2015
Email
 3  JAK 2, ET When on 1000/day, gained 12 lbs. fluid, renal doc doubled diuretics; thrush, hoarseness, nausea, cuticles sloughing skin, nails tearing easily, nails turning black, terrible leg cramps, diarrhea at times, possibly slight hair loss Looking for nutritional alternatives. Drinking tonic water, as quinine can lower platelets, also cranberry juice & Jui tea, Mefiterrranean diet can lower platelets. Some side effects improved when dose is lower F 64 4 months
500 mg/day
8/26/2015
Email
 5  ET - Jak2 It's hard to say if the fatigue and bouts of dizziness are from the drug or ET, but they are there. I have been noticing stomach concerns now. There was some slight stomach concerns all along, generally with a fever. I could never tell if it was from a lowered immune system. Did not need time off from work, but is frustrating at times. Now stomach concerns needing to be treated for ulcer - perhaps unrelated to meds? There is hair loss,since the beginning, but not too noticeable. Of course I am thankful for the ability to keep my count at around 350. Days I feel really off I stop taking meds for a few days. I find this very helpful and my count appears to stay in check. F 40 10 years
1g
8/18/2015
 3  Polycythemia Vera + HIV Diarrhea - Headaches I was put on this as the only other "alternative" was phelbotomy once to twice monthly. I know that for me as a HIV plus patient the chances are not so good with this medication but I could not go to the hospital every two weeks owing to my profession and having to travel a lot. I am hoping that this drug does not cause pancreatitis as I have had this before and now live with only two thirds of it, tail missing non diabetic. M 1 days
500 1X day
7/21/2015
Email
 4  ET JAK2 positive Fatigue, occasional drenching sweats, night sweats, pains in legs especially around knees, bleeding gums, flaking scalp, bruising, thinning hair, splitting and thickening of nails, dry skin. Very successful in getting my counts down but last time plts had risen so I am taking 500mg extra per week on one day.. Hemo considering adding anegrilde - find out in 4 weeks F 60 19 months
1000mg 1X day
7/16/2015
 3  PV Nausea, dizziness and fatigue are my main concerns. Can hardly do simple activities such as shopping or playing with my kids. I'd rather prefer weekly phlebotomy than going through these nasty side effects Will see my hematologist next week for a follow up M 43 3 weeks
500mg
7/5/2015
Email
 3  ET fatigue muscle aches are the most common I have been taking for so long I just put up with side effects. Sometimes we don't know if it's the drug or the desease if I go off them platlette counts goes right up M 62 20 days
500 2X day
7/4/2015
Email
 4  Essential thromoocythemia I started getting body pain a year into taking this medication. Now it is all over and horrible. Ruining my life, really don't feel like I have a life. Went to see my dr couple of weeks ago and she stated to me that I am at risk for leukemia since I have been on it so long. (14 years) but I can't stop taking it. I hate this medicine and don't understand why they can't figure something else out and why we all suffer with this. Frustrated F 62 10 years
500 mg
6/23/2015
Email
 5  ET Hair thinning, mouth ulcers, toe nails brittle, sores that open on heel. Most things tolerable Platelet count under control for over 6 years now. F 64 10 years
31 mg a we
5/27/2015

Previous Page       Next Page

BACK TO TOP