HYDREA Reviews (HYDROXYUREA)Average Rating: 3.6 (121 Ratings)Filter ResultsCompare HYDREA with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on HYDREA: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR HYDREA | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | ET | Huge headaches, dizzy spells , pain under rib cage, sore legs , extreme fatigue | M | 61 | 11 years 500mg 3X day | 5/20/2015 | 4 | Essential thrombocythemia | Few side effects so far though I don't seem to be able to tolerate even moderate amounts of alcohol anymore. Slight nausea on days I need to take a double dose. | F | 47 | 6 months 50 10X W | 4/4/2015 | 5 | Myelopfibrosis | More tired then usual | Hydrea is great, my platelets are in control. Very mild side effects. | F | 51 | 4 months 1000mg 1X day | 3/23/2015 | 3 | Essential Throbocythemia | Fatigue especially after 12 Noon, "woolly" brain poor short term memory. | Have benefited from exercise (Swimming) | M | 57 | 4 years 1500mg 1X day | 3/5/2015 | 3 | Essential Thrombocythemia | Tired, not clear headed, sleep 9 to 12 hours and wake up in a fog. Lower leg pain. Mid back pain. Sometimes I think I'm really losing it. Make list to stay focused. | After I was diagnosed in October 2012, I have the mutated gene crap, I was only taking 1 325mg aspirin. I had a few different episodes - #1; almost lost my right little toe, #2;had vision issues in one eye for a few hours & was put on Hydrea. Note: Most likely had it from my mid 30's, tried to donate plates to a friend, got a call from Emory that something was bad with my plates - at 30 I blow it off. Back to the story: After 6 months tracking plates - the 500mg twice a day along with once a day Procardia 30mg & Plavix 75mg. The stuff works, my plates were 110,000 to 120,000 now they routinely track from 250 to 350. But the impact to the bloods go stuff are troubling. I travel for my job and have had major upper sinus and chest infections that take me weeks to fully recover from. I had enough - went to my Dr. last Thursday (1 week) and he reduced the dose to 500mg/day - one week out no improvement. 3 more weeks to see where my plates stabilized at. Strange as it may seem, hydrocodone 10mg does help me come out of the fog and focus. But more 1 a day does tends to make me feel worse. Has anyone tried prescription Cannabis / marijuana to deal with the side effects? I live in Georgia and no way are they going to follow some of the western states – making it legal. What a sad group we are but when I go to the clinic and see all the people with cancer, I say what I'm I complaining about. | M | 61 | 2 years 500 2X day | 9/11/2014 | 4 | Thrombocytocis | No side effects apart from feeling a bit tired. | M | 47 | 6 months 1000mg 2X day | 5/12/2014 | 3 | PV | I have extremly fatique as hell in the morning. Neuropathic pain right shoulder better with neurontin. Fatique symptom gets better in the afternoon. Sometime I think I'll quit it and don't care for the blood level anymore. | F | 49 | 2 months 2*500 | 2/27/2014 | 3 | Polycitemia vera | Slow motion.need drinking. Ear noisy when seated longtime or on travel by car and plane | M | 60 | 5 years 1500 | 2/25/2014 | 5 | ET | very tired, feeling of not being well-sometimes you feel like you have a virus, not alert, constipation, sometimes food you really love doesn't taste good or it tastes like fish ,nauseous if you get too tired-then you HAVE to go nap or go right to bed very early | I have taken as much as 6 pills a day and as little as 2 pills a week. | F | 65 | 16 years 500 mg. 1X day | 1/10/2014 | 4 | Essential Thrombocythemia | Fatigue was my original complaint but I've take it for so long that I am always tired. My most recent problem is my hands becoming very irritated and red plus my mind is becoming fuzzy. I hate taking this drug but it has saved my life. I take 4 a day and if I cut back to 3 my platelets shoot up almost spontaneously | F | 58 | 10 years 2000 mg | 12/9/2013 | 4 | JAK-2 Essential Thrombocythaemia | Hydrea has reduced my platelet count from 920 to 360 and white cells from 14 to 6. The side effects I notice are mouth ulcers, fatigue, dizziness and some muscle soreness. Also at times my teeth become discoloured and I have reduced immunity to infections. | M | 51 | 3 years 5 gm /wk | 10/4/2013 | 4 | Essential thrombocytosis | Fatigue is the biggest problem. Sometimes I just come home from work and go to sleep. Most weekends I spend at least one day in bed, working on my laptop. Some weekends it is both days. In the last 6 months I have noticed occasional shooting, sharp nerve pains in my hands. Not sure if that is from the drug or something else. I do have arthritis. When I started on the drug my dose was 4- 500 mg pills a day. Platelet count was around 900. I had hair thinning issues at that dose. Thank goodness I have very thick hair. I was seeing the doctor at least once a week then, sometimes twice. Now I am on 2- 500 mg pills a day with a platelet count that varies between 350 and 500. The doctor just increased the time between visits to 3 months. Also had diarrhea, but found out it was from a giardia intestinal parasite infection. I eat out a lot and probably picked it up at a restaurant. Funny thing is, when that was cured my platelet count went down. I wonder if the giardia caused in | Worried about long term effects. | F | 67 | 3 years 1000 1X day | 9/9/2013 | 4 | essential thrombocythemia | I have done this testimonial before ( you can read where it says 21 year old girl who lost 6kg). I have to say the first year was the worst, now the only symptoms I have are fatigue and sometimes dizzy / hard to breathe. I think the body gets used to it. Symptoms are getting better each month now. I am also taking 3x 500mg so it is a high dosis, only on higher dosis I get more tired. I was initially put on 8x500mg a day and it was too much for he body to handle. | Hydrea does a good job controlling platelets and compared to Interferon or Anagrelide it is def. my first choice. I am concerned about long therm side effects but I drink milk thistle tea to protect my liver and other organs from being harmed. | F | 23 | 3 years 500 3X day | 6/15/2013 | 4 | Thrombocytosis | I was freaked out when I found out I had thrombocytosis, but taking this drug so long concerns me now too. Maybe I should just freak out and get it over with! Not sure if it's my age, lol, but my mind is sure fuzzy! I teach fitness and yoga and have for 25 years, but some days my energy level is low. I'm still working and sometimes I just want to sit down and rest instead of pushing myself to keep going. I try not to worry but probably do more than I should. I meditate and do yoga and try to be grateful for everything wonderful in my life because there sure is a lot! | I wish someone would come up with something more natural and without such scary side effects. | F | 62 | 10 years 1000 1X day | 6/7/2013 | 5 | Polycythemia Vera | None | I was taking hydrea for my polycythemia vera because I was having surgery. My doctor is taking me off of it because now that my surgery is over, he would rather me go back to having phlebotomys. He said he would rather not keep me on it until I absolutely need to. I loved being on it, because I stopped bruising,stopped being so itchy after showers, and stopped feeling so red and hot. I have Multiple Sclerosis as well, and enjoyed not having my PV bothering me!, | F | 53 | 4 months 500 mg 1X day | 5/29/2013 | 4 | Essential Thrombocytosis | Tired most of the time,then bursts of energy.Sore legs,have swollen spleen to 15cm,very sore under ribcage.Jak2 gene defect.Monster headaches,dizzyness,These are all side effects of the disease because had these symptoms before taking Hydrea.My feet are constantly burning and have like a thousand needles pricking them.Taking Lyrica to help address this.Also taking 1 baby aspirin (80mg) daily to help against blood clots.Have 4 herniated discs so also have terrible back pain,on painkillers daily,chiro did not help.All this pain and effects of my blood disorder I fell into depression seeing psychologist to help me out.Am totally fed up and have no will and pleasure to live. | Hydrea has brought my platelets under control from 900,000 to 560,000 but still suffering from all the side effects. HELP ME b4 I commit suicide. | M | 60 | 6 years 1000mg 1X day | 5/12/2013 | 5 | Essential Thrombothycemia | Light headed at times, occasional mouth sores | I have taken this drug since age 23, it saved my life. I presented with clots in Hepatic veins in liver and platelet count of 1.3 million. Now at 600,000 have had doses of 500 daily, 500 alternating with 1000 and now trying 1000 daily with 1500 Sat. and Sun. Side effects definitely tolerable considering alternative. Also taking warfarin since diagnosis. | F | 42 | 20 years 1000 1X day | 2/2/2013 | 4 | Essential Thrombocythemia | In the beginning I had exhaustion, dizziness, weakness, nausea, lack of appetite, for a few months ..Long term, skin atrophy, hair thinning, occasional mouth sores, gums receding, lack of the strength I used to have. Weaker immune system. | My doctor said people can do well for 10 years, 6 years ago when I began... I notice my overall health and energy is less than it used to be. I take 500mg one day and 1000mg the next. I told the Doc I feel like I am taking poison..he said, "yes it is poison for your platelets." (Unfortunately hydrea doesn't travel only to your platelets, it is in your bloodstream)....It was keeping my platelets at a reasonable number, but they have been climbing up over the past 6 months, which means I will need to take a larger dose in the near future.. It is apparent to me, that I am becoming more immune to the current dosage...the alternatives are worse than hydrea...One person in 100,000 get this disease, so there is not much much research being done. In the last year I was put on Pravastatin, and Plavix. (I am allergic to aspirin.) I am thin and don't eat meat, and my diet is fairly healthy. I walk 5 times a week, but have trouble with weight bearing exercise. So we take it a day at a time. It is better than having a stroke or a heart attack from ET. | F | 66 | 6.5 years 500 mg 1X day | 12/18/2012 | 4 | Essential Thrombocythemia | None noticed | Platelet counts have gone from 2100 to 1100 in 2 months with no noticeable side effects. | F | 46 | 2 months 1000 1X day | 12/12/2012 | 3 | Essential Thrombocythemia | I take my hydroxyurea with 4 crackers and a glass of milk at night. I tried taking it in the morning, but the side effects were much worse, including falling down to my knees. Side effects: cold sores, pits at sides of mouth if high dose. Dizziness with nausia intermittently throughout the day, fatigue about 1 time per week, down most of the day. I have not experienced hair loss, my heart, lungs, spleen and liver are fine, so far. I do experience reddening of my face, which comes and goes. I experience discomfort and pain in my lower back and around my ribcage, at times. I have cold sores sometimes, and use neosporin to get them to leave, if they are outside my mouth, benzodent if inside. Sometimes I suddenly have itching on my skin, then I use benedryl cream for that. I experience dry mouth a lot, and use mouth moisteners, like cough drops without menthal. I also use butterscotch candies. | I am taking one Prilosec each morning and night with my meals, also taking L-Lysine to prevent or lessen cold sores. I also take echinacea to help my immune system. I am on a good natural multi-vitamin, as well as Vitamin B, Vitamin C, Vitamin D3, Vitamin D3 with Calcium. I also eat yogurt two to three times each day. I also drink 1 12oz bottle of Gatorade G2 each day, to help with electrolytes. I have platelet counts that do not stay in the normal zone, but roller coaster all the time. My platelet count could be 350,000 sometimes, or it could be higher, close to 1 million platelets at times. I have to take a dose that will hopefully keep me alive and allow me to have an immune system. | F | 67 | 4 years 1000 1X day | 11/30/2012 |