CELLCEPT Reviews (MYCOPHENOLATE MOFETIL)Average Rating: 3.5 (80 Ratings)Filter ResultsCompare CELLCEPT with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on CELLCEPT: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR CELLCEPT | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | V.k.h | Fatigue, lightheaded , dizzy spells, always feeling sick, insomnia, tired during the day, moody, chills, anxiety , shortness of breath , | I’ve only been on it for about 4 weeks but seems these are the start of the side effects I take 500 mg twice a day | F | 31 | 4 weeks 500 | 8/28/2019 | 2 | Glomerular nephritis | Serious hair loss it made all my hair matte and fell out . My gums grew over my teeth and bleed a lot I got lots of gum infections , Uti ‘s , nails grew into my skin and hurt , I felt like I had the flu 95 %of the time and could not eat because of my gums paining me and lack of appetite. Lost a lot of weight I’m 27 and weight 80 pounds my visions is bad now and my hearing is declining horrible drug it only helps u from ur body killing ur organs but it kills evething else for u like chemo this drug is like hell!!! | Hate it ! | F | 27 | 3 months 2000 | 4/19/2019 | 5 | Mixed Connective Tissue Disease | Weight loss and minor hair loss | This has helped the pain I’ve experienced daily (especially in colder months) tremendously! I feel like a new person! I’ve been fighting this for YEARS. The weather recently changed to cooler temperatures and that was the real test. I can get out of the bed and hold my roller brush and dry my hair and play with my kids in the cool weather!! I’ve lost some weight (I’m already tiny) and a little more hair than normal, but it’s worth it for how great I feel! | F | 39 | 8 weeks 2000mg/d | 11/2/2018 | 3 | Autoimmune hepatitis | Insomnia never sleep. nausea daily. diarrhea has just started at least 4/5 times a day. Headaches everyday. Blurred vision & high anxiety, shortness of breath rapid heartbeats. Also in prednisone 40 mg. Trying to bring liver levels down. | Have not decided if rhis is better. I was on metrocaporine for 6 years | F | 62 | 2 months 1000 | 12/18/2017 | 3 | abdominal pain for a few weeks. slight improvement in swelling. hair loss. fatigue. | F | 60 | 4 months | 9/19/2017 | 3 | Dermatomyositis | Weight loss, lost of taste, very fatigued and tired. Muscle aches. Hair loss | F | 57 | 4 weeks 3000 mg | 7/26/2017 | 1 | autoimmune uveitis | weight gain, fatigue, constant severe diarrhea, depression/anxiety, acne, nausea, migraines, some food sensitivities | this drug, after multiple dosage increases, has controlled my flare ups. i am now on the highest dosage allowed (1500mg 2x daily) and the side effects have become very dibilitating. the weight gain has been horrible. i have gained nearly 30 pounds in the past year and it has ruined my self esteem. i'm depressed and anxious every day, sometimes so severe i won't leave the house for days at a time. the diarrhea is the worst side effect for me and i can't leave the house for long periods of time because of it and it also hinders me from exercising. my eyes have only shown improvement after steroid injections in my eyes. i'm also very sensitive to acidic foods/drinks like coffee. I cannot wait till i can be taken off this medicine but i must stay on it or face going blind. | F | 22 | 1 years 1500mg | 5/28/2017 | 1 | Lupus | Headaches, ligh headed, nauseous, anxiety, depression, diarrhea, unfocused | I've been on 3000mg daily for two months now and I've never felt worse at first I thought it was prednisone because I was on 60 mg for three weeks which you all know makes you insane but now I'm on 15 mg daily. Definitely the cellcept effecting me so bad I'm stoping this drug immediately. Already been in the ER twice this week because severe headaches and light headed. | F | 22 | 3 months 3000mg | 4/8/2017 | 4 | Dermatomyositis | Hair loss, insomnia, fatigue, neuropathy, severe depression. | I've been on this for about 8 months. I first tried Imuran and it gave me a severe rash on my face and body. Spent $1500 in laser treatments to improve my skin. Then tried Cellcept. Initially my transition went well. Then approximately 4 months I noticed all the above symptoms. I've been on 1000 mg twice daily. I feel like this body is not my own. Do they do whole body transplants?:/ | F | 37 | 8 months 1000mg BID | 4/6/2017 | 4 | Systemic Lupus Nephritis | I've done much research and still don't exactly understand how a medication that is supposed to get yours body ready for a transplant can help you with SLE Nephritis. Any answers very much appreciated. | F | 4 | 1 days 2gm/day | 2/24/2017 | 1 | Doctors want to kill my immune system | Extreme muscle pain into arms and leg to the point where I can barely walk. Anyone else experiencing this | F | 72 | 1 years 1500 | 1/30/2017 | 2 | CIDP | Doctors and specialists either are unaware of or do not care that you are suffering this side effect. The whole person and their sense of being a human being, their sense of worth seems not concern them, which I have found appalling. | M | 50 | 1000 1X day | 1/6/2017 Patient History | 1 | Lupus and kidney transplant | I've had it with CellCept, I've never felt or been so ill since I've been on this and it's affected my state of mind now. I have panic attacks and am very depressed and moody. Persistent infections,for last 8 weeks have had serious bout of shingles and nerve damage, 4 bouts of ear infections and 4 bouts of erisipelas (severe facial infections on top. I feel sustemically poisoned and so unwell. This isn't living | I'm going to stop taking it My consultant needs to find something else. | F | 52 | 2 years 500mg x 2 | 1/5/2017 | 3 | Uveitis | Joint pain, muscle aches, significant anxiety, weight gain, increased light sensitivity, mood swings, fatigue, loss of appetite, insomnia | The medicine is doing a great job at controlling flare ups, but at the expense of a multitude of side effects | F | 15 | 4 months 2000mg | 9/25/2016 | 4 | Autoimmune ensuphalitis | Not many side affects with it but occasional headaches. | I have felt faint and almost passed out 2 times, don't know if that is related? But otherwise very effective. Probably will continue it for 2 more years.ive had no relapses, after I started taking cell-cept. | F | 1 days 1000MG | 5/25/2016 | 5 | Birdshot uveitus | Burning, itchy pus filled rash across forehead every few months. Tired, insomnia worsened. Problems with stomach. Had hoped for weight loss, but no.... | Happy to have it, hoping it helps with eyes!! | F | 53 | 1 years 3000mg/day | 4/30/2016 | 5 | Myasthenia Gravis | Hair loss | Helped me a great deal and I will probably be on this for many years. | M | 22 | 8 months 2500mg | 10/26/2015 | 4 | PIC | Fatigue, joint pain, hair loss, depression, crabbiness | The med seems to have stabilized my condition | F | 39 | 7 months 1000 mg 2X day | 8/11/2015 | 3 | Atopic dermatitis | Helped clear my skin a bit. Small headaches so dropped down to 250mg twice a day. Then severe hairloss. Still experiencing hairloss even after stopping cellcept last week. | F | 41 | 6 weeks 500mg | 5/1/2015 | 1 | autoimmune deficiency attacking my | Severe hair loss. Have had shingles twice. Urinary Trac infections. Sores on neck and scalp. | Liver functions are back to almost normal. | F | 71 | 1 years 1 pill | 1/10/2015 |