CELLCEPT Reviews (MYCOPHENOLATE MOFETIL)

Average Rating: 3.5 (80 Ratings)

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 IMMUNOSUPPRESIVE AGENT (TRANSPLANTS)

 Type: Rx Drug

  

CELLCEPT  (MYCOPHENOLATE MOFETIL):  Mycophenolate is used in combination with other medications to keep your body from attacking and rejecting your transplanted organ (such as kidney, liver, heart). It belongs to a class of medications called immunosuppressants. It works by weakening your body's defense system (immune system) to help your body accept the new organ as if it were your own.   FDA Approval Date: 1995-05-03 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on CELLCEPT: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR CELLCEPTCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  lupus I also wanted to comment that I used to get upper respiratory infections (URI) 3 to 4 times a year that took forever to clear up in the five years I suffered before taking Cellcept. In the five years since I started taking Cellcept, I have had only 3 URIs, only one was really bad that required a trip to the doctor's office. If you have not responded to other drug therapies, TRY tHIS medication. F 53 5 years
1000 mg 2X day
6/9/2010
 5  lupus nausea nausea nausea After five years of wishing I wouldn't wake up every morning, I began to take Cellcept (CC). After three months of taking CC, I had lost 25 lbs. and was eating way more than before taking CC. I can inhale deeply without pain, I can eat without running to the bathroom five or six times WITHIN 30 minutes after eating, I can touch rough objects without cringing, I can tolerate direct sunlight and my skin looks/feels better, my fatigue has decreased 90%. i can think clearER,limited fog now, my oral hygiene problems are improved, my visual and hearing disturbances are much improved. While I still have problems, the quality of my life is tolerable. CC made a tremendous positive difference in my life. I wish more physicians were knowledgeable about the benefits of this medication. I would recommend this to anyone who suffers from autoimmune disorders who has not responded to other drug therapies. I seriously just wanted to die. Now I don't. It is expensive even in its generic form. What will I do when I am older and don't have the insurance coverage I have now. I have taken medication vacations, but I always go back on it. I need it. CC gave me the ability to enjoy life again. i laugh now. :-) I was unable to say that five years ago. tRY IT. F 53 5 years
1000 mg 2X day
6/5/2010
 2  SLE This medication lowers your immune system, so I was exposed to more illnesses. I had bronchitis three times of the first 2 months of being on the medication. Can't sleep at night, tired during the day. On 2000 mg dose. I'm on the fence. I don't know if the side effects are coming from this medication or a mixture of all my other medications. I hate polypharmacy! ugh! F 21 8 months
6/21/2009
 5  Lupus Nephritis Aside from being very tired, which could be related to a lupus flare - this medication seems to have been successful. I was severely leaking protien. After about 6-8 months on Cellcept I had significantly reduce protien leak and have been off the drug for approx 5 years and have not had another flare. It seems that Cellcept really helped me. Well worth being very tired for a few months! M 43 6 months
2/9/2009
 5  Lupus Nephritis - SLE Nausea, dizziness After four months of intravenous chemotherapy with cytoxan - I was put on Cellcept, which is considered a milder type of chemotherapy. At the beginning i experienced some nausea and dizziness, but other than that I'd say I had no other side effects. It gave me great results and I'd recommend it to anyone. My lupus was at bay during the duration of my treatment with cellcept, and did not come back until two years after I was taken off of it. I am now trying Imuran, and i am expericing what I think are stronger side effects.. Am thinking of asking my doctor to put me back on cellcept... F 29 2.5 years
10/27/2008
 3  Myasthenia Gravis I can't pinpoint any side effects. In my case this has been a very trouble free drug. Previously I was on prednisone, which controlled my MG much better. However, cost of this drug is really prohibitive. I could never afford this drug without good insurance coverage and I certainly won't be able to afford it after retirement. Then what? F 59 7 years
3/17/2008
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 4  Lupus (SLE) Not many. Makes me a little tired, so I take it at night. Recently, I've had increased acne, not sure why. After trying a number of immunosuppresants and steroids, Cellcept seemed to be the only one that didn't make me nauseous. (Although when my doc tried to increase the dose, I got sick again, so we lowered it back to one pill per day with no problems.) Also seems to be doing a good job keeping my lupus from flaring. F 28 18 months
10/6/2007
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 3  autoimmune uveitis -pars planitis skin rash, fatigue. cellcept was the second immunosuppressant drug i tried after methotrexate. i was happy to have fewer side effects, but i still had regular flair ups. i still required periodic steroid injections and prednisone. not the drug for me. now i must move on to the more toxic substances. F 32 450 days
8/15/2007
 5  Kidney transplant No side effects I am a kidney transplant I take 250mg caps 4 in the morning and 4 in the evening I feel great! I have no problems or side effects taking this pill. F 35 9 months
7/25/2007
 4  uveitis On occasion, I will feel a bit tired. I also have small lesions on my hands and feet that come and go. I take 2 mgs a day for the last five years. It has done a good job keeping the imflammation at bay. Avoiding the damage that steriods can cause and keeping my sight. F 56 5 years
6/20/2007
 4  Systemic Lupus discoloration in fingernails, but no severe effects experienced This drug was much better than Imuran in controlling my Lupus flares. My illness had gotten so bad to the point that my hands (perhaps as a result of Raynaud's condition?), arms, and face were covered with deep painful rashes. My fingers also broke easily. Within the first month of taking Cellcept (as it has replaced Imuran) my fingernails started getting back to normal, and the rashes stabilized. F 24 4 years
2/23/2007
 3  Because of severe Lupus Stomach pain, fatique,nausea. You have to take a very high dose to help you. F 33 3 months
10/9/2006
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 3  kidney diease taking four tablets of 500 mg a day shortnees of breath, tired and fatigue also taking cozarr for high blood pressure and Lasix water pills which can cause fatigue M 53 3 months
9/12/2006
 4  Wegener's Granulomatosis Loose stools. Seems to be holding the WG in remission. Taking 1g 2x day. M 47 6 months
4/20/2005
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 4  kidney transplant I'm also on prograf, so it may be that as well...but I havn't gotten many side effects. I get Urinary tract infections often now, and a general feeling of being more tired than before autoimmune drugs. Seems to work, havn't gotten any rejection episodes. F 27 4 years
4/2/2005
 4  Myasthenia Gravis First month: change in bowels, then they went back to normal. One incident of bronchitis. CellCept kicked in relatively fast (1 month). I feel stronger on it. I still get monthly blood/urine tests, all of which come back fine. F 21 8 months
1/31/2005
 2  Multiple Sclerosis Increased fatigue (not like we need that), very crabby (probably related). Too many pills, too frequently. Taking Imuran now -- seems to be working better. F 26 6 weeks
9/5/2004
 4  Renal Transplant Real bad loose stools, like water. Other then that, great. M 35 4 years
12/8/2003
 5  autoimmune hepatitis Possibly increased hypertension but difficult to say because on prednisolone as well. Cellcept has enabled me to reduce the dose of prednisolone and hence reduced the side effects from that. Blood readings are great and I feel absolutely fine. F 46 4 months
5/22/2003
 5  Lupus Nephritis Acne, urgent need to pass water. F 23 1 years
4/3/2003

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