COUMADIN Reviews (WARFARIN SODIUM)Average Rating: 3.1 (876 Ratings)Filter ResultsCompare COUMADIN with similar:
Type: Rx Drug
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Results are sorted by Satisfaction lowest to highest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 |
More on COUMADIN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR COUMADIN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | Clot in leg and small PE in lung. | Mainly pain in and around the greater saphenous vein where the clot occurred. Some moderate to severe chest pains at times. I had mild symptoms at the time the clot and PE were diagnosed in late 12/08. Started on Clexane and then on Coumadin for 6 months. I got the clot after an international flight of 14 + hours crammed into a middle seat in economy. While on Coumadin I have had to make several overseas trips (Business class only now!) and spent weeks in Australia, Japan and the USA. As a result, probably due to the diet changes, my INR has never been steady at the 2.5 required and has ranged between 1.5 - 3.7. | Reaching a steady INR of 2.5 has not been possible. Interestingly, I feel that most of my aches and pains have had a psychological basis. In March 08 I was experiencing leg and chest pains, most evident at night. My doctor ordered a leg ultrasound and lung CT scan. Both results showed no evidence of the clot or PE. My pains all but disappeared. Now, when I notice pain in the clot area I am usually in a stressful situation. For me it seems that the side effects of Coumadin arise from the stress of associated issues and lifestyle changes caused by obsessing somewhat on the obviously dangerous nature of this drug. Additionally I have noticed some weight gain however considering my diet is more bland and less healthy now, I am not sure I can blame the Coumadin directly. | M | 50 | 5 months | 6/5/2008 | 4 | PE after c-section | Fatigue, low libido, no appetite | I am new to this drug...only have been on it for about one month. I had to PE go into my pulmonary artery right after delivery of my twins via c-section. I coded, and they had to do open heart surgery to remove a 6.5 inch clot from my heart. I don't know if all these side effects are from the Coumadin, Oxycontin, or the surgery...or from being a mom of twins...LOL...but I am noticing people are complaining of weight gain. What is the average gain? I am wanting to lose weight as soon as the doctor ok's it, even though I only gained 17 pounds while pregnant. Are there more effects with higher dosages? I was just increased to 4mg because my PT-INR was 1.7 earlier this week. Also, I have completely stopped eating a lot of leafy greens that I love because it was easier to quit than to try and regulate having the same amount of Vitamin K every day. Anyone have any advice on a good balanced diet? One of my favorite drinks is Naked's Greed Machine, which is full of green veggies...an | F | 27 | 1 months | 4/30/2008 | 4 | dvt, now protein c disorder | weight gain, tired ALL the time, some mood swings - also problems w/managing coumadin and dilantin | F | 52 | 5 months | 4/17/2008 | 4 | A-Fib | Weakness,headache, feeling cold much of the time, bruising. | I have only been on Coumadin for 3 weeks this time after a cardio-version for my A-Fib. I was previously on it for about 3 months in 2005. It was interesting for me to read many of the comments because I was beginning to wonder about my health, and see that the weakness, headache and coldness I'm experiencing is common to others. Tiredness is kind of a subjective term. However, I can tell you that I work out a lot. Both weight lifting and running. My strength and stamina have been hugely effected by taking the coumadin. Quite measureably. | M | 53 | 24 days | 4/7/2008 | 4 | DVT Left Calf | I experienced many side effects initially including loss of appetite, weight loss and I was always hot. After a month of the medications many side effects have subsided. After my initial weight loss, I had some weight gain (which I don't blame on this medication). However, try as I might, I have not been able to take off a single pound and wonder if the medicine has something to do with it. | Most side effects could be explained because of my condition. After being diagnosed with a small blood clot in my leg I was put on coumadin right away and told to go on bed rest. Prior to all this happening I was active, doing an exercise video several times a week at home, taking kickboxing 2 days a week and bike riding with my family. While on bedrest, my clot worsened and now I have total blockage. The pain was so intense I didn't want to do anything except cry. It hurt all the time, but anytime my leg was vertical was particularly brutal. To avoid using the bathroom so much, I greatly reduced eating and drinking (also the fact that if nobody was around to serve me the pain wasn't worth it). So I attribute my initial weight loss to that and the fact that the muscle I had built was turning to fat. I believe that I was initially hot because it was such an ordeal for me to get around. It was like a workout to walk into the other room. Thank goodness for the blessing of a new | F | 39 | 7 months | 3/18/2008 | 4 | DVT, Leiden V | unusually tired, particiularly in late afternoon; feel cold most of the time; experienced some weight loss when I first started on warfarin but that's over. | I got the news in December that I need to be on this drug "indefinitely" because they don't have a good reason for why I got this clot. The specialist told me there is a 30% chance I'll get another one if I don't stay on the warfarin so I will continue to take this drug. | F | 45 | 7 months | 2/11/2008 | 4 | Anti-phospholipid; 3 strokes | Tiredness and fatigue mainly. Some depression including one severe case. Disrupted sleep patterns - either too much or not enough. Also on a lesser scale aching legs, stomach cramps, bloating, and sensitive skin including sun burn very easily (ie while wearing sun screen). None of these things were a problem pre-Coumadin. INR fluctuates wildly at times and has never been considered stable. | It is not the nicest thing to be told the drug you have to take for the rest of your life is a poison, but without it I would be either dead or brain damaged. Coumadin, for all its problems, has more than likely saved my life (which is why I rated it a four). I have often spoken to my doctor about the tiredness, had any number of tests but never put it down to the Coumadin. Seeing that about half of the respondents cited tiredness or fatigue I guess I have my answer. It sounds strange but it is oddly reassuring to read about the common experiences so many have had and feel "normal" for a Coumadin patient. Until something better comes along I will stick with it. Thanks to all for sharing your experiences too. Stay well. | M | 37 | 10 years | 2/4/2008 | 4 | Factor V Leiden | not sure if the side affects are related to coumadin...but definite weight gain :-( and occasional headaches since taking this drug | I had a blood clot travel to my colon 4 years ago, and through testing, discovered it was FVL. Initial diagnosis was crohn's disease but a great gastroenterologist was suspicious of that and ordered the blood testing. My doctor told me that this is now happening due to age - our veins become less flexible as we become older and most likely any clots in earlier years were passed easily. I never had any problems until this happened and was surprised at the diagnosis. I have not had any clots since taking coumadin and so will continue. I'm not perfect with it, but having a home testing kit is wonderful - no more hospital visits for testing; I just call in the results. I've been working out and watching my diet for 4 weeks with NO weight loss - so frustrating! Probably due more to age than the coumadin? | F | 53 | 4 years | 2/2/2008 | 4 | DVT/Homozygous Factor V Leiden | General feeling of depression is a constant battle for me on coumadin. I've decided to find alternative ways to keep my blood thin because of the depression, weight gain, and headaches brought on by the drug. | M | 20 | 6 years | 1/31/2008 | 4 | PE left lung | They say I got the PE from taking Birth control pills. The only thing that came back from blood tests as far as anything wrong with me is both genes from MTHFR. However, my homyocystine level is normal. Really, it only took about a month and a half to get my INR steady between 2.5 and 3.0. I don't eat a lot of salads or greens, which I don't like, so I'm not thrilled about that, but I'm alive so that's what really matters. This drug really is a life saver. For about 2 or 3 months, I was very tired and didn't feel quite like myself, however I really don't know that this was all due to the Coumadin. A clot is a serious issue and your body adjusting to things like this take a toll on you. I have been on the drug, since Feb 07. I shed a lot of hair, it wasn't coming out in clumps, but it was shedding in the shower and all over the house, and really wasn't growing much either. My hair was noticably thinner. It was until about Nov or Dec that the shedding really stopped and now a | F | 28 | 11 months | 1/31/2008 | 4 | DVT | Dizziness | Hospitalized 4 days taking Lovinox shots, then 4mg of Coumadin. Went home, GP checked blood and increased dosage to 5mg with no monitoring scheduled until 2 wks later. On day 12 experienced severe dizziness, nausea, diarrhea, went to ER. Test showed level off the charts. Got IV of Vitamin K, more shots, level back to normal after 4 days, back home taking 4 mg again. So far so good. | F | 65 | 3 weeks | 1/16/2008 | 4 | Mechanical Mitral valve | I have noticed a substantial thinning of my hair. It was thick and wavy/curly now it is getting thin and the curl is gone. My skin is dry most of the time. I sometimes get very tired and then at other times feel good. I don't sleep as well as I used to and the dreams are sometimes disconsorting. I bruise easily and if I pick at a dry spot on my skin the bleeding takes hours to stop even though my INR is in the theraputic range of 2.5 - 3.5. I have been on coumadin for 5 and one-half years. | I noticed many comments about mood etc. I know that since the introduction of coumadin to my life(although no other alternative is offered if I want to live) I get more easily down in the dumps. It also has created some erectile dysfunction issues. I would love an alternative so that I can get off the "rat poison" and on to something with fewer side effects. | M | 56 | 5 years | 1/9/2008 | 4 | Factor V Leiden / DVT | 7/8mg daily. Minimal hair loss, mood changes (slightly apathetic at times), acne (likely from stopping birth control), bruising, excess bleeding (gums and menstrual). | The first few months on Coumadin are the worst in terms of side effects. Eventually your INR will stabilize and the side effects will become less and less. I still have some very minor hair loss, but the bruising and bleeding has subsided. It may seem frustrating at first, but try and stick with it. I know it's not ideal, but for those of us with Factor V it seems to be the dominant option so try to make the best of it. | F | 26 | 7 months | 12/4/2007 | 4 | TIA's | Thirsty more often, periods not longer or heavier than usual but heavy clotting (not every day). Already had thin hair but it seems to be getting thinner. Restless legs have come back since Coumadin but taking Iron 2x a week aleviates that problem. I can't really associate restless legs w/ Coumadin since I had it a few years before from lack of Iron. | I will be on it for life. I had a stroke in June 2007 and TIA's, no permanent damage. My coratid artery in my head (Left side)collapsed in on itself (including all of the little viens that branch off of it) either due to a disscetion or I was born that way. Doc can't determine which. (no pre-stroke scans to compare). I have no clots but he wants my blood thin enough to get thru the coratid. I only got my INR up to 2.1 once in the 3 months on meds. This week they put me on 10mg 4X week with 3X at 12.5mg. I'm still trying to get more consistant with my diet to get my INR up to 2-3 and stay stabalized. E-mail me with questions or discussions. Another coumadin patient sent me this link to Vitamin K foods (it includes other vitamins/minerals etc.)its a very extensive list and has detailed info on Fast Food places, canned goods and more. http://www.nutritiondata.com/foods-000104000000000000000-1.html Taking rat poisen and blood tests are now part of my life routine. Without it I WILL have | F | 45 | 3 months | 12/1/2007 | 4 | dvt developed after hormone course | I developed dvt following a course of hormone treatment prescribed to help with severe menoragghia. The warfarin obviously has an effect on the heavy bleeding I experience due to the existing condition. Side effects include, nausea, vomiting, dizziness, severely itchy scalp, and ears. Hair coming out. Dry patches of skin on areas of body. Bruising very easily. Fatigue and deppression. | No point moaning about it. The effects of taking it can't be any worse than risking not taking and allowing a potentially life-threatening clot to do it's nasty business. | F | 43 | 8 weeks | 11/16/2007 | 4 | DVT, PE | night sweats, irritability, hair loss, weight gain, and much more... | I feel lucky to be alive, i just wish they had other treatments to choose from. I am depressed all the time and never want to go and be social, before this i was out all the time. I have 3 kids and it is hard to find the energy to play with them when all i want to do is but my head under a pillow and sleep. This might not be a side effect to coumadin. It is a side effect of all I have been through. Lovenox shots 3X a day for 6 weeks and i have been on coumadin for almost 6 months. I welcome all emails... i would love to talk to other people who have been through what i have i find it hard for my family and friends to understand sometimes... | M | 28 | 6 months | 10/16/2007 | 4 | DVT in '04. New DVT and PE in '07 | Although I am taking additional medications, I have felt very depressed and lost touch with everything that I loved to do before. As a web designer, I used to live on my computer but now I rarely get on here for more than a few hours. I am also very irritable all the time, snapping at my sons very quickly and over little things then feeling mad at myself later about yelling at them. | I know that this medication is helpful and keeps the clots from reforming but I was unaware of it's side effects. The mood swings, irritable feelings and depression wouldn't be missed if they were to go away today. I am also freezing my wife out with the hot/cold spells. Either I am burning up or I am freezing. Glad to hear that I am not alone with these feelings. | M | 37 | 27 days | 9/1/2007 | 4 | Mitral valve replacement & AFIB | weight gain, extreme sensitivity to cold weather, otherwise INR pretty consistent btwn 2.5 - 3.5, menstrual cycle come every 2 month and can be heavier than normal | Taking this medicine for the rest of your life is daunting at best, but thank GOD this valve replacment(7/06) has given me an energy level from 20 yrs ago. With out a test, there is no testimony | F | 48 | 13 months | 8/28/2007 | 4 | massive dvt L leg, multiple PE | nuisance bleeding, heavier periods. My INR was always fluctuating, more blood tests. No obvious cause for DVT( did have one during pregnancy 14 yrs ago) I believe 8 kg weight gain also due to warfarin- I have exercised more than before DVT. | Continuing on weight, I stopped warfarin 2 weeks ago after 12 months treatment, no change in diet but I have lost 2kgs(4.4 lbs) already!! My first 6 months I was on drug trial for new drug Dabigatran (blind study but I suspect I was on warfarin)) This drug requires no blood tests and no bleeding side effects.Bring it on! | F | 47 | 12 months | 8/18/2007 | 4 | bilateral multiple PE's | Fatigue, sore mouth (feels like it is burning), back pain, severe headaches, anxiety, bruising | Since my PE's were due to being on the BC pill at the ripe old age of 48 I had to go off the pill (Kariva) immediately and am not sure that the side effects are due to hormone changes, coumadin use, or both. This whole experience has been very scary and I am so glad there is a drug to help stop the blood clots from forming. My headaches are very severe and now my doctor wants me to see a neurologist. Yippee!!! Oh Well...I'm happy to be alive!!! | F | 48 | 3 months | 7/29/2007 |