RESTASIS Reviews (CYCLOSPORINE)

Average Rating: 1.8 (298 Ratings)

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 OPHTHALMICS, MISCELLANEOUS IMMUNOMODULATORS

 Type: Rx Drug

  

RESTASIS  (CYCLOSPORINE):  Cyclosporine eye drops are used to treat a certain type of dry eyes. They work by increasing the amount of tears you make.   FDA Approval Date: 2016-10-27 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on RESTASIS: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR RESTASISCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  dry eyes/sjogrens it really helped at first, but now my eyes keep getting blurry and I can't tolerate bright lights at all.Also it feels like I can't move my eyes very fast or I get dizzy. My ears are ringing and sinuses are plugged. I'm going back to OTC drops. F 50 5 months
2X day
3/7/2010
 3  Severe dry eyes Sore throat, plugged ears, then sinus infection leading to bronchitis."Headache due to sinus pressure. Zithromycin was prescribed for bronchitis. My lungs are getting better (day 5) but now I realize the bronchitis was due to sinus drainage. Now, what's coming out of my nose is horrific!! I haven't been sick in YEARS. Not even a cold or the flu!! Suddenly, after taking this for a couple weeks, I have sinusitis, then bronchitis!! I'm going to continue but NOT tilt my head back as the directions suggest. If I don't get relief soon, I'm gonna have to ditch the restasis altogether. It's just not worth the pain. I have not tried the tear duct plugs. Opthamologist wanted to try restasis first. Bronchitits keeps me out of the gym. As it is, I feel extremely lethargic to the point of feeling "altered", like I'm drunk. No gym = dealbreaker!!! If this could work with out the painful sinuses, leading to bronchitis, then great! Otherwise, it isn't for me. Keeping me from the gym is absolutely unacceptable. F 50 30 days
2X day
3/16/2013
 2  Dry eye Burning, red watery eyes, redness of nose and face within minutes of taking drops. Notice increased sinus headaches/migraines over the past few months. Developed Severe external ear infection (swimmer's ear recently) so possible connection. Very difficult to get rid of and then I stopped taking meds and it started to improve. Numbness in side of face. Dizziness. After first three months seemed to help but then I started experiencing what I now realize were severe side effects and allergic reaction F 50 6 months
2X day
8/13/2020
 1  Sjogrens No burn on impact, but within 15-20 seconds sharp burning sensation that lasted over two hours. Eyelids now red and irritated. Artificial tears giving no relief, where they had given some before. Sinuses affected. Absolute misery. Why take a medication that makes your symptoms worse? I quit after 2 days. I do not intend to torture myself to see 'if' it gets more comfortable and 'if' it helps. I could be blind by then. F 50 2 days
10/2/2009
 1  Dry eye Fine with morning dose. Second nighttime dose 12 hours later I have horrible burning. Comes on about 45 min after taking. Lasts for 60 to 90 minutes. I must use ice back on eyes because the pain is so bad with the second dose. Also my nose clogs up on my right side then it starts running. My right eye is worse than the left. So when I get up in the morning I have such i inflammation for about two hours. I go back next week. I just don't think I can tolerate this pain. It's really bad at night with drops Not working well for me F 50 0 weeks
.05 1X day
1/6/2023
Email
 4  Sjogren My eyes were so dry that my cornea's kept getting an abrasion which would then get infected - I had plugs. The first few months on restasis was hell but it then got better and better for a long time. After about 4 years on the drug, the dryness increased and they raised me to 4 x daily but now I have a rash around my eyes and also at the base of my nostril. Was wondering if this is related to the new dose of restasis. Have no clue how I am going to live without this drug. F 49 4 years
4X day
10/4/2010
 2  Dry eye Stinging, blurred vision Doc prescribed restasis for dry eyes. It didn't really work. Caused stinging and blurred vision. Maybe it would have gotten better with time, but I didn't want to wait. I'm having better luck now with OTC meds. F 49 2 months
1 drop 1X day
1/24/2011
 2  Dry eyes Stiff neck , pain in left ear, horrible headaches, muscle fatigue and hard to swallow sometimes. After I told my eye doc about my symptoms , she told me , those are NOT side effects of Restasis. Really? I'm stopping this today. F 49 10 days
5/10/2017
 1  Dry eyes Chronic post nasal drip, stiff neck that wouldn't respond to stretches or treatment, finally lump in throat as if I can't breathe. This was not a good choice for me. F 49 3 months
1 drop 2x
5/2/2017
Email
 1  Dry eyes Extremely swollen and tender lymph nodes on the back of my head-alternating sides each week, hives all over my body, continues hives and lymph nodes swelling even after discontinued use, tongue tingling, heavy eyelids, eye twitching I began this drug for dry eyes and was told it would take 4 months to work. I had swollen lymph nodes the next day after using it that night. I should have stopped right then but ignorantly thought my body just needed to get used to it. After 3 weeks of suffering I stopped the medication. After 4 months now I still have the hives and itching and feel like I have a brain fog. I may have permanently damaged something but it’s hard to tell how long this itching and brain fog will last. F 49 3 weeks
5/2/2018
 1  Dry eyes Started using Restasis for extremely dry eyes. I have been using for over a year. These drops are very expensive, but worse, they don't seem to have made a difference. And I've been feeling HORRIBLE! I couldn't figure out why I was having extreme headaches that could not be relieved by any pain medication, nausea, and a racing heart like I had consumed a whole pot of coffee. I decided to look up side effects and found the comments on this site. I feel relieved after reading comments from others. I'm definitely going to stop the Restasis and see what happens. Did not help AT ALL with dry eyes and gave me terrible side effects! I am stopping and I wonder how long it will take to feel normal again. F 49 15 months
2X day
4/19/2016
 1   Dry eyes, extreme burning, swollen eye lids, pain in eyebrow, nausea, headache, floaters, blurry vision, insomnia, twitch, eyelid spasms at the point that could not open my eye. Twice I was diagnostics negative for Srojen syndrome, so I started the treatment suggested by 2 ophthalmologist and 1 optometrist, my insurance did not cover the 4 month treatment, so I have to pay a lot of money for. I started as recommended, keep it in refrigerator did not help, all of a sudden I started to have nausea, I thought was something wrong with my stomach I start prilozec, Then pain in the eye with floaters after 2 1/2 months I panic I thought I was having a retina detachment, I run to an specialist, who told me my retina was ok but he told me to stop the restasis, He told me to just use eye drops with out preservatives and refresh pm gel at night. After reading all this reviews I am going to STOP RESTASIS from tonight. F 49 3 months
2X day
7/17/2015
Email
 1  Dry Eye Pressure pain in head and headaches I stopped using restasis 8 months ago and now I am following up on how I am doing. I was experiencing excruciating pain on left side of my head, near my eye going into the back of my head. This pain is completely gone. I believe the eye drops caused it. My eyes are still very much dry. I use over the counter eye drops, but doesn't help much. F 49 8 years
2X day
6/11/2015
 1  Post LASIK I don't know if there is a correlation, but I began having chronic eyelid infections (Styes and Preseptal Cellulitis) and never had these before Restasis or before LASIK, for that matter. Restasis just did not seem to work. I never felt that my eyes were less dry using Restasis. M 49 8 months
1 drop 2X day
7/2/2015
 3  dry eye Sinus allergy irritation in throat imflamation headaches pain in head watery eyes burning nasal drip dry nose ect. I'm still using restasis but tonight is my last night using it .it came to my mind that I'm not on meds I'm only takin restasis my eye Dr said that it will only dry your hair and skin but I'm gonna stop using it just to c what happens..please people we need to do something abt this ...it does affect your body .. F 48 8 months
6/16/2016
Email
 1  Severe dry eye Dizziness, vertigo, nausea... within days I f starting it Do not take this! Am so unimpressed with my ophthalmologist for putting me on this toxic stuff. It should be banned 48 6 days
2X day
11/22/2021
 1  Dry eye due to arthritis Severe headaches, sinus pain, bloody nose. I'm upset it took me two weeks to figure out that it was the Restasis that caused such sinus issues with me. I was in sever pain for two straight weeks. I thought I was getting a sinus infection (never had one before) especially since my nose was bleeding. Finally stopped the Restasis and WA-LA! Instant recovery! Since the Doc said Restasis wouldn't cause those side effects, I tried it one more time just one tube and guess what? Bloody nose! Never again! F 48 2 weeks
1 tube 1X day
2/3/2013
Email
 2  Dry eye and Blepharitis Severe congestion, crippling headache, sneezing, fatigue, weakness....this medicine apparently weakens your immune system, I work a lot so I live a very healthy lifestyle in order to keep my immune system strong, I never get sick like this, it took me 2 weeks and three days off to realize it was Restasis, it did not help my eyes, it apparently takes months to help with eyes, I was hopeful about it but can't afford to be sick F 47 6 weeks
.5 mg
7/2/2013
 1  chronic dry eyes Started this past Friday. My eyes felt great after first two dosages. The first dosage I took not long before bedtime. Second the next morning. I'm a light sleeper but usually have no problems falling sleeping. I had a hard time falling asleep but did not make a correlation yesterday. Third dosage last night about 1.5 hours before sleep. My eyes were draining while I was trying to read. I wiped my eyes with my hands not thinking about it. Before I new it my eyes and skin burning. Let I twitching.I used artificial tears and also splashed water on my eyes to remove any residue of restasis. Went to bed but my mind was so alert. I could not sleep or ignore the severe itching on my face,chest and scalp. I took an antihistamine but if did not help me sleep and itching persisted. My appetite not right and feel sick to my stomach. Last night I also had slight earache,felt feverish. I googled reviews last night. I stopped the restasiS after reviews. I did not know the drops contained clyclosporine. I was concerned of its side effects but the pharmacist assured me dosage not significant to cause side effects.I don't feel myself. I only used it three times so hope to feel myself by tomorrow. F 47 1 days
3/1/2015
 1  Dry eyes Rash and itching all over the body, hair fall, acid reflux, headaches, stiff neck I’m shocked how this drug has been allowed on the market, and even more as to how doctors not only prescribe it but also refuse to register the side effects. F 47 18 days
0.2 2X day
7/11/2018

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