RESTASIS Reviews (CYCLOSPORINE)

Average Rating: 1.8 (298 Ratings)

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 OPHTHALMICS, MISCELLANEOUS IMMUNOMODULATORS

 Type: Rx Drug

  

RESTASIS  (CYCLOSPORINE):  Cyclosporine eye drops are used to treat a certain type of dry eyes. They work by increasing the amount of tears you make.   FDA Approval Date: 2016-10-27 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on RESTASIS: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR RESTASISCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  chronic dry eye disease Sore/swollent throat and left side ear neck and jaw pain. My left gland just under my jaw is also enlarged. I will stop Restasis immediately after reading of others side effects I am now convinced the drops are the cause of my enlarged lymph node. Scary business. F 54 3 months
1 drop 2 x
2/14/2016
 1  Dry eye Cough, joint pain, brain fog, throat discomfort, sleepless nights I started taking as directed 2 times a day. If it wasn't 12 hours between doses, I would get burning and a feeling of sand in the eye. Eyes were red all day long. Went to 1 time a day, but the joint pain was terrible. I could hardly get out of a chair and walk across a room. I stopped last week, I feel so much better. I use over the counter eye drops and I am doing great. I no longer have joint pain, and I am sleeping much better. No red eye. F 54 3 months
2X day
2/21/2017
 3  Dry eyes in the Winter Some burning. I have used it for about 10 weeks and it has only helped a little so far. F 53 10 weeks
12/6/2007
 2  dry eyes My eyes started itching, pain in my eyes, the skin around my eyes got very dry. Blurred vision. Stop taking it waiting for doctor advice. F 53 30 days
2X day
12/1/2014
 1  dry eyes Rash on my entire face. It made my eyes tear too much and my internist told me that eye drops get into the nasal problems an can cause sinus infection, swelling of nasal passages. When I stopped using the medication my eyes started to feel better M 53 3 weeks
4/14/2008
 1  Chronic dry eyes Chronic headaches ear congestion, stiff neck, muscle ache just terrible. I feel taking restasis was one of the worst decisions I ever made F 53 3 months
30
10/30/2016
 1  Dry eye Omg, started getting sore throat, just thought it was something going around until I couldn't get rid of it. Throat almost to where I couldn't swallow. Chills, felt like flu symptoms. Sinus drainage, started thinking about what had changed, and it was starting the restasis drops. Started cutting back, and started feeling better. I'm completely stopping TODAY!! Who would have thought eye drops could make you so sick. I'm done using these F 53 4 weeks
10/15/2016
 1  dry eye I am a Registered Nurse on no other medications. I started Restasis (used a manufacturer coupon to get it with $0 cost) and have had ear pain (feels like swimmers ear but I have never had swimmer's ear before), sore throat, thinking I am having a full-body arthritis flare although I DO NOT have arthritis. Stiff neck. I am stopping it today. F 53 45 days
1 drop 1X day
11/20/2019
Email
 4  severe dry eye/possible graves If you truly have dry eye this product should work for you-most of the time. If I didn't have it I would be in so much pain! Restasis keeps me level. It varies day to day, as to whether or not I am faithful in using. 12 hrs apart and weather also plays a roll. I do have headaches, tooth pain, and ear pain. My DR's tell me there is nothing wrong with my ears. But recently had 2 ear infections in which I have not had one since I was a child. I have pain behind the eye ball and tired burning red eyes if they are over worked from straining to read. Cannot read or look at computer for very long without pain, and I have pretty good vision 20/40. All I know after all the doctors I've seen, without restasis I would be in big trouble!!!!! The rest will come in time. Don't give up until you get an answer F 52 3 years
0.05
9/3/2014
Email
 2  Chronic dry eye loss of appetite, weight loss, light headed at times, feeling very weak, almost like I was going to faint. Blood pressure spikes to an extreme. It did not dawn on me until tonight and reading thru all these other reviews all of these symptoms I have been having are due to this eye drop. It started about 3 months ago, very subtle things at first... just not feeling like myself....dizzy, light headed, loss of appetite. I figured I needed to take my multi vitamins more regularly. No... that didn't help... it just got worse. Last week I went to the dentist. I ALWAYS have blood pressure readings at around 116/68 give or take a couple numbers up or down. Well it was 140/105... I was like.."WHAT?" I made them take it about 10 times... Then today, I was at my Dr.'s office and again it was 133/100... I have lost about 4 lbs in the past 2 months... I weigh 116 lbs. ITS THIS EYE DROP!!! OMG! In a way I'm so relieved to know this is fixable. I'm stopping it. I'd rather have dry eyes than a STROKE! Yeah...this medicine needs to get off the market. I can just feel my heart race and go crazy.. NOT GOOD! F 52 5 months
2X day
4/20/2016
Email
 1  dry eye Extremely dry mouth + diarrhea since starting Restasis. Have never had these issues before, but they have been chronic since starting these drops. F 52 45 days
1 drop 1X day
7/3/2020
Email
 1  Dry eye I am Latina and I have beautiful hair. Since I have been taking Restasis I am noticing a big change in my hair (losing hair). I don't take other medications. F 52 6 months
2X day
8/24/2021
 3  Dry watery itchy red eye's Burning about 10 min. after drops are put into eye's, after 15 min. you may put tear drops in eye's and it helps with the burning. My eye's would water alot but restasis has helped with this problem. Restasis also helped with the night dry eye's and I can sleep better now. M 51 4 months
8/30/2008
 3  Chronic Dry Eye First time trying, I did not have steroids to get me through the first two weeks, so I quit after stinging was intolerable. New prescript and steroids, I have had no problem, but now after 6 months stinging has started upon administration. I will be checking my blood pressure and chlolesteral after reading other's effects. Before Restasis, I was using moisture drops 4 times a night, now maybe once a night. I feel fine during day, but no help with redness:( F 51 7 months
2X day
11/28/2012
 3  extreme dry eye from lasik surgery I do believe it has helped somewhat but I have also experienced excess mucous in the back of my throat.I also am experiencing an itchy rash on my legs.I dont knowif this could be from a lotion or not but have had it around the same time I started the restasis I also was working out at the gym last night and my ears clogged up and got a bit of a headache and had to blow my ears out.I do believe this has to be from the restasis cause of the excess mucous running down the back of my throat.Hmmmm..anyone else experienced anything like this? F 51 4 weeks
2X day
3/3/2010
 1  dry eyes runny nose, redness around nostrils like when you have a cold. nostrils started to get cuts/slits, slight bleeding (like when your hands are really dry and your fingertips split. If I touched the cuts or tried to treat them, it would make me sneeze. M 51 6 months
2X day
5/8/2010
 1  night time dry eyes after lasik Followed doctor's directions with this $4000/year drug fastidiously for 10+ months. ZERO effect. I think this product is a billion dollar SCAM and the makers belong in jail with the Enron and Adelphia people. Even the Restasis support line people admit the company has a monopoly and do not deny that the pricing is excessive, the packaging and recommended dosage are nothing but a scam, and there is no warranty for cases like mine where the drug had NO EFFECT at all. M 51 11 months
drop 2X day
5/24/2015
 1  Chronic dry eyes Burning, itching eyes. Headaches, sore gums, excessive nasal drip, blurry vision, insomnia After having Lasik a few years ago, I developed extremely dry eyes. New doctor advised I take Restasis, and to power through the side effects that he said would only last a couple of weeks. I paid $410 for a 90 day supply. I'm finishing up week 4 and finally figured out why I'm so miserable. Eyes still water constantly, but now they itch and burn too. I'm not sleeping well and I have a constant dull headache. My vision has become very blurry and its hard to read. The past 2 days I've developed gum pain, so I finally looked up online and found this forum. Can't get money back, but I'm stopping Restasis and I'm hopeful I'll have improvement soon. F 51 1 months
6/2/2016
Email
 1  For recurring corneal abrasions On day 7 or 8 I started to notice side effects. At first it was very mild; headache (which I rarely get), dizziness, heart palpitations, dry mouth, and stiff neck. By day 12, I knew I was in serious trouble but I still did not know what was causing my problems. I started to get tremors, then insomnia and anxiety, and easily exhausted. I started to trace it back and tried eliminating some foods from my diet. It only became worse by the day. By day 14 it dawned on me that the problem was these drops. I found this website and that put me into full panic mode! I dont understand why there arent warnings on this eye drop. This should be black boxed!!! Im currently on day 5 of stopping them and it seems like there is little to no improvement. I took my blood pressure and its through the ceiling. The heart palpitations are unbelievable. This is a nightmare! I would love to hear from anyone else as to how long it took for their symptoms to return to normal after stopping it. Please contact me. I can see a class action lawsuit on the near horizon for this eye drop. M 51 14 days
2X day
8/17/2022
Email
 4  dry eyes I wonder if I am getting more and WORSE colds and if when I got the flu it was worse than it would otherwise have been. I don't recall getting more than 2 colds a year - so far this year, I've had 2 and this last was a doozie! Lots of throat pain with typical cold symptoms. Just seems to me it could be related to the restasis. F 50 2 years
2X day
5/14/2010

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