DOSTINEX Reviews (CABERGOLINE)Average Rating: 3.5 (434 Ratings)Filter ResultsCompare DOSTINEX with similar:
Type: Brand name discontinued; available as generic
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 |
More on DOSTINEX: Reviews Summary | FDA Adverse Event Summary
| RATING | REASON | SIDE EFFECTS FOR DOSTINEX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | elevated prolactin ....66 | Lost 20 pounds in a month. Didn't sleep for 3 weeks. Stomach pains. Depression and over all feeling of sorrow. Can't stop crying. Constantly jittery. No energency to even go to work. | For the first 9 months I took this medication I got it from Target ..Teva pharma...no problems prolactin dropped to normal and I felt great ...no side effects. In December I was forced to get med through my insurance company mail order. PAR pharma was the manufacturer. It all went downhill from there. my primary and endo drs having stopped medication for now and I am now waiting results of blood work. Anyone else experience different side effects from different manufacturers. | M | 43 | 1 years .50mg a week | 3/5/2015 | 4 | pituitary tumor | Omg been on this probably 15 years! Recently I'm noticing my short term memory is not good. Totally forgot these side effects. Have not gained more weight but not easily lost as well. I started taking my dosage 1x a week? Not 2 x cutting pill in half. Could this have changed the mind.... concerned | Keeps my levels around 22. | F | 49 | 10 years | 2/9/2015 | 1 | Prolactinoma - active | Nausea; heavy, woozy head; headache; extreme tiredness and sleepiness; dizzy feeling; vomiting; hypersomnia - and the very WORST - SUICIDAL DEPRESSION. | This drug is a case where the treatment is worse than the disease. My idiot endocrinologist told me to start out at the full dose and to take it at 9 a.m. Thank God I have learned enough in the last five years to know not to trust a doctor to know what he/she is talking about. So I started at 1/4 of a pill at bedtime instead of a whole one in the morning. It's s good thing. For the next three days I lived with constant nausea, headaches and the feeling that I was only halfway awake. I slept all day and felt horrible when I was awake. Then the fourth day I was supposed to take a second dose, another full pill. I didn't. I waited until I recovered from the first 1/4 dose and tried again. The same thing happened again. The one time I actually took several doses (half doses) according to the prescribed schedule, by the fifth dose I was suicidal. The depression was that bad. Doctors knew about bromocriptine (another dopamine agonist) the 1980s or earlier And now it's 2015 and the best they've come up with is another drug almost just like it. For heaven's sake, these are OUR LIVES you are ruining by expecting us to take these horrible drugs and just "get used to" the side effects. It's no skin off their noses when you call their office and say the drug.isn't tolerable. They just tell you you take it anyway and "maybe the side effects will improve with time." Whose time? Not theirs. Another doctor told me (regarding pituitary tumor treatment) "oh, ed jus | F | 57 | 2 weeks 1/2 mg | 2/1/2015 | 2 | microprolactinoma + high prolactin | Intially: uterine cramping/pain that did not respond to ANY pain meds, combined with aggressive and depressive episodes. Substantial nausea which did eventually dissipate, a period of hot flashes and acne, constipation (did dissipate). After IUD insertion to treat the uterine pain, and dose was upped, two episodes of VERY high sex drive, lasting a few days, followed by aggressive and depressive mood swings, eventually becoming a worsening depression featuring: Lack of motivation, focus and mental acuity, anhedonia, exhaustion, inability to exercise due to oppressive fatigue, no sex drive, hopeless and despairing thoughts, not wanting to get out of bed in the morning, no desire to connect with people, upper portion of emotional spectrum missing; felt just neutral at best, unable to feel happiness or comfort in any form. | Diagnosed with hyperprolactinemia in 2009, with 3mm prolactinoma. Prolactin was at 30, no cycle. Was put on .25mg per week of cabergoline. Within days, I experienced severe uterine cramping which did not respond to ANY pain medication. Dropped to back to half the dose. My cycle returned. Pain: On a scale of 1-10, pain ranged from 3-8, and could last for hours or days. Also had aggressive and depressive moods. Endured this for 4 YEARS. Got an IUD, (Feb. 2013) Pain stopped. Again attempted the .25mg dose. My levels were at 80, dropped to 40, then began to rise again. Dose was upped to 3/4 of the .5mg pill. Sex drive went THROUGH THE ROOF for a week, and then slowly, moodiness set in. Levels were still going up, endo upped dose again to .5mg pill, After 2 days having severe aggressive and depressive episodes, dropped back to the 3/4 pill. Things only got worse; Emotional spectrum went from low neutral at best to absolute despair. Knowing that this was NOT right, I sought therapy and did research. It seemed I was suffering from dopamine depression, which is bizarre because Cabergoline is a dopamine agonist. Depression IS listed in the side effects, occurring in 3% of people. My therapist wanted to see what I was like off the meds. Stopped meds in June 2014,depression lifted though still moody. Currently taking a supplement called Mucuna Pruriens, which contained L-Dopa - VASTLY improved mood, focus and motivation. Levels still high, meds don’t seem to really lower them | F | 38 | 5 years .125-.5mg 1X W | 12/3/2014 | 1 | Macroadenoma - high prolactin | Hair loss, BURNING scalp, nauseous, anxiety, hot flashes, loss of appetite, weight loss | I had a horrible reaction to Cabergoling (generic for Dostinex). My scalp started burning after 3 weeks on the medication and I lost a massive amount of hair. I also completely lost my appetitie and lost 8 pounds in about 2 weeks. The drugs stay in your system too long. If you are considering taking it, I would try a dopamine agonist that does not stay in your system that long to see if you have a bad reaction first. It took me 2 months to figure out that the medication was causing this reaction because it took a while to build up in my system. Be cautious. | F | 40 | 2 months .25 2X W | 11/13/2014 | 1 | headache, insomnia, liver problems | I have had headache, insomnia, bad liver problems! I which I had never take it. Then I had an MRI and the heat dried up my skin. Be sure to stay out of the sun and have no heat on your skin; it will cause brown spots to appear on your skin! I am going to try take vitex(chase berry). Very up happy side effect that can not be reverse by the MRI and dositnex together!!!! | If your dr prescribes dositnex be sure not to have an MRI until meds are out of your system!!! | F | 53 | 1 months .25 | 11/12/2014 | 3 | micro prolactinoma | Migraines (never had these before) insomnia, sudden extreme nausea, joint pain, irritability, exhaustion. Took bromocriptine first for 2 months then switched to this to see if side effects were better. They were different but both terrible. I am struggling to decide which drug is the lesser evil. | F | 26 | 1 months .5 mg 2/wk | 10/18/2014 | 3 | Microprolactinoma | Severe headaches, insomnia, nausea, dizziness, lethargy, strange muscle pain. | I was switched to dostinex after a few months on bromocriptine to see if the side effects were better. I honestly can't say which is worse. They are both horrible drugs that make me feel like I will never get better. | F | 26 | 3 weeks 0.5mg 2X W | 10/5/2014 | 4 | prolactinoma | Acne, constipation, tired, oily skin | F | 25 | 2 months | 9/25/2014 | 3 | pituitary microadenoma | I read through everyone else,s comments with interest as I have been feeling much different since taking the medication. Juts for your information I an prolactinamia with prolatin levels of 1000 with an 8mm benign growth. i have been told I need to be on medication for the rest of my life. So I have had found my self incredibly anxiuos the last few weeks, however I do have bodeline personality disorder, but this is the worst I have felt, so I decided to check if the meds had anyside effects (Dostinex). Seems like it may do, if peoples symptoms are not due to pre existing conditions. But anyways I have started on lexapro (anti anxiety/depressent) to try and find an equilibrium. As I refuse to live a life where I feel poopy 24/7. Good luck people find what works for you :) | F | 27 | 1 months 500mcg 1X W | 9/20/2014 | 2 | Pituitary Microadenoma (Prolactin) | Nausea, headaches, incredibly extreme fatigue, irritability, diarrhea. | Dosage: .25mg once per week (half of a .5mg taken on Sunday night) Cabergoline prescribed for a micro prolactinoma; Prolactin level at 22.5 ng/mL (4.0 - 15.2 ng/mL standard range). Initial symptoms: Extreme fatigue, no libido, lack of muscle tone, trouble concentrating, short-term memory issues. To this point, medication has provided no relief of symptoms; side effects are moderate to severe, lasting from Monday morning until approximately midday Friday. | M | 36 | 6 weeks .25mg 1X W | 9/19/2014 | 5 | Prolactinoma/Pituitary Tumor | The side effects that I have had are pretty much all positive! My personality has FINALLY come back around again -- I have never felt better. Serious sexual arousal as of the last couple of months. My period has come the last three months. I went and got a pedicure about three weeks ago, my normal nail tech said she noticed some white dots in between my toes, they don't itch or anything - I don't know if that has anything to do with it. My feet and ankles do swell, but that could also be from the amount of weight I put on pre-medicine. Also -- I have LOST weight since I went on this medicine and my glucose came down from 126 to 86. I do urinate a lot more often. No headaches, no muscle issues, Irritability has gone away big time. My friends and family have all commented on how I seem like a different person since I started the Cabergoline. | For me, and so far, Cabergoline is the best thing that has ever happened to me with this issue. My Prolactin was around 250 and it is now down in the mid 40s. My doctor wants it down further, so he just pushed me from one pill per week to two. I am hoping that the two pills don't put me into a new realm of side effects. Before I got started with this medication, I asked him, "What are the side effects?" His response: "None - You get better" And after being on the Bromocriptine, I couldn't refuse that. Best of luck to everyone and anyone - I hope it works out. | F | 33 | 5 months .5 2X W | 8/27/2014 | 3 | Micro Prolactinoma | I was diagnosed with a micro prolactinoma 4 years ago when symptoms occurred such as galactorrhea. Side effects I experience include EXTREME fatigue, severe headaches, vertigo when first started taking dostinex, brain fogginess, dizziness if I stand up too fast and just feeling really lousy. I've also had severe problems with my stomach over the last 4 years including bloating, diarrhea and pains not sure if that's related to the dostinex. I went on a trial period for 6months after 3 years where I stopped taking the medication and side effects went away however prolactin levels increased to 880 and starting lactating again so am back on the medication. I am considering seeing a naturopath and trialling something like vitex which has fewer side effects. | F | 21 | 4 years 500 mcg | 8/27/2014 | 4 | Prolactinoma | Extremely high libido and constant sexual arousal. Doctors don't warn you or acknowledge this happens in women. My doc says she's never heard of this side effect in women but I found lots of evidence online that it's common. This is sounds harmless and even funny to some dr.'s especially a male dr. that I had once but this becomes frustrating, embarrassing and problematic for several reasons. On another note, my tumor is shrinking and my prolactin is back to normal. | F | 39 | 3 months .5 mg | 8/22/2014 | 3 | prolactin levels elevated | Dizzy, nausea, chills, hot flashes, dry eyes, extremely tired occasionally I will be confused or forgetful.heartburn | F | 35 | 3 months 25mg 2xWk | 8/14/2014 | 2 | Prolactinoma | anxiety, depression, hair loss, sweaty, personality change, obsessive thoughts | When i started Dostinex back in 2005, i never thought anything of it. It seemed to work since my prolactin level went down and the tumor shrank. Well i believe my personality started to progressively change i became unhappy in life, etc...i stopped the med for about 2 years and the prolactin level went back up with breast discharge. I went back on it , things went ok until it no longer worked. They changed the prescription to 2 x wk in the generic form. I think my depression has worsened since. It was pretty bad before but now i blame it on the medication since i started having hair loss as well. It now all makes sense when i see the posts here. I will try to seek holistic remedies instead. | F | 33 | 9 years 2X W | 8/1/2014 | 1 | Prolactinoma | Severe headache at the back of my head n thinning hair | F | 39 | 10 months .10 | 7/29/2014 | 1 | Prolactinoma | Nausea, headaches, blurred visions, body aches, cold sweats, moodiness, depression, confusion. | I have been using this medication off and on for 5 years now. I was diagnosed with prolactinoma for 11 years now and it took a long time to get the diagnosis. Once diagnosed, I was put on Cabergoline and my periods came back. I became pregnant with my daughter who is now 4 years old. A few years later I missed my period for 7 months straight I was back on the medication. My period returned for 3 months and once again has vanished. I am experiencing headaches - migraine like and worse. Nausea, mood swings (between anger and happiness), I do not have a grip on my emotions at all. I feel like I am going crazy on this medication. I am going to stop taking it - so I don't get my period anymore. I'll deal with it. | F | 30 | 5 years .5 mg 2X W | 7/11/2014 | 4 | leaky breasts/8mm pituritary tumor | Achy joint pain in my legs (my ankles, knees and thighs ache) I usually get full quickly or don't want much to eat I get tired for two days after taking pill (little dizziness) I get aggravated a bit more easily (this I really dislike!) My libido has returned (very happy about that--feel like a woman again) | I've read so many women not having a menstrual cycle prior to being diagnosed. I never experienced that. My periods got worse (huge clots and heavy, heavy bleeding) prior to taking dostinex. | F | 44 | 2 months .25 2X W | 5/26/2014 | 3 | Microprolactinoma | Dizziness, fatigue, weight gain, headaches, hair loss | When I first started taking Dostinex, my muscles were really sore, and I hadn't even worked out or anything. Then my neck started aching for no reason. In the meantime I was experiencing headaches, dizziness, and everything else. Recently, I've noticed hair loss. I have very thick hair, but now it is half the thickness that it used to be! I also gained 10lbs in a month which I worked so hard to lose during the summer. Yes, the medicine has lowered my prolactin levels from 257 to 29 within 3 months and restored my period which I hadn't had for 3 years, but I feel like there are too many side effects for me. | F | 17 | 3 months .5 2X W | 1/19/2014 |