DOSTINEX Reviews (CABERGOLINE)Average Rating: 3.5 (432 Ratings)Filter ResultsCompare DOSTINEX with similar:
Type: Brand name discontinued; available as generic
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 |
More on DOSTINEX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR DOSTINEX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | Prolactinoma | My husband is taking Dostinex for his tumor. Ever since he started taking this drug his personality starting to change slowly. Going out not coming home wants to live a single life. Now he says he doesnt love me. He only takes .05mg once a week. He has to see his specialists for review. I'm saddened that a medication can do this to a person. Yet he thinks his normal. But after reading all the review I def know it's the medication. I just hope their is a solution. | M | 40 | 3 years | 5/18/2016 | 3 | High prolactin levels | I was diagnosed with a pituitary microadenoma 2 months ago , 7.5 mm . I started dostinex . I take it twice a week on Wednesday night and Saturday night . I'm usually very tired the next day , I feel week and have hard time getting out of bed . It makes me feel down and moody . No nausea , constipation but dizzy especially when I get up fast . I'm trying to live with those symptoms until I see what happens | F | 37 | 3 weeks 0.5 mg | 5/14/2016 | 1 | Prolactinmoa | Hyper sexual could not control, jittery, anxious panic attacks tired no energy to excercise Not yourself, and getting off it is even worse!!!!!!! Horrible Drug | Don't take it you won't be you anymore, or life won't be yours!!!!! NoKidding | M | 56 | 5 months 0.5 | 4/7/2016 | 3 | Prolactinoma | Complete fatigue after taking it at a bedtime. My levels are low but I have experienced digestive disorders that seem to be hormonally related. I think I need to take this more consistently though only I hate how tired I feel the next day. | F | 33 | 8 years 5 | 2/18/2016 | 1 | High prolactin levels TTC | F | 35 | 1.0 1X W | 2/13/2016 Patient History | 4 | Prolactinoma | Usual diagnosis from personal research. Small micro, taking cab almost 3 years. Working great except I have developed CRAZY daily heartburn within the past year. I'm trying to figure out if this is a common problem/side effect. Lifestyle has remained constant, food,drink,environment, etc. Also, Not looking to have kids & would like an alternative to Cab, like REGULAR hormones. Anyone know about either please reply. Thanks! | F | 40 | 3 years .5 x2 week | 1/23/2016 | 4 | Prolactinoma | Felt tired, a day or two after taking it. Had smaller dosage than others I see listed. | Took 10 mg/wk for 13 years (listing above only went to 10 yrs). Had prolactinoma removed 3 yrs in, with a smaller remnant left. The neurosurgeon did not want to damage the pituitary. Eventually the remnant disappeared after taking it for those extra yrs. I was just thankful the severe headaches had stopped after the surgery. It's a gradual recovery, not instantaneous. | F | 51 | 10 years 10 mg/week | 1/17/2016 | 2 | Hyperprolactimea | Indigestion, lightheaded | I have been experiencing erectile dysfunction due to high prolactin in my blood due to tumor on my pirtuary gland and the Doctor prescribed Dostinex (Cabergoline)to shrink the tumor and lower my prolactin levels and I have been on this nedication for two months and no improvement. Still with terible ED. I'm to the point of almost committing suicide due to depression. | M | 29 | 2 months .75 | 1/14/2016 | 1 | High prolactin. Ttc | Nervousness, shakiness, headaches,anxious depressed. Crazy meds gonna get off it. Not worth feeling so sick. | F | 40 | 3 weeks .5 | 12/27/2015 | 5 | Pituitary adenoma | None. My doctor recommended I take it at bed time to avoid nausea, so that's what I've always done. | I was diagnosed with a macro adenoma at age 17, and started Dostinex with my Prolactin level in the 900s. I got my period within about 6 months. At age 21, my doctor suggested stopping Dostinex for 3 months to see if I still needed it (the tumor had shrunk so much that it was no longer visible on an MRI for quite some time). Upon checking my Prolactin level, it was very high, but no tumor growth was visible on MRI. Resumed Dostinex and stayed regular until getting pregnant with no problems at age 24. Throughout pregnancy and nursing, I was off Dostinex for 26 months, but there was still no tumor growth visible, though my Prolactin levels were quite high. After I stopped breastfeeding, I resumed Dostinex and started having regular cycles after about 3 months. | F | 27 | 10 years 1mg | 10/1/2015 | 5 | My prolactin level is high | I've never experienced any side effects while taking the medication. It's helped a great deal with getting my prolactin level bck to normal and keeping my tumor from growing. | I get headaches and dizzy spells when I am off my medication due to it being so expensive. | F | 31 | 2 days .5mg | 9/29/2015 | 1 | Prolactinoma | fatigue, extreme dizziness, foggy head, depression, mood swings, headache, nausea, unable to focus | I am on an extremely high dose since I haven't been consistent taking it. When I was taking it very consistently my levels went from 52 to 17 but now they average for about 42. I have been strict on my dose for the last few months since I want to get off this dreadful medicine. My tumor is between 3-6mm and has stayed the same size for 10 years. I really cannot stand this medicine, I have to take it when I am not working the next day because it makes me so out of it. I want to get surgery but my endo is advising against it due to the size. I really cannot keep taking this for the rest of my life. | F | 27 | 10 years 0.5 4X W | 9/17/2015 | 3 | prolactinoma tumour | Light headiness, nausea and the worst side effect for me is the tiredness, I don't want to get up in the Mornings and don't have any energy to do anything. Hard when you work afternoon shift and have to stay awake till midnight. I felt better with the disease before I started medication than what I do now. On a good thing for the medication, my tumour is shrinking and my prolactin levels has gone from 2860 to 132. | I have been feeling very depressed as well | F | 43 | 7 months .05x2week | 7/27/2015 | 1 | macroprolactinoma | First month nausea then heart palpitations i took endral 10 Then hypersexuality. I 'm virgin and cauld not marry as it is rare to find a man want to marry a girl with a tumour even its begnin! I can't overcome blaming myself or thinking in sex most of the time. Before 9month i had an angeled mind i had a virgin mind. | prilactin is 0. 9 But i ve to continue for 2 years to minimize the tumor size | F | 30 | 10 months 0. 5 | 7/15/2015 | 1 | Prolactinoma/tumor | Wow. First few days nothing. 2 week in depression strange anxiety and loss of appetite/nauseous and dizzy, like I could fall over easily. Hypersexuality, almost over powering. I touched my colleague and ask her if she wanted to have sex!? I never acted like this before, every woman I encounter I want to proposition for sex!?? Like so strong sexual desires, but also feeling strong depression, strong mood swings and sleepiness. I just feel...weird, like my personality has been changed. | I do not like this drug at all. Thank god my labs recently said my prolactin has dropped quickly to 4.NL, which i was told is almost below normal, so I feel lucky. I am currently living in a 3rd world country as an English teacher, so many docs here are really unsure what to do or willing to give straight answer. A good doc I spoke with in USA said my tumor did not look aggressive. I will finish out the amount of meds I have then quit them! PLEASE SOME ONE EMAIL ME IF THEY HAVE HAD ANY BIZARRE SYMPTOMS LIKE THIS, tell me I am not crazy! I would rather have surgery then be on this medicine. | M | 35 | 5 weeks .50 2X W | 7/13/2015 | 5 | high prolactin level pituitary gland | OMG.. since I've been on this drug, my body has done amazing things. Weight loss, muscle tone, energy and sex drive. Blood work has been nothing but great. | M | 36 | 2 months .5 | 7/9/2015 | 5 | prolactinoma | Initially (first three months) SEVERE weepiness. Horrible depression, but not all the time, just when I started crying, I couldn't stop. The day after I take it I'm sleepier and more tired than normal. | I take half a pill (0.25 mcg) on Tuesday nights and Friday nights. I'm a little sleepy the next day, but its totally manageable. I have an 11 mm prolactinoma. My prolactin has gone down from 36 to 2. I have no more depression. I barely notice side effects. Great drug, my periods are back to normal. | F | 45 | 7 months .25 mcg | 5/1/2015 | 3 | Hyperprolactinemia | I too just refilled my cabergoline and am experiencing heart palpitations,extreme fatigue,nervousness,etc. AND I just checked & it was filled using PAR not my usual TEVA. I looked at notes written when this happened once before. I can't believe I forgot to ask for TEVA on refill. | I've noticed generally, however, that the day following my taking the cabergoline is when I am very depressed , unmotivated, tired, emotional & irritable. This has always been the case. However the med has def lowered my prolactin. | F | 44 | 6 years .25 2x/wk | 3/10/2015 | 3 | elevated prolactin ....66 | Lost 20 pounds in a month. Didn't sleep for 3 weeks. Stomach pains. Depression and over all feeling of sorrow. Can't stop crying. Constantly jittery. No energency to even go to work. | For the first 9 months I took this medication I got it from Target ..Teva pharma...no problems prolactin dropped to normal and I felt great ...no side effects. In December I was forced to get med through my insurance company mail order. PAR pharma was the manufacturer. It all went downhill from there. my primary and endo drs having stopped medication for now and I am now waiting results of blood work. Anyone else experience different side effects from different manufacturers. | M | 43 | 1 years .50mg a week | 3/5/2015 | 4 | pituitary tumor | Omg been on this probably 15 years! Recently I'm noticing my short term memory is not good. Totally forgot these side effects. Have not gained more weight but not easily lost as well. I started taking my dosage 1x a week? Not 2 x cutting pill in half. Could this have changed the mind.... concerned | Keeps my levels around 22. | F | 49 | 10 years | 2/9/2015 |