HYDREA Reviews (HYDROXYUREA)

Average Rating: 3.6 (121 Ratings)

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 ANTINEOPLASTICS

 Type: Rx Drug

  

HYDREA  (HYDROXYUREA):  This medication is used by people with sickle cell anemia to reduce the number of painful crises caused by the disease and to reduce the need for blood transfusions. Some brands are also used to treat certain types of cancer (such as chronic myelogenous leukemia, squamous cell carcinomas).    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Age oldest to youngest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

Page: 1 2 3 4 5 6 7


RATING  REASONSIDE EFFECTS FOR HYDREACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  Essential Thrombocytopenia Dizziness, fatigue, nausea, mouth pain, weakness No different in knees pain, leg pain, back psin 56 2 months
500 mg
3/24/2016
 2  polythemia vera after taking the drug, 5 hrs later intense itchy skin,urination alot, nasaua, taking it on and off hate the drug. hair thinning havent worked since taking the drug. had to cut down on smoking. doc says people live a normal life, my life hasnt been normal since taking this drug. F 56 2 years
500mg 1X day
2/20/2012
Email
 4  for polycythemia vera legs are achy since taking medicine and more tired definately helped control all the blood counts.....doctor tweaks the meds when needed but doc is very pleased with the results from drug M 55 1 days
2/8/2005
 4  ET w/JAK 2 Mutation Hair thinning, fatigue, headaches, and increased nerve and muscle pain. I take 500mg every other day and 1000 every other day. It's working for my platelets and white cell count (which was double the normal) but I am concerned that my RBC count is too low now, down to 1.6. But overall it's beats having a stroke. Will likely be on it permanently. F 55 5 months
500 & 1000
10/22/2016
Email
 3  Myleofibrosis CIPN Chemo Induced Periferel Nueropathy ...general feeling of being unwell ... Felling toxic... Headache/ Fatigue/ Hair loss/ Visual disturbance ..... It did the job it was meant to do .. But I find I can no longer take it due to the way it makes me feel & the side effects became to much after 14yrs @ 1500mg daily ... M 55 10 years
1500
3/23/2016
 3  ET Jak 2 Extreme fatigue more than before night sweats worse platelets hovering above 400 were up to mid 600's but I now have high MCV and MCH struggling with breathlessness. Pale skin cold hands feet F 55 5 months
500mg 1X day
6/13/2021
 4  Polycythemia I am very active cyclist, over 7,000 miles per year. I have noticed I have less energy, less endurance, dry skin and my knees have starting hurting for the first time in my life. Taking the Hydrea on a daly basis is better than purging blood every thirty days. M 54 2 years
3/10/2008
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 5  Essential Thrombocythaemia Nothing I have really noticed I also have M.S as well as Essential Thrombocythemia, wouldn't know I was on it, the alternative is much worse, love life make the most of every day. F 53 3 years
2X day
10/28/2012
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 5  Polycythemia Vera None I was taking hydrea for my polycythemia vera because I was having surgery. My doctor is taking me off of it because now that my surgery is over, he would rather me go back to having phlebotomys. He said he would rather not keep me on it until I absolutely need to. I loved being on it, because I stopped bruising,stopped being so itchy after showers, and stopped feeling so red and hot. I have Multiple Sclerosis as well, and enjoyed not having my PV bothering me!, F 53 4 months
500 mg 1X day
5/29/2013
 5  P Vera Very few. Mostly just fatigue. Even that has improved. It has controlled my CBC numbers very well. You should not pay attention to the AML concerns. There's no evidence of a connection. M 53 6 months
500 MG 2X day
4/1/2016
 4  Polycythemia Don't know if it is the drug or not, but sometimes achy legs and tiredness. I have been on the drug for 6 years now and am concerned about long-term effects. M 53 6 years
11/26/2005
 4  polycythemia vera In the beginning, I had some nausea, but at this time, the only side effect is limited energy. Hydrea keeps my counts under control very well. I am currently taking 1000 mg per day. My biggest concern about longterm use is the possibility of flipping from polycythemia to leukemia. I'm really not THAT concerned, though. Its not likely that will happen. I'm just happy to be alive! F 53 2 years
10/10/2006
 4  Myelofibrosis Fatigue, more or less constant diarrhoea, aching legs, breathlessness. It has helped ease the pain considerably. F 52 2.5 months
12/12/2005
 5  Myelopfibrosis More tired then usual Hydrea is great, my platelets are in control. Very mild side effects. F 51 4 months
1000mg 1X day
3/23/2015
 5  Myelofibrosis I do not have any side effects that stand out, it works pretty good for me. F 51 10 years
500 mg
3/23/2016
 5  Essential thrombocytosis Nausea tired breathless at times fatique but all in all tolerable has gotten better only been on 2 and half months but has definitely saved my life. Its better than some of the alternatives I have to take it the rest of my life. F 51 1 days
1000 daily
7/13/2016
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 4  JAK-2 Essential Thrombocythaemia Hydrea has reduced my platelet count from 920 to 360 and white cells from 14 to 6. The side effects I notice are mouth ulcers, fatigue, dizziness and some muscle soreness. Also at times my teeth become discoloured and I have reduced immunity to infections. M 51 3 years
5 gm /wk
10/4/2013
 5  essential thrombocytosis Lots! But for the first time in 3 yrs I don't have a pounding headache 24/7.. severe heartburn. Upper GI pain & incredible fatigue.,...but I don't have a headache & to me that's all that matters! F 50 2 weeks
500 mg day
5/1/2012
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 4  Essential Thrombocythemia Fatigue, aching bones.....especially hips and femurs. Occasionally ankles. Has actually reduced my headaches, kept platelets under control. Diarrhoea .....at least 3 times daily. Weight gain....put on 30kgs quite quickly but have been able to maintain at that weight for last 8yrs.....Specialist said we'll worry when I "can't" put weight on! Gee I love that man! It's saved my life!!! I tried Peg Interferon.... as part of a drug trial, and was having suicidal thoughts after 13 weeks! I was soooooo sick when diagnosed I tried anything! Hydrea might have it's risks but it has given me life for the last 9yrs and enabled me to watch my children grow up and make me a grandmother! F 50 9 years
1000mg 1X day
10/13/2011
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 4  JAK-2, primary essential thrombocyt Fatigue and loss of energy for the initial three weeks. That has improved. Weight gain. I am very active, ran a half marathon several months ago, cycle approximately 150 miles a week. I find myself very tired some days with loss of energy. In spite of being so active, I have gained weight which I can only attribute to the Hydrea. It has helped finally bring my platelet count down to a normal level therefore I have no choice but to take it but I am concerned about long term effects. F 49 3 months
500 3X day
5/26/2011

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