HYDREA Reviews (HYDROXYUREA)Average Rating: 3.6 (121 Ratings)Filter ResultsCompare HYDREA with similar:
Type: Rx Drug
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Results are sorted by Age oldest to youngest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on HYDREA: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR HYDREA | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | Polycythemia Vera | Initially: night sweats, joint pain, stomach pain, diarrhea, stiffness, extreme fatigue. Now: Fatigue. Am completely exhausted by early afternoon. Used to cycle 30 miles/day and 50 on weekend trip; now I bonk at about 10 miles. Physical and mental exhaustion. | The drug is effective at controlling HCT and platelet count. | M | 62 | 1.5 years 500MG 1X day | 11/27/2012 | 5 | Pv | None | It's a chemo drug but it's better than having stroke or blood clots . My dad always said someone greater than us determines when you die .so enjoy every day you are living | M | 61 | 6 months 500 mg | 4/14/2020 | 3 | ET | Huge headaches, dizzy spells , pain under rib cage, sore legs , extreme fatigue | M | 61 | 11 years 500mg 3X day | 5/20/2015 | 3 | Essential Thrombocythemia | Tired, not clear headed, sleep 9 to 12 hours and wake up in a fog. Lower leg pain. Mid back pain. Sometimes I think I'm really losing it. Make list to stay focused. | After I was diagnosed in October 2012, I have the mutated gene crap, I was only taking 1 325mg aspirin. I had a few different episodes - #1; almost lost my right little toe, #2;had vision issues in one eye for a few hours & was put on Hydrea. Note: Most likely had it from my mid 30's, tried to donate plates to a friend, got a call from Emory that something was bad with my plates - at 30 I blow it off. Back to the story: After 6 months tracking plates - the 500mg twice a day along with once a day Procardia 30mg & Plavix 75mg. The stuff works, my plates were 110,000 to 120,000 now they routinely track from 250 to 350. But the impact to the bloods go stuff are troubling. I travel for my job and have had major upper sinus and chest infections that take me weeks to fully recover from. I had enough - went to my Dr. last Thursday (1 week) and he reduced the dose to 500mg/day - one week out no improvement. 3 more weeks to see where my plates stabilized at. Strange as it may seem, hydrocodone 10mg does help me come out of the fog and focus. But more 1 a day does tends to make me feel worse. Has anyone tried prescription Cannabis / marijuana to deal with the side effects? I live in Georgia and no way are they going to follow some of the western states – making it legal. What a sad group we are but when I go to the clinic and see all the people with cancer, I say what I'm I complaining about. | M | 61 | 2 years 500 2X day | 9/11/2014 | 5 | Polycythemia Vera | No side effects experienced | Slightly worried about having to take this medication for life | M | 60 | 2 years | 1/31/2007 | 4 | Essential Thrombocytosis | Tired most of the time,then bursts of energy.Sore legs,have swollen spleen to 15cm,very sore under ribcage.Jak2 gene defect.Monster headaches,dizzyness,These are all side effects of the disease because had these symptoms before taking Hydrea.My feet are constantly burning and have like a thousand needles pricking them.Taking Lyrica to help address this.Also taking 1 baby aspirin (80mg) daily to help against blood clots.Have 4 herniated discs so also have terrible back pain,on painkillers daily,chiro did not help.All this pain and effects of my blood disorder I fell into depression seeing psychologist to help me out.Am totally fed up and have no will and pleasure to live. | Hydrea has brought my platelets under control from 900,000 to 560,000 but still suffering from all the side effects. HELP ME b4 I commit suicide. | M | 60 | 6 years 1000mg 1X day | 5/12/2013 | 4 | ET JAK2 positive | Fatigue, occasional drenching sweats, night sweats, pains in legs especially around knees, bleeding gums, flaking scalp, bruising, thinning hair, splitting and thickening of nails, dry skin. | Very successful in getting my counts down but last time plts had risen so I am taking 500mg extra per week on one day.. Hemo considering adding anegrilde - find out in 4 weeks | F | 60 | 19 months 1000mg 1X day | 7/16/2015 | 3 | Polycitemia vera | Slow motion.need drinking. Ear noisy when seated longtime or on travel by car and plane | M | 60 | 5 years 1500 | 2/25/2014 | 1 | essential thrombocytosis | The hydrea did lower my platelet counts but at about 2.5 years I developed very rare hydroxyurea dermothapy, causing skin problems and also developed periodic severe itching. Had to discontinue usage, take cortisone and topically apply clobetasol for skin problems, and after 5 years still have a few skin problems, spleenomegaly and itching is increasing. | This drug very rarely can have pretty severe side effects for your skin. See hydrea dermopathy. For some patients who develop dermopathy, the problem is cured by discontinuing use of hydrea. In my case, after 5 years I still have some symptoms, including skin abnormalities and my big toes are tender on the tips. | M | 60 | 3 years ? 1X day | 7/12/2011 | 5 | essential thrombocitosis (may be sp | I am fine, just get tired easier. Catch colds easier. Also taking aspirin so bruise easier. | Still working full time and dont miss much work, still travelling all the time. Dont let it stop me much. Platelets have been stable at 300 to 500 for 10 years now,. Dr is very happy and the et support group is great. | F | 58 | 10 days 1000mg | 3/23/2016 | 5 | Essential Thrombocythemia | Mouth sores, hair loss, nausea, scotomas, dizziness, confusion, nail pigmentation. | Side effects diminished over time but return periodically. This medicine saved my life. I would like to kiss the inventor. | F | 58 | 9 months 12000 wkly | 3/23/2016 | 4 | Essential Thrombocythemia | Fatigue was my original complaint but I've take it for so long that I am always tired. My most recent problem is my hands becoming very irritated and red plus my mind is becoming fuzzy. I hate taking this drug but it has saved my life. I take 4 a day and if I cut back to 3 my platelets shoot up almost spontaneously | F | 58 | 10 years 2000 mg | 12/9/2013 | 4 | Polycythemia Rubra Vera | Initially, constipation, diarrhea, nausea | Starting to feel better but fatigue is worse. Our support group is http://mpdsupport.org/. Helped my alot with my MPD | M | 58 | 1 months | 12/30/2008 | 3 | PV | Drenching night sweats, acute dizziness (taking meclizine for that, seems to help but might be exacerbating next symptom) marked tiredness by afternoon (take my dose in the morning; maybe I should switch to evening), two infections in two months including pneumonia, ringing in the ears. Did I mention the fatigue? And confusion. But hey, my hemoglobin and hematocrit are normal for the first time in years, so it's all good, right? | Worried like others about long term leukemia risk. | M | 58 | 2 months 500 mg day | 9/30/2015 | 4 | PV | LACK OF ENERGY. FULLNESS IN MY HEAD BUT DON'T KNOW IF IT'S CAUSED BY THE PV OR THE HYDREA. A BIT OF A ROLLER COASTER EFFECT AS FAR AS EXERCISE. WORKOUT ONE DAY AND WIPED OUT THE NEXT. SEEMS TO BE A COMMON PROBLEM AMONG HYDREA USERS. | DIAGNOSED WITH POLYCYTHEMIA VERA IN OCT. OF LAST YEAR. BEEN ON HYDREA FOR TEN MONTHS. STARTED WITH 1500mg DAILY AND AM NOW DOWN TO 500mg DAILY. WILL FIND OUT IF THAT IS ENOUGH IN A FEW WEEKS. | M | 57 | 10 months | 7/28/2008 | 3 | Essential Throbocythemia | Fatigue especially after 12 Noon, "woolly" brain poor short term memory. | Have benefited from exercise (Swimming) | M | 57 | 4 years 1500mg 1X day | 3/5/2015 | 2 | Recently diagnosed w/ ET | M | 57 | 500 1X day | 6/10/2016 Patient History | 5 | Essential Thrombocytosis | M | 56 | 1 days | 2/17/2016 | 4 | Myeloproliferative disorder | None. Numbers stay under control now. Platelets were over a million without drug. I also worry about long-term effects of the drug | F | 56 | 10 years 500 mg | 11/28/2012 | 3 | essential thrombocytosis | At first, I went through a period of fatigue and loss of appetite. That lasted about 3 months but I don't have a problem with it anymore. I do, however, have very painful tongue ulcers about every 3 months. It goes away after I stop taking the medication for a few days but during that time I gargle with baking soda and eat a bunch of yogurt. | For some time, it helped lower my platlets to within reach of normal but I never got there. | M | 56 | 2 years 2500 1X day | 2/28/2010 |