PROLIA Reviews (DENOSUMAB)Average Rating: 1.4 (285 Ratings)Filter ResultsCompare PROLIA with similar:
Type: Biological Drug
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Results are sorted by Gender with females listed first (reviews with no gender reported listed before females). Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
Charts & graphs: Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR PROLIA | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | Osteoporosis | Generalized aches, moderate to severe shoulder, hip, back pain. | Initial dose of Prolia in May 2016. Second dose in December 2016. No side effects with first two injections. Third injection on June 9th, 2017. Ten days later experienced severe pain of shoulder which has spread to my hip and back. Also experiencing flu-like symptoms. It's now five weeks later and these symptoms persist. It gets more and more difficult to get out of bed. My doctors have no advice on what to expect or how to treat my symptoms except to use over-the-counter painkillers as needed. Will continue to take Calcium, Vit. D, and hope for the best. Nothing else to do since the drug will remain in my body for at least another 5 months. | F | 73 | 18 months | 7/14/2017 | 1 | Osteoporosis | I have osteopenia and suffered a stress fracture in my right heel. My doctors wanted me to start prolia. Unable to take pills due to gastric bypass. 1st shot no side effects. 2nd left groin pain but went away. 3rd shot severe right side groin, thigh, hip and back pain. Dictors did not believe it was the prolia. I waited 9 months fir the 4th shot because I was found to have lumbar disc disease pressing on a nerve. Doctors talked me into it and within 3 days my pain is worse then ever. I am beside myself. | F | 55 | 4 times 1 shot | 7/23/2017 | 1 | osteoporosis -3.7 | Severe hip and leg pains | Had no side effects after first shot, but within hours after the second shot had mild flu-like symptoms, which cleared up after a few days. A few weeks after the second shot, I began to have left hip pain, no mobility in that hip. Thinking it was something I had done in the gym with my trainer, we limited our workout. Pain did not improve. Then the right hip began to act up, too. Now, about two months after the second injection, I can barely walk. Pain is so severe at night that I can't sleep. I've been on osteoporosis drugs for for nearly twenty years (including Forteo, which gave me leg pains, but nothing like what I am experiencing now). I'm ready to give up. One thing is certain: I will never take this drug again. | F | 72 | 9 months 1X O | 7/28/2017 | 1 | bone density | Extreme pain ended up in hospital flu symptoms, headaches, fevers, extreme fatigue that keeps me from even getting out of bed, jaw pain, stomach upset, bladder issues, muscle cramping, memory issues, every day is challenge. | Took this shot on 2/10/17 WILL NEVER TAKE AGAIN. I cry every day for taking this injection. My quality of life has been drastically changed to the worst from this injection. | F | 77 | 1 months 60mg 1X O | 3/11/2017 | 1 | Osteoporosis | Immediate UTI with dark urine and burning. Flu like feeling the first day. Hive on my face and hand. This will be my last. | F | 58 | 1 days 1 shot | 3/20/2017 | 1 | osteo. | trouble breathing - rib cage area sensitive. developed a cough. EKG and lung xray done and OK | First 2 shots ok but after 3rd symptoms appeared for a couple of months and slowly dissipating. Don't plan to get another shot in June. | F | 75 | 3 times | 3/28/2017 | 1 | Osteoporosis | Flu like symptoms....nausea, GI problems...exhaustion. Took shot on March 15th and was violently sick the following Saturday....vomiting and wretching.....haven't been well since. Went to my primary and he suggested I see a GI doctor. I asked him if he thought it was prolia but he didn't know about the drug. After reading all these reviews, I am convinced it was the shot. I was perfectly fine before March 15th. | Would not recommend. Will not take a second shot. I am concerned about the length of time it will take my body to rid itself of this drug. I missed a week of work already. | F | 71 | 1X O | 3/25/2017 | 1 | Osteoperosis | Severe abdominal and thoracic back pain and now waking up at night with tingling of mouth and tongue and fingers. | I feel it should be banned or Dr's should try it first before prescribing to patients. | F | 71 | 2 months 60 mg | 4/3/2017 | 1 | Osteoporosis | Immediately flu like symptoms. Total exhaustion. Horrible sores inside my mouth. Upset stomach. Achy all over. Skin issues. Deep bronchial like coughs with yellow spectrum. Infected runny nose. Mental cloudiness. Restless leg at night. Very low energy. | Prolia: 2-17-2017: 1st Prolia shot. Next day got severe flu 😷 symptoms that lasted a hard 3 weeks. Lost weight, 6 pounds! I went to my GP's nurse, who said that it was definitely NOT Prolia because my symptoms were wrong, and she put me on HEAVY antibiotics. By the fourth week of my flu like symptoms I thought that I was getting better; but not completely, I still feel to this day very achy and exhausted; and over two months after getting the first shot. I have not had one healthy day yet. 3-29-2017: Asked my spine doctor, who is recommending surgery on my lower lumbard L3, L4, and L5, about Prolia because of its negative effect on me. Would Prolia effect the operation negatively? "No". He said, "and to stay on it because it is good for the spine". 4-2-2017: More and more blisters and canker sores are starting to grow inside my mouth making eating difficult. Now I am rinsing mouth out with salt water. Also, I have an infected running left nostril. I am very very tired. Rough skin spots on chest, arms, forehead. I am coughing a lot, and twice in the past week I coughed up yellow globs. Some stomach issues too. I am sure that all of the above are a reaction to my Prolia shot on February 17, 2017. I am just 2 months into this resulting brain-fog. 4 more months to go. Two doctors and a nurse love Prolia, BUT I HATE IT! Never again. | F | 70 | 46 days 60 mg/ml 1X O | 4/3/2017 | 1 | Osteoporosis | Very severe pain Difficult to walk Balance problem Nausea Painful muscle cramps | Awful drug. This was 2nd shot. Never again. I was walking 6miles a day. Now I can't make it around the block | F | 62 | 1 months 60mg | 4/11/2017 | 1 | Osteoporotic fractures of vertebrae | Excruciating spasms, bone and joint pain, esp. shoulders, neck,jaw,thighs. Cough, 10 pound( thus far) weight gain, loss of appetite , constipation | I resisted taking anti Osteoporosis drugs, but when I developed fractures, I felt I had no choice. Now I regret it. Having had a congenital leg length difference I thought I knew pain. After having limb lengthening surgery, which was HELL my pain pretty much resolved. This pain is worse then I ever experienced. After all I went through, to be going through this is discouraging. | F | 69 | 9 times 30mg | 4/5/2017 | 1 | osteoporosis | I experienced flu like symptoms accompanied by stomach pains I would rather have osteoporosis than take the drug it really made me feel ill. I mentioned it to my doctor he said it was good for bones but it was making me sick so I decided that was it , from now on I am seeing a great doctor at Stamford Health who is treating my osteo problems in a more natural gentle way , he told me what foods to eat that are healthy and good for bones and also told me I must exercise with a weight vest the osteoporosisvest has made my back etc feel strong and great ! I will never go back to taking the medication it is poison and I hate it. | bad bad medication it made me feel so sick I told the MD NO way am I taking that stuff again. people need to read on natural ways to help your body cause this prolia is not the way to help | F | 63 | 9 days 30 mg 1X AN | 4/10/2017 | 1 | Osteoporosis | Bone and hip pain, only a shot...The one and the last!!!Bone into bone un my fémur (radiografía and centellografy detectes), pain un this legal, doctor says It Is nota because of prolia...I'm so sad and temerous! (I'mFrom Argentina) | F | 55 | 1 days 60 | 4/23/2017 | 1 | Osteopenia | Severe stomach pain went to back, hard time breathing, rash with bumps under & on top of breasts with itching, herd, weight gain, loss of appetite. | Got symptoms in a couple of days after shot, Dr said she has never had a patient till now have a reaction. After 2 months symptoms ease up & then right back if not worse. Gave to me cause had two trams breaks & get steroid epidural shots. Would take a break any day than this stuff told her never again. | F | 63 | 2 months 60 1X O | 5/4/2017 | 1 | Osteoporosis, | Horrible bone pain jaws throbbing muscle ache, I had broken hip and femur bone, 3 years ago from a fall someone tripped me, I just had dental work done this prolia has me in so much pain in all my years nothing like this driving me crazy my bones feel like they are being twisted it's horrible, had I known I would have chosen not to take it, , nurse said it was the weather no way like I said 66 years old I know better, everything changed 6 weeks after the shot | This shot is going to finish off my nerves, this needs to be off market, my jaws hurt so bad I can hardly open my mouth, I feel like I am being tortured and not kidding, changed my whole life and I have been through a lot even had 2 children, no more of this for me if I live through this nothing makes the pain go away, like I said horrible, I had 7 therapies on my broke hip and leg I know pain never nothing like this I can't even leave my home I wish I could tell others don't take the chance, irreversible side effects, necrosis.of the jawbone and now I can barely open my mouth, I am terrified, I have a husband not well I was helping him now I don't know what we will do, | F | 66 | 0 weeks | 5/5/2017 | 1 | Osteoporosis | After two weeks of receiving my injection, both hands, fingers and feet toes became inflamed, joints very sore. Fingers locked in a curl position when trying to open the pain unbearable. Effects like trigger fingers as well. To sleep taking anti inflammatory and have resorted to pure emu oil for the pain. Will not have this again. | I am not able to work and look after on a daily basis my family and home. | F | 66 | 2 months 1X day | 5/12/2017 | 1 | Osteoporosis | First dose. Initially pain at injection site. Six weeks later -debilitating stiffness and excruciating hip pain, followed by nausea, fatigue, and generally feeling unwell. Difficulty standing and walking. Aged 10+ years over night. | F | 81 | 1 times 1X O | 5/16/2017 | 1 | Ostopina | Just had my 4th shot, 1 every 6 months. My oncologist down played the side effects. I have an infected tooth and my oncologist said the side of effect of ONJ, the bone comimg out of the jaw so that it is exposed, is too high of a risk to get the tooth removed. This drug makes it so the bones in your jaws dissenergrate and the gum doesn't heal and the bone in your will become visible and infected. (Google it). The doctors must be getting a kick back from Amgen when they prescribe it. At first I did fine now I don't want to walk, play tennis or do fun things with my kids because I feel like I have the flu and my right arm hurts. When I wake up in the morning my teeth feel akward. Two years ago I read the side effects in the literature from Amgen and ONJ -jaw rot was a rare side effect now Amgen says it is a common side effect. Stay away from this drug...after 2 years you will be lethargic, 15 pounds heavier, your teeth will feel loose, your skin will be flaky, your bones will ache. I take the calcium supplements with vit D too. Don't let Amgen say your are having these side effects because you're not taking calcium. Finds other ways to get your bones strong. Amgen just wants money..this drug is very expensive. | The side effect of ONJ is horrible! Shame on Amgen for creating this drug and the doctors for prescribing it. I hope the CFO and the President of Amgen along with my oncologist get ONJ l and wake up every day feeling like their teeth are going to fall out. | F | 52 | 2 years Injection | 5/12/2017 | 1 | osteoporosis | Very painful left arm,bad chest infection. | F | 74 | 1 months 60mg | 1/16/2016 | 1 | Osteoporosis | My doc had someone call from his office to try to get me to take prolia. I declined. I believe they are getting kickbacks for recommending this dangerous drug. It's only supposed to be used for people with bone cancer. Thank you ladies for all of your reviews- you have confirmed my fears and suspicions regarding prolia and the other bone density drugs. They're all dangerous, have terrible side effects and they don't prevent fractures. Some seem to cause them. No discussion of what factors are causing my early osteoporosis or alternative safe treatments such as diet, supplementation, weight bearing exercise and in my case more testing and starting hrt again. I'm also eating 100g of prunes per day- read the study: the women who ate prunes had increased bone density with no suppression of the bone making process. Supplement vitamin k2 with vitamin D3- k2 makes sure calcium is absorbed into the bones. Get your calcium from food not supplements. Supplement minerals- you need 1part magnesium for 2 parts calcium. Go online and read about alternative treatments for this. Doctors should be ashamed to be poisoning patients with prolia and these other drugs. | I won't be taking it. | F | 54 | 1 days | 1/30/2016 |