REMICADE Reviews (INFLIXIMAB)

Average Rating: 3.6 (501 Ratings)

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 TUMOR NECROSIS FACTOR-ALPHA INHIBITORS

 Type: Rx Drug

  

REMICADE  (INFLIXIMAB):  This medication is used to treat certain types of arthritis (rheumatoid arthritis, arthritis of the spine, psoriatic arthritis), certain bowel diseases (Crohn's disease, ulcerative colitis), and a certain severe skin disease (chronic plaque psoriasis). In these conditions, the body's defense system (immune system) attacks healthy tissues. Infliximab works by blocking the actions of a certain natural substance (tumor necrosis factor alpha) in the body. This helps to decrease swelling (inflammation) and weaken your immune system, which slows or stops the damage from the disease.    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Age from youngest to oldest (reviews with no age reported listed first).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on REMICADE: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR REMICADECOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  psoriasis and psoriatic arthritis no real noticeable side effects for one or two years except extreme sleepiness and confusion after the infusion, but the last time slept for a day off and on, had a horrible headache, dizziness, and nausea (but since benadryl is given with remicade, don't know which drug caused it) Also, have noticed more acne and skin tags than before and seem to go through periods of hair loss, but i have thick hair, so it's not noticeable at all. I guess it is a "miracle drug". Most of my psoriasis is gone. It definitely improved my life - for the first time in years, men noticed me and I could date without fear or embarrassment. My boyfriend loves my skin, and loves to touch me. But psoriasis will return if I stop to take it, and that's the ultimate problem. F 26 2 years
12/18/2007
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 4  crohns disease Besides from the hair loss and extreme fatigue the day of, Remicade is a life saver.. I feel like Megan Fox in the movie "Jennifer ' body" where she had to feed on blood or she looks drained or dull...and then after she feeds she feels alive, beautiful and vibrant! Lol F 26 4 days
8/13/2014
 4  Crohns I have been taking remicade for 4 years at the same dosage and it has worked great. I just now switched to double the dose bc my dosage just stopped working for me. I'm experiencing a small amount of nausea for 2 days now. F 26 4 years
8/12/2015
 4  Rheumatoid arthritis Fatigue dizziness insomnia or extreme drowsiness no in between. Helps with RA but feel miserable otherwise. F 26 1 years
450 1X O
10/17/2020
 3  chrones besides the physical, like sore sites and nasel congestion, i had to change from 8 weeks to 6 weeks because the strength is getting weaker. also bone density test show brittle bones, so i take calcium chews (of course with sucralose) i wonder if it has any psychological side effects, such as irritabillity, anxiety, or anything more like aspartame. long term effects are never showen till twenty years later, right? M 26 6 years
3/16/2009
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 2  Crohn's my skin got extremely dry and itchy. I have intense itching episodes now whenever I workout or my skin is warmed/hot shower. They are crippling I have had to leave the gym many times. Vision problems, thinned my thick hair out really quickly, devastating. Hair loss. Joint pain, scalp issues, depression, extreme fatigue, sensitivity to the cold. This drug is awful, I would not recommend it unless you were desperate for relief. It does the job to control the Crohn's symptoms but at the expense of the health of your body. I feel like crap. Extremely fatigued all the time. Most GI doctors don't care at all about the other symptoms. I'm skipping my 4th dose of Remicade after the extreme itching episodes started. My hair and visions is ruined. I hope everything returns to normal after I have stopped. I'm going to try my best to treat Cohn's with alternative treatments. F the GI Drs.!!!!! M 26 3 months
2X M
1/2/2014
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 2  Ulcerative Colitis Fever, chills, night sweat, fatigue, vision changes, trouble sleeping Two days after my first infusion I had high fever for two days, and I've had intermittent low-grade fever, night sweats, and chills for the last several weeks. I have never been someone who gets random fevers until now. I was hospitalized for my fevers and dehydration one week after my first infusion, was given antibiotics, but no infection was found. The hospital also put me on 40mg of prednisone a day, which is the only thing that has positively helped my UC. My doc told me to start slowly tapering the prednisone, but as soon as I did that my UC came back immediately. Not sure the Remicade is doing anything, and given how it's kind of messed up my life I think I'm about done with it. The side effects have been worse than my original UC problems. M 26 4 weeks
1X O
3/12/2012
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 1  Crohn's Stopped breathing Horrible, almost died. All other crohn's meds had terrible side effects too. Tried Maker's Diet (get in any book store). Symptom-free for 2 years now. On no meds at all. Please try. F 26 2 months
8/4/2009
 5  crohns with fistulas chronic sinus drainage/sore throats Could tell it was working after just a few days. Have not any any flareups or any related issues since. M 27 5 years
12/8/2009
 5  ulcerative colitis Very fatigue and have muscle ache along with severe headaches M 27 7 months
690
5/25/2014
 5  Rheumatoid Arthritis There have been literally no side effects. Possible occasional fatigue right after the infusion. Otherwise, there have been no issues yet. Over the course of the 10 years of treatment, my disease has spread to other parts of my body, now including spine, hips, jaw, and most all internal joints. My peripheral joints are still minimally affected by the disease. Remicade keeps the pain and debilitation to ~2 compared to ~8 without Remicade on a 1-10 scale (10 being the worst). M 27 10 years
600 1X O
3/12/2011
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 5  Crohns Nothing intolerable. Feel tired and sluggish for about 2 days after the infusion. Feel hot and my face feels flushed. The day of the infusion my appetite increases. Miracle drug. I pray that it will always help me if I need it. M 27 2 years
5/9/2007
 5  crohn's disease The only oddity I noticed was some joint pain in my knees about 4 days after my 1st infusion. It lasted for about 2 hours and occurred for 2 consecutive days, but nothing ever since. 1 1/2 weeks after my 2nd infusion and I feel so great. I think my inflammation was bad enough that it has taken a couple of infusions to get back to feeling almost normal. No blood, no cramping, solid bowels 2-3x a day-- as opposed to full flare a month ago in the hospital. It's also allowing me to taper off my oral prednisone now. F 27 24 days
3/17/2007
 4  Crohn's Disease During my first infusion, I had chills and nausea. Afterward, nausea, fatigue and flu-like symptoms (having to go D a lot) for about 2 days. About 72 hours after the infusion, the side affects went away. Been a Crohn's sufferer for about 10 years, and been on every medication you can think of: Prednisone, Asacol, Reglan, Immuran, 6mp, Methotrexate, and everything in between. Remicade is pretty much the end of the line before Humira. I've only had 2 infusions so far. It's best to have the infusion over a longer period of time if you experience any side affects DURING the actual infusion. Also, I find it helps to bring someone with me during the infusion to keep me company and drive me home afterwards because I am always so tired after the infusion. It is hard to sleep during the infusion because the nurse is always taking your blood pressure! I am hopeful I will see positive effects from this medication soon, as others have, as it does take a few infusions to feel the full effects of the medicine. F 27 3 weeks
6/29/2007
 4  Crohn's Tired after infusion. Shortness of breath at the end of treatment. Sore throat, runny nose, headache 1 week after first infusion. I was and am still very worried about remicade. I have been on steroids for over a year now and they have stopped working for me so this is my last resort. I felt tired for a few days after the infusion, but then I really started to feel great for several days. I now have a very sore throat and runny nose. I also have a headache? I get me second infusion on friday...3 more days? I am hoping that maybe these symptoms will go away after another infusion? F 27 1 times
1X O
3/1/2011
 4  psoriatic arthritis and Iritis I had my first infusion treatment yesterday. I was really tired most of the day and slept on and off. By the evening I started to have sharp pains in my hips and joints (mainly hands and feet). Continuing to have the sharp pains, its getting worse. However I woke up and noticed a big difference in my eye. I really hope this works with little or livable side effects. I've had PA for two years and was on a Embrel and Leflunomide (Arava)conbo that was working really well until this year when I started having iritis. Is anyone else taking Remicade for iritis? I like to hear how the treatments are working for you. F 27 1 days
50 8X W
5/20/2010
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 3  RA Following my infusion I get extremely tired and nausated and extreme headaches Followed with tenderness throughout my body only lasts for three days I get infused every eight weeks remicade doesn't last in me I start to feel pain within a weeks but not a severe for the most part it has made a big difference F 27
300mg 1X day
10/8/2011
Email
 2  Crohn's Disease Red man syndrome during the infusion. I was pretty tired the day of but that could have been the Benadryl as well. I also got an ache in my collarbone fairly soon afterwards. The build-up was great by the end of my 3rd infusion in eight weeks I felt great, after that, nothing. The maintenance infusions did nothing for me and now I'm on to Cimzia. I'll let you know how that goes. M 27 6 months
12/2/2008
 5  Crohn's Disease I no longer have chronic pain to distract me from contemplating my miserable existence. A half-decade of remission with no real side effects. Hopefully I get one of those rare aggressive cancers associated with TNF-a inhibitors so I can quit my job and finally die. M 28 6 years
700mg 1X O
11/21/2023
 4  Ulcerative colitis Oh geez. I had remicad even before. I'm now on my second dose and had no problem until my second dose for this time around. My head started feeling like it was going to explode. I felt like I was on fire and my throat was closing. I was going to die!! Sadly the nurse called it a panic attack and didn't do nothing about it. I still am having pains in my chest. Remicade does work for me. Pretty much cleared up after the 1 st infusion. But the 2nd was truly a horrir for me. F 28 2 weeks
300mg
7/7/2016
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