REMICADE Reviews (INFLIXIMAB)Average Rating: 3.6 (501 Ratings)Filter ResultsCompare REMICADE with similar:
Type: Rx Drug
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Results are sorted by Age from youngest to oldest (reviews with no age reported listed first). Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 |
More on REMICADE: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR REMICADE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | Crohns disease | I have been taking remicade since my freshman year of high school and I cant even tell it works anymore | F | 18 | 4 years | 3/21/2012 | 5 | Ulcerative Colitis | Fatigue, especially day of and day after. I get sick more frequently with colds and seasonal stuff. | I had very bad pan-colitis, or ulcerative colitis of my entire colon. I had tried asacol, apriso, and a few others in that category with no success. I was frequently on prednisone. After that didn't work, my doc tried putting me on 6mp, similar to azathioprine. Even though I did all the necessary blood tests, this drug actually made things worse. I was going to the bathroom 20X or more every day the week before I got my first dose, and I was still on prednisone. One doc, wanted me to have surgery, buy my GI said try Remicade. I am one of those instant successes. I received the drug at 5pm in the hospital, (after being admitted from the ER for severe colitis problems), went home, went to sleep, and woke up the next morning. I have not gone to the bathroom more than 4 times since and have had no blood. I recently finished my taper of prednisone and there have been no changes. I am still taking asacol, probiotics, calcium/vitamin D, and a multivitamin. | M | 19 | 2 months 1X O | 8/8/2011 | 5 | crohn's disease | none really...maybe just a tad sleepy during the infusion | Remicade is nothing short of a maricle. I am a 19 yr old premed college junior. I was diagnosed with Crohn's in 2007 after suffering from constant pain for 3 years in high school. I was 5'5 and weighed 90 lbs at the time. As I continued to drop, my hs sweetheart split, and the kids began to refer to me as "ana" short for anorexic. Although it was difficult, I found ways to cope and improve myself; however I came to realize that I was depressed and was bringing down those around me. When it came time for freshman year of college, I was accepted into my dream university, but as my health exacerbated, I was forced to turn down my admission and continue at a local comm. college. It was there that I got into an accident, had an MRI done, and finally was diagnosed with crohn's. I was later prescribed Remicade for treatment. For once, I felt as if I could live normal again and if you could imagine, I went through the final stages of puberty at the age of 18. I received a scholarship | F | 19 | 1 days | 12/11/2008 | 5 | crohns decease | very tired and very weak for 3-4 days after, sore muscles also for about 3-4 days after | I am very happy with remicade! A year ago I was hospitlized from severe bleeding with almost needing a tranfusion and in severe pain from crohns. They started remicade that night in the hospital and It worked very quickly! I felt a LOT better the next day! I have to have an infusion every 8 weeks but it has been the only thing that has so far worked for me! | F | 19 | 1 years | 12/9/2007 | 5 | Chrons disease | We fought and fought the dr not to take this drug I said this was not worth it the side effects the whole practice kept telling me that my daughter was so sick because of being in and out today the hospital with her flare ups and she was always so depressed with the bathroom visits and then she developed C diff the GI Doctor used this to scare her I said to her this was not it was not a normal situation and it was such a small area of concern in her intestine and the side effects did not out weigh the drug. But she was 18 at the time and decided she wanted to try it he said she had to use 6-mp with it I was like I don't think that is a good Idea he insisted. Few treatments have passed not even a year...So she did this she recently had a follow up visit with him and he Said from her blood test something wrong with her Liver we have to stop the 6-mp and this is where the nightmare has began I had no idea he was such a horrible doctor and did not think clearly what not to do prior to a remicade treatment and what to test for when your liver is like that!!! he said she needed a vaccine pneumonia and flu, so we did (we never should have) then she went for a remicade treatment her very last which we should have never done!!! we are praying to God her body can recover and she does not develop any cancers or any of these diseases- you see the doctor thought the 6-mp was the problem we went to a hematologist almost had a liver biopsy she was getting worse so tired sleepy. | I wish I knew. If I had not taken my daughter to that last treatment. And that doctor should have tested her for mono he would have known she was sick and not had her get vaccines or a treatment she would not be this sick! I really think a lot of this is the doctors fault and he is trying to place blame on me or ignore the situation. We have gotten a referral to a new Dr. The saddest pet is he referred us and then reached out to the new doctor to discuss her new treatment which makes me more upset! Now I don't even know what my recourse is! | F | 19 | 10 months 30 | 3/31/2016 | 5 | Crohn's Disease and RA | so far, I actually have not experience any side effects of this drug. it has been a miracle drug and has eliminated about 90% of the pain I was going through daily between both of my diagnoses. I am extremely happy with this medicine. | M | 19 | 2 months XX | 1/21/2014 | 4 | Crohns | My 19 yr old son has had Crohns for the past 4 years and has been on Remicade for 2 years. He use to take Benadryl before his infusion but it made him very groggy for hours and now takes a Zyrtec and a TYlenol. With Zyrtec he is awake and uses his lap top to kill time. Remicade is the only drug that helped him and he contunues to do well as long as he gets an infusion every 8 weeks. I am concerned about the long term effects and no doctors have answers. | If anyone has any info on long term side effects of Remicade use, please email me. I am running a half marathon in Miami next weekend for CCFA and the n'tal team has raised a lot of money for resarch.(I am the mother of the patient). | M | 19 | 2 times | 1/21/2009 | 4 | ulcerative colitis | My 19 year old son has had 2 Remicade treatments and experienced chills and fever the night of. He has also had a constant sore throat, congestion and nasal sores. | Has anyone had similar symptoms? Dr. still has him on asacol as well. Is anyone else taking both remicade and asacol? Would appreciate any information you can give. | M | 19 | | 3/16/2009 | 4 | Crohns, fistula, and RA. | bad headaches, tiredness, aches. | I see a definite improvement in my fistula, and I can finally walk without a cane or a walker! The other day I was jumping on my trampoline! I feel great. I will have my third infusion soon. | F | 19 | | 11/26/2007 | 3 | Ulcerative colitis | Severe headache /dizziness muscles aching | I get my treatment every 6 weeks and it used to help until I got pregnant the whole time I was pregnant I was on it and it didn't do a thing and now that I've had my baby I've had to treatments and it still isn't doing a thing | F | 19 | 9 years 400 mg 1X M | 1/7/2013 | 3 | crohns | high blood pressure pneumonia, | remicade worked great at first but getting lung infection is scary because remicade lowers your immunity serious thinking of stopping side effects out weight the crohns symptoms | M | 19 | 8 months 1X O | 8/14/2011 | 5 | Crohn's disease | Extreme fatigue, mild dizziness, stomach pain, chest pain, joint pain, overall body ache and tenderness, pain in infusion arm. | I love Remicade and would recommend it highly to anyone who asks. I just got my first infusion yesterday and have experienced little to no side effects other than fatigue. I am up and eating and moving about by the second day. My arm feels better already, my appetite has increased, I am eating and keeping foods down, my Crohn's symptoms are noticeably less after one dose. It's a lifesaver. | F | 20 | 2 days | 12/5/2009 | 5 | Crohn's disease | I feel like my sinuses are always a little stuffy. | I take it every 6 weeks because it starts wearing off then - I never made it 8 weeks without being miserable at least 2 of them. I exhausted all other medications before trying Remicade. It started helping 3 days after first dose. I have my life back, I'm healthier, I can eat most foods except dairy. I hope it works for a long, long time. | M | 20 | 2 years 5mg/kg 1X O | 4/14/2017 | 4 | Ulcerative colitis | To date no serious side effects experienced | After 12 days it seems to be working very well, further let's see how things will take place | F | 20 | 12 days 30mg 1X O | 10/4/2020 | 4 | Ulcerative Colitis | No side effects-although, I can't tell if the hair thinning was only from the initial prednisone or the Remicade also. I have just developed antibodies to the mouse protein in Remicade, so I have to go off, darn it! And it is very expensive-thank goodness for good insurance. | Remicade was a life-saver for almost three years. It kept my symptoms under control. I had infusions every eight weeks. Now I have developed antibodies to the mouse protein in Remicade, so I will need to try something else-hopefully Humira, will work for me. It was great while it lasted. | F | 20 | 3 years | 6/17/2009 | 4 | UC | Definite thinning of the hair. Fortunately I had a lot of hair but now it is thinner and finer. No bald spots mind you. | Posting for my daughter so we can give everyone information to add to their knowledge of this drug. It worked GREAT for 2 1/2 years until her body started building antibodies and she stopped feeling so good for about six months. No flares until the end-then the colonoscopy showed the disease had travel from just the rectum/left side to the entire colon. DRAT! But Remicade doesn't stop the disease just minimizes the reaction of the body to it. So, we had to go off Remicade and are now using Lialda tablets, which are holding her. We went from infusions every 8 weeks to 4 pills every morning and nightly Canasa suppositories when she'll use them. Remicade worked-it was scarey to think of the potential long term-but if it works for you and you have quality of life instead of being chained to the toilet, unable to function. Four years ago we hadn't heard of this disease-now we are learning to live with it. Good luck to all! From Ash's mom. | F | 20 | 3 years | 8/27/2009 | 4 | Crohn's | The only thing i have noticed that could be a side effect is sometimes having a little blurred vision. | So far i feel Remicade had definantly worked!! I have had 3 injections and now i go every 8 weeks. before this i had a terrible flare i was looking like death and lost about 40lbs i was very ill and people knew it. But after the first 2 months of remicade ive gain about 20lbs back and really dont have any pain throughout the day anymore. i definantly have more energy and feel more like a normal college student. --ONE MORE THING FOR PEOPLE IN PAIN-- Being completely seriouse marijuana, for me at least, has been a life saver. At times of sever abdominal pain i would take a hit and instant pain relief. It truely does work and it really should be legalized for Medicinal purposes. I urge whoever suffers from this or any other chronic illness like crohns, give cannabis a try becasue it truely does help with pain. God Bless | M | 20 | 1X O | 4/23/2011 | 3 | Crohn's Disease | I have no immediate side effects. A few days later I get sores in my nostrils that will not heal and crust over for about two weeks. I also have a hard time knocking out the Strep...it never really goes away. I have had several UTI's and I get dry skin, especially on my cheeks and eye lids/brows. My neck is itchy all the time. | I have had a bunch of infusions now and two weeks before the last one, my pre-Remicade symptoms returned. Even with the new infusion, I'm having trouble bouncing back. My doctor might move me to a 7 week regimin. My only problem during the infusion is that the Benedryl makes me anxious which can last for several days. I'll get really jittery and need to walk around. I don't take the Benedryl prior anymore and do fine. | F | 20 | 6 months | 9/30/2007 | 1 | Ulcerative Colitis | I only had one injection, but several days before I was due for my second I experienced a horrible reaction. I had a high fever, was unable to get out of bed due to debilitating abdominal cramping, was running to the bathroom every 10 minutes (when I could muster up enough strength to actually get up), and had a rash covering my entire body. I had to go on 40 mg of Prednisone to counteract the reactions. | I've heard it works wonders for other people, so I suppose it's worth a try. Check out my blog on UC at: www.UCgirl.blogspot.com | F | 20 | 2 weeks | 2/19/2008 | 5 | Crohn's Disease | Nothing so far (1 month, 2 infusions in) | Felt better within 3 days when steroids, 6MP, Pentasa did nothing for 4 months. I thought I was never going to go into remission and Remicade seems to be doing the trick - was using the bathroom 5-10 times a night; now down to 0-1 times. 100% satisfied, no more Prednisone! | M | 21 | 4 weeks | 9/10/2005 |