Patient Log of Experience Using TEGRETOL

DRUG RATINGS REPORTS HISTORY FOR A PATIENT TAKING TEGRETOL

There are 4 ratings for the drug: TEGRETOL in this patient's archive.

Return to All Drug Ratings Page for TEGRETOL

Key to ratings for TEGRETOL:
5-Very Satisfied: this medicine cured me or helped me a great deal.
4-Satisfied: this medicine helped.
3-Somewhat Satisfied: this medicine helped somewhat.
2-Not Satisfied: this medicine did not work to my satisfaction.
1-Dissatisfied: I would not recommend taking this medicine.
                
Rating   Reason Side Effects Comments Sex Age Time Taken
and Dosage
Date Added

 4  Nocturnal Epilepsy M 51 8 years
200mg 3X D
12/18/2010
 4  Nocturnal Epilepsy Initially short term memory loss, becoming more severe with time, and stomach acid. In year six and over a 6 week period I developed severe symptoms i.e. breathing became very difficult, pains in the calfs and arm muscles, followed some days later by drunkeness feeling, unable to walk in a straight line, and rapid onset of deilirium and feeling like I was losing my mind!. Extreme stomach acid. Although blood tests showed 'normal' I suspected severe sodium depletion. I dissolved half a teaspoon of salt in a glass of water and found that not only did it not taste salty (a sure sign of sodium depletion apparently) but that over the next hour it began to relieve my symptoms which had steadily worsened now for 2 months. For a further 6 weeks I drank this water 2 or 3 times daily and all my symptoms faded considerably, despite my blood sodium levels appearing normal. I am now trying to persuade my doctor it is the Tegretol; she is convinced these symptoms only happen when you first take the drug, not 6 years on. M 51 6 years
200mg 3X D
12/19/2010
 1  Nocturnal Epilepsy Initially short term memory loss, becoming more severe with time, and stomach acid. In year six and over a 6 week period I developed severe symptoms i.e. breathing became very difficult, pains in the calfs and arm muscles, followed some days later by drunkeness feeling, unable to walk in a straight line, and rapid onset of deilirium and feeling like I was losing my mind!. Extreme stomach acid. Now off tegretol although some symptoms have persisted and are being investigated. SIADH suspected. M 51 10 years
600mg 1X D
12/13/2011
 1  Nocturnal Epilepsy Initially short term memory loss, becoming more severe with time, and stomach acid. In year six and over a 6 week period I developed severe symptoms i.e. breathing became very difficult, pains in the calfs and arm muscles, followed some days later by drunkeness feeling, unable to walk in a straight line, and rapid onset of deilirium and feeling like I was losing my mind!. Extreme stomach acid. Now off tegretol although some symptoms have persisted and are being investigated. SIADH suspected. M 51 10 years
600mg 1X D
12/13/2011