Patient Log of Experience Using INVEGA SUSTENNA
DRUG RATINGS REPORTS HISTORY FOR A PATIENT TAKING INVEGA SUSTENNA
| Key to ratings for INVEGA SUSTENNA: 5-Very Satisfied: this medicine cured me or helped me a great deal. 4-Satisfied: this medicine helped. 3-Somewhat Satisfied: this medicine helped somewhat. 2-Not Satisfied: this medicine did not work to my satisfaction. 1-Dissatisfied: I would not recommend taking this medicine. |
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| Rating | Reason | Side Effects | Comments | Sex | Age | Time Taken and Dosage | Date Added | |
| 3 | "schizo" according to the agency | I literally got the worst voices like 2 days ago which was 6 days after decreasing to 117 mg from getting 156 mg. I didn't know it would happen that fast, but now I have to go back up to 156 mg. For the first week on this I had insomnia and for three weeks I could not stop moving my feet and legs. It hurts getting it a week later and I have lumps on my butt getting it every time. | I'm way too young being on something like this, as I am still in my teens. Everyone says it's my miracle drug and I have my personality back somehow, but a part of me doubts that I even absorb it because I got voices and I thought there were murderers in the house when they lowered the dose. The lower dose royally ducked me over. I haven't felt so good for so long since being on 156 mg, but it's like I regressed when they decreased it to 117 mg for the maintenance dose. I have to take the 3 mg tablets on top of this until I can get 156 mg again. I mean it's not terrible but the lower dose definitely broke me, since I hate the voices and I always think there's people in my room at night. The voices just confirmed that thought so now I'm screwed. Thank you so much, lower dose of Invega Sustenna for ruining my progress... they say that means I need more of it. I think this is way too strong if it literally caused me to regress just 6 days after lowering my dose. It's physically addicting. Anyways, I miss my beloved Geodon. | F | 18 | 2 months 1X M | 2/17/2023 | |
| 2 | they don't trust me w/ oral pills | People think I'm lactose intolerant now and I think there's something wrong with me because I'm always nauseous and have upset stomach. It took a while to convince everyone there's something medically wrong with me because they don't trust me. They just think I'm a "schizo" which is so mean. Weight gain, always tired, and it hurts a lot getting this because I'm small. | I'm way too young to be on this and these drugs robbed me of my imagination... I'm thinking about running away from my family when I have a girlfriend. Yeah the voices went away but who is to say that it is because of this. It could be because I'm amazing and have nothing to do with this. It's so forceful to take me off something I love and put me on this, and then gaslight me into thinking that I chose this. They're never letting me take oral pills again. I JUST WANT GEODON BACK. | F | 18 | 4 months 1X M | 4/25/2023 | |
| 2 | they don't trust me w/ oral pills | People think I'm lactose intolerant now and I think there's something wrong with me because I'm always nauseous and have upset stomach. It took a while to convince everyone there's something medically wrong with me because they don't trust me. They just think I'm a "schizo" which is so mean. Weight gain, always tired, and it hurts a lot getting this because I'm small. | I'm way too young to be on this and these drugs robbed me of my imagination... I'm thinking about running away from my family when I have a girlfriend. Yeah the voices went away but who is to say that it is because of this. It could be because I'm amazing and have nothing to do with this. It's so forceful to take me off something I love and put me on this, and then gaslight me into thinking that I chose this. They're never letting me take oral pills again. I JUST WANT GEODON BACK. | F | 18 | 4 months 1X M | 4/25/2023 | |
| 2 | they call me "schizo" & for voices | I'm heat intolerant now, I gained 20 pounds and am 10 pounds from being overweight. I can't stand the heat, I can't stop gaining weight, my mouth is super dry, and my lips are cracked. I'm super bloated and get sick easily, and threw up on myself sometimes. NO MATTER WHAT I CAN'T LOSE WEIGHT. UGH. | I am a cute girl who is very small and looks super young for my age. I love birds and am a great person because I love birds. I just want to feel like myself again and have a soul, but I lost myself. It's like I can't fly anymore, and you guys keep me on the injections for incorrect reasons. I'm on 234 mg and I f**king don't like the weight gain. I'm supposed to be in the prime of my life but I'm so not there, and I'm supposed to be in college. WTF. Please get me off these injections, I just want to have big dreams and be free. You guys always tell me: "You're not coming off Invega. That's not an option." STOP GIVING A PERFECT PERSON THESE INJECTIONS. I'm seriously wonderful, and I just want a girlfriend and be free from the psych industry which is horrible for me. It's because I never did anything to deserve it. THESE INJECTIONS AND THESE F**KING DRUGS MADE ME NOT BEAUTIFUL ANYMORE. My intelligence went way down, and the only thoughts I have are about Invega and they're super dull. I'm dulled down, and the drugs made me ugly and boring. I was eccentric before... and I hate paliperidone, f**k you paliperidone. Please no one email me. | F | 18 | 6 months 1X M | 7/13/2023 | |
| 2 | they call me "schizo" & for voices | I'm heat intolerant now, I gained 20 pounds and am 10 pounds from being overweight. I can't stand the heat, I can't stop gaining weight, my mouth is super dry, and my lips are cracked. I'm super bloated and get sick easily, and threw up on myself sometimes. NO MATTER WHAT I CAN'T LOSE WEIGHT. UGH. | I am a cute girl who is very small and looks super young for my age. I love birds and am a great person because I love birds. I just want to feel like myself again and have a soul, but I lost myself. It's like I can't fly anymore, and you guys keep me on the injections for incorrect reasons. I'm on 234 mg and I f**king don't like the weight gain. I'm supposed to be in the prime of my life but I'm so not there, and I'm supposed to be in college. WTF. Please get me off these injections, I just want to have big dreams and be free. You guys always tell me: "You're not coming off Invega. That's not an option." STOP GIVING A PERFECT PERSON THESE INJECTIONS. I'm seriously wonderful, and I just want a girlfriend and be free from the psych industry which is horrible for me. It's because I never did anything to deserve it. THESE INJECTIONS AND THESE F**KING DRUGS MADE ME NOT BEAUTIFUL ANYMORE. My intelligence went way down, and the only thoughts I have are about Invega and they're super dull. I'm dulled down, and the drugs made me ugly and boring. I was eccentric before... and I hate paliperidone, f**k you paliperidone. Please no one email me. | F | 18 | 6 months 1X M | 7/13/2023 | |
| 2 | they call me "schizo" | I'm heat intolerant now, I gained 20 pounds and am 10 pounds from being overweight. I can't stand the heat, I can't stop gaining weight, my mouth is super dry, and my lips are cracked. I'm super bloated and get sick easily, and threw up on myself sometimes. NO MATTER WHAT I CAN'T LOSE WEIGHT. UGH. | I am a cute girl who is very small and looks super young for my age. I love birds and am a great person because I love birds. I just want to feel like myself again and have a soul, but I lost myself. It's like I can't fly anymore, and you guys keep me on the injections for incorrect reasons. I'm on 234 mg and I f**king don't like the weight gain. I'm supposed to be in the prime of my life but I'm so not there, and I'm supposed to be in college. WTF. Please get me off these injections, I just want to have big dreams and be free. You guys always tell me: "You're not coming off Invega. That's not an option." STOP GIVING A PERFECT PERSON THESE INJECTIONS. I'm seriously wonderful, and I just want a girlfriend and be free from the psych industry which is horrible for me. It's because I never did anything to deserve it. THESE INJECTIONS AND THESE F**KING DRUGS MADE ME NOT BEAUTIFUL ANYMORE. My intelligence went way down, and the only thoughts I have are about Invega and they're super dull. I'm dulled down, and the drugs made me ugly and boring. I was eccentric before... and I hate paliperidone, f**k you paliperidone. Please no one email me. | F | 18 | 1X D | 8/1/2023 | |
| 3 | Schizophrenia | I'm still taking this medication. I always throw up a lot, constant nausea, muscle weakness, dizziness, extreme weight gain, drooling a lot, involuntary eye movements, no sexual desires, lethargy, temperature dysregulation (always cold, or sometimes always hot), no periods (could also be due to the birth control shot), runny nose and congestion. | I am supposed to be in college, but I am unable to be due to schizophrenia according to my providers. I gave up on my dreams of being a biochemist working in the lab on new medical cures because my “schizophrenia†makes it so that I can’t process information and can’t cognitively reason. I blame the injections… but my providers have told me it’s not the injections, it’s my schizophrenia. It’s sad to see my dreams disappear for something that definitely cannot go away because everyone wants me on these injections. My family tells me I have little rights when it comes to having a say in choices regarding the injections, and if I come off them they’ll send me to the hospital, the doctor will get a Community Treatment Order, and my family will get Guardianship to get me back on injections. It’s a lose-lose situation for me. As for the voices, these injections kill them 100% along with the visual shadow people. They are all killed. I get these injections every three weeks. There’s a lot of side effects which is unfortunate but sometimes I wonder if I’d be better off without these injections. I’d like to think I would be better off without the injections and sometimes I think I don’t need it. My family says I was fairing o | F | 20 | 1 years 234 MG 1X O | 3/4/2024 | |
| 3 | Schizophrenia | I'm still taking this medication. I always throw up a lot, constant nausea, muscle weakness, dizziness, extreme weight gain, drooling a lot, involuntary eye movements, no sexual desires, lethargy, temperature dysregulation (always cold, or sometimes always hot), no periods (could also be due to the birth control shot), runny nose and congestion. | I am supposed to be in college, but I am unable to be due to schizophrenia according to my providers. I gave up on my dreams of being a biochemist working in the lab on new medical cures because my “schizophrenia†makes it so that I can't process information and can't cognitively reason. I blame the injections… but my providers have told me it’s not the injections, it’s my schizophrenia. It’s sad to see my dreams disappear for something that definitely cannot go away because everyone wants me on these injections. My family tells me I have little rights when it comes to having a say in choices regarding the injections, and if I come off them they’ll send me to the hospital, the doctor will get a Community Treatment Order, and my family will get Guardianship to get me back on injections. It’s a lose-lose situation for me. As for the voices, these injections kill them 100% along with the visual shadow people. They are all killed. I get these injections every three weeks. There’s a lot of side effects which is unfortunate but sometimes I wonder if I’d be better off without these injections. I’d like to think I would be better off without the injections and sometimes I think I don’t need it. My family says I was fairing o | F | 20 | 1 years 234 MG 1X O | 3/4/2024 | |
| 3 | Schizophrenia | I'm still taking this medication. I always throw up a lot, constant nausea, muscle weakness, dizziness, extreme weight gain, drooling a lot, involuntary eye movements, no sexual desires, lethargy, temperature dysregulation (always cold, or sometimes always hot), no periods (could also be due to the birth control shot), runny nose and congestion. | I am supposed to be in college, but I am unable to be due to schizophrenia according to my providers. I gave up on my dreams of being a biochemist working in the lab on new medical cures because my schizophrenia makes it so that I can't process information and can't cognitively reason. I blame the injections… but my providers have told me it’s not the injections, it’s my schizophrenia. It's sad to see my dreams disappear for something that definitely cannot go away because everyone wants me on these injections. My family tells me I have little rights when it comes to having a say in choices regarding the injections, and if I come off them they'll send me to the hospital, the doctor will get a Community Treatment Order, and my family will get Guardianship to get me back on injections. It's a lose-lose situation for me. As for the voices, these injections kill them 100% along with the visual shadow people. They are all killed. I get these injections every three weeks. There's a lot of side effects which is unfortunate but sometimes I wonder if I'd be better off without these injections. I'd like to think I would be better off without the injections and sometimes I think I don't need it. My family says I was fairing o | F | 20 | 1 years 234 MG 1X O | 3/4/2024 | |
| 3 | Schizophrenia | I'm still taking this medication. I always throw up a lot, constant nausea, muscle weakness, dizziness, extreme weight gain, drooling a lot, involuntary eye movements, no sexual desires, lethargy, temperature dysregulation (always cold, or sometimes always hot), no periods (could also be due to the birth control shot), runny nose and congestion. | I am supposed to be in college, but I am unable to be due to schizophrenia according to my providers. I gave up on my dreams of being a biochemist working in the lab on new medical cures because my schizophrenia makes it so that I can't process information and can't cognitively reason. I blame the injections but my providers have told me it's not the injections, it's my schizophrenia. It's sad to see my dreams disappear for something that definitely cannot go away because everyone wants me on these injections. My family tells me I have little rights when it comes to having a say in choices regarding the injections, and if I come off them they'll send me to the hospital, the doctor will get a Community Treatment Order, and my family will get Guardianship to get me back on injections. It's a lose-lose situation for me. As for the voices, these injections kill them 100% along with the visual shadow people. They are all killed. I get these injections every three weeks. There's a lot of side effects which is unfortunate but sometimes I wonder if I'd be better off without these injections. I'd like to think I would be better off without the injections and sometimes I think I don't need it. My family says I was fairing o | F | 20 | 1 years 234 MG 1X O | 3/4/2024 | |
| 1 | Schizophrenia | Excessive weight gain (BMI 20 went to 29), before Antipsychotics my BMI was 12-13... I'm fat now. Drooling, nausea, throwing up without losing weight, my vision shakes up and down and eyelids twitch (involuntary eye movements), unable to control body temperature, sexual dysfunction, no periods, muscle weakness, drowsiness after each injection every three weeks, insomnia initially, injection site reactions, runny nose, sun sensitivity, dehydration, acne | I'm on this crap at 234 MG every 3 weeks. Gave up on becoming a biochemist who would work on medical cures because this injection affects my thinking. I'm such a disgusting fat person when I used to be stick thin before Antipsychotics. I used to visually see my entire ribcage and bones were prominent too where my breasts should have been (didn't have breasts), now I can't even feel my ribs. Went from BMI 12-13 to BMI 29-30 on Antipsychotics. On Invega Sustenna went from BMI 20 to BMI 29-30 in only one year. No one wants an unattractive fat person, they would rather have me when I was very underweight. I was prettier too at BMI 12-13, my whole face was pretty and my bones were pretty. Such a shame this injection causes obesity. I'm dying to switch off, even if it means going to FGA injections with involuntary movements, as long as I'm not fat. This injection is a huge mistake. Bad drug for people who also have eating disorders (I had anorexia which was induced by Schizophrenia). —Tiffany Faye M. | F | 20 | 1.5 years 234 MG 1X O | 6/2/2024 | |
| 1 | Schizophrenia | I'm no longer taking this medication. Medically concerning tachycardia (heart rate of 150), low blood pressure, extreme dizziness, extreme weight gain, heat intolerance | Yesterday (July 1st 2024), I was discharged from the hospital. What brought me to the medical floor of the hospital was an extreme adverse reaction to Invega Sustenna 234 mg every 3 weeks. My heart rate was 150, having palpitations, and I was having extreme dizziness. The Emergency Room called Toxicology and then admitted me to the Medical Floor. Toxicology said it was 100 percent the Invega Sustenna causing these issues. The hospital did not dismiss me, and took the issue very seriously. They said had my heart rate been any higher, it would be an emergency. This review does not include the 50 pound weight gain I had to endure... which is just icing on the cake for ruining my life. The hospital told me to stop taking Invega Sustenna right away... too bad I got it a week ago and it's still in me. The dizziness persists even after the hospital. Invega Sustenna, you ruined my one-year streak for not being hospitalized. I was hospitalized BECAUSE of Invega Sustenna toxicity... | F | 20 | 1.5 years 234 MG 1X O | 7/2/2024 | |
| 1 | Schizophrenia | I'm actually still on the drug. Medically concerning tachycardia, low blood pressure, AKATHISIA, extreme dizziness, extreme weight gain, heat intolerance | Ruined my 2 year streak of not being admitted to the hospital. Caused serious heart problems at 234 mg every 3 weeks, for this reason they're decreasing the dose while adding another oral drug. They added Vraylar 1.5 mg daily, and this combination sent me into akathisia. It's horrible, wouldn't recommend. Not to mention the 50-60 pound (23-27 kg) weight gain. It ruined me, the akathisia hasn't gone away yet. I was so dizzy from the heart problems I couldn't shower and had to take baths. I couldn't walk on my own either, and had to have someone help me walk. —Tiffany Faye Tweet | F | 20 | 1.5 years 234 MG 1X O | 7/25/2024 | |