EVENITY Reviews (ROMOSOZUMAB-AQQG)Average Rating: 2.0 (22 Ratings)Filter ResultsCompare EVENITY with similar:
Type: Biological Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 |
Charts & graphs: Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR EVENITY | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 2 | Osteoporosis worsened | After 3.5 months had severe wrist pain which eased, but hands swelled & right hand was still swelled after 3 weeks. Also was sometimes unsteady on my feet. Had severe leg spasms in early months but these were alleviated with magnesium. I am currently on anti inflammatory meds to try to address the swelling. I have decided stop Evenity | This is a new medication so that patients should be closely monitored not just for fatal outcome but for adverse effects that affect their overall health ( not just bones) & quality of life. My osteoporosis specialist did not do that. Just booked me in for halyear follow up to measure bone density changes. My experience suggests this medication requires pretesting for adverse reactions & close monitoring | F | 77 | 4 months 1X M | 4/3/2024 | 1 | Severe bone loss and fractures. | First month severe joint pain, headache, insomnia and extreme anxiety. Tried one more month with loss of motor control, woke up with sharp knife behind right eye. When woke up discovered I had nocturnal urisis (peed the bed) pain in head so severe I became incoherent, had uncontrollable violent motor control and inhibited verbal response. This lasted for 5 1/2 hours and was the most horrific and frightening experience I've ever had. Doctor said I could have had a TIA but there was nothing to do about that. | Evenity is poison and toxic. I have had severe fractures and hoped evenity would be effective. I ended up with weakness, motor dysfunction that I'm still experiencing to a minor degree. Be very careful when deciding to have Evenity injections | F | 65 | 2 months 1X M | 11/16/2023 | 5 | Rib Frature- Osteoporosis | Had ovarian Cancer in my 20s so went thru premature menopause and with having cancer I couldnt do hormone replacement so 1st dexa in 2016 after I broke a rib when my husband picked me up in a bear hug -showed osteopenia (-2.1) and tried Fosamax which caused severe stomach and kidney issues. Then was put on Actonel which put me in the hospital 5 days after 2nd dose, turned out to be Costochondritis Stopped taking it issue went away. Then in 2019 Tscore went down to -2.9 drs tried getting other meds approved but insurance just saw my age and denied. New rheumatologist got Evenity approved in 3 weeks and with the additional co pay card from the manufacturer I was able to afford it. Last dose was in July and new dexa in August had my bones almost normal. I had no real side effects, the shots themselves hurt pretty bad but my dr sprays the freezing stuff on my skin before administering and it helps. Will have a painful knot for a couple days but then fine for the rest of the month. SO WORTH IT THOUGH I feel almost free no longer scared to do activities for fear of falling and breaking something AND I CAN RIDE roller coasters again YAY | Best outcome- little pain but huge gain | F | 46 | 12 months 1X M | 9/6/2023 | 1 | Osteoporosis | Headache, tiredness ,palpitations , weakness | F | 54 | 1 days 1X M | 8/8/2023 | 2 | Osteoporosis | I've been receiving these injections for 11 months. Most days I'm in so much pain I can hardly move. Never had pain like this before taking Evenity. Shoulders, elbows, hips and knees are affected along with some muscle pain in my legs. One more to go and then we'll see if my osteoporosis has improved. If there's a significant improvement, it will have been worth it. If not, just a year of misery and mostly staying at home for nothing. As with any medicine, it will be the miracle for some and the misery for others. It's always nice to hear it has worked well for some people with little to no side effects. | F | 62 | 11 months 1X M | 7/28/2023 | 1 | Osteoporosis | I would RUN, don't walk before I'd ever take Evenity injections again. I have such swollen and arthritic feeling wrists and hands for months and I know my body well enough that I'm 100% certain it's from the Evenity injections. Please talk to your doctor about other options before you end up like me! | Very dissatisfied | F | 71 | 4 months 30mg 1X M | 7/23/2023 | 1 | Osteoporosis | Headache, fatigue, insomnia. Palpitations started after 4th dose. | Be very careful when taking this medication, it has not been around long enough to be fully researched. | F | 62 | 5 months 1X M | 7/20/2023 | 2 | Osteoporosis | First two months some mild joint pain. Went to doctor for blurred vision but eyes and glasses are fine. I read in here that others have experienced blurred vision with this medication. Insomnia has definitely increased. Third shot caused moderate joint pain. Unable to sleep with the pain. Hope it stops soon. Also discomfort in my chest - maybe chondrosis? Calling doctor today. | Pain at injection sites is gone within hours, especially if you have a nurse who injects the medication slowly. | F | 75 | 3 months 1X M | 4/4/2023 | 3 | To Improve bone density | Update: Allergy doctor said that my huge bruise was due to the wrong injection area (inside area of my upper arm) chosen by the health care provider. It should have been on the outer area of the upper arm. Other injection site could be the abdodomen (2†away around the navel) or the thigh. If I had an allergic reaction to Evenity, symptoms would have manifested rather immediately. | The inner side of my arm is still tender, and some discomfort seems to have migrated towards the elbow. Could be slight joint pain now? Joint pain is one of the side effects listed for Evenity. I plan to continue on with my second injection. | 66 | 8 days 210mg 1X day | 3/2/2023 Patient History | 1 | Osteoporsis | Severe headache lasting 3 days along with continuous fatigue Shared with the dr I had an MI a little over a year ago with 4 stents prior to receiving this med. My cardiologist requests she change to something else. | She changed the drug to one I have taken before. How long will this remain in my system? | F | 72 | 3 months 1X M | 10/25/2022 | 1 | To increase bone density | Headaches, weakness, blurred vision, dizziness, neck pain. Feels like having the flu. | F | 12 months Not sure 1X day | 10/24/2022 | 1 | Osteoperosis | Stroke symptoms; bad headache, affected vision, small motor skills, writing, walking imbalance | A CT scan should be given to make sure there are not past strokes that are unknown! | F | 74 | 2 months Not sure 1X M | 10/18/2022 | 4 | Osteoporosis-not responsive to other meds | NO side effects. Maybe sl. more insomnia, but I am more energetic. I have noticed MUCH less pain in my lumbar and neck areas. Are anyone else's nails growing faster & stronger??? Less arthritic pain in my hands now too. | I am using a vibration plate (Hurtle) 1x/week for 10 minutes. Also just started using a Bosu ball for balance training. | F | 71 | 3 months 210 1X M | 9/12/2022 | 1 | Osteopenia | Had swelling at injection sites, size of half tennis balls or smaller. Went away next day but very sore and bruise. Thinking that I could handle the monthly injections. Week 2 / half, started with severe pain in legs and wrist. Swelling from knee to toes with pain. Fatigue is horrible. In general I feel extremely bad. Next injection is coming up. Don't think that I can pursue this. Will talk with Endocrinologist. | I need to build my bones up. Unfortunately Evenity is to harsh on me. | F | 65 | 3 weeks 30MG 1X M | 8/14/2022 | 2 | Osteoporosis | Severe lumps(size of half a ping pong ball)under both arms at injection sites, severe bruising, severe pain, itching, swelling. | F | 58 | 1 weeks 1X M | 7/10/2022 | 1 | Osteoporosis | Bad pain around my hip at my torso where it joined my body. Couldn't hardly walk. | Stopped shots | F | 74 | 1 days 1X day | 7/8/2022 | 1 | Osteoporosis | Terrible hip and thigh pain. Swollen legs and ankles. Headache and sore throat for over a week, all from one shot. Its been six weeks and still have severe fatigue. Never again. | F | 84 | 1 days 1X day | 5/23/2022 | 1 | To increase bone density | Went from heavy exercise for over an hour a day, 5 days a week to needing help getting of bed or chair. Extreme pain from neck to toes. Really needed a walker, but couldn't manage that due to pain in wrists and arms. Ankles and wrists also swelled up which made everything more difficult. All of this from one shot. I will not recommend- risks too horrific. I also understand it will take up to 6 months to leave my system. I have lost months of life and still don't know if I will ever fully recover. There needs to be an antidote to this poison. | F | 75 | 30 days 210MG 1X M | 4/5/2022 | 5 | Spinal fracture | No side effects! Huge gains. From -3.1 to -2.3. | F | 72 | 12 months 2 shots 1X M | 2/5/2022 | 1 | Osteoporosis | 3 days after taking first dose awoke with pains under right ribs that worsened with deep breath. Pains continued for 3 1/2 days. I saw MD who ordered chest X-ray & D-diner which showed rt pleural effusion & elevated blood test. CT scan of chest done next day show bilateral pulmonary embolism. Required 3 days hospital & now on anticoagulant for life! | Thinks warnings should also caution about us if prior hx DVT | F | 77 | 1 months Monthy 1X M | 11/27/2020 |
EVENITY (ROMOSOZUMAB-AQQG): ?For the treatment of osteoporosis in women after menopause (Sources: U.S. Centers for Medicare Services, FDA)