NEORAL Reviews

Average Rating: 4.0 (27 Ratings)

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 IMMUNOSUPPRESIVE AGENT (TRANSPLANTS)

 Type: Rx Drug
  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR NEORALCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  Renal transplantation 2004 Brown crusty lesions spreading over my torso. Some were so bad they had to be surgically removed. Extreme exhaustion. Seriously upset stomach. Skin rashes. Eleven years ago i had a kidney transplant and since then i have been prescribed Neoral. As the years passed by torso became covered with crusty brown patches, like moles, but larger. Some i even had to have surgically removed. They itch terribly. I do not like this drug. I feel it does more harm than good in as much as it really destroys the immune system. I also feel it is time that as patients we no longer accepted the initial lame excuses of what this drug 'may' cause. It DOES! I can assure you. The gums overgrow the teeth as well, and bleeding and pain also occurs. Extreme stomache upsets and exhaustion daily. Joint pain and walking difficulties occur over the years. So nasty to have to have this day in day and its a sad fact that the kidney is gradually poisoned by the dugs eventually anyhow. Why are the drug companies so coy about the effects? M 50 11 years
100 2X D
11/11/2015
Email
 4  ppp sickness, facial hair growth, spots i've been drinking ginger tea to help reduce the sickness, my hands and feet are starting to get better. bloods and blood pressure so far are doing well on this medication, so fingers crossed F 44 3 months
100 3X D
2/11/2014
Email
 5  Haemophagocytic Lymphohistocytosys hair growth on forehead near eyebrow, arm and back. swollen gums, feet pain while walking M 27 6 months
100MG 2X D
1/29/2014
Email
 4  heart transplant Hxcessive hair growth on face, arms, legs. Headache. Nausea. Skin cancer. Gum overgrowth. Flu like symptoms. Weakness for about an hour after taking it. F 40 15 years
75 mg 2X D
1/27/2014
Email
 5  double lung transplant This drug has been great for me no sign of rejection however it is causing kidney damage i drink 3 litres water everyday trying to flush it out seems to have no effect I know it is keeping me alive but killing my kidneys at the same time am hoping for a newer drug that does not have this side effect F 69 8 years
40
6/21/2013
Email
 5  Heart Transplant It works perfectly, M 67 10 years
225 mg
6/2/2013
Email
 3  severe excema hand tremors, hair is extremely brittle. chills. intially when i started neoral it had a fantastic improvement, i had raw skin from head to toe covered in blisters, it cleared this up in about 3weeks, i still had the odd few areas although i was pain free. Now im covered again even worse than before so not sure its for me. However talking to other patients they have had a 100% positive outcome F 35 8 months
100mg 2X D
1/9/2012
 5  Severve psorisis Tingling / burning hands and feet, excessive hair growth on my face this cleared my very severe psoriasis up completely within a month of taking it, I and other people started seeing improvements in my skin within 3 days. I am now on 175 daily as my kidney tests have started being not very good although my BP is fine, they want to start weaning me off and I am terrified of it all coming back with a vengeance which seems to be the case. F 49 4 months
250 1X D
2/15/2011
Email
 5  kidney transplant Hand tremors and hair growth are the only things I noticed! used both sandimmune and Neoral living donor 100% match transplant! Very happy with it! wish the packets were easier to open! F 35 15 years
1/9/2010
 4  kidney transplant I've taken this and other brands of cyclosporine for the 21 years I've had my transplant. Bad nausea in the very beginning, then no notable side effects other than extra hair growth. Currently, the side effects are those of long-term cyclosporine toxicity--basically similar to mild kidney disease. It's poison, but what can you do? Beats dialysis, and then some... Take it with food to avoid any stomach upset. Currently I take the generic brand of cyclosporine. I prefer it because the pills are tiny, and come in a bottle instead of the blister pack...fewer unnecessary additives, too. I assume it's quite a bit cheaper than Neoral or Sandimmune, though medicaid covers it so I don't have to worry about cost. F 41 21 years
9/20/2009
 1  psoriasis increased hair-growth - OK on scalp but not on upper lip -; general fatigue; tingling in feet and hands; cramp under arches in both feet; had three bouts of flu due to reduced auto-immunity; dry eyes. This drug has exacerbated my condition. I have suffered from scalp psoriasis for 16 years with small patches also on my hips during winter months only. I took Neoral 200mg daily for 4 months, Nov 08-March 09 inclusive. I had no psoriasis at all on my hips. There was no improvement to the scalp, however. Since ceasing the drug, I now have larger than ever patches, which are extending daily, on my hips, worse scaling on my head and, more worrying, it has now spread across my forehead, upper cheeks, around my mouth and anus. Prior to taking the drug I had not had a cold for over three years: I eat well,-lots non-psoriasis-triggering, healthy food - don't drink or smoke and live in a warm, sunny climate all year round. I use chemical-free shampoo/conditioner on my hair. I guess it wasn't the right drug for me! F 57 4 months
5/4/2009
 5  Chronic Urticaria Bleeding gums (when cleaning teeth). Increased Hair growth. Lip tingling. Hands sometimes sting when going cold to hot. Is the only thing that works for me!! My symptoms that were chronic day in and day out were cured overnight. Not in remission but would highly recommend - especially after 4 months of Prednisolone and the weight gain with that!! Hopefully can stay on for a long time. BP and Kidney function being monitered monthly at the moment, F 41 4 months
4/20/2009
Email
 3  Pustular psoarisis nausea, tiredness, renal/kidney function affetced, weight gain, sore gums (bleeding gums and blisters on roof of mouth), lower back ache and hips ached. this has helped keeping psoarais under control but skin still flared up very badly after taking it for a year. The side efects are at times as bad as condition itself, but when you feel well it does work well. F 31 1 years
12/22/2008
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 5  Psoriasis hot hands and feet like the feeling you get when you come in to a hot room from a cold day outdoors. general feeling of tiredness All the side effects were forgotten after 3 weeks when my Psoriasis went in to remission. In 20 years of suffering I've never had such clear skin and it's a shame that the doctors only let me take it for 3 months. Three weeks after finishing treatment my skin returned to it's normal bad self. Would recommend it to anyone who has severe psoriasis, well worth it. enjoy M 31 3 months
8/4/2008
Email
 5  Chronic autoimmune urticaria+vascul In the beginning - nausea/strange smell&taste sensations. Controlled the itching and inflammation from second day F 67 4 years
7/19/2008
 4  Heart Transplant Cloudy thinking. Memory problems and confusion. Slight gum over growth. Kindney problems. Has keep me rejection free for 15 years and starting to have kidney problems. M 37 15 years
8/19/2007
Email
 5  RA Hair growth, weight gain (but may be due to methotrexate I'm also taking). Fantastic drug which I was lucky enough to receive, but costs a fortune in NZ. Took for 8 years and has helped enormously with my disease. F 35 8 years
7/11/2007
 3  severe chronic urticaria Thickening of hair,unwanted hair on upper lip & eye brows, feeling sometimes tied,utc infection,had to go on antiboitics. Helped some what, but didn't make the condition go in to remission in which I had hoped. F 33 6 months
4/12/2007
 5  heart transplant headache, nausea, shaking, foot pain, flu like symptoms M 40
11/30/2006
 2  Psoriatic Arthritis Hair growth, very high blood pressure, tingling hands and feet was on low dosage for 3 months. blood pressure rose to very high levels after 2 months of taking the drug. ineffective on arthritis, too. F 34 3 months
1/12/2006
  

NEORAL  (CYCLOSPORINE):  Cyclosporine is used to prevent organ rejection in people who have received a liver, kidney, or heart transplant. It is usually taken along with other medications to allow your new organ to function normally. Cyclosporine is also used to treat severe cases of rheumatoid arthritis and plaque psoriasis. In these conditions, the body's defense system (immune system) attacks healthy tissues. Cyclosporine belongs to a class of drugs known as immunosuppressants. It works by weakening the immune system to help your body accept the new organ as if it were your own (in the case of an organ transplant) and to prevent further damage to your joints (in the case of rheumatoid arthritis) or skin (in the case of psoriasis).   (Sources: U.S. Centers for Medicare Services, FDA)

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