INVEGA SUSTENNA Reviews (PALIPERIDONE PALMITATE)Average Rating: 1.6 (97 Ratings)Filter ResultsCompare INVEGA SUSTENNA with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
| RATING | REASON | SIDE EFFECTS FOR INVEGA SUSTENNA | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | parents said aggression | Massive cognitive decline, this drug permanently robbed of 50 IQ points. I was a 4.0 gpa student, fit, could go on for hours without needing to stop and lay down. There is long term lethargy, have gotten physically unfit, lack of stamina, muscle tone loss, fat. Probably still can't pass college. Sever lack of motivation and interest in things, everything feels like a chore. I've been stuck on SSI, even though I've tried to make money by publishing stuff. What was so easy once, is still very difficult. Still have sexual side effects 10 years later. These are not "side effects" after they have gone on so long, these are the permanent and main effects. | I was very unfairly targeted for who I am. I do not use drugs, never and, and don't plan to. I didn't exhibit the common symptoms of schizophrenia. But I was injected forcefully. This thing, isn't a medication at all in my view, and I'm leaving another "review" after a long time to let you know of my progress, which hasn't been good even after 10 years. I am leaving a 2nd or maybe 3rd "review" on Invega Sustenna here. This thing needs to be halted, but if you try to get any information about it, search engines hardly yield any relevant results. This could be on purpose. So as a result, I've created a community-driven forum for discussion on Invega Sustenna and other LAIs. https://comingofflais.com or COLAIAs. This community-driven forum for sharing experience with long-acting injectable antipsychotics (LAIAs) and other psychiatric treatments. What do I mean by "community driven"? I mean that it is a forum for people who have actually been injected with a LAI. The goal of COLAIAs is to provide a public, open platform for discussion, foster open dialogue without the threat of being muted or banned for stating opinions, to share experience and thoughts, or to even state controversial view points. COLAIAs is a place for organization, education, and awareness on the topic of psychiatric medicine, specifically the use of LAIs i.e. the major ones being Invega Sustenna, Abilify Maintena, Zyprexa Relprevv. | 1 years 156 1X M | 10/7/2025 | 1 | Forced Injection | Im 20 years old and I kid you not I have developed dementia because of this drug. My memory is now non existent I cant remember anything about my old life. Ive developed aphasia. Lost my will to live, lost my personality, Ive lost all connection to the world I no longer care about anyone or anything. I am also bedridden now for 3 months and want to die. Please stay away from this shot. It was forced on me via court order. | Horrible horrible horrible life ruining drug | M | 20 | 0 days 390mg 1X O | 9/11/2024 | 1 | Schizophrenia | I'm actually still on the drug. Medically concerning tachycardia, low blood pressure, AKATHISIA, extreme dizziness, extreme weight gain, heat intolerance | Ruined my 2 year streak of not being admitted to the hospital. Caused serious heart problems at 234 mg every 3 weeks, for this reason they're decreasing the dose while adding another oral drug. They added Vraylar 1.5 mg daily, and this combination sent me into akathisia. It's horrible, wouldn't recommend. Not to mention the 50-60 pound (23-27 kg) weight gain. It ruined me, the akathisia hasn't gone away yet. I was so dizzy from the heart problems I couldn't shower and had to take baths. I couldn't walk on my own either, and had to have someone help me walk. —Tiffany Faye Tweet | F | 20 | 1.5 years 234 MG 1X O | 7/25/2024 Patient History | 1 | Misdiagnosed | Severe blank stare, does not get out of bed. Dissy off balance, only eats liquids and yogurt. Has not stood up in two months, long story short every severe side effect listed. | M | 61 | 4 times 113 mg 1X day | 1/31/2024 | 1 | Had 2 move in w dad it was his rule. | Complete loss of pleasure for any and everything. Complete loss of energy. Loss of libido. Lactation. Joint pain back pain. Weight gain. Dystonia. Confusion. High prolactin. Hair loss. Inability to sweat. Severe deppresion. Loss of personality. Litterally unable to get high 5 months after stopping. Coffee nicotine weed alcohol has zero effect. Prolonged exercise and hard exercise gives litterally no natural reqards anymore. This is after 5 months off. Music is noise to me i cant enjoy it anymore. | Wosrt thing thats ever happened to me was this drug. For 19 years of my life i was very fit loved to exercise loved music. Before the injection i was a lightweight w weed alcohol and nicotine. I was driven hardworking fit and loved aspects of life. I kid you not I completely lost the ability to feel pleasure after getting this. It gas been 157 days. I hate my life and ive just about given up. How is this possible?? | F | 19 | 1 days 234+156 2X M | 12/18/2023 | 1 | Forced injection 7 years | A lot of what others are saying blah feeling emotionally numb the problem is when I have tried to come off it before and believe me I tried my voices increase to unbearable amount sex drive low weight gain headaches electric feelings in the face of the you have started dont my thinking tells me this is a drug that was supposed to cause the zombie virus | F | 31 | 7 years 1092 1X day | 12/14/2023 | 1 | Forced injection 7 years | A lot of what others are saying blah feeling emotionally numb the problem is when I have tried to come off it before and believe me I tried my voices increase to unbearable amount sex drive low weight gain headaches electric feelings in the face of the you have started dont my thinking tells me this is a drug that was supposed to cause the zombie virus | F | 31 | 7 years 1092 1X day | 12/14/2023 | 1 | Schizophrenia | Drastically impacted my sleep. Got the injection highest possible loading dose and an additional dose a couple of days after that. At first I slept like 14 hours a day and now it has caused sleep insomnia where I feel tired but my entire body twitches as I try to fall alseep. I can feel shockwaves going off throughout my brain and body when I try to fall asleep. Mildly depressed, constantly have to be moving, terrible sexual side effects. I started hearing voices for the first time ever on this although those have subsided. Feels like a chemical lobotomy and I am glad I am not taking any more of this. Dealing with psychosis once every 2 years which has been my pattern is better than dealing with this poison of a medication. | This drug (the injectable version) invega sustenna stays in your system for up to a year. One half life is 25-49 days so it takes 5 half lives to get down to about 3% of the drug still left in your system. Taking this injectable version gives you no way out when the side effects start happening, and this drug has many many many side effects. | M | 34 | 2 months 219 1X M | 8/8/2023 | 1 | Schizophrenia | Can't think. Used to write. Can't now. Lowered IQ. | M | 28 | 1 years 156 1X M | 5/29/2023 | 1 | Drug induced psychosis | Worst experience of my life. Was given invega sustenna after drug induced psychosis. After 2 weeks of being injected everything changed for the worst. I lost all connection to the world. I can't have a conversation for the life of me. I can't look people in the eyes. I can't walk properly. I have no motivation at all. I feel very weak. My Akathisia (restlessness) has gone away for the most part. I haven't talked to my friends in 10 months because I have nothing to say. If I were to show up at a a friends house it would be very embarrassing. I have been off the drug for almost 7 months and I still have a blank mind as well as the other symptoms I mentioned earlier. | Stay away from this medication at all costs. If anyone has questions on invega there is another forum with survivors describing their recovery experience. It's called bluelight. Title is "coming off invega sustenna." Average recovery time is 8-12 months. Some rare cases heal 12-18 months. I have heard stories of people taking 2 years to recover. I still have no hope of recovery at 6.6 months off. | M | 24 | 4 months 156 1X M | 3/16/2023 | 1 | Bipolar vs Schizophrenia | My son of 20 years received 2 IM dosages 3 days apart. Was returned to me as a 5 year old | Never ever!!!! | M | 20 | 3 days 2 injectio 2X O | 2/10/2023 | 2 | Schizophrenia | Unable to think properly. Loss of period. Eye twitching and flicking that is uncontrollable for over an hour and painful. Terrible short term memory. Sleeping all the time. Weight gain. Loss of motivation. Awkwardness. Terrible at conversation now. No creativity. Use to write films and music a lot now I can't think of anything. Very vivid dreams. Sometimes unable to wake up like a seizure or sleep paralysis in sleep. No sex drive. Sex or sexual acts feel gross and weird. Can't cry. No emotion. | I would not recommend this to anyone. It got rid of my delusions and hallucinations but it took away my ability to live like a normal person. Quality of life is more important. I was able to manage while I was psychotic. Maybe there's a better medication out there at least to manage symptoms but let you retain your personality and soul. I hate this. | F | 22 | 6 months 150 MG 1X M | 2/4/2023 | 1 | Hypomanic episode - forced medication | I was forced to take one shot of Invega Sustenna and it has severely impaired me. It's been 9 months and most of the effects still persist. I been having life altering chronic fatigue, muscle weakness (considerable loss of strength), muscle stiffness, had a lot of tremors (only thing that subsided a little), my cognition, intelligence, memory, learning, all have been drained hard to the point that I don't recognise myself, I'm ultra slow in movements, thinking, have sleepness occurrences during the day, major sleep disturbance (wake up all the time), spend 10-14 hours in bed and wake up more tired than i was at nightime, as many on this drug I have hardcore anhedonia (don't feel much pleasure or reward on things I always loved), much lower libido, dry skin, bad dry eyes, bruxism. | Can someone intelligent, great job and wife, love for sports, fun and happy be reduced to a ZOMBIE-LIKE VEGETABLE WITH MENTAL AND PHYSICAL IMPAIRMENT after just one hypomanic episode? YES and it was all "sponsored" by INVEGA SUSTENNA and a doctor/family that felt medicine is about tricking treatment on a patient that only needed comprehension. Can just one shot of INVEGA do this? YOU BET. 9 months ago I was deceived into taking Invega. The results were life wrecking. All started right away, extrapyramidal symptoms (to the point I couldn't get dressed by myself), fatigue and drowsiness, slowness, bad anhedonia etc. Felt like I was shot to an impaired state. Weeks later felt slightly better, I thought I was pulling through. The withdrawal came, my world came falling apart. Every effect multiplied, I was restless, severe insomnia, paralyzed, blank, no cognition whatsoever. Doctor said “depression” (alibi to get out of a malpractice). It got so seriously bad, I tried to kill myself. Was hospitalized and finally came out. Did things improve ? Just the bare minimum, I'm active, working, but the effects are still there. I'm impaired, psychically, mentally, emotionally. MOST PEOPLE STILL DON'T BELIEVE INVEGA COULD DO SUCH DAMAGE. WELL I ATEST IT DOES. | M | 43 | 1 days 150 1X day | 1/26/2023 | 1 | Psychosis | Emotional numbness, problems walking, head moves involuntarily, lower IQ, memory loss, erectile dysfunction. It surprises me this drug is even legal. If you are considering taking this medication I ask you to read up first. This medication has sucked the soul out of me. I am numb 24/7. There is no hope for me right now. | Worst medication on the market. | M | 24 | 4 months 156mg 1X M | 10/16/2022 | 1 | Forced injection | No personality. No joy. Anxious want to crawl out of skin. Rocking side to side. No laughter. Quiet. | Life is hard with this drug. | F | 43 | 5 months 1 x a mon 1X M | 5/21/2022 | 1 | Schizophrenia | I'm on a super low dose and it's only been two weeks and I am a shell of who I used to be. It has robbed me of my personality and all my emotions and will to do anything. I sleep all night and morning and sit on the couch all day. When I get up I'm dizzy but i have to piss every 10 minutes. I hate this fucking drug I am a zombie. I can't even cry. I don't smile. I don't laugh. Nothing is interesting. I just want to disappear. | F | 34 | 14 days 1.5mg 1X day | 2/17/2022 | 1 | chronic schizophrenia | impotency, frequent urination, lightheadedness, dizzyness, weight gain, unable to get up on time, have a very difficult time waking up, unable to chew with right side of my mouth, dirtying my underwear | The only good point about this drug is that it did not give me akathisia, other than that it is a total disaster. Lightheadedness is almost always with me. I discovered recently that washing your face helps, but only for a little while. Every little work is a hassle for me for some reason (maybe as a result of lightheadedness and dizzyness). I do not do a lot of the things I could as well be doing, and I keep wondering why, and I keep thinking how I can get over this. I get very helpless. I can't even cook my own food. Everywhere I go I visit its bathroom because I need to pee every 5-10 minutes. I can't even watch a soccer match without missing some of its parts while I am busy urinating. The doctor that prescribes this medicine says it is most probably not because of this medicine but anti-frequent urination medicine does not work anymore where as they used to work before the years I started taking invega. He also says I should be able to get up on time but I can't. As a result I can only work with my brother who lets me go to work late. I believe the doctors and my family exaggerate my psychosis. I read a book by Joanna Moncrieff where it says even the most severe cases subside eventually by themselves, and I believe in this. They let me alone and I will be just fine To sum up this drug should be banned. I can do much better without it. | M | 42 | 4 years 1X M | 2/3/2022 | 1 | Bipolar 2 disorder | Emotional numbing, no weight gain but I'm slow can't even hangout with my cousin n enjoy myself bcuz I'm so quiet ... Can't think clearly it does make me more calm but I jus wanna b back to normal... Extreme catatonia! | I would not recommend this drug to anybody unless you actually have schizophrenia and absolutely need it ! | M | 19 | 4 months 156 mg 1X M | 12/27/2021 | 1 | psychosis | Mentally blank or poverty in thoughts. No emotions, mindless. Very restless. weight gain. Poor memory, learning, concentration, and focus. Dead sex drive. Depressed | Miserable all the time on forced injections. Invega should be banned | M | 46 | 5 years 117mg 1X M | 2/26/2021 | 1 | bipolar/forced injection | anhedonia, weight gain, extreme restlessness, need to pace all the time, lowered iq, inability to have sustained conversations, randomly smiling inappropriately. | This drug turned my life around in the most negative way. I advise you to explore other options before taking this. Yes, it stopped my delusions, but it also sapped me of my will to live and it isn't worth that. | M | 26 | 6 months 234 1X M | 1/24/2021 |
INVEGA SUSTENNA (PALIPERIDONE PALMITATE): This medication is used to treat certain mental/mood disorders (such as schizophrenia, schizoaffective disorder). Paliperidone is an antipsychotic drug (atypical type). It works by helping to restore the balance of certain natural chemicals (neurotransmitters) in the brain. This medication can decrease hallucinations and help you to think more clearly and positively about yourself, feel less agitated, and take a more active part in everyday life. (Sources: U.S. Centers for Medicare Services, FDA) FDA Approval Date: 2009-07-31