INVEGA SUSTENNA Reviews (PALIPERIDONE PALMITATE)

Average Rating: 1.7 (95 Ratings)

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 ANTIPSYCHOTICS ANTIMANICS

 Type: Rx Drug

  

INVEGA SUSTENNA  (PALIPERIDONE PALMITATE):  This medication is used to treat certain mental/mood disorders (such as schizophrenia, schizoaffective disorder). Paliperidone is an antipsychotic drug (atypical type). It works by helping to restore the balance of certain natural chemicals (neurotransmitters) in the brain. This medication can decrease hallucinations and help you to think more clearly and positively about yourself, feel less agitated, and take a more active part in everyday life.   FDA Approval Date: 2009-07-31 (Sources: U.S. Centers for Medicare Services, FDA)

  

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More on INVEGA SUSTENNA: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR INVEGA SUSTENNACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  Schizophrenia I'm still taking this medication. I always throw up a lot, constant nausea, muscle weakness, dizziness, extreme weight gain, drooling a lot, involuntary eye movements, no sexual desires, lethargy, temperature dysregulation (always cold, or sometimes always hot), no periods (could also be due to the birth control shot), runny nose and congestion. I am supposed to be in college, but I am unable to be due to schizophrenia according to my providers. I gave up on my dreams of being a biochemist working in the lab on new medical cures because my schizophrenia makes it so that I can't process information and can't cognitively reason. I blame the injections but my providers have told me it's not the injections, it's my schizophrenia. It's sad to see my dreams disappear for something that definitely cannot go away because everyone wants me on these injections. My family tells me I have little rights when it comes to having a say in choices regarding the injections, and if I come off them they'll send me to the hospital, the doctor will get a Community Treatment Order, and my family will get Guardianship to get me back on injections. It's a lose-lose situation for me. As for the voices, these injections kill them 100% along with the visual shadow people. They are all killed. I get these injections every three weeks. There's a lot of side effects which is unfortunate but sometimes I wonder if I'd be better off without these injections. I'd like to think I would be better off without the injections and sometimes I think I don't need it. My family says I was fairing o F 20 1 years
234 MG 1X O
3/4/2024
Patient History
 1  Misdiagnosed Severe blank stare, does not get out of bed. Dissy off balance, only eats liquids and yogurt. Has not stood up in two months, long story short every severe side effect listed. M 61 4 times
113 mg 1X day
1/31/2024
 1  Had 2 move in w dad it was his rule. Complete loss of pleasure for any and everything. Complete loss of energy. Loss of libido. Lactation. Joint pain back pain. Weight gain. Dystonia. Confusion. High prolactin. Hair loss. Inability to sweat. Severe deppresion. Loss of personality. Litterally unable to get high 5 months after stopping. Coffee nicotine weed alcohol has zero effect. Prolonged exercise and hard exercise gives litterally no natural reqards anymore. This is after 5 months off. Music is noise to me i cant enjoy it anymore. Wosrt thing thats ever happened to me was this drug. For 19 years of my life i was very fit loved to exercise loved music. Before the injection i was a lightweight w weed alcohol and nicotine. I was driven hardworking fit and loved aspects of life. I kid you not I completely lost the ability to feel pleasure after getting this. It gas been 157 days. I hate my life and ive just about given up. How is this possible?? F 19 1 days
234+156 2X M
12/18/2023
 1  Forced injection 7 years A lot of what others are saying blah feeling emotionally numb the problem is when I have tried to come off it before and believe me I tried my voices increase to unbearable amount sex drive low weight gain headaches electric feelings in the face of the you have started dont my thinking tells me this is a drug that was supposed to cause the zombie virus F 31 7 years
1092 1X day
12/14/2023
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 1  Forced injection 7 years A lot of what others are saying blah feeling emotionally numb the problem is when I have tried to come off it before and believe me I tried my voices increase to unbearable amount sex drive low weight gain headaches electric feelings in the face of the you have started dont my thinking tells me this is a drug that was supposed to cause the zombie virus F 31 7 years
1092 1X day
12/14/2023
Email
 1  Schizophrenia Drastically impacted my sleep. Got the injection highest possible loading dose and an additional dose a couple of days after that. At first I slept like 14 hours a day and now it has caused sleep insomnia where I feel tired but my entire body twitches as I try to fall alseep. I can feel shockwaves going off throughout my brain and body when I try to fall asleep. Mildly depressed, constantly have to be moving, terrible sexual side effects. I started hearing voices for the first time ever on this although those have subsided. Feels like a chemical lobotomy and I am glad I am not taking any more of this. Dealing with psychosis once every 2 years which has been my pattern is better than dealing with this poison of a medication. This drug (the injectable version) invega sustenna stays in your system for up to a year. One half life is 25-49 days so it takes 5 half lives to get down to about 3% of the drug still left in your system. Taking this injectable version gives you no way out when the side effects start happening, and this drug has many many many side effects. M 34 2 months
219 1X M
8/8/2023
 1  Schizophrenia Can't think. Used to write. Can't now. Lowered IQ. M 28 1 years
156 1X M
5/29/2023
 1  Drug induced psychosis Worst experience of my life. Was given invega sustenna after drug induced psychosis. After 2 weeks of being injected everything changed for the worst. I lost all connection to the world. I can't have a conversation for the life of me. I can't look people in the eyes. I can't walk properly. I have no motivation at all. I feel very weak. My Akathisia (restlessness) has gone away for the most part. I haven't talked to my friends in 10 months because I have nothing to say. If I were to show up at a a friends house it would be very embarrassing. I have been off the drug for almost 7 months and I still have a blank mind as well as the other symptoms I mentioned earlier. Stay away from this medication at all costs. If anyone has questions on invega there is another forum with survivors describing their recovery experience. It's called bluelight. Title is "coming off invega sustenna." Average recovery time is 8-12 months. Some rare cases heal 12-18 months. I have heard stories of people taking 2 years to recover. I still have no hope of recovery at 6.6 months off. M 24 4 months
156 1X M
3/16/2023
Email
 1  Bipolar vs Schizophrenia My son of 20 years received 2 IM dosages 3 days apart. Was returned to me as a 5 year old Never ever!!!! M 20 3 days
2 injectio 2X O
2/10/2023
Email
 2  Schizophrenia Unable to think properly. Loss of period. Eye twitching and flicking that is uncontrollable for over an hour and painful. Terrible short term memory. Sleeping all the time. Weight gain. Loss of motivation. Awkwardness. Terrible at conversation now. No creativity. Use to write films and music a lot now I can't think of anything. Very vivid dreams. Sometimes unable to wake up like a seizure or sleep paralysis in sleep. No sex drive. Sex or sexual acts feel gross and weird. Can't cry. No emotion. I would not recommend this to anyone. It got rid of my delusions and hallucinations but it took away my ability to live like a normal person. Quality of life is more important. I was able to manage while I was psychotic. Maybe there's a better medication out there at least to manage symptoms but let you retain your personality and soul. I hate this. F 22 6 months
150 MG 1X M
2/4/2023
 1  Hypomanic episode - forced medication I was forced to take one shot of Invega Sustenna and it has severely impaired me. It's been 9 months and most of the effects still persist. I been having life altering chronic fatigue, muscle weakness (considerable loss of strength), muscle stiffness, had a lot of tremors (only thing that subsided a little), my cognition, intelligence, memory, learning, all have been drained hard to the point that I don't recognise myself, I'm ultra slow in movements, thinking, have sleepness occurrences during the day, major sleep disturbance (wake up all the time), spend 10-14 hours in bed and wake up more tired than i was at nightime, as many on this drug I have hardcore anhedonia (don't feel much pleasure or reward on things I always loved), much lower libido, dry skin, bad dry eyes, bruxism. Can someone intelligent, great job and wife, love for sports, fun and happy be reduced to a ZOMBIE-LIKE VEGETABLE WITH MENTAL AND PHYSICAL IMPAIRMENT after just one hypomanic episode? YES and it was all "sponsored" by INVEGA SUSTENNA and a doctor/family that felt medicine is about tricking treatment on a patient that only needed comprehension. Can just one shot of INVEGA do this? YOU BET. 9 months ago I was deceived into taking Invega. The results were life wrecking. All started right away, extrapyramidal symptoms (to the point I couldn't get dressed by myself), fatigue and drowsiness, slowness, bad anhedonia etc. Felt like I was shot to an impaired state. Weeks later felt slightly better, I thought I was pulling through. The withdrawal came, my world came falling apart. Every effect multiplied, I was restless, severe insomnia, paralyzed, blank, no cognition whatsoever. Doctor said “depression” (alibi to get out of a malpractice). It got so seriously bad, I tried to kill myself. Was hospitalized and finally came out. Did things improve ? Just the bare minimum, I'm active, working, but the effects are still there. I'm impaired, psychically, mentally, emotionally. MOST PEOPLE STILL DON'T BELIEVE INVEGA COULD DO SUCH DAMAGE. WELL I ATEST IT DOES. M 43 1 days
150 1X day
1/26/2023
Email
 1  Psychosis Emotional numbness, problems walking, head moves involuntarily, lower IQ, memory loss, erectile dysfunction. It surprises me this drug is even legal. If you are considering taking this medication I ask you to read up first. This medication has sucked the soul out of me. I am numb 24/7. There is no hope for me right now. Worst medication on the market. M 24 4 months
156mg 1X M
10/16/2022
Email
 1  Forced injection No personality. No joy. Anxious want to crawl out of skin. Rocking side to side. No laughter. Quiet. Life is hard with this drug. F 43 5 months
1 x a mon 1X M
5/21/2022
Email
 1  Schizophrenia I'm on a super low dose and it's only been two weeks and I am a shell of who I used to be. It has robbed me of my personality and all my emotions and will to do anything. I sleep all night and morning and sit on the couch all day. When I get up I'm dizzy but i have to piss every 10 minutes. I hate this fucking drug I am a zombie. I can't even cry. I don't smile. I don't laugh. Nothing is interesting. I just want to disappear. F 34 14 days
1.5mg 1X day
2/17/2022
 1  chronic schizophrenia impotency, frequent urination, lightheadedness, dizzyness, weight gain, unable to get up on time, have a very difficult time waking up, unable to chew with right side of my mouth, dirtying my underwear The only good point about this drug is that it did not give me akathisia, other than that it is a total disaster. Lightheadedness is almost always with me. I discovered recently that washing your face helps, but only for a little while. Every little work is a hassle for me for some reason (maybe as a result of lightheadedness and dizzyness). I do not do a lot of the things I could as well be doing, and I keep wondering why, and I keep thinking how I can get over this. I get very helpless. I can't even cook my own food. Everywhere I go I visit its bathroom because I need to pee every 5-10 minutes. I can't even watch a soccer match without missing some of its parts while I am busy urinating. The doctor that prescribes this medicine says it is most probably not because of this medicine but anti-frequent urination medicine does not work anymore where as they used to work before the years I started taking invega. He also says I should be able to get up on time but I can't. As a result I can only work with my brother who lets me go to work late. I believe the doctors and my family exaggerate my psychosis. I read a book by Joanna Moncrieff where it says even the most severe cases subside eventually by themselves, and I believe in this. They let me alone and I will be just fine To sum up this drug should be banned. I can do much better without it. M 42 4 years
1X M
2/3/2022
Email
 1  Bipolar 2 disorder Emotional numbing, no weight gain but I'm slow can't even hangout with my cousin n enjoy myself bcuz I'm so quiet ... Can't think clearly it does make me more calm but I jus wanna b back to normal... Extreme catatonia! I would not recommend this drug to anybody unless you actually have schizophrenia and absolutely need it ! M 19 4 months
156 mg 1X M
12/27/2021
 1  psychosis Mentally blank or poverty in thoughts. No emotions, mindless. Very restless. weight gain. Poor memory, learning, concentration, and focus. Dead sex drive. Depressed Miserable all the time on forced injections. Invega should be banned M 46 5 years
117mg 1X M
2/26/2021
Email
 1  bipolar/forced injection anhedonia, weight gain, extreme restlessness, need to pace all the time, lowered iq, inability to have sustained conversations, randomly smiling inappropriately. This drug turned my life around in the most negative way. I advise you to explore other options before taking this. Yes, it stopped my delusions, but it also sapped me of my will to live and it isn't worth that. M 26 6 months
234 1X M
1/24/2021
 4  Pills did not work No side effects If you take pills you are likely to stop them and go back to your downward spiral of nightmare and thoughts of people trying to kill you this has saved my life and my family's life only for severe bipolar should someone take this if you are just depressed don't take F 70 10 years
50mg 1X M
1/1/2021
 1  cannabis psychosis (forced inj.) can't begin to describe the horror that is being on the drug, and how surely and effectively it degrades your overall mental wellbeing with prolonged usage. I feel lethargic and irritated, I can't think and I have marked cognitive decline, I am without emotions, sexual urges and motives. I am deeply suicidal. This is a POISON. Unless you have some really disrupted thinking with delusions, voices, and hallucinations or even if you do, I would stay very very far away from it. turns smart to dumb, sexual to asexual, motivated to vegetative, it's pure hell. M 42 3 years
234 1X M
12/25/2020
  

INVEGA SUSTENNA  (PALIPERIDONE PALMITATE):  This medication is used to treat certain mental/mood disorders (such as schizophrenia, schizoaffective disorder). Paliperidone is an antipsychotic drug (atypical type). It works by helping to restore the balance of certain natural chemicals (neurotransmitters) in the brain. This medication can decrease hallucinations and help you to think more clearly and positively about yourself, feel less agitated, and take a more active part in everyday life.   FDA Approval Date: 2009-07-31 (Sources: U.S. Centers for Medicare Services, FDA)

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