KEPPRA Reviews (LEVETIRACETAM)

Average Rating: 2.7 (198 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

KEPPRA  (LEVETIRACETAM):  Levetiracetam is used with other medications to treat seizures (epilepsy). It belongs to a class of drugs known as anticonvulsants. Levetiracetam may decrease the number of seizures you have.   FDA Approval Date: 1999-11-30 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR KEPPRACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Pain and mini seizures no side effects works great and hope it continues F 63
1000mg 2X day
2/17/2014
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 3  Generalised clonic tonic seizures Sleepy for first while but good effect from drug. Needed other drugs added over time as was seizure free on Keppra for a year then things changed. Status over eight times in a few months. And seizures would be 45 mins to 6 hours long. Now on lamotrigine and epliem and things are brilliant. Only seizing once every 15-20 days for a ten min clonic tonic. This i would recommend. We have tried clobazam phenytoin etc but this is the best mix F 5 5 years
600mg bd
1/6/2014
 3  Multiple seizires, epilepsy diagnosis Nausea, weight loss, almost no sex drive F 31 3 years
2000
1/5/2014
 4  Grand Mal Seizures Maybe not for everyone, but give it a proper chance & don't blame all effects on the meds! Just up to my maximum dose after having what they think was two days of PS while on 600mg of Sodium Valproate (Episenta). Some dizziness each time I've increased the dose but my body has adjusted to it within a few weeks. Was so worried about taking it after reading horrific reviews but after joining an Epilepsy forum several members reassured me they were OK. I lost the weight I'd gained from taking SV within 2 weeks, could eat normally again. Now side effects have worn off I feel more energetic, mind clearer (this is why I think done people feel more angry as previous meds have dulled down emotions & it's getting used to it again). Still having vivid dreams but research shows this goes from 55% reporting it in the first 6 months to 5% after that...I'll live in hope! My biggest wish is that it controls my seizures once I'm weaned off the SV fully. F 36 2 months
500 2X day
1/1/2014
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 1  Epilepsy Made me a raging lunatic. The smallest thing would set me off and into a rage that would last hours. Horrible drug there are much better ones out there, 32 2 months
250 2X day
12/22/2013
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 4  Seizures due to SAH Initially had dizziness but could have been from the SAH. Anger/rage and depression until I was started on low dose SSRI Since taking SSRI w/Keppra I have no problems with anger, rage or depression but do have sleeping problems. Can fall asleep fine but can't sleep all night. I wake up after a few hours and then have trouble going back to sleep. Can get the headaches from lack of sleep. Have recently started getting a little dizzy so not sure if meds might need to be adjusted. F 57 3 months
500 mg 2X day
11/16/2013
 4  cancerous brain tumor w/resection Lethargy, mood swings, memory problems, occasional balance problems, fits of crying, occasional fits of inappropriate rage, possible loss of appetite. I started on 500 mg of Keppra 2X daily. After my craniotomy and tumor resection 3 -1/2 months ago, I had to increase my dosage several times due to breakthrough seizure activity. With each dosage increase, side effects returned and then gradually faded. I've been at the 2000 mg 2X daily for over a month now with no breakthrough seizures. I do still sometimes experience the side effects, but it is difficult to say how much of the balance and tiredness are from the surgery and how much from the medication. The most disruptive side effect is probably the crying and rage episodes, which do happen less than they did after the last dosage increase. I've had less appetite at each dosage level and have not experienced any weight gain or infections, or inappropriate behavior of any kind other than the mood swings and rages. F 41 5 months
2000 2X day
10/24/2013
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 3  prescribed for one seisure episode some sight nausea not regularly, vivid active dreaming, tiredness (maybe from the dreams?) I had what was described as an epileptic seizure about a month ago. I spent 4 days in the hospital going through a barrage of tests ie. mri, ecg etc. The doctor was initially at a loss of what had happened and accused me of being an alcoholic that had caused me to fall out of bed while biting my tongue, foaming at the mouth and eyes rolling up while making a high pitched noise (according to my wife). I told her I drank at most a couple of beers at suppertime. I then mentioned I had been having what I describe as deja vu/ anxiety spells for several years that can occur sporadically or frequently and tend to make me physically ill when they happen. I was put on levetiracetam 250 mg 2. x a day plus a multi- vitamin mineral pill plus my usual amilodopine for HBP. I was to go to 500 mg 2 x daily two weeks ago but have decided to stay on the lower dosage. I don't like the suggested side effects mentioned on these higher doses. I have had no seizures or the mentioned spells since. The doctor said that one can have a seizure and then never have another again. I am suspicious of pharmaceutical companies motives beyond profit to promote some of the toxic things they do. And a lot of doctors are right along with them since they get a $ kickback for doing so.Seems to me the cure is worse than the disease sometimes. M 58 30 days
250 2X day
9/10/2013
 1  Epilepsy I started breaking out everywhere, Itching everywhere, both legs and arm swelled up really bad, the iv marking that I had where I had the iv when I first started keppra is now a scar because of the side effects mainly because of the swelling, I cant sleep because of all the side effects. Emergency room doctor told me I was allergic to it and that for some reason most people are. F 21 1 months
500 2X day
9/1/2013
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 1  Epilepsy This drug is a nightmare! In April last year I was taking 2250mg and felt like I was going crazy. I was angry about everything, utterly depressed, exhausted, but unable to sleep and hostile towards friends and family. I had repeated UTIs and kidney infections that left me allergic to 4 types of anti-biotics. I gained 40lbs despite eating less, I screamed in my dad's face as though I was possessed and often thought of ending it all. Eventually I realised that it was the Keppra and told my Specialist Nurse that I wasn't taking it anymore and she agreed to me going back to Lamictal with some Keppra as a top up. I am now on 300mg Lamictal and reduced the Keppra down to 750mg - 500mg is the goal. I feel so much better; no more infections, insomnia improving with every reduction and weight coming down. Everyone has commented on how I am like my 'old self'. I have my energy back and am able to swim, do pilates and go for walks again. I am enjoying all the things I was doing 3 years ago; seeing friends, movies, theatre, laughing!! Life seems worth living again. I had been seizure free (from 'grand mals') for 6 years and then, on Keppra, had 4 in 5 hours; the worst ever in 20 years. This drug brought my life to standstill. In fact, it put it in reverse. I would sooner live my life and risk a seizure, than be seizure free and merely existing in a room wishing I was dead. F 39 3 years
750mg
8/4/2013
 4  Epilepsy Fatigued...always sleepy...nausea...bipolar type mood swings...cry very easily...spaced out...impatient..frustration! F 28 2 months
1000mg
8/1/2013
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 5  Adjunct w/Lamictal for JME At first, mood swings. I stopped it for several years. Restarted in 2009. Now, its side effects make it possible to take Lamictal, which 99% controls my grand mal seizures. Without it, Lamictal makes me not think, talk, write, walk, like a normal person. Keppra is a nootropic, it definitely has cognition-enhancing properties. I was going off it then my Lamictal bad side effects came back, so my neuro agreed to leave me on Keppra. 500mg, morning & night. Make sure your pharmacy doesn't switch manufacturers, however... it affected me differently with another company's generic brand. I take the generic, levetiracetam, made by CAMBER. I truly believe it's not simply an AED; it is a miracle drug for me, as it seems to help tremendously with my memory & adhd issues. F 35 10 years
500mg X2
7/30/2013
 4  complex partial seizures Extremely sun sensitivity. Slight dizziness. Sleepless nights and some drowsiness. Menory loss,cannot be ibterrupted while talking or my thoughts are completely gone. Take 750mg 2x a day F 37 3 weeks
1500mg
6/27/2013
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 1  Epilepsy increase in seizures, insomnia, anxiety, increased bun and creatinine, blood count changes, This medicine was horrible for me. Before starting the generic version of keppra, I had 5 seizures over a a 17 year period. Those occurred because my dilantin level was below my therapeutic range due to med adjustments , weaning to new meds etc. Then keppra, - 3 gran mals in -7 months, , insomnia, anxiety, renal problems, I told my doctor that it had to be the levetiracetam and she said no its just a coincidence. I started out at lower doses and the doctors just kept raising the dose and even though there was no improvement , in fact it seemed to be worsening my condition the doses were continually increased until I asked to have them lower and eventually weaned from the drug. F 56 1 years
3000 mg 2X day
6/26/2013
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 5   none some people with seizure issues are complaining that Keppra causes short term memory loss and being unbalanced , word finding difficulties they should Research 'mesial temporal sclerosis' some neuro's call it 'familial alzhiemer's'... (early alzhiemer's) it's genetic.. but LOTS of testing to diagnose I had internal electodes (WADA test) / then a Right Temporal Lobectomy/resection-- Right CA1-CA3 (Cornu Amons horn) is gone ~ left side affected too, but they cannot take both right and left sides of CA1 - CA3... but it stopped the Grand mal's ~ (still having smaller / internal seizures ~ absence, tonic, atonic, myoclonic seizures... (there are 30 different types of seizures) Good Luck All F 40 7 years
3000 MG 1X day
6/2/2013
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 1  Seizures of unknown cause Anxiety, Rage, Depression. This drug, within 3days, made me basically manic. I was at a point where no one could speak to me I was so angry. I had no specific reason for the anger & knew this, so I phoned my prescribing neuro. & got yelled at to continue taking the Keppra as my Lamictal she prescribes gets to level. Bite me! I listened to my body & cold turkey discontinued the Keppra. I felt instantly better after skipping my next scheduled dose. I, as well, would not wish this on my worst enemy. (just for the fact that it could turn you into a raging maniac!) No bueno. F 32 5 days
1000mg/day
3/11/2013
 1  secondary epilepsy I didn't get immediate side effects but they slowly developed. So depressed, anxious, emotional and tired all the time. I don't know how this stuff is legal. I got taken off half my dose and realised all the depression, anxiety, cutting myself off from the world, thinkking that would not stop, fear and all the other stuff that I would have been better off dead than endure... It was the keppra!!! This stuff is something I would not wish on my worst enemy F 35 3 years
1000
2/21/2013
 1  Precaution after brain surgery I was depressed most of this medicine. I was also very tired and my moods were all over the place. I didn't just notice it but my boyfriend and family noticed the difference in me. I don't know how people can take this long term. F 25 1 months
500 mg
1/25/2013
 1  Seizures from brain surgery Oh my God! This medicine is like an evil spirit in the bottle. I had severe neck and leg and arm pain, more seizures, panic attacks, suicidal thoughts, vomiting, dizziness and confusion. Felt like I was dying. My arms and legs felt so heavy that I couldn't lift my extremities. I don't understand how doctors can think this crazy med will help anyone. It's so dangerous and makes me feel the worse I've ever felt in my life!!! I had more consious seizures on Keppra and I begged my doctor to wean me off of this. Even being weaned off of Keppra sucks! I don't even understand how this medicine was officially approved. F 45 7 days
500 2X day
1/9/2013
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 1  SEIZURE'S I am very sensitive to medicine ill take the neurotin any day over keppra,trouble eating,coping just in a daze like a dream and NO appetite,confusion,anxiety,weird thoughts.cry .sad for no reason it sucks M 35 2 years
500 1X day
11/17/2012
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