CAPLYTA Reviews (LUMATEPERONE)

Average Rating: 2.4 (29 Ratings)

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 Type: Rx Drug

  

CAPLYTA  (LUMATEPERONE):  Treatment of schizophrenia in adults.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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  Charts & graphs: Drug Safety Information

RATING  REASONSIDE EFFECTS FOR CAPLYTACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Bipolar disorder/ depression Took one in the evening (the ONLY one I will EVER take), fell asleep fast and had the absolute most terrifying nightmares of my life and I dream very often. Never has been this bad. Could not wake up out of the dream and it felt so real. Woke up somehow turned perpendicular to my bed than how I fell asleep. Woke up with the worst headache ever and was so tired. Somehow slept for 14 hours straight. Felt terrible the entire next day. Extremely suicidal. Never taking this again. F 22 1 days
42 MG 1X day
4/21/2024
 1  Bipolar Horrendous side effects. Totally incapacitated me. I litterly slept for 24 hours and still couldnt get up. Suffered severe headache and felt confused. I threw this crap in the garbage. Never felt so awful in my entire life. This medicine should be taken off the market. F 54 3 days
42 mg 1X day
2/15/2024
 2  Bi polar 2 Horribly ill. Sleep improved nothing mattered. Problems with bladder, intestines very incapacitating. Brain zaps between doses.Tried to work with it, terrible for me. Gained 10 lbs . Stopped taking . Feeling much better F 68 0 months
42 mg 1X day
1/13/2024
 3  Depression This medicine has me with diarrhea, muscle spasms, having me feel sleepy and tired all day M 51 2 months
42 mg 1X day
12/29/2023
Email
 1  Bipolar II depression Daily annoying headaches, untouched by Tylenol and Nurtec. Dizziness every time I get up. So tired throughout every day as if I haven't slept. Was on lithium and Seroquel about 6 years, and felt great although I gained 45lbs during the pandemic. Experienced emotional trauma involving my teen daughter and fell into very depressed state. My doctor took me off Seroquel and put me on 42mg Caplyta 10 days ago. I still feel depressed and sleepy throughout the day. I've been patiently waiting for it to kick in and to feel better but it has not happened. I do have to wake up to pee around 4am and the mind chatter instantly begins and may or may not be able to eventually go back to sleep. I've had dizziness and an annoying headache that won't go way every day. Will speak to my doctor on Monday to try something else. F 55 10 days
42mg 1X day
11/11/2023
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 2  Depression M 51 1 days
42 1X day
11/4/2023
 3  Bipolar depression On the first night I had an extreme headache. I also felt like my nose was going to become stuffed but it never happened. To treat the headache I took ibuprofen 1000mg and I had a coffee with two espresso shots and my headache went away. On the second day I woke up in the middle of the night because I couldn't breathe. My nose was so completely stuffed for about two hours. On the third day the stuffed nose happened again about four hours after I took the med. I used my daughter’s nasal spray and it cleared up. I also noticed I’m much more calm and patient with my daughter. I don’t enjoy the stuffy nose but I will continue the med and see what happens. F 25 4 days
42 mg 1X day
10/23/2023
 1  Depression and intrusive thoughts Extreme dizziness, bad and strange headache, lack of concentration. Slight vision issues. No appetite. I am scared to give this drug a chance another day. Has anyone had experience with it being bad at first, but then helping? I have been off and on so many things, abilify was the best ever , for 2 yrs, but I developed tremors that went away after use. But with stopping it, negative thoughts and patterns came back. I am a single mom of 4 and have found myself unable to do much of anything today. I almost fell getting out of bed, I was so dizzy, then the other sysmptoms started. I took the med before going to sleep. My house is a hot mess now as I can barely care for my kids 😪 I just want to be better. F 40 1 days
21mg 1X day
9/26/2023
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 3  Bipolar Took at night at 21 mg at first to help with sleep, did nothing. Switched to 42 mg, still did nothing. Dr. Switched it to days. I felt OK for a while. The longer I took it my body got used to it and I felt completely sedated during the day for months and was getting called out for it at work. I ended up switching it back to nights (on my own accord) and have been sleeping amazingly with another sleep aide. But now I'm experiencing almost withdrawal like symptoms 18 hours after taking it. Dizzy, brain zaps, nausea, diarrhea. No weight gain which is great for my body dismorphia. I always feel hot and sweat a lot during the day. I feel it does have good control over my bipolar with help from other meds too. F 32 4 months
42mg 1X day
8/13/2023
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 2  Bipolar At first I was extremely hot and all I want to do is sleep. I’m unable to wake up. I’ve been trying to give this Ned time to work but I don’t think it’s for me unless maybe cutting the dosage. M 41 35 days
42 1X day
8/11/2023
Email
 1  Bipolar depression Within 30 mins of taking my first (and only) pill I was feeling euphoric. It got increasingly worse and not in a fun way. Eventually I had to lay in bed (took it at night) bc I was unable to function. I felt very very off. While laying in bed my big toes started to burn. The skin on my arms thereafter. The dizziness mixed with euphoria increased. I couldn't even stand up. I couldn't even look at my phone. I felt so drained. I tried to sleep and that's when the terrible thoughts started, non stop. Everything that's been depressing me was ruminating in my brain. My nose got so stuffed up I could only breathe thru my mouth. My mouth was so dry- I was so incredibly uncomfortable and felt so off. My thoughts turned dark and kept telling myself I'd be better off dead. I wanted to get up and move around but I couldn't. i was completely incapacitated by euphoria. Dizziness. I woke up with the worst headache of my entire life. It was absolute hell. I told my dr the next day what I felt and the thoughts that this drug envoked and she advised me to stop taking it. I would never put myself thru that again F 39 1 days
42 1X day
6/11/2023
 5  Bipolar I started off my journey by getting the worst migraine I've ever had- ER visit type, home, in bed, in a dark, cold room all weekend. I woke up with a headache every day after that for a week. Then they eased tremendously. I also have to watch out for orthostatic hypotension when I get up from sitting or lying down. Occasionally I have gotten dizzy . All these were definitely more troublesome in the beginning but they are becoming less frequent now like I had hoped they would. I'm running out of options to try for my Bipolar medication. 1. I'm glad my insurance finally came to their senses and approved the PA 2. I've been on pretty much everything between Lithium and Caplyta for Bipolar- you name it I've probably been on it at some point with negative results. 3. And finally I was stable and doing my best on Lamictal but I cannot take it ever again due to a Steven Johnson's Rash I developed after a surgery I had. Life just isn't fair sometimes. So I'm hoping this can be my new Lamictal!! I need to feel stable again . F 52 14 days
42mf 1X day
6/4/2023
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 2  Depression Stomach pain,nausea, responsible for my acute hepatitis Dangerous drug F 57 90 days
42 1X day
4/24/2023
Email
 3  Bipolar ii depression 42mg Severe drop in blood pressure. Fell and couldn't get out of the floor. Had to call emergency services and ended up in er. All tests were normal except very low blood pressure. Took 8 hours to be able to function on it. Dose was entirely too high though I felt much better the next day. I had all the side effects. Going back on lower dose if 10.5 at bedtime. Felt good the days after the er visit. F 66 1 days
42 1X day
3/30/2023
Email
 4  Schizophrenia I switched from Geodon to Caplyta because of sexual side effects. I'm not experiencing as much of sexual side effects on Caplyta. I get my period regularly, which I missed on doses of Geodon higher than 100mg. I get diarrhea sometimes and have a lot more gas on Caplyta. I take 42mg. It's easy to use. F 45 2 months
42 1X day
2/24/2023
 5  Depression Fatigue, night sweats I have struggled with depression and this helps tremendously since I started taking this! Upping the dose did bring more fatigue but it's manageable. F 32 2 months
21.5mg 1X day
2/15/2023
 1  Bipolar Took before bed, woke up in middle of night with raging migraine, and the feeling as though I was being boiled alive. So disoriented the morning I couldn't even open my eyes all the way. I had to call off work. Slept till 3pm and still had bad headache. I will not be continuing med. F 29 0 days
1 pill 1X day
1/19/2023
 4  Bipolar Slight headache still and frequent urination. First night intolerable hot and cold feelings simultaneously, worst headache of my life, stopped up nose. Went away after the first night. It has been 6 days and already the depression I was in is easing up. I'm laughing again and motivated, my family, work and therapist have noticed the change already. F 21 6 days
42mg 1X day
1/17/2023
 1  Bipolar 2 Headache nausea diarrhea...hot and cold .. I was so sick after taking 1 pill, I don't know how this could help anyone. F 44 1 days
42 1X day
1/14/2023
 4  Bipolar Psychosis Feel like I am high, sense of euphoria, gives me energy, throws my balance off, hard to drive, clearer thinking, takes away the psychosis about 80%. I would recommend this med. Give it time with the side effects. F 42 7 days
42mg 1X day
1/13/2023
  

CAPLYTA  (LUMATEPERONE):  Treatment of schizophrenia in adults.    (Sources: U.S. Centers for Medicare Services, FDA)

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