TIKOSYN Reviews (DOFETILIDE)

Average Rating: 3.1 (29 Ratings)

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 Type: Rx Drug

  

TIKOSYN  (DOFETILIDE):  This medication is used to treat certain types of serious (possibly fatal) irregular heartbeat (such as atrial fibrillation/flutter). It is used to restore normal heart rhythm and maintain a regular, steady heartbeat. Dofetilide is known as an anti-arrhythmic drug. It works by blocking the activity of certain electrical signals in the heart that can cause an irregular heartbeat. Treating an irregular heartbeat can decrease the risk for blood clots, and this effect can reduce your risk of heart attack or stroke.   FDA Approval Date: 1999-10-01 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TIKOSYNCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  Atrial fibrillation Malaise, bad stomach pain , weight gain ,fatigue, shortness of breath on exertion, brain fog, depression to almost suicidal ideation. Horrific side effects but terrified of atrial fibrillation coming back. So I feel like I'm trapped in a kind of catch 22 hell. M 62 8 months
500 mcg 2X day
7/21/2023
 3  Atrial fibrillation Horrible stomach and intestinal pain. Diarrhea painful. Muscle pain malaise leading to depression. Want to stop because of misery the side effects are causing but am fraid of atrial fibrillation coming back. M 62 45 days
500 mcg 2X day
1/15/2023
 3  Control of afib with RVR Kept me from going into sustained afib for about a week. Then episodes returned, lasting about 20 minutes. Horrible muscle spasms in thighs, calf, shoulders, hands. Severe neck and back pain. Fatigue. Dr took me off for the weekend. All muscle spasms and pain subsided. Stared back on Monday and sunrooms have returned. Very difficult. F 63 60 days
500mcgs 2X day
11/2/2021
Email
 4  Afib Back pain and foggy head. Still tired but improving.still have shortness of breath but better.Time will tell if everything gets better. Working great M 59 2 weeks
250mg 2x
12/19/2019
 4  a fib been experiencing back pain. wondering if this drug could be causing backk pain from kidneys? M 76 3 months
250 2X day
10/22/2019
Email
 5  A-FIB NONE M 77 30 days
250MCG 2X day
6/10/2019
 4  Afib I get very hot real quick. ,,feel pretty good most of the time ..I take dofetilide...very sensitive to light .. This medication cost is very high ,,,my doctor said this is the only medication I can take ..at my doctor request my Insurance co. Lower my cost ,,real low From a teri#= 4 to Teri #2,,, F 69 6 months
250mg
1/18/2019
Email
 5  a-Fib Constant mild to medium fatigue. Occasional dizziness and light-headedness. Occasional near-fainting (but haven't passed out yet!). For years I was having a-Fib episodes. My cardiologist tried several other Rx meds to no effect. After 7 cardioversions I was hospitalized for the required 3 days while adjusting to Tikosyn (during which I had some extreme dizziness and near-fainting). But adjusted well after the 3 days. One week-long a-Fib episode during the past 3.5 years. For me, Tikosyn was a God-send. M 67 3.5 years
250 MCG 2X day
7/25/2018
Email
 1  Atrial fibrulation Within a week of starting I experienced joint and muscle pain which gradually became unbearable. EP took me off Tikosyn cold turkey. Jury is still out on if this will held. I do not like how I feel going off cold turkey. Harsh drug. Be aware of side effects. M 75 0 months
500
7/19/2017
Email
 5  A fib None. This was the only drug that helped me. I failed an all the other antiarrhythmic meds, F 70 8 years
500 mcg tw
3/26/2017
Email
 2  A-Fib Severe stomach pain, headaches, some chest pain and muscle weakness I did the 3 day ICU stint to get on the Tikosyn. I passed with flying colors! However, in the ensuing weeks I have had almost constant nausea and then very severe stomach pain. Today my electrophysiologist took me off of it. He felt I have given it my best shot and so do I. I will go back to Rythmol and Verapamil and we will talk about an ablation. This was a rough go and I hope my stomach will settle down. If you have any GI issues I would not recommend Tikosyn. F 74 4 weeks
250mcg 2X day
11/25/2015
 3  A fib I have had left neck pain that radiates to back of head and just really foggy and exhausted. I want to get off it F 44 1 times
250 mcg
10/23/2015
Email
 3  afib hair loss, Nausea,abdominal cramps, muscle spasms Has helped with the atrial fibrillation, only have occasional shortness of breath and irregular heartbeats. F 72 3 months
500mg
9/27/2015
 3  Afib About a month after starting Tikosyn my hair began to fall out in massive handful and I am bald today. My aFib is better but I still have episodes. They do not last as long and I do feel better. F 76 2.5 months
250mcg 2X day
8/16/2015
 3  AFib Balding, red spots My aFib is better but still have some days. I generally feel better but am traumatized that all my hair fell out within 2 weeks of starting the drug. Doctor, FDA, Pharmacy all deny knowledge of hairloss side effect. F 76 1 weeks
25mcg
8/15/2015
 4  Following cardioversion due to Afib So far, I feel much better than I did, but the last two days I have lost the initial surge of energy. I have taken a 3-4 hour nap the last couple of afternoons. While I generally feel much better, I have had pain in left side of neck since day one. I have also experienced muscle cramps. I have a follow-up with my doctor tomorrow. M 55 1 weeks
500mg 2X day
6/3/2015
 4  A-Fib None I've had three cardioversions then I've been taking Tikosyn for 14 months and doing very well. So far, so good. F 59 1 years
500 mg
3/3/2015
Email
 4  A fib I have a head cold. I tried DayQuil but experienced some hard heart palpitations. What OTC medications are safe with Tikosyn? M 61 1 months
250 mg
1/25/2015
Email
 4  A-fib Tikosyn was RX'd to help maintain NSR post ablation. I feel the ablation was successful (increased energy) but I'm still very aware of my heart…not sure if it's flutters or if I'm out of NSR. My physician wants to maintain me on this med for nine more months. He feels it's working well. I'm not sure I can continue for that duration because of the side effect I'm experiencing. I am experiencing significant hair loss! I realize all meds are benefit/risk situations, however, I don't want to end up bald. F 70 3 months
25 MGS 2X day
12/28/2014
Email
 5  Atrial Fibrillation None. I had uncontrolled A Fib for 15 years while trying countless medications, all of which were worthless. Some of those medications left me with side-effects which I am still battling. F 76 6 years
0.25 1X day
10/26/2011
Email
  

TIKOSYN  (DOFETILIDE):  This medication is used to treat certain types of serious (possibly fatal) irregular heartbeat (such as atrial fibrillation/flutter). It is used to restore normal heart rhythm and maintain a regular, steady heartbeat. Dofetilide is known as an anti-arrhythmic drug. It works by blocking the activity of certain electrical signals in the heart that can cause an irregular heartbeat. Treating an irregular heartbeat can decrease the risk for blood clots, and this effect can reduce your risk of heart attack or stroke.   FDA Approval Date: 1999-10-01 (Sources: U.S. Centers for Medicare Services, FDA)

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