TEGRETOL Reviews (CARBAMAZEPINE)Average Rating: 3.3 (287 Ratings)Filter ResultsCompare TEGRETOL with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
| RATING | REASON | SIDE EFFECTS FOR TEGRETOL | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 2 | Epilepsy | Always being in a "fog", slows me down, memory loss, decline in motivation, sensitive to the sun, I'm also concerned about the long term damage to my liver. | I have tonic-clonic seizures. Side effects in part cost me my marriage. It does control seizures, only have 3 or 4 a year with it. But than so does pot for me, have never had a seizure while smoking. Luckily I live in WA and can get medicinal marijuana, just found the right doctor. The side effects of pot aren't as severe as Tegretol for me. Going to start weening myself off of the Tegretol, I can't wait to have the old me back! | M | 29 | 8 years | 6/20/2009 | 4 | Epilepsy | Exhaustion varies depending on amount of sleep, twitching mainly in hands, double vision, dizziness | I am 34 and been on tegretol since 12. At 26, I went from 800 mg to 1400mg/day. I also take Tegretol XR. For the most part, my seizures have subsided. But, I will still have seizures if I let myself get too tired. Since I've taken more tegretol, I have double vision/dizziness every once in awhile which is very hard because I'm a teacher and has happened then. My hands twitch also. Tegretol has saved my life, in my opinion. I would have grand mal seizures regulary if I didn't take as much as I do. But, there are definitely instances where I'm so tired I could scream and wish I didn't take this drug...like tonight! | F | 34 | 22 years | 6/13/2009 | 4 | epilepsy | memory loss,always tired,confusion,loss of words | 200mgx3 | M | 45 | 6 months | 6/3/2009 | 2 | Trigeminal Neuralgia | Headaches, dizziness, sluggishness, hearing issues (anything I heard sounded lower than it actually is) | I stopped taking this and started Trileptal instead. The hearing issue was to the point where I would never take Tegretol again! I have perfect pitch and I know what key a song is in after I hear it once. If I hear a song again (or even see a movie for a second time) and it doesn't match up with the original way I heard it, it drives me crazy. I couldn't take that anymore. | F | 29 | 1 months | 6/2/2009 | 3 | lesion/tumor in spinal cord c7t1 | want to close eyes, dont want to do much but still do, groggy | i have a lesion/tumor in cord, can not be operated on, been to many specialists. after trying nuraton(spelled wrong), nuraton was very bad, passing out cant drive cant walk memory very bad. when started TEGRETOL pain was less and i was able to function and go back to work. i take 6 pills a day at 200 each. still pain but ok to function. i dont know where i would be if i didnt have tegretol because nothing else worked. im in basically 24/7 pain.tried coming off tegretol thought i was doing ok, only to find out it reminded my how much pain i was in without it. IF ANYONE HAS THIS SAME KIND OF LESION/TUMOR THAT DOCTORS WONT EVEN GO NEAR LET ME KNOW IF THERES ANY HOPE | F | 44 | 1 years | 6/1/2009 | 4 | TN | Spacey,found it hard to find the right words for things. Sleepiness, but this cleared up after a couple of weeks. | The benefits outweighed the pain by a mile. Couldn't have stood the pain without this medication. | M | 56 | 6 months | 5/29/2009 | 3 | bipolar disorder | slight 'drugged' feeling (went away within a week), sleepy, major headache if i didnt take it as soon as i woke up | this med is ok. I feel a little better, not as many outbursts of anger. I am on lamictal klonopin and pristiq. But the anger is still present maybe i just need therapy lol! But def be aware of all sideaffects and dont be afraid to ask any and every question u have! Ur a consumer not a guine pig! | F | 24 | 3 weeks | 5/26/2009 | 2 | slight brain shape change after bra | involuntary leg twitching, sporadic arm achiness | F | 55 | 9 years | 5/15/2009 | 4 | epilepsy | nausea, blurred vision, headache,lack of sleep and nervousness | I have been taking tegretol since 1976. When I started taking tegretol it was still in the experimental stages and had to get blood test weekly. That was painful. I took it along with phenobarbital for 18 years. They were the only 2 drugs that could control my seizures. I was having seizures every day until I started tegretol. Now I take tegretol only but I take 1000mg daily. I was taking 1400mg daily. I can say the doctors were honest enough to tell me the side effects and let me know how the drug would cause birth defects if I got pregnant. I have now taken tegretol for 32 years and only occasional have seizures. I also had a doctor tell me that epilepsy was a disease that couldn't be cured but could be controlled so be weary of doctors that tell you that epilepsy is curable. I have been told that if I start having seizure again that there are too many good medicines that have the 10th of the side effects that tegretol does to stay on it but for now it is | F | 47 | 32 years | 3/9/2009 | 5 | Bipolar II | Little nausea every now and then but nothing else. | I love this drug. I finally feel like a human being after 42 years of no mediation. I can think clear and my emotions seem to be in order. | F | 42 | 4 months | 2/23/2009 | 4 | Seizures | Muscle Twitching Headaches Nausea Faint like feeling Foam like taste in my mouth Shaky Hallucinations Stomache Ache | I think this medicine is good but, if not taken as prescribed, it can reverse it's treatment. Sometimes I wonder why a drug like this would be prescribed especially when most users are complaining. I am already an angry person, but my teacher said I acted like a BITCH!!!!!!!! She was right.If you have any questions email me.After experiencing Seizures I want to be a spokesperson for the epilepsy foundation, as well as be a successful singer. | M | 17 | 2 years | 2/3/2009 | 4 | Epilepsy | my sister went on Tegretol when she first had a seizure at the age of 9. Immediately, her teachers noticed she was less inquisitive and curious, less talkative, and disinterested in class. She was the top student in every grade from preschool until she graduated high school,superb in her violin, piano and extracurricular activities. during her college years she experienced some weight gain, but lost it with exercise and diet.She went to a Top ivy league school, and was the best at everything she did. She did it all despite being on this medication. She was always drowsy but she has never made it an excuse. | Mind over matter has made my sister a hero to me, and for all the parents that have children that are diagnosed, please don't acknowledge the illness as a detriment. I attribute my sister's success and happiness in life to her not allowing epilepsy to be an excuse. please contact me if you need any more advice or have any questions. thanks | F | 24 | 16 years | 2/3/2009 | 4 | Trigeminal Neuralgia | extreme fatigue, bouts of depression, severe joint pain, nausea (not always), loss of words, memory loss, feeling foggy | I am taking it with a combo of Neurontin and the Tegretol has kept me pain free for the last 3 weeks. However, I would like to go to oxcarbamazepine as the side effects are much fewer. | F | 26 | 2 months | 1/16/2009 | 4 | Trigeminal Neuralgia | Memory loss, searching for words, erectile dysfunction | M | 49 | 365 days | 1/15/2009 | 5 | Trigeminal Neuragia | I just started on Tegretol (100 mg) about 10 days ago. I am so glad there is a med out there that can control my bouts of pain. My pain would come in the middle of the night (mostly) ... couldn't take it and did not realize that there was a "condition" out there called Trigeminal Neuragia. The pain became increasingly worse over time and finally I saw a physician regarding it. My first side effects from Tegretol were slight nausia, and severe headache. Both passed. Did not experience the "tiredness" as noted with other individuals. I do notice that this med does not work as well for me when I am "stressed". | I will continue taking this med and probably increase dose if my pain increases with time. Still too soon to tell. | F | 50 | 10 days | 1/6/2009 | 4 | Trigeminal Neuralgia | Extreme Exhaustion when not active, diarreha, word-loss. | I am on 600mg of Tegretol XR per day and find it works well in combating the shocking TN pain jolts though there is still lingering, achy pain. I take in combination with Neurontin which alone didn't combat the pain. I find Tegretol effective but the exhaustion is comedic as I can fall asleep the minute I sit down. | M | 35 | 6 months | 11/7/2008 | 4 | Epilepsy. simple partial & Migraine | Extreme tiredness, sleepiness at unusal times, forget-fullness, drop in libido, slight taste & smell | Works brilliantly for me.i persisted with the med while talking with neuro to find a safe dose to cover the seizures and have noticed an improvement in all of the listed side effects. either that, or i am so used to life now with teg!! it was either take the drug or hand over my drivers license then and there. i was diagnosed with ep at age 29- with 5 seiz in one day, and was very worried about taking a daily drug for the rest of my life. i now have complete seizure control. i have noticed a positive improvement in the severity and frequency of my hormonal migraines too. Overall, side effects worth it to have my life as i knew it. | F | 35 | 6 years | 10/24/2008 | 5 | Seizures | Depression, tired, exhausted, joint and muscle pain, light headedness, Sensitivity to sun, lethargic, insomnia, unclear thoughts, memory loss, like living in a fog! And the list goes on and on! | i rated it a 5 cuz it does work for stopping seizures , but I often wonder if the side effects are worse than actually having a seizue! I would probably prefer the seizure if I did not live with this constant fear of them killing me! I thought I was the only one suffering from all these side effects til I stumbled onto this site! Hearing you alls stories made me feel so bad for ya til I realized "hey thats me there talking about"! I have read alot of your stories and i am trying to figure out how you all hold down a job! I would really like to work but it seems between the seizures and the side effects I cant! Not to mention the embarrassment that comes along with having seizures! And the major decrease in sex drive...or anything that requires movement...or motivation...LOL This med does work for seizures but with all the side effects I think it should be outlawed! No way a person should be forced to try to live like this! This is not a life it is just existing!!!!I have been | M | 27 | 15 years | 10/22/2008 | 1 | peripheral neuropathy | severe muscle and joint pain. neuropathy increased. loss of balance. nausea. weakness and fatigue. | started with a small dose as I take high dose of Gabapentin. I felt terrible and could not believe the pain, particularly in the areas where I suffer neuropathy most ( lower limbs) the pain comtinued for days after stopping. Awful. | F | 60 | 4 days | 10/20/2008 | 1 | bi[polar | Extreme unrelenting fatigue. I have begun to think that I had chronic fatigue syndrome. I really think it is this drug. I take the ER brand - Equetro. | Will not use this drug anymore. I cannot afford to be a walking zombie and to sleep all day | M | 48 | 3 years | 10/18/2008 |