DILANTIN Reviews (PHENYTOIN SODIUM)Average Rating: 3.5 (185 Ratings)Filter ResultsCompare DILANTIN with similar:
Type: Rx Drug
|
Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on DILANTIN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR DILANTIN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | grand mal seizures | I was put on 300 mg of Dilantin at age 16 for seizures but after a week or so, it was reduced to 200 mg when I exhibited toxicity to it. I have osteopenia but so did my mother, and two of my sisters so I can not say that Dilantin has caused it. According to an MRI done at Mayo in Rochester, I have moderate cerebral shrinkage. This accounts for some of my unsteadiness at times and I realize this is a side effect of Dilantin. However at age 65, many people have an unsteady gait so I again can not say that Dilantin did that to me. I do not have any gum overgrowth. I have some elevation in my ALK Phosphatase count but not enough that my neuro is concerned about it. | At the age of 16, I felt my life was over when I started having seizures. Dilantin gave me my life back so that I could function normally and I married and had two sons. No one ever told me of the side effects until after my second son was born and thank God that both of them were spared any birth defects. I do seem to metabolize Dilantin differently and need to keep my levels up above 20 to avoid a seizure. Just this week I learned that Dilantin is also measured in "free" levels and that as long as they are between 1 and 2, I am in the normal range. That is still confusing to me as my last reading was 32.2 with free level at 1.7. Along with the knowledge of my neuro, I have lowered my dosage from 260 to 230. He hates Dilantin because it is so hard to keep a balance on levels especially as we age. For now, I have no plans to switch to another drug because Dilantin has kept me safe from seizures and all drugs have side effects. In a perfect world, I would not have to take any drugs at all. | F | 65 | 49 years 230 1X day | 2/26/2016 | 5 | I am taking 100 mg for seziure | I feel tingling I in my head and down my neck and down into my back. I take 100 mg of dilantin 3 times a day. | I have grandma seizures and I just feel sometimes I am still going to have a seziure and my ears ring and my stomach hurts then I feel like throwing up. | F | 25 | 3 times 100 | 12/25/2015 | 3 | Bleeding in left temporal lobe | Slurry speech bleeding gums loss of appetite trouble sleeping double vision | Does help with controling my seizures | M | 50 | 2 years 300 | 12/21/2015 | 4 | Epilepsy | Well, my gums and teeth have suffered. My liver has also taken a bit of damage. A bit of memory loss as well. | I have been taking Dilantin for 35 years. At least it helped control the seizures. | F | 49 | 100mg 3X day | 12/10/2015 | 5 | seizure disorder | Always have problems with gums. | I've been taking it for 48 years. Upset about how much the price has risen over the years especially since I have no prescription insurance. | F | 69 | 300MG 1X day | 11/6/2015 | 3 | seizures | Had a grand mal at 17 yrs old, doctor prescribed dilantin. It did work , but ive been off it since i turned 35 yrs. Old. I dont have no more seizures, dilantin made me confused and people would notice the way i talked. It gave me slurred speech. I wish doctor would off done more test before recommending dilantin. | M | 48 | 10 years 300 mg | 11/5/2015 | 1 | yes, i was taking dilantin | Unable to control eyes, couldn't see anything. My eyes will roll in my head when immediately introduced to light. I was told I had acute intoxication of Dilantin. I was given 1600 mg on the first day and 900mg every day after that. Until hospitalized. | F | 37 | 2 weeks 1600mg | 8/14/2015 | 1 | epilepsy | Severe heat sensitivity leading to heat stroke last year and it's harmed my liver.Doesn't control my levels on the highest dose that's safe. | I have had several very bad seizures while on this medication. | F | 29 | 2 years 300 mg | 6/12/2015 | 4 | seizure treatment | The day i started taking this medicine i am suffering from sun burns, eye conjuctivity, temper, easily struck by communicable diseases etc | It has helped me to control seizure...i didnt had single after the medicine course i have begun | M | 24 | 1 years 300 mg | 4/13/2015 | 1 | siezures since age 11, im now 49 yo | not only does it attack your teeth, your bones are in great danger. it eats the calcium up in your body. my spine and nerves in my body are screwd. i have poly neuropathy spinal stenosis Todd's paralysis disease advanced bone deterioration amongst others. im in pain 24/7. wow, thanks to the person/persons who invented this med. | Stay away from this med, along with phenobarbital, my neurologist and spine specialist said both are toxic to the body, hince the law suit against id maker of dilantin. too late for me. oh, and ive been on it for38 yrs. | F | 49 | 10 years 100 | 3/22/2015 | 4 | Grand mal epilepsy-unknown etiology | Dilantin has not controlled my seizures fully, in addition, it has affected my liver function. Im on a high dose in an attempt to avoid resorting to additional drugs, though i do take it with topamax. It has left me feeling like i cant articulate sentences sometimes, headaches, severe nausea. I have gone toxic on this medication, vision changes, feeling unwell in general, not making sense when i talk, my level was at 33. | If you cant afford extensive dental care & work, demand another medication. This medication is absolute terror on your teeth & gums. You can expect healthy teeth to start rotting from the inside out. And if you are on disability, medicare will not cover it, even when the dentist tells you its from the dilantin. | F | 34 | 5 years 600 mg | 3/17/2015 | 5 | Grand Mal | Been taking 5 each night for 24 yrs. No problems! Bones now becoming brittle...arthritic! | F | 69 | 10 years 500mg | 2/27/2015 | 3 | Seizures | Still had seizures, nervous system, damage to nerves in feet, confusion . | Had been on this drug for 40 yrs. still had seizures, nurogilists would not treat me if I didn't come off this drug, said it was a bad drug. | F | 61 | 1 days 100mg x2 | 1/23/2015 | 1 | electrolyte imbalance seizures | You name it..horrible drug. No need for it. Balanced electrolytes, keep them balanced. No problems. | Has it's place and practical use. Docs should prescribe less and learn more about their patients before prescribing this drug. | F | 60 | 14 days 100mg 2X day | 1/3/2015 | 4 | nocturnal siezure | Taking for 34 years and realizing that this is probably why my teeth break, tired all of time osteoporosis lower back. .restless sleep. | Have chronic kidney and liver disease. Hep C in liver. Not caused by dilantin but dilantin determines how your liver filters other medications. The drug or cure for hep c is called interferon. Dilantin is not compatible and works against it. VA switching me ty o new anti siezure med called lev...... ?? (Dont have it with me now). But it goes through my kidneys so I can get rid of hep c. No siezures so far 1 month. | M | 54 | 10 years 400 | 11/10/2014 | 5 | Brain tumors/epilepsy | Hi, i've been taking Dilantin for 3 years since I was diagnosed. Recently my dr increased my dose from 400mg to 600mg daily. I have been feeling dizzy, off balance, foggy, I developed acne, my skin is pale, I cannot eat much, I fell down this morning and have been stumbling around. My dr thinks I may be toxic.. My advice to anyone... Trust how you are feeling on your dose, my blood work said I was at 4.8, but I had been off meds for almost a week. My dr said I needed the increase, and now I am trying to feel normal again because it was too much for me.. Ive been seizure free for years because of dilantin.. But this toxic feeling is scary.. Any abnormal feelings, call your dr asap!! | F | 30 | 3 years 400mg | 10/2/2014 | 5 | Brain Tumor/Seizure Disorder | I have had almost no problems on this drug except for some bone thinning. | Dilantin has allowed me to have a wonderful life, husband, daughter, career. I am dealing right now with a doc who wants to switch me because of the bone issues. Not sure what I will do, but really wonderful drug for me. As long as I take my pills I am doing just fine. | F | 43 | 20 years 500 1X day | 8/15/2014 | 3 | Epilepsy | I had the tingling of fingers and feet. I also take 3000 mg of Keppra. I had a severe Grand Mal Seizure. My blood level was therapeudic. I guess my system has become immune to these 2 anti epilepsy meds. I believe the proper diagnosis if they been on this med for a long time is their bodies have become immune to this med. | F | 52 | 1 days 300 mg | 8/9/2014 | 5 | Epilepsy (Tonic Clonic) | Tingling and numbness (Paresthesia) in my hands occurred in the last year. | Two NHS Neurologists were convinced Phenytoin should be withdrawn as it was causing the Paresthesia. I had deep reservations so paid privately for a Parasitology test that revealed H-Pylori that causes a mayhem of symptoms including Tingling, Numbness, Reflux, indigestion, Irritable Bowel Disease and Ulcers. Dilantin/Phenytoin is well medically documented to deplete our body's stores of Vitamins B (especially B12) & D, Calcium and Magnesium. I implore patients with Paresthesia to insist their Doctors test them for vitamins and minerals deficiency before considering changing any anticonvulsant regimen. | M | 55 | 45 years 100 mg 3X day | 3/24/2014 | 4 | Seizure | Twitching, head fog, fatigue | I had a febrile seizure with high fever, another after a burn, and one after surgery. Every few years I have an EEG which has always shown some abnormal activity so Drs have kept me on Dilantin since I was about 17. Twice over the years I've come up toxic on blood work and had levels temporarily decreased. I've always considered the side effects worth being seizure free until this year. For the past several months I've been having trouble with being able to concentrate on things that require hand/eye coordination...like typing or sewing.. without developing a jerky muscle spasm. It also happens sometimes when the sun's extremely bright. It doesn't last long but when it does I have to stop what I'm doing and live in fear that it's a seizure coming on. I'm wondering if anyone else has this and possibly tried another med. | F | 66 | 50 years 100 mg 3X day | 10/14/2013 |