FLORINEF Reviews

Average Rating: 2.6 (29 Ratings)

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 Type: Brand name discontinued; available as generic
  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on FLORINEF: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR FLORINEFCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  Orthostatic Hypotension Pressure in the skull, pressure in the eyes, vision problems, migraines, chest pain I had to stop taking it after 4 days. Days 1-3 my energy was definitely improved but my vision was so impacted I was afraid to drive. On the 4th day I had migraines coming and going all day long. I had to have someone drive me to a cardiologist appointment. The side effects are too extreme for the benefit of added energy. I'm going to go back to licorice and add it in at the time of day I feel the worst. I didn't realize until I stumbled over this site that I could use licorice for OH. I may try florinef again after a sinus infection I'm fighting clears up but only if cardio thinks I should. F 34 4 days
.1-.05 1X D
6/2/2021
 3  Pots. Weakness. Coat hanger pain Urinating beyond.. for a drug that is meant to hold on to water it certainly does the opposite.. It may of helped with muscle weakness but the urination causing too many other problems M 34 4 weeks
2/22/2021
 2  POTS Increased nausea, dizziness, muscle pain, confusion, sweating, extreme fatigue and headaches Started it about a week ago, but have had to stop due to the debilitating side effects. I cannot function normally anymore and has made my POTS 100x times worse F 15 7 days
0.1 2X D
5/24/2020
 5  Addisons Disease Wonderful drug if you take the right dose! Nausea, dizziness, sense of almost blacking out, & headaches gone. A life saver! This is not a "one dose fits all" drug. If you get side effects, try decreasing dose gradually with dr supervision. Some may need only 1/4 pill, others several. I started on 1 pill, bloated up like crazy- belly & ankles. Decreased dose & all bloating was completely gone by the 2 week mark. F 38 4 years
1/ 2 pill
9/22/2016
 3  POTS Insomnia, shortness of breath, confussion, joint pain, weakness, nausea, mood swings, increased thirst, extreme fatigue, bruising Although I am getting a belting from the side effects, I don't pass out 8-15 times a week anymore... Now its 1-4 times... This is a very big change and I am okay with having side effects if it means less collapsing. F 19 3 months
0.1mg x3 d
7/31/2016
 3  Neurocardiogenic Syncope Migraines, Weight gain, dry skin and lowered immune system.. I would sometimes take half a tablet instead of a whole one. I did feel improvement but it took many months on the drug. My fatigue and exercise intolerance is still present but it went from being really bad to just unpleasant. It enabled me to begin light exercise again. I began to get very bad, head crushing type migraines. Some would last a week. Thought it was due to NCS but have noticed its when I take the drug, and not on days I skip it. Also weight gain, around 5kgs. I have a small frame so this feels more like 10kgs. Unable to lose weight while on this drug. I am weaning off now, but keep up my salt and water intake. Do not fight infection well or heal as well as I used to. DRY SKIN especially on feet and legs to the point where it was bleeding from me scratching despite using many good quality moisturisers and oils. It has done wonders for me in enabling me to live a restricted but normal life. However, the side effects are a bit too much. My GP said my immune system has lowered also. I will try licorice/root and it says it has a similar effect, however I know licorice root does effect the GI system so I will see how that goes. I still recommend trying it for the newly diagnosed and sticking with it to see how much better things can be. I have reconditioned myself through exercise and light weight training thanks to this drug, so coming off it will be easier. F 29 1 years
0.1 1X D
4/13/2016
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 2  Low blood pressure & dizziness Taking due to chronic low bp for no known reason. Negative for cushings. I don't feel it's worth the side effects which are mood changes & low energy. I'm going to wean off F 55 1 months
1 mg
3/9/2016
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 1  Addisons disease Headache, blurred vision, cranial pressure, just feeling lousy First time I tried it had a horrible experience. Endocrinologist cut my cortef dosage in half and then added florinef, which I had not taken previously. Couldn't stand it any longer after four days. I cut out the florinef and went back to my original dosage of cortef and began to feel normal again. Got a new endo and adjusted my cortef down without florinef to where I still felt okay. Then added florinef again. Same problems as before. Cut florinef in half. Still felt lousy. Cut florinef altogether and felt better again. For addisons patients, it is supposed to substitute for the natural hormone aldosterone but in my case I don't tolerate it. M 60 4 days
125 mcg 1X D
10/22/2015
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 3  POTS None with .05mg, multiple side effects after increasing dose to .1mg I took this for about one year with no problems. Dr. decided to up dosage & I experienced multiple severe side effects including weakness, shortness of breath, pressure in head and confusion. I went back to original dosage and side effects continued. Lowered dosage to 1/4 of a pill or .025mg and am still experiencing side effects immediately after taking, for about two weeks. I am greatly wanting to stop this medication but I am afraid of what side effects there will be from that. F 22 1 years
.05mg 1x d
4/10/2015
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 1  orthostatic hypertension joint pain , dizziness, blurred vision, jitters, confusion, tingling in hands and feet, tiredness, chest pain, high blood pressure, headaches, thirst, loss of appetite, F 29 10 months
0.1mg 3X D
4/4/2015
 1  Parkinson's and nausea Makes me extremely sick to my stomach with all the other meds I am taking. Went off it and felt better. Went back on and immediately felt nauseous. 1 years
.1 2X D
4/6/2014
 4  Neurally Mediated Hypotension Some water retention in the first 2 weeks, then went away. Some migraines/headaches and pressure in my head, but went away as my body adjusted. Now that im adjusted the extreme fatigue I felt from even minor/moderate exercise is gone. Took me weeks to figure out the correct dosage. Florinef has a long half life and takes your body a long time to adjust. People who complain about headaches should try a lower dose and try again. Stay on the same dose for at least 2 weeks before changing it again, unless you are in lots of pain from headaches. Best to start with a small dose and go up until you hit side effects, and then back off a bit. It can take several months to find the right dose for year. Also, I start every day with a big glass of water filled with 1 teaspoon of salt. (non-iodinized) M 44 60 days
.100 1X D
5/31/2012
 2  POTS Severe edema of feet/ankles. I'm not sure this medication helped my POTS much - I was still having some episodes of pre-syncope even after I'd been on this med a few weeks. After a particularly bad pre-syncope episode I took in extra salt as directed by my doctor and as I'd been doing prior to starting this med - and several hours later my right foot was twice the size of my left. I never had edema of any kind before this, and the swelling started to go down as soon as I stopped the Florinef. My doctor later re-introduced this med at a reduced dose, and the edema came right back, although milder this time. F 35 30 days
0.1 mg 1X D
12/27/2011
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 4  POTS - Postural Orthstc. Tacy. Synd Feel somewhat better; however, my periods are nuts - average bleeding about half of any given month. It's ridiculous. (And I have been on the same birth control for 6+ years; no other med changes) F 27 3 months
10mg 1X D
3/15/2011
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 1  neurocardiogenic syncope Dizziness, lightheadedness, migraines, nausea I've been takind florinef for five months in addition to midodrine to treat neurocardiogenic syncope. For the first couple months i took it i honestly couldn't tell the difference, it didn't seem to help or hurt. But, lately i've been getting dizzy spells much more frequently and nothing seemed to make them go away. They would occur for days at a time with migraines and nausea. I stopped taking Florinef 3 days ago and already feel much better! F 21 5 months
12/7/2009
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 1  Hypotension After taking this medicine since June, I am having EXTREME muscle weakness. EXTREME M 24 5 months
10/21/2009
 5  Postural Orthostatic Tachycardia Sy fluid retention, a little puffiness I LOVE FLORINEF! I have been taking it for 2+ years, and I must say, it has saved me. I would love to advise all of you out there trying it for POTS to stick with it. It took me 6 months to feel a bit better, and a FULL YEAR on Florinef to be close to normal again. I Swear by it! My cardiologist told me it can take over 6 months on it until you start feeling more like yourself. I was patient, and am glad I was. I have had no real side effects other than gaining about 5 extra pounds. Who cares when it makes you feel human again! I have tried to stop taking it a few times to see if it was just coincidental and maybe I really was getting better, but I was wrong. It's the florinef. After about 2 weeks off it I feel like I am dying agin. It has really saved me. PLEASE give it a shot!! AND YES YOU MUST STILL EAT A LOT OF SALT OR IT WON"T WORK! There is no point taking it if you don't up your salt volume. I try to eat 3-5 tsp a day. I mix it in my water and juts chug it down. F 39 2 years
6/30/2009
 5  hypotension/migraines slight water retention, not enough to make me stop taking it After years of searching for a cure for my migraines, i have found it! When I told the doctors I got a headache from standing/sitting, they said it was sinuses. I knew it had to be my low blood pressure and finally convinced one doctor to prescribe this and I finally am migraine free 90% of the time. I am no longer afraid of the throbbing pain I will experience when getting out of bed or standing from a chair. F 32 6 weeks
3/27/2009
 2  Neurocardiogenic Syncope water retention, but this medication did not decrease or prevent any syncope spells with .3mg a day, so now ive been switched to toprol...we will see if that works M 21 1 years
11/20/2008
 5  Orthostatic hypotension None. I have orthostatic hypotension/neurocardiogenic syncope as determined through a tilt table test. I was constantly having episodes of frequent urination, dehydration and dizzy spells when getting up and standing too long. While I don't think I will ever be healed, the Florinef has made all the difference in the world. If I do not take it one day, I pay for it with near syncope spells. The doctor initially told me to increase my salt and fluids, but that did not work so they put me on 0.1 mg a day. Florinef has been a miracle drug for me. F 38 2 months
4/2/2008
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FLORINEF  (FLUDROCORTISONE ACETATE):  Fludrocortisone is a man-made form of a natural substance (glucocorticoid) made by the body. It is used along with other medications (e.g., hydrocortisone) to treat low glucocorticoid levels caused by disease of the adrenal gland (e.g., Addison's disease, adrenocortical insufficiency, salt-losing adrenogenital syndrome). Glucocorticoids are needed in many ways for the body to function well. They are important for salt and water balance and keeping blood pressure normal. They are also needed to break down carbohydrates in your diet.   (Sources: U.S. Centers for Medicare Services, FDA)

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