TEGRETOL Reviews (CARBAMAZEPINE)Average Rating: 3.3 (287 Ratings)Filter ResultsCompare TEGRETOL with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
| RATING | REASON | SIDE EFFECTS FOR TEGRETOL | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | epilepsy | No side effects and very good control. Had only 7 seizures during this period and 4 were on the same day. | Was taken off Tegretol because of the damage it does to the bones. | F | 70 | 16 years 2X day | 3/26/2010 | 1 | Epilepsy | I took this drug when I was 8-10 years old. I took 750 mg./day spread out in five dosages. I struggled with learning, was always drowsy, moody, suffered severe double vision, and vomited frequently. I have absolutely no memories from ages 8-10 years old. I realize most people don't have detailed memories from such a young age, but I didn't remember anything at all, even a couple of years later. For example, my parents took me to Disney World when I was 9 and then again when I was 12. When I was 12 y.o. I was so excited to "go to Disney for the first time". I believe that this led to some developmental problems, especially when it came to my overall learning process and held me back in school. | I wouldn't recommend this medication for small children or infants. I do hold a certain sense of fear and resentment still over taking this medication at such a young age. Looking back on what I can recall, I felt that I was a sense of loss and control over expressing myself. I still feel like I was helpless. I don't know how else to describe it. | F | 26 | 3 years 750 1X day | 2/15/2010 | 4 | Bipolar I & Migraine | Nausea, headaches. | After playing with my meds for 13 years, I finally found an awesome combo. Tegretol had minimal side effects in comparison with the many other mood stabilizers I've been on. I haven't had an episode in over year :) I take 800mg daily and combined with seroquel & one week of prozac a month (plus a xanax here and there to "tone myself down" a bit) - I'm good to go. | F | 27 | 18 months | 2/3/2010 | 5 | bipolar 2 | i have peace now, i take 600mg per day. only thing is it is hard for me to wake up and i don't know always what is going on if you wake me in the middle of the night. i gained weight, but i cant say for sure it is the drug, also take effexor. but without the tegretol i would not have a stable life! | TEGRETOL IS THE BEST THING. i used to be troubled with very bad dreams, now i still have the dreams but it is like the stuff in them is happening to someone in another room down the hall!!!!HOORAY FOR TEGRETOL plus i would get so angry my head would buzz, or so depressed i wanted to die, or so happy i would be overexhilirated. now i get normal mad, normal sad, and normal happy. not at all like i don't feel anything. | M | 34 | 2 years | 2/2/2010 | 3 | Seizures due to haemingioma | Drowsiness (extreme at the moment as have increased dose), constipation but better diet has helped, bloating, loss of sex drive, like being in a fog sometimes, short and long term memory loss, difficulty with words (use thingamigig/whatsit a lot !) | I think tegretol has helped my condition except recently had a big increase in seizures and have had to increase dosage to 500 from 400 in mornings and this has zonked me out. Think i will risk seizures rather than feel like this and go bk to previous dose when i only had small tonic/clonic seizures lasting a few seconds every few weeks. Following lamictal and epilim trials not being that good have taken the night dose of 500mg for the past few years with 30mg Clobazam (Frisium) at nighttime which has worked well. | F | 47 | 18 years | 1/28/2010 | 4 | Bipolar depression | constipation | My cholesterol level has gradually risen ove 3 years to 6.6 | F | 53 | 8 years | 1/24/2010 | 4 | epilepsy | Fatigue! Weight gain of 10-20 pds. Occasional dizzy spells. Intestinal issues. On the positive side, it reduced my depression/panic attacks and it did stop the seizures. I take generic and the coating can be very thin! I have had some scary moments swollowing and the pill sticking in my throat. | I've had epilspsy for 21 yrs and on 200mg 2txs. I have a terrible memory and relate to seniors. We talk about all the stupid things we do because of poor memory. Its due to epilepsy not the drug, since have dealt with this since my early 20's. I only started treating the seizures with the med 5 yrs ago. | 33 | 5 years | 1/6/2010 | 4 | epilepsy | Drowziness periodically | I used to suffer from dizziness. Eventually I realised the dosage was too high. Without the consent of the neurologist I reduced the dosage by 400mg/day. The dizziness stopped without having additional seizures. Obviously the dosage was too high. | M | 47 | 30 years | 12/31/2009 | 4 | Sub-clinical seizures | Headache, sometimes very bad, on most days. Difficulty with short term memory. Difficulty recalling names and terms. Have to consciously word search. | Seems to have decreased the seizure activity but the price has been bad headaches and memory problems. | M | 53 | 6 weeks | 12/26/2009 | 4 | Grand Mal seizures while sleeping | Weight gain of 30+ pounds and I can't get rid of it, suspected loss of muscle control, loss of motivation, slight depression | I have gained weight of 30+ pounds and can't get rid of it. It is very frustrating. I am on a controlled diet(less than 2000 calories a day for a man who is 6"2" and weighs 230 pounds). I also work out 5 times a week. I do 30 minutes of cardio on a elliptical and lift weights for about 40 minutes. I have been doing this for a while now and have had no loss of weight. I also have lost my motivation to do anything. I am an artist and I have no creative drive. I want to switch drugs to Keppra as I have heard that it does not make the user gain weight like Tegretol does. The good thing is I have had no sleeping Grand Mal seizures since I have been on the drug. That is why I gave it a 4. | M | 33 | 9 years | 12/4/2009 | 4 | Grand mal seizures | Memory not nearly as good, vision blurred if taken dosages too closely together. Lowered salt in the body. | Have to change medication because I'm told by my doctor that my low-salt problem will not get better. | F | 35 | 2 years | 11/8/2009 | 1 | Bipolar | ? Don't know? | I don't know why I'm taking this drug. I've never had a seizure. My psychiatrist says its for my bipolar disorder. Now, I'm taking so many drugs, I don't know what this one does. (Lithium, risperdal, advair, etc....) | F | 33 | 14 years | 11/4/2009 | 4 | Cavernous Hemangioma-removed | lethargic, vertigo, memory loss | still have very small seizures | F | 48 | 8 years | 10/29/2009 | 4 | Left Temporal Lobe Epilepsy | 60lb weight gain in one year. Tiredness, no short term memory, mild dilopia when tired, occaisional shaking on right hand. Major depression. | Have been on Tegretol since 1997. I did not have good luck with the generic form. Am at 1200 mg with LCR pills and seizures are controlled. Had to add antidepressant to control depression swings. Both together have allowed me to work uninterrupted in a very technical field, do travel and high tension training. Supplement short term memory issue with good PDA. Even with weight gain cholesterol remaining normal, heart, lung, liver function good. I walk five miles a day and have not been able to drop weight more than ten pounds. | F | 50 | 12 years | 10/29/2009 | 4 | Bipolar | Itchy skin....extremely itchy skin | After taking it for the first couple of weeks I experienced sleepiness and that was all but now after a month of taking it I am experiencing itchy skin towards the end of the theraputic range. Once I take my next dose in the evening the itchiness goes away some. I am taking 200mg twice a day. | F | 39 | 30 days | 9/16/2009 | 3 | Temporal Lobe Epilepsu | weight gain (15 lbs so far), short-term and long-term memory loss , terrible mood swings (losing my cool at the drop of a hat!), hair loss, weakened teeth, loss of concentration, no energy, muscle twitching, loss of words, migraines, acne, insatiable hunger for carbohydrates, there are more side effects - these are just what I can pull out of my head at the moment. | I was 29 when I had my first seizure. I had another seizure later that night, but no grand mals other than that. I was diagnosed with epilepsy, even though all of my MRI's, EEG's and CT Scans came back normal. I had auras frequently (mostly around the time of my monthly cycle / estrogen fluctuation), which for years before the grand mals I mistook as panic attacks, which started after me being in my early 20's and took drugs (ecstacy mostly). When I take this drug I don't have auras, but the side effects far out weigh the benefits for me. I had taken it for a few months and then stopped. I don't like taking man made drugs. I don't like the idea of synthetic things being put into my body to make my brain function "properly". After a week long bout with auras and sleeping most of the time I went back on Tegretol recently. I've completely forgotten what happened in the week while I had the constant auras, and also the week after that. I'm weaning myself off of the Tegretol now, as I can't handle the side effects any longer. (total time on the drug - 2 months a year and a half ago, and 2 months now) | F | 30 | 4 months | 8/24/2009 | 5 | EPILEPSY | Gum swelling (mild), sleepier than normal, intolorence to alcohol, mild sun sensitivity | Have been using this pregnancy-safe dosage for 28 years now- eventhough I'm past the pregnancy years- no seizures. Just need more than average dental cleanings, sunscreen, more sleep (like 2 hours). Enables me to drive. Need regular liver panels to check for drug metabolism/toxicity. Want to see if 400 mg daily is still appropriate as I'm aging- drugs are more toxic generally as one gets older. | F | 53 | 28 years | 8/3/2009 | 2 | Severe Mood Swings | very tired, weight gain, sluggish, bloating, and i have CRS now, can't remember &^%$! | I am in the process of weening myself until I see my Dr. I refuse to be walking stupid and tired all of the time! Some people this may work for, but not me. | F | 39 | 2 months | 7/20/2009 | 5 | Trigeminal Neuralgia | I take it with food, if not a meal time it goes down well with half a banana and causes no nausea. When I have to increase the dose, to 200mg three times a day, I get some vision effect, so cannot drive; I sleep longer of a night and achieve less thru the day... | I have learnt to 'go with the flow' when medicated; its better than the awful pain. It comes back every year about April so I go on 100mg a day, then it gets worse as the weather gets colder for winter. Its at its worse now July. and when Spring/Summer comes it disappears again, so I can reduce the Tegretol until I am taking none Sep/Oct. I was in NZ July 2008 and suffered badly in Christchurch where it was snowing, even 1200mg a day did not help much and I got Lupus on such a high dose... so slowly went back to 200mg when I came home, where it settled down as we had a mild winter... I hope it just goes away one day like it came... wish I knew what causes it though.. | F | 62 | 7 years | 7/4/2009 | 4 | Seizures | memory loss, cant remember names of people that i know and see everyday, short term memory problems, also sleepiness, headaches, tired all the time, no libido, no appetite, stomach aches. | even tho this med has given me issues it has saved me from having sz | F | 30 | 3 years | 6/30/2009 |