MESTINON Reviews (PYRIDOSTIGMINE BROMIDE)Average Rating: 4.0 (82 Ratings)Filter ResultsCompare MESTINON with similar:
Type: Rx Drug
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Results are sorted by Gender males first. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on MESTINON: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR MESTINON | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | Myasthenia Gravis | Only at night - face gets warm and flushed and breathing somewhat laboured | I am taking the SR with 15mg of Prednisone and it has definitely helped the muscular mobility. I can shower as soon as I get up in the morning now without tiring completely. I just had a thymectomy 4 wks ago by breaking the breastbone as there was a tumor on the gland. | F | 47 | 4 months | 10/20/2007 | 4 | Myasthenia Gravis | Loose bowels and stomache cramps which last only minutes when taken without food.This medicine has allowed me to live a full life, since I have 2 teenagers and I work and go to school full time.If I over do it, I will experience weakness but usually I know my limits. | F | 38 | 4 years | 1/28/2008 | 4 | Orthostatic Intolerance/Hypotension | Gut pain, nausea, muscle cramps all occurred first few weeks then became manageable. Major weight gain and fluid retention. Slowed urination and caused constipation. Headaches and tiredness. | Mestinon helps my symptoms but I gained weight very fast over my whole body but very heavily in legs. I'm eating well and exercising everyday but still can't lose weight. Very depressed. Mestinon works for my symptoms but it is destroying my body and self esteem. It changed my toileting. I'm very bloated and just want my body back. Doctor has suggested midodrine not sure if it will be any better. Caught between a rock and a hard place. The drug works but the dude effects are causing me major depression and I'm very unhappy. Dr says Mestinon doesn't cause weight gain but I absolutely disagree with him. Not sure what to do. Feeling very down and lost. | F | 60 | 3 months 30 2X day | 3/17/2021 | 3 | MG | Existing uninary incontence much worse, no longer able to hold any amount of urine. Otherwise no other side effects. Blut the increased incontinence is so severe I am no sure it is worth contining using mestinon. Will check with neurologist about reducing dosage. | Notice a definite increase in strength. Able to do water aerobics for 30 minutes without undue exhaustion, which is a definite improvement. Seems to give mild relief to blurred vision when I am tired and facilitates reading for longer time period. | F | 70 | 6 weeks 60mg 3X day | 6/15/2014 | 3 | occular mysenith gravis 2 | Breathing problems and since halfing it tonge problems | F | 4 years 150 | 7/29/2015 | 3 | myasthenia | I was diagnosed with mg 6 years ago. My eyes where almost to the point of always being closed. My muscles all weak and would give out. Started on mestinon, ivig and later immuran. I felt better but the side effects where horrible. Stomach cramps so bad I can’t even walk. Diarrhea so bad that I don’t dare get more than ten feet from a bathroom and vomiting at the same time. This lasts all day. I have tried everything including eating when I take it. Doesn’t help infact makes it far worse, doesn’t matter what I eat. Went off both immuran and mestinon. Just continued with the ivig, which helps immensely but not as much as mestinon. With mestinon my eyes where starting to become normal and muscle weakness and fatigue where also better. However with the side effects I am between a rock and a hard place. With mestinon I feel better and symptoms are better but the side effects make my life awful. Not able to go anywhere or do anything as well as cold and hot sweats. Without my eyes are far worse double vision all the time. Muscle weakness, losing use of legs and so on and fatigue. Eyelids almost closed making seeing hard. I don’t quite know what to do as neither is an option. Both make life unbearable | F | 52 | 10 days 60 mg-360 | 12/14/2018 | 3 | Myasthenia Gravis | Chest palpitations, loose bowels. | Mestinon works best for me when my symptoms are not that severe (ie blurry not full-blown double vision). Otherwise side-effects are very mangeable. | F | 21 | 3 years | 1/31/2005 | 3 | myasthenia gravis | when taken without food or when im hungry i experience severe twitching in arms, legs and stomach, eye lid. because ive taken it for such a long time, it's starting to lose its effects, so i take extra (take it as i need it) and if taken before the shower it does affect the heart beat. | F | 20 | 14 years 60MG 6X day | 8/16/2010 | 3 | Myasthenia Gravis | Sweating like crazy, stomach cramps,diarrhea (every day) and nausea(sometimes) feeling more hungry!!! Salivation and sometimes difficulty swallowing. | I am on a 3 x 60 per day for ony a month. It doesnt help me completely, far from that, but it is deffinately better since Im taking it. There are days when I feel really good and it reminds me of those lovely days without MG. But the feeling of my own body as it was before- is never the same. First I experience pain , weird pain, then weakness and then I just cant do what I was doning anymore. exmpl. Things fall out of my arms or I suddenly just lose balance in my legs. And I cannot sing like before (used to study singing) Double vision and eye muscles- they react the best to mestinon, legs worse. | F | 25 | 3 months 60mg 3X day | 2/12/2012 | 3 | MG | frequent urination, occassional incontinence, upset stomach | I had a sudden onset of symptoms about six weeks ago - drooping eyelids and shortness of breath - although looking back there were some symptoms that I wrote off to other things. The drooping eyelids was what finally sent me to the doctor/ The Mestinon has pretty much taken care of the droopy eyes, but my other symptoms (neck hurts when holding my head at an angle - get very short of breath - have to head to the bathroom A LOT) seem to be getting a little worse. Have only been to see the neurologist once. I do not have insurance, so this is going to be a hard thing to manage and I know some treatment options will not be available to me. | F | 56 | 3 weeks 60 MG 3X day | 12/26/2011 | 3 | Ocular Myasthenia Gravis | Nausea and Diarrhea. | F | 57 | 3 months 60 3X day | 2/15/2011 | 3 | Myasthenia Gravis | I came out of remission after 25 years just before christmas,i have been placed on mestinon since then i have had severe cramps, twitches in muscels,nausea ,loose loose bowels, fatigue | F | 41 | 10 weeks 60mg 3X day | 4/3/2011 | 2 | Neurologist guessing I have MG.. | Urinary incontinence.. a complete emptying of the bladder unexpectedly. Increased sweating of armpits, watery left eye. Has anyone else experienced incontinence? | I really can't take it long enough to figure out if it works or not due to the urinary incontinence. I am a medical mystery to many Neurologists, no sure thing to diagnose MG. I am sero neg, but the EMG was indicative of MG (not 100%). | F | 44 | 7 days 60 2X day | 1/20/2011 | 2 | Myasthenia Gravis | Diarrhea | I don't know what has happened. The first month I was taking it things got better. The muscle fatigue was so much better. Then I got sick a month ago and it's like the Mestinon isn't doing anything to help with the fatigue. I am worse now than I was before taking the Mestinon. | F | 37 | 2 months 120mg 3X day | 10/18/2010 | 2 | for mg | I have been taken mestion for 3 years along with azathioprine my left just closing I have no reason why the dotors don't know why so I am trying figure out do I really have mg or what. Know my back is getting weaker by the day I cannot drive or nothing almost fell again in the bedroom. Any sugguest just tried of this. | F | 58 | 3 years 60 twice | 5/14/2012 | 2 | Ms | I'm on so many meds I could not tell which is creating side effects | I am currently working on weaning off this medication, and finding that I am getting headaches everyday and can't seem to find out if that is normal? | F | 52 | 2 years 60mg | 8/25/2016 | 2 | Neurologist suspects MG | stomach ache and heavy breathing, face flushes at first (60MG) Then now reduced to half a tablet, not many side effects just still a tiny bit of heavy breathing at times. | Not sure if it is working as I still have muscle weakness and wasting, arms and legs are weaker but I don't know if that's the medication or just my symptoms. Neurologist suspects MG but test have all come back negative so far. Has anyone else experienced anything like this? I have symptoms for the disease but tests are not showing anything so it's very strange | F | 32 | 7 days 1X day | 7/17/2020 | 2 | OMG | Absolutely hate this medication. I am begging my neurologist to take me off and put me on prednisone! Horrible muscle twitches that cause cramps in my feet and calf muscles especially. Constant eye twitching and tearing that just drives me crazy. Sometimes get stomach cramps or nausea that I relieved when I eat enough prior to taking, but that has resulted in weight gain. And, the gas is | This is the second time I have gone back to this medication. When I was initially dx 9 yrs ago, I tried it, and I had very few side effects, but I also had no symptom relief. I switched to prednisone and cell cept, and I had amazing symptom relief. After 4 yrs, I was able to go off all medications, and I was medication free until 7 mo ago. Now, I am at 60mg, 4x per day, plus 180mg time release at bed. No more OMG symptoms, but the side effects are almost worse. | F | 32 | 7 months 60 4X day | 8/5/2014 | 2 | To Test OMG | I have yet to experience any side effects | I am seeing double vision for at lest 6 mon with no other side effects other than the headaches caused by double vision and being tired all the time which I think is caused by the headaches. I have seen Dr. after Dr. and the last Dr. (a neurologist) wants to test me for OMG so he prescribes mestinon... It has only been 3 days taking 1/2 a 60mg pill three times a day and I have seen no improvement what so ever...from your experience does anyone think it would have worked by now if I really had OMG? ..do I need a higher dosage? Is is at all possible to have OMG and not respond to mestinon?? | F | 22 | 3 days | 3/14/2009 | 1 | For low blood pressure | Charley horses in thigh and calves 3 days then severe pain legs arms for over a year and still have | It ruined our lives | F | 72 | 11 days 60mg 3x da | 7/23/2019 |