COUMADIN Reviews (WARFARIN SODIUM)

Average Rating: 3.1 (876 Ratings)

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 ANTICOAGULANTS THROMBOLYTICS

 Type: Rx Drug

  

COUMADIN  (WARFARIN SODIUM):  This medication is used to treat blood clots (such as in deep vein thrombosis-DVT or pulmonary embolus-PE) and/or to prevent new clots from forming in your body. Preventing harmful blood clots helps to reduce the risk of a stroke or heart attack. Conditions that increase your risk of developing blood clots include a certain type of irregular heart rhythm (atrial fibrillation), heart valve replacement, recent heart attack, and certain surgeries (such as hip/knee replacement). Warfarin is commonly called a "blood thinner," but the more correct term is "anticoagulant." It helps to keep blood flowing smoothly in your body by decreasing the amount of certain substances (clotting proteins) in your blood.    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken from shortest to longest duration (reviews with no time reported listed first).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COUMADIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COUMADINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  DVT- Right leg I feel itchings all over the body and I have sore spots on my body from the scratch. When I scratch my body then blood comes out and this is not good. I feel headaches most afternoons which I attribute this to the drug. My worry is that being young, will I be taking this drug for life or what? I take 7.5mg one day and 10mg the next day. My INR is supposed to be 2-3, but still fluctuates below 1 and somedays above 3. Someone tell me on what to expect from this drug. I feel its the right drug for the moment, any other solutions for DVT? M 36 7 months
2/26/2007
Email
 4  DVT, PE, anticardiolipin, AFib I seem to be very cold, no weight gain or hair loss, but my periods are very long, and I sort of feel depressed/anxiety all the time, sort of like impending doom. I know that sounds dramatic, but I guess I am just depressed and worried from everything that's happened. I am just lucky to be alive! I am very tired all the time, and it seems my skin is very dry, itchy and pale. I don't know if this has anything to do with the Coumadin, but I seem to be developing a lot of bad acne. I am also very worried about having children since being diagnosed with having anticardiolipin and atrial fibrillation. I am worried that I may have a heart attack or something!! Does anyone else experience these things? Or the skin changes on this drug? I don't mean to sound vain, but the acne really upsets me b/c my skin has alwys been clear. F 30 7 months
9/27/2006
 4  DVT-Factor 5 leiden Fatigue, weight gain (20lbs in 6 months), forgetfulness, un-balanced... was admitted to hospital with swollen leg, diagnosed as DVT, found bi-lateral PE/s .... remained in hospital for 6 days until Coumadin was level and filter was in place. Also diagnosed with Factor 5 leiden, now off Coumadin with injectable in case of emergency and/or travel in confined space. M 56 7 months
4.5 1X day
1/29/2011
Email
 3  DVT April 2010 and again Nov 2011 fatigue and breathlessness; loss of energy and stamina; light-headed and dizzy even for light exercise; symptoms in feet and legs but not sure if these are side effects of warfarin On warfarin for 6 months (May - early Nov 2010) and had severe fatigue and breathlessness. Still had some problems Jan 2011 so went back to doc, who arranged blood tests, and in the end was diagnosed with CLL (Chronic Lymphocytic Leukaemia), Symptoms slowly faded away and felt I was getting back to normal, until Nov 2011 had another DVT, in the other leg. Had daily heparin injections for some weeks until Jan 2012 when started back on warfarin. Within a week or two, noticed breathlessness and fatigue started again. Doc has said I shouldexpect to stay on warfarin permanently now. M 59 7 months
12 mg 1X day
8/4/2012
 3  Stroke Severe headaches, trouble with cold feeling in hands and feet, some weight gain and fatigue but that can be residuals from the stroke. My major concern is the headaches. Their severity leaves me exhausted for at least 24 hours after. Does anyone know of ANY pain reliever (besides Tylenol which does nothing) that can be safely taken? If so feel free to e-mail. M 37 7 months
9/5/2005
Email
 3  Factor V Leiden, DVT Left Leg Didn't notice at first, but was hemoraging internally on left leg. Definitely depressed, but could be because I was used to never getting sick and then WAM! life long blood disorder. While taking this drug or it's generic counter part 'Warfarin' I've noticed no side effects aside of being hot/cold very easily. When stopping the drug is when the side-effects occured. Major irratibility, total loss of sex drive (have only been married 2.5 yrs and have always been heavily active), Major headaches to the point of hardly being able to stand, think or talk. I have 3 kids, not a good thing to have around them. I started taking Coumadin again 3 days ago, headaches already gone, sinuses gone down, a little less irritable, slight sex drive but irritability dragging it back down, still depressed, going to counseling to hopefully remedy that. Done all my homework, I'm just glad I found this site. M 27 7 months
7/22/2007
 3  Portal Vein Thrombois / Factor V L Headache, fatigue, forgetfulness, depression, abdominal pain, I bruise easily, painful menstrual cycles, hair loss, always extremely cold or hot I'd gallbladder surgery in Jan. and 7 days after went back for an emergency (blood clot formed in my pv) doctors said that PVT is a rare case, I stayed in the hospital for 7 days. where I had Heparin iv, lovenex shots and went home taking cumiden (rat's poison). My Hematologist said I've Factor V and will have to take it for the rest of my life but I'm trusting in God that this will not happen. A blood test every 2wks. My life style has changed completely is hard not being able to eat my salads. I really don't want to continue with this but at the same time I thanks Jesus Christ my Lord and Savior and my doctors that they gave me a second chance. If my alarm doesn't sound I'll forget that I need to take my medicine. Pray and trust in God. F 49 7 months
8/9/2009
 3  blood clot discovered near kidney itching in lower legs that drives me crazy, inability to sleep, deep, depression, anxiety, sensitivity to cold, weight loss, appetite depression, crying over everything, bruising. Sleep is brief and not deep. Heparin shots for 5 days 2x a day, and then coumadin since. The blood clot was discovered in Feb, and now it's Aug. There is no retesting to see if the blood clot is gone (there weren't any others). Initially they said a few months-but it's been 7 and there's no discussion about getting off it. I don't usually take any medications so I'm frustrated that there seems to be no end. M 59 7 months
8/30/2008
 3  DVT/PE. FVL & Lupus Anticoagulant Fatigue, joint pain in hands, heel pain, lack of concentration, leg still partially swollen, increased belly fat. Initially I was very fatigued, just walking from my front door to my car was exhausting but my dr put it down to my 5 days of bed rest. Some days I have great energy, other days I go walking and have stop to sit down. Joint pain led to further blood tests resulting in a new diagnosis of Factor V Leiden and Lupus Anticoagulant Syndrome so now Warfarin may be a lifetime companion. Would love to hear of any alternative therapy and if anyone else still has swelling. Warfarin did the job of dispursing the clots but I'm wondering if my leg is damaged and what the long term effects might be. F 49 7 months
3/29/2009
Email
 2  atrial fibrillation I have posted before, but now 7 months into 5mg of Coumadin, nothing has improved. Lethargic, tired much of the time, hard to get motivated, foggy brain. Aches and pains in joints and neck seem to have increased, and leg cramps have also kicked in. Some sleeping difficulty. Summer now, but the freezing cold hands and body is probably the worst side effect. Almost impossible to get warm in winter. When I first took Coumadin (Warfarin) the pharmacist handed me four A4 pages about the medication. It lists 19 major serious side effects, but hair loss, feeling the cold, and others mentioned repeatedly on this site, do not get a look in. Why? I read one paragraph with interest: "This is not a complete list of all possible side effects. Others may occur in some people and there may be some side effects not yet known." A medication/poison which has been around for so many years, this is a disgraceful admission. If anyone has an alternative to taking this drug, please email me: [email protected] M 65 7 months
1/31/2009
Email
 2  Bilateral PE Major weight gain, extreme fatigue, hair loss, numbness, memory loss, severe headaches daily Although I am happy to still be alive, I'm getting very frustrated with not only the side effects but with my doctor telling me they aren't side effects. Look at this site alone and tell me that we are all just crazy?? I've also been on Cipralex for depression/anxiety and I'm stepping down from that med now to see if it's causing any of the symptoms. I'll let you know in a few weeks. F 43 7 months
4/3/2009
 2  PE DVT SUBCLAVIAN THORACIC OUTLET Always cold, heart pounding, weigh gain, lethary, prolonged(2 week very heavy period) overall sick flu-like feeling. Difficulty maintaing adequate INR levels even after precisely taking at same time every day. 40 7 months
9/30/2005
 2  a-fib I have hair falling out and my tounge feels like it is burned at the tip. Like I stuck it in a cup of very hot coffee. My throat has also been sore. I would get off if I could F 58 7 months
5mg 1X day
1/8/2011
 1  doctor's recommendation weight gain, muscle weakness, leg and foot pain, shortness of breath, loss of bowel control, upset stomach. M 80 7 months
6/5/2007
 5  Factor V Leiden; DVT x2 Definitely cold hands and feet; mild hair loss and thinning nails; a little lethargic, but can get my energy going with good sleep and regular exercise. It has definitely saved me and I will probably be a "lifer". Mild side-effects better than risk of PE, leg ulcers, losing limb, permanent circulation problems. 1st DVT age 31, caused by FVL + OC use (all my obgyns said OCs were "safe" to take over a decade - ha! all women should be tested for FVL prior to OC use). 2nd DVT age 38, just like stats say higher risk within 8 years of first occurence. I would like info on alternative/natural remedies (TCM, chinese herbs, etc) which help whole body rather than just interfering with vit K. Healthy oils, ginger, garlic, grape juice, dan shen, dong quai, ginseng... I want to know more about their actions on blood proteins that can work together in preventing clots. F 38 8 months
1/26/2010
Email
 5  PE during pregnancy MAJOR hair loss, weight gain My confidence/self image took a major hit from the loss of my hair and the weight gain (after already gaining 25 lbs during pregnancy) but I've learned to live with it. I throw on a wig, get a weave, whatever...at least I'm alive. I know so many people who have been killed by clots - I'm not about to complain about the medication that is keeping me healthy. I'm open to emails from ppl with similar experiences... F 26 8 months
1/2/2008
Email
 4  dvt right thigh with factor V Really heavy periods, bruising Went through all the blood tests every 3 mnths to check if I had anything else in my blood stream. As of now I only have the Factor V Leiden everything else disappereared, and the doctors told me I could go off coumadin and take a daily dose of aspirin 81mg. I didn't have any big problems with coumadin, just it was a hassle because I had to get my blood tested weekly because my inr wouldnt stabilize even after the 8mnths I was going up and down. I was on 10mg 5 times week and 7.5 the other 2 days. F 26 8 months
12/30/2008
 4  PE - now LA cold all the time. Hair loss. Somewhat blurred vision. Weight gain. Always look bloated and puffy. Awful menstrual cycles. I dont feel normal! I know this medicine is supposed to keep me alive but sometimes I wonder if all this is worth it. I have to take 13mg daily due to the LA. My doctor and hematologist say that all these things I complain about are not related to the coumadin but come on do they not listen to what people taking this medicine are saying? We can not all be making this up. I was told by my hematologist that there is a now a drug being tested on hip replacement patients that if all goes well with it it will be out within a year.... For those of us that have to be on it forever there may be hope! F 41 8 months
10/17/2009
Email
 4  pe Super heavy periods, 0 appetite, can't sleep without sleeping pills, arm numbness, hair loss, anxiety, depression. Can't keep my inr where it is suppose to be. I get bad headaches and I bruise super easy. Without this I know I would be dead. But I'm so ready to be back to my normal self again. I'm always tired and I have 4 kids that doesn't work for me. F 29 8 months
5 mg
1/26/2015
 4  Factor V Leiden - excessive clots has made my teeth extremely sensitive, almost painful at times F 48 8 months
1/25/2010

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