COUMADIN Reviews (WARFARIN SODIUM)

Average Rating: 3.1 (876 Ratings)

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 ANTICOAGULANTS THROMBOLYTICS

 Type: Rx Drug

  

COUMADIN  (WARFARIN SODIUM):  This medication is used to treat blood clots (such as in deep vein thrombosis-DVT or pulmonary embolus-PE) and/or to prevent new clots from forming in your body. Preventing harmful blood clots helps to reduce the risk of a stroke or heart attack. Conditions that increase your risk of developing blood clots include a certain type of irregular heart rhythm (atrial fibrillation), heart valve replacement, recent heart attack, and certain surgeries (such as hip/knee replacement). Warfarin is commonly called a "blood thinner," but the more correct term is "anticoagulant." It helps to keep blood flowing smoothly in your body by decreasing the amount of certain substances (clotting proteins) in your blood.    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken from shortest to longest duration (reviews with no time reported listed first).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COUMADIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COUMADINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  Bi Lateral PE Tiredness, lethargy, loss of appetite in AM, loss of interest in intimacy i.e. sex drive, mood swings, irritable, can become exhausted with out warning in the middle of the day, depression. Will probably be on it for at least a year. M 43 4.5 months
1/12/2008
 1  DVT; heterozygous Factor V Leiden Fatigue, headaches, lethargy, depression, irritability. I seem to have headaches constantly. This is frustrating, because any medication you take (NSAID's or Tylenol) impact the PT and INR, and can skew your level. I love to eat salads and vegetables, and now these are taboo. My hematologist states that I have to take this medicine for life. I am giving it 12 months. By then the clot will be gone, and I will go back to being myself. I truly dislike the person that I have become with this blood clot and coumadin therapy. For 53 years I never had any problems, although I am heterozygous for Factor V Leiden. Now, taking HRT post-menopausally, I developed this clot in less than 8 months. What I plan to do is never do HRT again, get off of the coumadin, be myself again, and wish for another 53 years of clot-free life. Being heterozygous caused me to have my daughter testesd. She also is heterozygous. This is good information for her. She never should take an estrogen-based birth control pill. If you have Factor V Leiden, heterozygo F 53 4.5 months
1/4/2008
 5  bilateral PE Weight gain 23 pounds since I started and hair loss, swelling in my legs and belly. F 49 5 months
5mg/7.5mg 1X day
7/1/2011
Email
 5  23 inch DVT and multiple PE's Unsure of side effects, as I was very healthy before DVT and PE. I know that the coumandin has caused GI Issues. I take Nexium for the stomach pain. I was hospitalized for five days. Discharged on my 40th bday. I was diagnosised with a 23 inch DVT and multiple PE's. The hemologist believes that it was due to the birth control pill. Realized after blood work that I had a gene mutation of which I should have never been on. But, I was on it for over 15 years no problems. Just had ultrasound today, 5 months later. Clot free but value vein damaged in upper thigh. I have been wearing compression stockings throughout treatment. I will be off of Coumandin in Sept. Hooray!! I hope to never get a DVT again. I have to admit I am nervous to get off of drug. But, happy to be done. I want to be able to eat whatever and have some cocktails. Good luck everyone. Lastly, mental issues are mainly due to the severe diagnosis. Therapy was helpful. I recommend it. F 40 5 months
5 mg 1x 1X day
8/23/2010
 5  DVT left knee/massive bilateral PE Blood clots due to taking birth control pills. Taking 12.5mgs 6 days; 15mg 1 day. INR is between 2.5 and 3 (I go in every 3 weeks). When I first started the meds I would ache all over, all of my joints would throb and all I could do was lay on the couch. Now this isn't happening. HEAVY periods that last for at least 8 days. Very minimal bruising, no bleeding gums or nose bleeds. I have noticed that my hair is shedding a lot more. African-American Female. Started taking BCPs in preparation for IVF (In Vitro Fertilization) Also discovered that my Protein S level is a little on the low side. Will have it tested at the end of 6 months on Coumadin F 34 5 months
5/10/2007
Email
 5  Superior Messenteric Artery Dissect Rare tear in abdominal requires me to be on coumadin since June 07. What began as a full head of hair is now shedding big time and thinning out terribly. This forum has helped and am using alternative thinning supplements to wean off this dangerous drug asap. Will our hair return after being off the drug coumadin??? Thanks, Ron M 54 5 months
11/10/2007
 5  P.E. weight gain,trouble sleeping,bruising,swollen lymph nodes,nausea and im losing all of my hair. it is very stressful taking this medication,but when i am off of it i think i will be very paranoid about any little ache or pain.it did however save my life but everything interacts with it and everything makes the levels change.im frustrated. F 29 5 months
9/20/2006
 4  DVT Hair loss, major fatigue, hard time concentrating and remembering things, fainted/blacked out and fell, heaviness in chest. I am on 5mg 3x's a week and 7.5mg 4 x's per week. dosage was just increased due to continuing decrease in INR readings. Will only be on it a few more months (prayfully). F 42 5 months
3/30/2006
Email
 4  DVT from ankle fracture fatigue, some weight gain, some hair loss, mild mood swings, sweating, temperature sensitivity Currently on 5mg everyday. Possibly off after 6 mos, but probably 1 year. After I'm off I will need additional tests to determine if there is any underlying cause. Additional research on side effects is SERIOUSLY needed as the drs don't seem to believe that the drug is to blame. Biggest complaint is the fatigue. M 25 5 months
7/14/2006
 4  DVT left calf I am sometimes a bit dizzy, but mostly am experiencing joint pain which my doctor says is not caused by the drug. Severe elbow pain, like tennis elbow..but in both elbows, and now in both knees... F 45 5 months
4mg 1X day
2/27/2011
 4  DVT in Left calf WEIGHT GAIN and always feeling bloated is the most obvious for me and the most aggravating side effect. Fatigue, irritability and acne are the others I've noticed as well. The side effects come on slowly. I was noticing my clothes fitting tighter and more pimples on my forehead and then started asking myself what I've been doing differently and taking warafrin (coumadin) is the ONLY change I've made. I cannot wait until I'm off of this drug. It's helpful but at the same time it's effecting my daily life. F 32 5 months
5mg 1X day
12/7/2011
Email
 4  dvt, now protein c disorder weight gain, tired ALL the time, some mood swings - also problems w/managing coumadin and dilantin F 52 5 months
4/17/2008
 4  atrial fibrillation easier bruising, joint pain/bruising from sports impact. Possible effect on sex drive. Nothing too severe overall. was a challenge to get my INR stable. Seemed to not want to exceed 2.0. M 30 5 months
12/5/2008
 4  Extensive DVT + Vleiden Massive weight gain, rash, itchy scalp with sores, sensitive skin, cold intolerance, cranky gums and nose bleeds, fluttery feeling in chest and migraines, really heavy periods with really bad cramping. This medication gives me some peace of mind as far as preventing my clot from growing - but the side effects from it are horrible. I look forward to the day they have a cheap alternative for me. In the mean time I am on it for life. F 32 5 months
12/11/2008
 4  Clot in leg and small PE in lung. Mainly pain in and around the greater saphenous vein where the clot occurred. Some moderate to severe chest pains at times. I had mild symptoms at the time the clot and PE were diagnosed in late 12/08. Started on Clexane and then on Coumadin for 6 months. I got the clot after an international flight of 14 + hours crammed into a middle seat in economy. While on Coumadin I have had to make several overseas trips (Business class only now!) and spent weeks in Australia, Japan and the USA. As a result, probably due to the diet changes, my INR has never been steady at the 2.5 required and has ranged between 1.5 - 3.7. Reaching a steady INR of 2.5 has not been possible. Interestingly, I feel that most of my aches and pains have had a psychological basis. In March 08 I was experiencing leg and chest pains, most evident at night. My doctor ordered a leg ultrasound and lung CT scan. Both results showed no evidence of the clot or PE. My pains all but disappeared. Now, when I notice pain in the clot area I am usually in a stressful situation. For me it seems that the side effects of Coumadin arise from the stress of associated issues and lifestyle changes caused by obsessing somewhat on the obviously dangerous nature of this drug. Additionally I have noticed some weight gain however considering my diet is more bland and less healthy now, I am not sure I can blame the Coumadin directly. M 50 5 months
6/5/2008
 3  Pulmonary Embolism and Endocarditis 20 pound weight gain, change in hair texture and substantial hairloss, bloating, lower back pain, super tired all the time I suppose that this medicine is helping me to get rid of the blood clots due to the PE, but the side effects have become difficult to live with. Just so super tired all the time, bloated with lower back pain, and the hairloss is hard to live with. I can't wait to get off this medicine, even if it is helping me. M 57 5 months
11/8/2009
 3  DVT Tiredness most of the day.dizzyness ,rapidheart beat.slight chest pain. Slight Pressure in left side of head but no pain.... M 35 5 months
12mg
2/3/2014
 3  pe in both lungs/factor V-Leiden Weight gain of approx 15 lbs in 5 months. Very dry skin and scalp. Slight rash on face and forehead. Joint pain in shoulders and arms. After having kidney infections, found I had large stone that severly damaged kidney, with 2 stones remaining. At same time dr. noticed large cysts on both ovaries and removed them, (without asking if blood clotting ran in my family). 5 days after pelvic surgery, I went to emergency room with severe chest pain, and spent 10 days in hospital with multiple blood clots in both lungs. Now on coumadin, but want to get off asap, even due to finding out I have the Factor V-Leiden gene. My 70 year old dad (now 93) was put on coumadin & almost died at age 75 due to sub-dural hematoma in brain...So I am really scared to take it forever. Any help would be greatly appreciated. F 52 5 months
3/26/2008
Email
 3  Post-Op PE Hair loss, fatigue, horrific knee/hip pain, period lasting more than a month, heaviness in chest, insane bleeding from tiny shaving cuts. Doc had a such a tough time regulating my levels, I finally gave up all green veggies until I go off the Coumadin. Can't wait to get off this med and feel like myself again! My knee pain is getting worse by the day! F 42 5 months
7.5 1X day
1/5/2012
Email
 3  blood clot Losing hair in big clumps, always cold, tingling and achy muscles, extreme bruising, nosebleeds, earbleeds, lightheaded, fainting, weight gain of 15 lbs, pain in the lungs After the birth of my second child I had a rare complication of a blood clot near my ovary. Started taking coumadin and lovinox shots every day for three weeks. Then I got to stop the shots. The side effects of this drug are now almost worse then the blood clot. With a two year old and a 4 month old child it's hard not to be tired without the added fatigue of this medication. Also, every time I play with my two year old and I get bumped or banged with a toy I get bruises that look like I was in a car wreck. Doctors told me that losing hair wasn't a symptom or weight gain, but judging from the reading of other entries I now think differently. I don't know how long I'll have to be on this, but hopfully not much longer. Three months I'll get a catscan and find out how the clot is doing. Maybe then I can stop taking this drug and start to feel like a person again. F 25 5 months
6/6/2006

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