COUMADIN Reviews (WARFARIN SODIUM)Average Rating: 3.1 (876 Ratings)Filter ResultsCompare COUMADIN with similar:
Type: Rx Drug
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Results are sorted by Date from oldest to newest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 |
More on COUMADIN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR COUMADIN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | PE, DVT, Factor V, Prothrombin | Severe weight gain, fatigue, hair loss, heavy periods, more susceptible to cold, joint pain, memory loss, trouble focusing. | I initially started taking Coumadin when I was 24 after I had a PE and was diagnosed with Factor V, and Prothrombin abnormalities. After two years on the medication I was begging the doctor to take me off. I could not do anything except sleep. I had tremendous weight gain going from a size 8 to a size 14! I was switched to Lovenox shots when I began trying to have a family and there was an immediate difference. I began losing weight without even trying, even when I was pregnant and trying to put on more weight. Shortly after my children were weaned I was put back on Coumadin because of the side effects of Lovenox and all of the old symptoms came back, including the weight. The only difference is the fatigue either it is not as severe as before or having been sleep deprived with young children my body has adjusted. | F | 34 | 6 years | 6/7/2009 | 3 | DVT cluster in left leg & PE | extreme fatigue, aches in joints, numbness in arms, swelling in left leg, lots of dreaming, feel BLAH & unsociable most of the time, weight gain. | I have been diagnosed with Lupas Anticoagulant. They will retest me in about 2 months. I hope that I really dont have this crap! I hate taking this med. even though I havent slept this good in years. But I hate being so tired & worn out, cranky & unsociable. Paranoid about cutting or bruising myself-- I am a klutz so the worry is warranted. But still hate it. Do not want to take this forever. But so glad to have found this website. Cause my doctor also acted as if I was crazy & these side effects were all in my mind!!! And now I know, they are real. Thanks!!! | F | 41 | 3 months | 6/16/2009 | 4 | Aortic Valve Implant | Hair Loss, Weight Gain, Heavy Menstration | I had open heart surgery in December of 2006 (I was 33) as a result of a dissected aorta. Dr's decided to go with an Aortic Valve Implant which, in their opinion, will allow me to live a next-to-normal life without another surgery. Unfortunately, I will have to be on Coumadin for the rest of my life and I probably won't be able to have children because of the need for Coumadin. I've been working out (swimming 1 mile & Bike 4 miles five times weekly) for two months now and have been frustrated because, while I feel my body changing, I have not lost one pound. Now, I'm wondering if it's the Coumadin. If so, there is not much I can do about it other than keep working out. | F | 35 | 3 years | 6/21/2009 | 3 | Splenic infarct; multiple PE's | The biggest concern is hair loss. As a 68 year old woman, I am terrified that I will soon be bald. In the 3 years on coumadin, I have lost more than half of my hair. I am truly weighing life as a bald person or taking my chsnces w/o coumiden. | Does ANYONE have an alternate treatment that doesn't cause hair loss? Please help me. | F | 68 | 3 years | 6/21/2009 | 1 | confusion. joint pain dizzy frequently. When I told the doctor he said (via a call from his nurse)that it was not possible that coumadin could be causing this. Today, fathers day, I quit taking coumadin and changed my doctor. I know my body better than any doctor. Quality of life is very important to me; I don't need any doctor essentially telling me "its in your head." As far as I am concerned; he is the jerk, not me! | M | 78 | 4 months | 6/21/2009 | 2 | DVT/PE | Panic Attacks, Sweaty Feet and Hands, Confusion, Not able to Concentrate, Sunburn Feeling on the Skin, Shortness of Breath, Water retention and Feeling like passing out at times. | Nobody wants to listen. I broke my ankle had surgery and developed a clot three weeks later went to my lung. I was on Lovenox and then Warfarin since. At first I was resistant and after taking 15 MG it boosted the level and then I started feeling these systems. Nobody Listens when you tell them your having this problem because they said the drug doesn't cause these systems. I went to emergency room a few days ago because of this and they found nothing wrong with me. Blood was okay, Heart okay and the CT proved the blood clot in my lungs was gone. My doctor wants me on this for a year. I don't know if I can take it for that long. I thought maybe my body would get used to it. | F | 38 | 3 months | 6/24/2009 | 3 | venous thrombosis in brain | Constant weight gain. Inability to concentrate- foggy head at times. Joint Aches. Depression. FATIGUE! | My doctor is unwavering about 1 full year on Warfarin. I am barely going to make this. I don't have nausea, but some days feel dizzy and always, always, extremely tired on this crazy stuff. I was extremely concerned when I kept hearing that there are NO side-effects to this drug. ANY time you take a foreign substance into your body there IS a side-effect. The fact nobody in the medical world wants to admit this or research these common persistant symptoms further is odd and disconcerting. I have no hair loss but I've only been on Warfarin for three months and have gainded 15 pounds. Hard to lose when they want you to keep your diet the same so as not to effect your INR. | F | 47 | 3 months | 6/26/2009 | 4 | Massive PE 2001, PTE surgery 2002 | Clouded memory, word mixing, short term memory issues, extreme nervousness in stressful situations... As for my Weight gain I believe this to be due to too many cheeseburgers and not necessarily the warfarin. I have days where I feel like crap, but I put my mind towards getting off my behind and doing something constructive. Usually after I start doing something I feel better. | I am a lifer on this stuff. Have been taking it for 7 years now. I do find that I have trouble mixing words in stressful situations like giving presentations or talking to my boss...makes me feel like a retard sometimes...Oh well, I just get over it, life is way too short to stress especially over what other people think. I do not have any other issues really...I play bass in a rock band and do not have problems learning songs so doing what I love is not affected by this. Yes it is a poison, but so is breathing Los Angeles air. The choice is yours, and a positive attitude is 100% the solution. | M | 29 | 7 years | 7/2/2009 | 3 | DVT - double PE | Weight gain, lethargy, blurry vision in the morning | I had a venous thrombolysis to remove a 2 foot petrified blood clot. Was in the ICU for 5 days. Two weeks later I clotted again and they repeated the procedure and put in 18 inches of stents in the artery. I am on 12.5 mg but they have trouble keeping me theraputic. One week I am at 1.5 PT/INR and the next week in the ER getting a brain CT because the INR is so high. I put up with the drug because I kind of like living. I still fly and ride the harley and do other nonsensical stuff. | M | 55 | 2.5 years | 7/2/2009 | 5 | Just the usual bruising and a little additional bleeding when I cut myself. | I have a blood clotting disease, APS, Coumadin has saved my life. | M | 76 | 11 years | 7/5/2009 | 3 | DVT, PE, Lupus Anticoagulant | weight gain. feeling blah & tired. can't deal with stress or multi task. pretty forgetful, unorganized and just plain dingy.... | I am fighting the weight gain thing with Weight Watcher's. Starting to feel less tired, does help to get up off the couch & do something...ANYTHING! my attitude is better and I'm on the anti-depressents and THEY SOOOO HELP!! I'm hoping this keeps getting better since I too am a lifer. I guess I just wanted to update from my 6-16-09 comments. I agree ATTITUDE does help!! | F | 41 | 4 months | 7/8/2009 | 4 | Factor V Leiden | Hair thinning out, dizziness upon standing,chest pains at night,drying of facial skin,times of major anxiety and confusion. | I noticed one more strange side effect since I started taking Coumadin. I have random erections throughout the day and my size has increased. I'm not trying to go off topic here or sound perverted either. | M | 41 | 2 months | 7/10/2009 | 5 | stroke-APS | When my INR is too low I get brain fog, headaches, aches in joints, hands shake and fatigue. When my INR is closer to 3.0 or higher, these symptoms go away. I also have been dx with reynaud's syndrome, fibromyalgia, and lupus. I've been on this since my stroke in July 2001 at age 48. I was told I have anticardiolipids in my blood. | F | 56 | | 7/18/2009 | 5 | 1 DVT + 6 PE,Prothrombin Factor II | easy bruising, heavier and markedly more painful menstrual cycles, hair loss, always extremely cold, bleeding gums, extended bleeding episodes when I cut myself or have dental work | I started Coumadin in 12/2007 after suffering 7 clots post surgery. I was then diagnosed with genetic thrombophilia (Prothrombin Factor II). Coumadin saved my life. After my sister died from a single PE and the same blood disorder, I was put back on Coumadin for life. My doctor will NOT permit Warfarin (generic) because he states it is not as closely regulated for dosages in generic form. Name brand only for me. It saved my life -- and keeps me alive. http://stoptheclot.org | F | 39 | 2 years | 7/28/2009 | 5 | Anticardiolipin | Terrible heart burn, stomach aches, heavier blood flow | I had multiple blood clots scattered throughout the upper and lower parts of both lungs. I take 3 mg tablets on monday, and the rest of the week I take 4 mg. Although it's frustrating that I have to take this for the rest of my life, it has saved my life. | F | 22 | 1 years | 7/30/2009 | 4 | Mulitple Pulmonary Emoboli | hair loss, weird lumpy rash on back of shoulder and decolletage | considering it has saved my life the side effects are not bad. both are slightly upsetting from a vanity point of view, but I am hoping that when I finish (i get to finish..) my treatment in 2 months the hair and skin will resolve itself... | F | 31 | 4 months | 8/3/2009 | 1 | atrial fib | Tiredness, trips and cost to have Dr monitor, weight gain, no salads or grapefruit | Research needed to find a substitute. Everyone knows that it is rat poison in a reduced dose! | M | 73 | 3 years | 8/5/2009 | 3 | Portal Vein Thrombois / Factor V L | Headache, fatigue, forgetfulness, depression, abdominal pain, I bruise easily, painful menstrual cycles, hair loss, always extremely cold or hot | I'd gallbladder surgery in Jan. and 7 days after went back for an emergency (blood clot formed in my pv) doctors said that PVT is a rare case, I stayed in the hospital for 7 days. where I had Heparin iv, lovenex shots and went home taking cumiden (rat's poison). My Hematologist said I've Factor V and will have to take it for the rest of my life but I'm trusting in God that this will not happen. A blood test every 2wks. My life style has changed completely is hard not being able to eat my salads. I really don't want to continue with this but at the same time I thanks Jesus Christ my Lord and Savior and my doctors that they gave me a second chance. If my alarm doesn't sound I'll forget that I need to take my medicine. Pray and trust in God. | F | 49 | 7 months | 8/9/2009 | 3 | Bilateral Pulmonary Embolism | Headaches, Brain Fog, slurred words, fuzzy vision. Stomach upset, body aches, depression, cold intolerance, anxiety. | I know this drug has helped me from developing more clots, but dang. Feeling like crap for a year now, no energy, extreme anxiety, depression. Stomach troubles. I hope I can get off this poison soon. | M | 46 | 1 years | 8/13/2009 | 3 | Blood clots in legs & lungs | Feel tired all the time, stomach pain, troubel concentrating, feeling cold, food lost it's taste. | I wish there was a medication that would dislove blood clots without the severe side effects. I have to be on blood thiners the rest of my life and it is very upsetting to think every day for the rest of my life I have to feel this terrible. | M | 51 | | 8/14/2009 |