RESTASIS Reviews (CYCLOSPORINE)

Average Rating: 1.8 (298 Ratings)

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 OPHTHALMICS, MISCELLANEOUS IMMUNOMODULATORS

 Type: Rx Drug

  

RESTASIS  (CYCLOSPORINE):  Cyclosporine eye drops are used to treat a certain type of dry eyes. They work by increasing the amount of tears you make.   FDA Approval Date: 2016-10-27 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Gender with females listed first (reviews with no gender reported listed before females).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15


More on RESTASIS: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR RESTASISCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  Dry eyes swollen, itchy and red around upper eyelashes Was taking Restasis over a yr ago. I stopped taking it as I felt like it was doing anything, but then realized my eyes did get very dry again. Just started back up on it and my upper eyelash area is itchy, swollen and red mostly on left eye. Don't remember having these symptoms when I started on it before. F 45 5 days
2X day
11/16/2014
 2  Dry eyes Stiff neck , pain in left ear, horrible headaches, muscle fatigue and hard to swallow sometimes. After I told my eye doc about my symptoms , she told me , those are NOT side effects of Restasis. Really? I'm stopping this today. F 49 10 days
5/10/2017
 1   Lip problems causing dryness and three episodes of severe lip sweating, and swelling to the point of taking steroids to calm it down. Also severe neck pain. I'm going back to natural tears for dryness. I was on Restasis for a month and finally figured out that my problems were caused by the drug. F 66 30 days
2X day
11/21/2014
 1  dry eyes due to Sjogren's syndrome I experienced severe headaches, especially behind my eyes and in my ears, very puffy eyes, excessive mucous, difficulty breathing, an oral thrush that did not respond to multiple courses of medication. The side effects were gradual. Chest tightness and difficulty breathing was the clue that it was related to Restasis since I had the same symptoms from the oral tablet for dry mouth F 66 12 days
0.4 ml 2X day
11/26/2014
Email
 1  dry eye 2 mailignant melanomas and blood cancer I was very healthy until I went on restasis for dry eye. Cyclosporine is an immune suppressant and is documented to cause cancer. Outrageous that allergan corp. is allowed to get away with thisfor MONEY! F 60 2.5 years
.05 2X day
1/7/2015
Email
 1  Dry eye Slight stinging in eyes. 30 mins later it caused heart palpitations which turned into a panic attack (first I've ever experienced--had to Google the symptoms). Followed by confusion, dizziness, headache, sinus pressure, and neck/jaw pain. Could not focus the entire day. Had an upset stomach at 5-6 hours after the dosage. Second panic attack happened while I was sleeping 9 hours later--skipped my second dose because by that time I suspected the two were related. Not worth it to treat dry eyes. My opthalmologist assured me that the only side effect is stinging. I tend never to have side effects from medication. Also, FWIW, a doctor friend of mine wondered whether weight had anything to do with it. I am Asian, female, and 110 lbs. F 32 1 days
1 drop/eye 2X day
3/5/2015
Email
 1  Severe dry eyes Beet red eyes , headache started after day 3, swollen eye lids, painful burning eyes all day. Crust eyelids in am. F 65 6 days
7/25/2014
 1  Sjogren's Syndrome dry eyes I put one drop in one eye, only , because I am a professional artist, I need to see to work, and I feared the burning they warned me about. The initial burning was nothing. But, this is day three. I now have inflammation in that one eye, and all around it, a stiff neck, a fever, and a Headache. My visions is still blurry, and I can't work. All, from ONE drop. I wonder if doctors are being told to push this drug when they ignore the side effects. Let him try it!!! F 60 1 days
one vilae 2X day
7/17/2014
Email
 1  Dry eyes Worked well the first few months. I began taking this before my LASIK procedure. Now, all of a sudden, I am experiencing many side effects. I having itchy, burning eyes, blurred vision and rashes around my face. At first I thought maybe it was something else and that all of these symptoms were unrelated but it seems more apparent that it is from the restasis. I am going back to my OTC eye drops. These were expensive and should probably be removed from the market based on all the complaints. I am now concerned that this drug may have impacted my vision permanently. The FDA needs to investigate this drug further. F 29 6 months
30 MG
8/22/2014
Email
 1  Dry Eye Eye, head, gum and ear pressure pain on left side. Burning in eyes and redness of eyes. I have been using Restasis for over 8 years off and on. It worked miracles in the beginning. I stopped the medicine last summer, because I felt so great but my dry eye came on full force, worse than ever. Immediately I went back on the medicine, per doctor's order. He said my eyes were extremely dry and to not stop the restasis or I would have to get the plugs. So I started back up, but the pain got worse from that point on and never stopped. My left eye had blood in it, twice for an entire week. My eye doctor saw a little improvement but can't help with the pressure pain so he referred me out. I saw a million doctors and my dentist, they pass me around. I did CT Scans and MRI's, and nothing. Sinus and brain clear. No cavities. They think I am crazy. So now it's been over a year with this pain and my eyes feel dry as can be, I am confused and frustrated. Then, all of a sudden it hit me to google side effects, so I did but nothing appeared abnormal. I was looking on the restasis web site though. So tonight I googled restasis and headaches and boom, all these dissatisfied comments appeared with people having the same symptoms I have. I quit starting today. If I feel better in a month or two, I will know it's the restasis. I will keep everyone updated. F 8 years
2X day
9/2/2014
Email
 1  Dry eyes migraine headache, sinus pressure, stomach upset, nausea, but I didn't have the burning side effect when applying the drops. Not taking it anymore didn't even help with my dry eyes. My eye dr. seems to disagree that it's the eye drops but I don't like this feeling so I'm am stopping it simply from reading other peoples exact same complaints. F 38 2 weeks
6/24/2014
Email
 1  Dry eye burning, did not work Used this as prescribed BEFORE laser eye surgery. Had ZERO effect. My eyes were painfully dry after the surgery. Had tear duct plugs put in and haven't had problems since. The doctor that prescribed them is the same doctor that does the commercials. Seemed like a conflict of interest to me to start me on this regimen before hand. Wish I would have had the plugs instead. F 45 1 months
unsure 2X day
4/19/2014
 1  dry eye I used the eye drops for about a year and the dry eye was improved. However, I seemed to develop an intolerance and suffered rashes around the eyes, forehead and then legs. I think the side effects are not well publicized. No one mentioned the skin rashes around the eyes, eyelids, forehead, etc. The rashes spread to my legs and it took me a long time to connect this to the eye drops. I assumed it was a food allergy or environmental. But when I stopped Restasis and then started again it was clear that this drug was causing my problems. My eye doctor is not convinced, but I am. The drops appeared to help with my dry eye, but over time my body can't tolerate them. I take no other perscriptions. Consumer, beware! F 60 2 years
.05% 2X day
4/22/2014
 1  chronic dry eye Severe headaches at the base of my neck. I have gone on and off this medication and can't handle the headaches. F 43 10 months
2X day
4/23/2014
 1  Dry eyes My dry eyes did improve some but after 6 months I began to have skin problems but never related it to Restassis until now. Severe itching of lower legs, clusters of skin rashes that have small blisters that ooze and drain and itch severely, nasal drainage, severe episodes of sneezing, occasional eye pain, I checked with several professionals and they say the skin problems not related to Restassis but I think differently, & now after stopping the eye med I still battle the side effect although they have improved over time. Furthermore my vision changed considerably the point of needing prisms in my vision eye glass prescription. F 68 1 years
2 x a day
12/31/2013
 1  Dry eye Restasis briefly improved my dry eye symptoms so I could wear my contact lenses again. The results were short-lived, though, and when my opthamologist inserted plugs in my tear ducts in addition to continued usage of the Restasis drops, the results were disasterous. Not only did the plugs become infected, but my vision has been permanently damaged. I can no longer wear contacts and my vision is far worse than it ever was. I regret ever using Restasis. I completely agree with others' comments about Restatis being doled out like candy with little regard for possible permanent side-effects and damage. F 56 6 months
30 MG 2X day
1/9/2014
Email
 1  Dry eyes Eyes blood shot, watery eyes, burning for a few hours first 2 weeks, and by 3rd week, I could hardly see because of a runny nose, blood shot eyes, burning eyeballs and eye lids. One eye felt as though I had cut glass in it and thus continued for over 9 hours each day. Blurry vision prevented me from driving or reading. Torture this is and I quit taking this. It is not worth taking this medication. I was told by my doctors office that the symptoms would probably stop after about 3 months. I was told I would be using this for 6 months. I would be in the funny farm by then. I will attempt to find some other eye moisturizer, even if it means using it every day as long as it is not so violent. F 70 3 weeks
1/17/2010
 1  Dry eye syndrome Awful eye strain which prevented me from easily working at my job (which is 8-10 hours in front of a screen). Burning, watery eyes, discharge, but it did help with the dryness! F 21 21 days
11/1/2009
Email
 1  I'm not Just, problems with my eyes My eyes became blood red and I was unable to tolerte any light, as a matter of fact it was so bad that I could not even turn on the lamp in my bedroom. I had to wear sunglasses even when the sun was not out. And now after not using the drug for a few days, my eyes are not focusing clearly. I'm going to my doctors office today without an appointment. F 65 5 days
0.05% 2X day
9/19/2013
Email
 1  Chronic Dry Eyes Splitting headache, burning eyes after use, pain in left temporal everyday for three weeks, & high blood pressure reading. I've' never been diagnosed as having high blood pressure. I checked my pressure the third week because of bad headaches, it read 168/84. My pressure always read 127/70, no more than 130/ 70. I am sure Restasis caused the problem. I will no longer take that expensive sickened Rx. Money wasted! F 74 3 weeks
6/27/2015
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