BONIVA Reviews (IBANDRONATE SODIUM)

Average Rating: 1.3 (1602 Ratings)

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 BISPHOSPHONATES

 Type: Rx Drug

  

BONIVA  (IBANDRONATE SODIUM):  Ibandronate is used to prevent and treat certain types of bone loss (osteoporosis). Osteoporosis causes bones to become thinner and break more easily. Your chance of developing osteoporosis increases after menopause, as you age, or if you take corticosteroid medications (such as prednisone) for long periods. This medication works by slowing bone loss to help maintain strong bones and reduce the risk of broken bones (fractures). Ibandronate belongs to a class of medications called bisphosphonates.   FDA Approval Date: 2005-03-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR BONIVACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Osteoporosis / Osteopenia Have taken Fosamax 70 MG daily for 3 years. Went on Boniva 150 Mg for 1 year. Have serious acid reflux. Spitting up pure acid. Recently my fingers and hands have started swelling. Now my arthropedic doctor told me after taking blood tests that I have symtoms of Rheumatoid Arthritus and is sending me to an RA specialist. I am going to get off Boniva to see if this has caused the RA symtoms. I asked my specialist if he thought the cause was Boniva and he said, "no" but if you want to make sure, the only way is to get off of it completely. Will do just that. Now that I have read all of these symtoms I realize that I also have had them and have ignored them and written them off to age. A year after I retired, I had severe burning of the bottom of my feet. I also noticed muscle weakness in my legs and arms. Back pain and overall muscle weakness. I am very worried that I may have severely shortened a healthy life span by taking this medicine. Can anyone tell me whether, after having gotten off of these medicines, that their symtoms have been reversed to any extent or have we damaged our health to the extent that this cannot be reversed? F 66 4 years
8/21/2007
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 2  prevent further bone loss 30 hours after 1st monthly dose, I began experiencing mild stomach pain, nausea and exhaustion. By the end of the next day I thought I must have the flu or food poisoning. The next day it was much worse, but I remembered reading the side effects in the product literature. I checked the literature again and realized I was experiancing a drug reaction. It is now 7 days from the first dose, and the severe stomach pain, nausea, and fever have subsided; joint pain, chest pain, and dizziness have increased; sore throat, vision problems (spots) and headaches are intermittent. With ibuprofen the pain is manageable, but the dizziness is still there. Reading all the other posts, I feel pretty lucky that the worst of it seems to be over, and am hoping the remaining symptoms continue to decrease, but I am not taking another dose. Dr. suggested the drug, saying I may feel some nausea or heartburn the with the first dose, but to try to hang in there, it should only last a week, and it would get better after the first dose. Interesting to note some of the others' accounts where symptoms didn't appear until much later. It confirms my suspicion that, for me, the symptoms would only continue. F 55 7 days
8/22/2007
 1  OSTEOPOROSIS EXTREME LOW BACK PAIN ESPECIALLY IN THE MORNING. IT WAS THE WORST LOW BACK PAIN I HAVE SUFFERED SINCE GIVING CHILDBIRTH. IT WAS A CRACKING SPLITTING PAIN. I WOULD NEVER TAKE IT AGAIN. I ONLY TOOK IT 3 TIMES. BY THE SECOND DOSE THE PAIN WAS WORSE. BY THE 3RD DOSE THE PAIN WAS UNBEARABLE. THAT IS WHEN I REALIZED IT WAS NOT NORMAL.WHY ARE THESE SYMPTOMS NOT MENTIONED IN THE SIDE EFFECTS. I EVEN WENT TO A CHIROPRACTOR THINKING I HAD DEVELOPED AN UNUSUAL LOW BACK PROBLEM. I AM TELLING EVERYONE NOT TO TAKE THIS MEDICATION. THESE DRUGS NEED TO BE TESTED LONGER BEFORE THEY ARE RELEASED. F 54 3 months
8/23/2007
 1  osteoporosis I took my first boniva 7/21/07. Within 24 hours, I thought I had the flu. I had been to my yoga class and had lifted weights, so I thought the soreness in my back, neck and joints could have been from that - however, this has been my routine for some time, and I hadn't had this problem before. Later that day, my stomach started cramping and I felt extreme fatigue. Every time I eat or drink anything, my stomach cramps. Also, had diarrea and chills. Thanks goodness, I found this site last night - this will be my first and last dose of Boniva. Make sure you research this medicine thoroughly before you agree to take it. F 62 3 days
8/23/2007
 4  significant osteopenia The first time I took it, I had pretty much everything - the flu-like symptoms, the aches, the weakness. After reading this site, I was reluctant to try again. However, my Dr convinced me to try it once more, and everything was fine this time. So, those of you who had a bad first experience, try it again - it might just be OK. Also, I think that getting lots of calcium in my diet (not supplements - milk and yogurt) helps. I feel stronger than before. This is a strong drug, and one should expect side effects. But theh option for me (being crippled with fractures) is not acceptable. I hope to be able to use this to help me get more density with my exercise and diet so I can stop taking it later. F 51 2 months
8/27/2007
 1  osteoperosis I have previously posted to this site. I am responding to 48 year old female with osteopenia that posted on 8/18/07. I too had the extreme fatigue. I would like the once monthly Boniva and by that evening would begin experiencing extreme fatigue. I missed work and would spend the next 48 to 72 hours sleeping - only waking up to use the bathroom or eat a small bite several times a day. I felt like I was run over by a mack truck. I had many other symptoms and after trying to take this medication for 4 months I stopped. I just couldn't take it any more. My quality of life was diminished. I now take an over-the-counter product called "Bone-up" (a mixture of vitamins that are needed to build strong bones). I plan to continue on this path and have my bone scan repeated in one year. If I am stable, I plan to continue doing taking Bone-up. If it has gotten worse, I guess I will try another product and hope for the best. Best of luck to you!!! This is the worst medication-way to many adverse side effects. I would not recommend this medication to any one!! F 43 4 months
8/27/2007
 1  Osteopenia On day following the initial monthly dose, I experienced severe back pain. I attributed it to sleeping in a bad position. I had never experienced muscle spasms (mid-thoracic) where I could barely stand or function. Following high-dose antiinflammatories, the back pain is better. Now I'm experiencing leg cramping and myalgias limiting normal exericise. The flu-like malaise, profound fatigue and lack of energy led me to look at the side effects of this drug. At this point, I see no reason to take the medication next month. I'm eager for my system to clear of the drug so that I might resume normal life. Additionally, my normal cheery personality is blunted significantly. Our doctors do not know enough about the horrible side effects of this medication. I would rather live with weak bones rather than alter my active lifestyle. Do not take this medication. F 53 17 days
8/27/2007
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 3  Oseomalacia, osteoporosis First Boniva injection in May was great. Bone pain improved. Second injection in August was horrible. Experienced severe bone pain lasting three days, muscle spasms, headache, nausea. I work in the medical field and have had other patients state they have experienced the same effects after taking second injection. F 54
8/30/2007
 2  Osteopenia Aching and stiffness in my neck,shoulders and back. It is so severe that I feel 100 years old! The pain lasts for 3 weeks or so and then gets somewhat better, before I take my next dose. I am 55 years old, and in excellent health. I was diagnosed with Osteopenia two years ago and started taking Fosamax. I took Fosamax for 1 year, when I learned about Boniva from TV advertising. At my next annual checkup, I asked my gynecologist for Boniva instead of Fosamax because the dosing appealed to me. I have been taking Boniva for 1 year, and have just had my second bone scan. My gynecologist told me that I have regained some bone density, and he told me to continue taking the Boniva. For 4 or 5 months prior to my exam, I have been experiencing really sore neck, shoulder, and back pain. Aching and stiffness that just won't go away and lasts for a few weeks. I feel like an old lady . The aching almost goes away before taking my next month's dose. The pain goes on, but I've been ignoring it, chalking it up to getting older, and not ever connecting it to possible side effects of the drug. I didn't even complain to my physician! After reading the testimony on the website, I can now F 55 15 months
8/31/2007
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 1  Osteoporosis I took my second Boniva IV injection over two weeks ago, and I am still having back muscle pain and chest pains. I was literally crippled for several days after taking the Boniva. My doctor told me after the first injection that the symptoms that I was having could not possibly be the Boniva - well, think again!! I will NOT be taking the third one! The next one could permanently cripple me or kill me! F 59 6 days
8/31/2007
 4  Thinning bones Do people actually expect not to have side effects and other symptoms when taking a drug that actually grows bone?? A bone fracture will definitely cause discomfort, infection and possible death. Quit belly aching and take your medicine! F 62 4 months
9/3/2007
 4  osteopenia I've been taking Boniva for well over a year for osteopenia. My bone density has remained the same, so perhaps it's keeping me from further bone loss. I have had no side effects that I'm aware of. While I have trouble staying asleep as well as trouble losing weight, my gynecologist has told me that these are very common post-menapausal symptoms so I don't attribute it to any medication, including Boniva. F 64 20 months
9/3/2007
 1  Osteopenia The day I took Boniva, I ended up with severe diarrehea and the next day I had to leave work with severe nausea and very severe "flu like" syntoms. I hurt so badly, that I could not stand to be touched. Every muscle and bone hurt in my body. Since then, every bone that I have had a problem with (due to a horse rolling on me 20 years ago) hurts so badly that it is difficult to sit at my desk and I can not stand for any length of time. I seem to be better when I move around a lot. It has been 2 1/2 weeks since I took my one and only dose and I have a call in to the doctor for severe back pain, hip pain, left (yes, left) shoulder pain, and neck pain. Last night I stood at the kitchen sink for 15 minutes and had excruciating pain. My rib cage felt like it was caving in on itself. This is really poisen to my system. I asked the doctor what the side effects were and she said they were mild. I really wonder if I will ever feel right again. The pain is incredible. No more Boniva or any other like drugs for me! Will do soy, calcium and vitamin D. F 57 17 days
9/5/2007
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 1  osteoporosis I had purged my med list of all meds with back pain as a side effect and had been feeling great. New doctor concerned about my osteoporosis and height loss suggested Boniva. Tried monthly oral for 2 months. Due to reflux issues he suggested the IV. April 2007 first IV. Niggling back pain started so I started seeing a Chiropractor but no real relief for mild to moderate pain. On the 2nd of July I had my second IV. That evening back muscle pain started ratcheting up and by the 4th of July I was in severe muscle spasms. Flexeril & ibuprofen gave minor relief. A chiropractor specializing in soft tissue treatment (+ flexeril & ibuprofen) gave short periods of relief. Slowly the back pain is subsiding after 9 weeks. I have also had pain in the arches of my feet and charley-horses in calves. Dr. doesn't think that this was caused by Boniva and that symptoms are coincidental. I felt great until I started Boniva. I do not intend to take that risk again as I have been barely I am afraid that we are victims of advertising drugs that are not really the miracle cures that are portrayed to us. The only miracle cure is in the pocketbook of the drug companies. F 63 7 months
9/5/2007
 1  borderline osteoporosis neck pain and stiffness, back, shoulder pain, flu-like symptoms, spacey feeling, lower jaw pain (especially where I had dental work done in the past) nausea, bloating, loss of appetite, muscle aches and stiffness, lethargy, hands and fingers stiff, ache - and unable to open jars or make a fist, chest (sternum) discomfort, ringing of ears, headache, burning feeling of joints upon movement, weak. Took first pill 2 days ago - just a little heartburn after swallowing the pill, burping....then 36 hrs later all of my symptoms started. I will never take Boniva again...and I am going to file a complaint with FDA and with Roche. Please, if others have had these side effects and are now over them - please post your experience to encourage those of us who are suffering. F 58 3 days
9/9/2007
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 1  bone loss legs and arm ache, thought I had the flu. Vomiting OMG thank you for letting me know its the drug and not me How long till its out of my system? F 49 5 months
9/10/2007
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 1  bone thinning I can hardly walk when I get up the morning. After I get going the pain in my feet get better, but it's still there. Also, my hip bones may ache at times. I tried taking this drug once before even after I was warned by others that it had bad side effects. I stopped taking it and went to my chiropractor who said my body was way out of whack. I thought that was the reason for my pain, so I started back taking it recently, but I've had it with Boniva. Never again. F 56 2 months
9/10/2007
 1  doctor reccomended for prevention o FLU LIKE SYMPTOMS ??????? you feel like your dying ...chills, feverish , aches ,lost of strenghth ....couldn't even see straight. after 1 monthly pill !! Believe the people here................... F 52 1 days
9/11/2007
 1  To build bone density I took my first - and only dose - Sunday morning 9/9 - as instructed. By noon Monday, 9/10 I was experiencing back and muscle pain all over my torso. I felt like someone had taken a baseball bat to me. I couldn't even take a deep breath, getting up out of a chair was toturous. I have felt an ovary explode and only screamed or cried at the point of it bursting, so I have a very high tolerance for pain. But last night I couldn't sleep becuase everything was hurting so badly, I just laid in bed and sobbed. I am an otherwise healthy, active 45 yr old woman who walked my 70 lb dog daily until last night. I couldn't even walk her because every step reverberated the pain throughut my torso. My sternum, my ribs, shoulds, neck - even my breasts are painful!! DO NOT TAKE THIS DRUG!!! I will be sending a letter to the FDA, the manufacturer and hope they take this drug off the market until further testing or at least full disclosure is made part of the packaging and promos that run every 5 minutes. I feel so taken advantage of....tsk! tsk! I go back to my doctor this Friday and let's just say he is going to get an eraful about this 'health product'! Let me grow old naturally!! F 45 3 days
9/12/2007
 1  OSTEOPOROSIS TOOK BONIVA ONE HOUR PRIOR TO BREAKFAST. FINE THROUGHOUT THE DAY. WENT TO BED AROUND 8 P.M. WOKE UP AT 2:00 AM MORE SICK THAN I HAVE EVER BEEN IN MY LIFE. VOMITTING AND THEN DIARRHEA. PAIN IN MY BACK AT THE SHOULDER LEVELS WAS INTENSE. HAD LESS INTENSE PAIN IN LOWER BACK. SYMPTOMS CONTINUE BUT SEEM TO BE IMPROVING TODAY - DAY THREE! I WOULD NOT RECOMMEND THIS DRUG TO ANYONE AND I THINK THE FDA PREMATURELY APPROVED BONIVA. I THINK A LOT OF DRUGS ARE STAMPED FOR APPROVAL WITH INSUFFIENT CLINICAL DATA OR WITH DATA WHICH HAS BEEN MANIPULATED BY THE DRUG COMPANIES PERHAPS. SOMEWHERE IN THE LINE OF APPROVAL SOMETHING IS DRASTICALLY WRONG. F 67 3 days
9/13/2007
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