BONIVA Reviews (IBANDRONATE SODIUM)

Average Rating: 1.3 (1602 Ratings)

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 BISPHOSPHONATES

 Type: Rx Drug

  

BONIVA  (IBANDRONATE SODIUM):  Ibandronate is used to prevent and treat certain types of bone loss (osteoporosis). Osteoporosis causes bones to become thinner and break more easily. Your chance of developing osteoporosis increases after menopause, as you age, or if you take corticosteroid medications (such as prednisone) for long periods. This medication works by slowing bone loss to help maintain strong bones and reduce the risk of broken bones (fractures). Ibandronate belongs to a class of medications called bisphosphonates.   FDA Approval Date: 2005-03-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR BONIVACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  osteopenia Extreme pain, difficulty breathing, flu-like symptoms - all within 24 hours. This is a long-acting drug so if you want to feel like someone is stabbing you in the ribs and suffocating you for a month go ahead and take it. If not, run, don't walk, away from this drug! The SEVERITY of these side effects is not listed on the patient info sheet and I can't believe that DOCTORS are not more aware of it. I'm not going near this drug ever again. Don't take this drug! F 56 1 days
1X M
2/13/2011
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 1  osteoporosis I started Boniva in August, had extreme heel pain in Sept. Plantar Fasciitis, not sure related to Boniva. Jan.7th took monthly dose, woke on 8th with stiff neck. Started feeling stiff and achy all over. Woke at night with extreme pain in hips, legs and arms. So weak, couldn't turn over. Used wall for support to get into bathroom for aspirin. Woke up every night shivering and shaking until aspirin took effect. Jan. 17th still stiff, achy and weak but started having severe pain in right jaw. Jan. 20th had full physical and blood tests. Jaw pain radiated across mouth. Constant,severe pain in jaw, gums and every tooth, could barely open mouth. Jan.21st jaw pain extreme on left side and up into left eye. Whole jaw swollen, eye swollen, tongue and glands swollen. Jan. 27th test results all negative except one showing high inflamation in body. MD prescribed 60 mg. predisone. Within 24 hours feeling much better, aches, pains and weakness subsiding; however, mouth pain lessened but lingering. D I was diagonosed with osteoporosis in 2002 and started taking Fosamax weekly along with calcium, and vitamin D. Problems with constant indigestion. Doctor changed me to Actonel weekly. I tolerated this better but still had some indigestion. 2008 bone density test showed I still had osteoporosis. Doctor switched me to 75mg. monthly Actonel. Actonel discontinued this dosage so I was forced to 150 mg. per month. August 2010 new insurer, Medco, notified us that it will not cover Fosamax or Actonel. Doctor switched me to Boniva 150 mg. I took Boniva five times before extreme adverse reaction. F 62 5 months
150 mg. 1X M
2/8/2011
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 1  doctor insisted for osteoPENIA SEVERE stiffness; increasing pain in shoulders, arms, hands; shooting sharp pains in thumbs up arms; acid reflux; heart "flutters". I only have osteoPENIA in my wrist [have never fallen or broken a bone], but doctor insisted I take it even though it is not recommended for osteopenia. Started with Fosamax; when I complained of significant discomfort, doctor switched me to Boniva. Stupid. I did not realize they are basically the same. I started reading. Threw the Boniva out. My friend stood up and got a vertical femur fracture. I connected my other symptoms. Now I am really angry. How would you NOT have achy, brittle bones when your body is only keeping old bone and not making new flexible bone??!! Bisphosphonates should be banned and we should be compensated for being guinea pigs. Shame on the doctors for being pawns for the pharmaceutical companies. F 67 2 years
30 mg 1X M
2/5/2011
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 1  osteopenia Severe muscle,joint and neck pain,103 temp,fever,chills. I still have neck/joint pain. I had one treatment 12/2010 and have not been the same since. I hope this is not my new normal.I've had the same issues as many who have posted. I only hope this drug has not done any permanent damage because the symptons keep lingering on. M 63 1 days
3mg 1X day
2/2/2011
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 3  Clinical trial/normal bone mass I had stage 1 breast cancer 2 yrs ago. I am in a clinical trial of Boniva. Boniva has an off-label effect of preventing bone cancer in woman who had breast cancer. I also have normal bone mass (+1.7 sd above mean). I have to have a kidney panel done every 3 months to make sure the phosphate does not damage my kidneys. So far so good. I have to be on this another year. Like other women, I experience severe bone, joint and muscle pain in my feet, legs and hips. I hobbled and limp for several minutes in the morning ro any time I sit for longer than 30 min. I have to stretch more and longer before going to work or exercising. Happily, after stretching and "walking it off", I am able to run long distances, regularly. I am running 1/2 marathons and getting ready to move up to marathons. For some reason, the pain does not equate as actual injury. So far I have had no stomach problems. I do have insomnia but that may be from the anti-hormonal I also have to take. Being a breast cancer survivor and taking Boniva to prevent future cancer gives me a different perspective on the daily pain. I do have to stretch and warm my muscles up more often, replace my running shoes more often but if I can still run marathon distances ans never get cancer again, the pain I get from Boniva is worth the small amount of suffering. Believe me, this is nothing compared to chemo, radiation or potentially dying. F 55 2 years
1X day
1/30/2011
 1  osteopoenia This was the most painful reaction I've ever experienced. I had SEVERE muscle pain for 6 days followed by flu like symptons. I begged the medical professionals for something to get relief. I ended up having to take 800 mg of pain relief every four hours. This is a terrible medication. I can't understand why there aren't better warnings about the painful side effects of this medication. F 58 1 days
150 1X M
1/29/2011
 1  Osteopenia F 51 14 months
150 1X M
1/28/2011
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Patient History
 1  I have osteopenia Aches in my hands and fingers. Also lower back pain. I will not continue to take Boniva. F 56
1X M
1/27/2011
 1  Dr.ordered it for pervention Necrotic infeced bone with ulceration and reactive epithelial hyperplasia, consisent with bisphosphonate-related osteonecrosis I would not take this med again. I think I would be better off taking nothing then the side effects of this med. F 74
150mg 1X M
1/21/2011
 1  ostopenia Jaw pain, pain/swelling in hands, neck pain, hip pain, fatigue. Gradually grew worse as I took the drug each month. Given a 1 month trial and then took a 3 month prescription. I stopped taking after 4 months of use. I have been off the dug for over 6 months and I still have sore/swollen/stiff joints in hands/fingers and jaw is still sore. I had not had any problems with my hands or jaw until I took this medicine. It is my prayer that the toxins in this medication will get out of my system and the system of the other persons who experienced physicial issues after taking this drug. I would like to know how long it will take for the poison to be eliminated from my body!! F 52 4 months
150 MG 1X M
1/13/2011
 1  I wasn't Boniva will increase bone density but it will not make your bones stronger.All it does is make it so that you don't lose old bone. Old bone is brittle bone. It looks good on a bone scan but Boniva bone is brittle bone. There is no therapeutic value to Boniva. My wife will not be using this poison. Calcium, Boron, exercise vitamin D and HRT are the proper treatments for bone loss. M 55
1X day
1/9/2011
 1  bone loss severe stomach pain starting the next day, flu like symptoms, severe pain in hip, back & sternum, weakness, joint pain, muscle pain, difficulty standing. I have never felt this bad. Stabbing pain in my stomach, pain between my shoulder blades through to my chest making it painful to breath. Pain in my back & hip making it hard to stand up from a sitting position. Weakness. It's been 6 days since I took my first & only dose and I'm still having severe pain & weakness. I would never reccomend this drug to anyone. Boniva should be taken off the market, no one should ever have to feel this bad. F 54 1 days
150 mg 1X M
1/8/2011
 1  osteopenia I am an advanced practice nurse and taking boniva for 4 months. I have experienced indigestion, nausea, bloating, and joint pain on the mild side until my most recent dose of the drug. For the past 3 days I have had extreme stomach pain to the point that I was sure I was having a heart attack. I have had esophageal spasms and reflux. I will never take this medication again and I encourage all women to take it with caution and stop immediately if symptoms occur. F 50 4 months
10 mg 1X M
1/8/2011
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 1  Osteoporosis I had pain from head to toe in every joint & muscle before i found out what was going on I had not taken any medicine for this at this point until Dec 28th 2010 this is how i found out i had Osteoporosis for 6 months miss diagnosed, i was in really good health and in shape it started in my elbows a year ago now i ‘am in truly bad shape and scared. I took Boniva one time it has been 14 days I have gnawing bone aches all over my body mostly at night can’t sleep also not good for your health the only thing that help was the ant-inflammatory shot. I have pain meds sometimes it is the only way to get some sleep but not really a good sleep. I am going to take several natural supplements to make sure that all systems are working and take the natural supplement path I have an excellent nutritionist and with a lot of faith going to go this route don't have much else to lose except Family & life but that seems to be taking place each day Just have to think positive and let I will say this it may only affect some of us adversely but that is still way too many to suffer for a drug that may or may not work. It truly may help others without side effects but are you willing to risk it. M 48 14 days
150mg 1X M
1/7/2011
 1  Pnysician prescribed Diarrhea--I experienced total body aches, especially neck, shoulders and back--severe abdominal stabbing pains, total weakness, light sensitivity and tingling in my finger tips. I am wondering how long it will take to get this totally out of my system--I feel as though I have been poisoned. Please, if your physician recommends this to you, consider any alternate program that might available. Please tell you mothers, your sisters and your friends to make them aware as I hope they will not experience what I have. I will not use it again. F 55 2 months
150mg 1X M
1/5/2011
 2  Osteoporosis First I felt mild upset stomach, I thought it was something I ate. Normally when that happens, if I go to the bathroom a few times, and let my bowl movement release the content a few times until it's like diarrhea, then everything will be fine again. This time, I was never be able to release the upset feeling via diarrhea. As days go by, my stomach feels more and more bloated. I took my first Bonvia in the morning of 1/1/2011. It was the 150 mg once a month pill. By the night of 1/2/2011, I felt mild upset stomach. I went to the bathroom several times, and was not able to get things out of my body via diarrhea. Normally it will work with a few consecutive bowl movements. On 1/3/11, I had some bowl movement, but the content were little. Before I went to bed, I tries drinking a cup of warm water with lemon. It did not help or induce bowl movement. On 1/4/11, my stomach felt more and more bloated. My diet has been the same, but now I start to feel constipated. I cannot figure out what I ate in the past few days that might cause this. Then I wondered if it has anything to do with Boniva. I never have constipation in my life. My bowel movement is always very normal and regular. I asked my doctor could it has anything to do with Boniva. My doctor said that the Bonvia side effect are more like indigestion, diarrhea than constipation, which is the opposite of diarrhea. I had a acupuncture treatment to improve the constipation situation, and continued to drink warm water. No improvement still. I then checked on the internet, and found that constipation is one of the possible side effect listed near the bottom. I bought MiraLax in case I cannot stand the bloated feeling any more. I have not yet taken it, because I fear that if I took MiraLax, then the Boniva medical effect will be washed away. After all, Bonvia is such an expensive drug. F 54 1 months
150mg 1X M
1/4/2011
 1  osteopenia I have had a severe back pain that I've never experienced before in my whole life after the first and only one 150 mg dose of Boniva. Nothing can help reduce the horrible pain that I have. This is the fourth day that I had have this pain. Is there somebody knows how long will it take for the pain to go away and what should I take to help with the pain??? Please email me. DON'T EVER TRY TO USE THIS DRUG. IT DESTROYS YOUR SELF-ESTEEM,SELF CONFIDENCE, AND MAKE YOU THINK THAT YOU 'RE USELESS AND WEAK. F 51 1 days
150 1X M
1/1/2011
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 1  Low Bone Density Did not experience any side effects until 12-20-2010 which was exactly two weeks after having knee scope done. Went from 2 on pain scale to 8 within a matter of hours. After two weeks still having alot of pain, can only work 5 hours a day, will not continue to use Boniva any more. After having read more on Boniva, I now feel some issues I have had may be related to it. F 58 2 years
150 mg 1X M
1/1/2011
 2  Osteoporosis Jaw pain Indigestion F 69 10 months
50 MG 1X M
12/28/2010
 2  osteopenia For 2 1/2 - 3 years I had no side effects and bone mass increased. Dr. told me to skip x-ray for 2 years to avoid excess exposure. The Boniva cost $75 a month and I was fine so I cut back to every other month. Since May when I started this I've been fine . Now I've started with muscle pain, mostly my hips (frequent chiropractor trips), and bouts of terrible heartburn for the first time in my life. Has anyone else tried to cut back on this drug to every other month? F 59 3 years
150 mg 1X M
12/22/2010
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