BONIVA Reviews (IBANDRONATE SODIUM)

Average Rating: 1.3 (1602 Ratings)

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 BISPHOSPHONATES

 Type: Rx Drug

  

BONIVA  (IBANDRONATE SODIUM):  Ibandronate is used to prevent and treat certain types of bone loss (osteoporosis). Osteoporosis causes bones to become thinner and break more easily. Your chance of developing osteoporosis increases after menopause, as you age, or if you take corticosteroid medications (such as prednisone) for long periods. This medication works by slowing bone loss to help maintain strong bones and reduce the risk of broken bones (fractures). Ibandronate belongs to a class of medications called bisphosphonates.   FDA Approval Date: 2005-03-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR BONIVACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  Osteopenia Severe pain in my feet upon getting up after being off of them for any length of time, especially when getting up in the morning, knee pain, finger pain, shoulder pain. I didn't realize I was having any side effects from Boniva until I decided to stop taking it after hearing the reports linking it to an increased incidence of esophageal cancer. I just realized after being off of it for about 5 months now that all of my pains are totally gone! It did increase my bone density to the point that my spine is now normal and my hips are only slightly affected, so I am grateful for that but am glad I am no longer taking it. F 55 10 years
1X M
2/13/2011
 1  Osteopenia hip pain, lower leg burning and deep pain, insomnia and inability to sleep because of pain, lower energy levels, overall achiness (like I'm 100 years old) I think that I have actually been on this drug for more than 10 years. I asked for a scan, because I felt hip pain. I started on Fosamax because of osteopenia and also began exercising. The hip pain went away and my scan showed improvement. I was switched to Boniva because of the ability to take it only once a month. I don't remember when the leg pain started or when my hips started hurting again. I assumed it was because I was shirking on my exercise and on taking my calcium. I assumed the fatigue I started feeling last year was just aging, stress from working, improper diet, etc. I am now retired at 61. The stress is gone, I am eating well and taking supplements regularly, and exercising. I should be feeling stronger, but I'm not. At various times I have researched aging, restless leg syndrome, poor circulation, and fibromyalgia. I finally have the time to think about and look for information, and I was astounded to find every one of my symptoms listed on this board. I have also realized that the worst of my pain comes just after I have taken my monthly dose. (I don't know why I've never made this connection before.) After taking my pill 2 days ago I have had insomnia for 2 nights and have had extreme burning I'm my lower legs and pain in my hips. I will not take one more dose of this medicine, and I just hope that any damage done is not permanent. A WARNING to those who think they are safe because they have taken this for a couple years with no side effects. F 61 10 years
1X M
9/3/2011
 1  recommendation from doctor I never had any side affects and continued taking Boniva until I found out through my dentist, I had severe bone loss in my left jaw. He recommended I stop taking it!! I had one monthly pill left and it went in the garbage. I wonder if there is a class action suit filed? F 60 8 years
150mg 1X M
10/26/2010
 1  Osteopenia Weakened fibula bone on left leg. Broken in three different places within 18 months. Will have to wear leg brace for many years to come. Also my dentist is concerned about my bottom jaw shrinking. May have to have this addressed by a specialist. Boniva should pulled from the market. I suspect doctors are getting some kind of reward for prescribing this poison.. Two different doctors brushed me off when I voiced my concern. I took myself off the drug after the second break in my leg. The third break which happened today was the last straw. I have been off Boniva for eight months, but my bone strength will never return. I am damaged for life because of this drug. F 61 8 years
30mg 1X M
10/10/2013
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 1  osteopaenia I did not experience much in the line of side effects at all. However, after having bone densities done 2003, 2008, and now 2010 -- we can see the Boniva has NOT worked at all. I contacted the FDA via phone, and they guided me to filling out an Adverse Event form. They said, if it doesn't work, that is an Adverse event. F 64 7 years
150 1X M
5/31/2010
Email
 1  osteopenia Suffered a minor fractured ankle in Feb 2010. Xrays showed a prior fractured femur which my new orthopaedist says is most likely due to the long term use of Boniva/Fosamax. Stopped taking the Boniva May 2010 and will not take it again! Fracture is not healing as expected. And my new dr. reviewed my 3 bone density tests and told me that there was no need for me to have ever taken these drugs! DO NOT TAKE THIS DRUG!!! Can we please have a class action lawsuit? You take this horribly expensive drug thinking that you're doing the right thing (in addition to taking calcium, Vit D, exercising, eating right)and it turns around and causes "brittle bones"---that's not right! F 61 7 years
150 1X M
6/15/2010
Email
 1  Osteoporosis Red, tearing eyes. A doctor recently took me off of Boniva and thinks that this has been causing my problem for the past 6 years. No one, including myself, has ever connected it to Boniva until now. Has anyone experienced this condition? F 75 6 years
1X M
2/5/2010
Email
 1  Osteoporosis Burning mouth and loose teeth; hair loss; muscle pain all over my body; debilitating fatigue. I wonder if anyone else has lost libido? The symptoms came on slowly and it wasn't until my mouth started burning and my teeth got loose that I began to wonder what was wrong. I'd had a hip replacement and attributed the pain in my legs to that. But my arms and neck also hurt and my hair was falling out. I also had indigestion and fatigue. i would come home from work and lie down and my husband would have to wake me for supper. Then I would be in bed asleep by eight. Also, my thiking was (is) fuzzy, and my eyesight has deteriorated. I'm 69 and my 83-year-old sister-in-law can run rings around me. I hope this goes away. I was taking Ibandronate Sodium, generic for Boniva. Massage therapy has helped somewhat, but there is still pain in the arms, legs and back. F 69 6 years
150 mg 1X M
9/30/2012
 5  osteoporosis None My bone loss has improved from -3.0 to -1.5 F 61 5 years
150mg 1X M
2/8/2012
 5  Broke hip in 2008 none - maybe some dyspepsia I am lucky- I have Epilepsy which I was told by my Ortho surgeon that "this med for seizure control- did take away your bone density." Great! What do you want - good bones or be able to function & live seizure free? So I take Boniva. Have a dexa scan every 2 years & I have gone up but not far enough so am taking this a few more yrs. Also calcium/ Vit D. So far, so good. I love this med!!!! F 61 5 years
150 mg 1X M
3/18/2014
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 4  Bone density score very bad A little flutter in my heart when I am bicycle riding up hill for a long distance at fast speed. No problems at all reported with Boniva. I have been on Fosamax and later switched to Boniva for 11 years total. M 53 5 years
1/26/2010
 3  Osteopenia When I first started taking the drug it upset my stomach. After a few months my stomach discomfort lessened. However, I have continuously suffered from low blood calcium even though I am taking calcium and vitamin D supplements. My doctor keeps increasing the amount of calcium I take but it doesn't improve my blood calcium count. I am now considering going off the boniva because my doctor tells me low blood calcium is bad for mt heart. I want to try and improve my bone density by exercising more and lifting weights. F 66 5 years
150 mg 1X M
1/14/2015
 3  osteoporosis Two years ago similar mysterious symptoms: extreme fatigue, pain in soles of feet (plantar fascitis), chills. Blood and thyroid checked out fine. Last year acid reflux. This spring 6 weeks of flu-like aches and nausea, fatigue and nausea that come and go at will, insomnia. I used to take Fosomax and about five years ago switched for the convenience of Boniva. My bone density remains -3.7 or something. I always have taken supplements. Two years ago I mysteriously felt a lot of aches and felt very fatigued. This year, around the same time of the year, I now experience persistent and debilitating fatigue, acid reflux, nausea, and insomnia. As before, the palms of hands and soles of feet get hot, red, and in pain. I have foot problems anyway, but the plantar fascitis flares up markedly. Terrible inability to either fall asleep or get back to sleep. Pains in abdomen. Pain in hip. Once the doctor returns from week-long spring break, I hope to research precisely when the switch to Boniva from Fosomax took place and the bone-density readings over the past 8 years, but it beings to look like either Fosomax or nothing will suffice. Staying off sleep meds, pain meds, and antacids -- using aroma-therapy and tart cherry juice for sleep. Always have slept poorly, but this amount of insomnia is crazy. Have not experienced this incredible fatigue and sluggishness before two years ago -- and this time it combines with nausea for days or hours at a time. F 67 5 years
not sure 1X M
4/3/2017
 3  Osteoporosis I have been on this medication for five years now. Starting to have some stomach issues so I'm off it for at least a few months now but my bone density is pretty much status quo which I think is good. 61 5 years
150 1X M
1/28/2023
 2  Osteoporosis Throat and stomack burning. Loss of weight due to chronic indigestions. I can eat a very little variety of food, because everything else gives me pain in my stomack. in spite of all this Bonviva has worked only during the first two years. after that my bone density has decreased dramatically. I have been taking vitamin D along with the Bonviva treatment. The doctor has labeled me as "Weird" and has refused to accept Bonviva is not working anymore. Boniva has worked on my bone density for the first two years only. During the next three years my bone density has decreased dramatically F 63 5 years
1X M
7/24/2015
 2  osteoporosis in one vertebral body Rotator cuff syndrome (both shoulders) requiring major surgery in one shoulder, plantar fasciitis for the last 15 months (both feet; orthotics, cortisone shots, night splints did not help - cannot walk without pain), thumb pad pain (both thumbs). I was looking for some kind of connective tissue disease that would explain my symptoms, but after researching it, I suspect the Boniva. Is this what Roche means by "severe muscle, bone and joint pain" as a possible side effect? No more Boniva. I'll take my chances with the osteoporosis, as my quality of life now sucks. I used to be a runner before Boniva, but now I can't even walk without pain. FML! F 54 5 years
2/1/2010
Email
 1  osteoporosis Horrible heart burn and pain in arms wrist and thumbs. I feel the awful pain I felt was from boniva, My husband died and I passed all the problems with my body were from grief...How wrong I was... F 67 5 years
1X M
3/31/2010
 1  Osteo OH MY GOSH! I've experienced the same symptoms so many of the respondents have. I've been taking Boniva on-and-off five years. Sometimes skipping a couple of months 'just because' I don't like taking drugs constantly, I never once attributed any of these symptoms to Boniva. This week, I've been experiencing terrible jaw pain that radiates up-to-and-into my cheek bone. I have a dentist appointment this afternoon to check for TMJ. All of my teeth ache, hurt; Advil and warm compresses help but not enough. I will definitely tell the dentist about taking Boniva..this could possibility be a definite side effect. Wish I had know about this website sooner...ALSO, my platelet count has been significantly reduced...no one seemed to understand why. Now I know. I'm not sure taking this drug is worth the side effects. More information should be given to the public ~ let us make the choice, not our doctors or the pharm industry...At this point I definitely would not recommend it to others.. F 65 5 years
150 1X M
4/15/2010
 1  osteopenia severe explosive, liquid diarrhea for 2 to 3 days each month after taking medication, episodes of atrial fibrillation requiring coumadin and sotalol, swelling of feet, ankles, wrist and hands , Bone density tests show improvement , but the side effects, especially the atrial fibrillation are severe, my cardiologist has recommended going off the boniva for several months , and maybe permanently. The improvements to bone density have been very small, and I'm talking about 5 years of taking this drug! F 62 5 years
150 1X M
5/4/2010
 1  osteopenia pain in hips very bad,would scream out loud when bending over ,knees,shoulders,neck,feet. I kept getting worst,but didnt know it was the Boniva till my Mom heard it on Tv. I stop taking it.I feel better in hips.I dont scream out loud ,just a loud ouch now.But pain the other places still have too,but better. before taking Boniva I used to be able to walk ,stand and sit along period of time. That is all over for me it has been for years. I so wish I research it. But I trusted my doctor. I feel it ruin my life too. Im not the same as I was before.I cant believe they gave such a drug to us women,making us worst. They shouldnt be able to get away with that.Boniva should be tooken off the market.So other women dont go threw this. F 52 5 years
30mg 1X M
6/30/2010
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BONIVA  (IBANDRONATE SODIUM):  Ibandronate is used to prevent and treat certain types of bone loss (osteoporosis). Osteoporosis causes bones to become thinner and break more easily. Your chance of developing osteoporosis increases after menopause, as you age, or if you take corticosteroid medications (such as prednisone) for long periods. This medication works by slowing bone loss to help maintain strong bones and reduce the risk of broken bones (fractures). Ibandronate belongs to a class of medications called bisphosphonates.   FDA Approval Date: 2005-03-24 (Sources: U.S. Centers for Medicare Services, FDA)

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